An evaluation of personalised supports to individuals with disabilities and mental ill health.

Transcription

1 An evaluation of personalised supports to individuals with disabilities and mental ill health. Roy McConkey University of Ulster Rachel Stevens Empower All Brendan Bunting University of Ulster Marie Wolfe Empower All Edurne Garcia Trinity College Dublin

2 Drivers for personalisation Community Services Self and family Advocacy Value for Money Rights and Equal Opportunities

3 Longitudinal Study Intellectual Disability services (N=12) [n=116] Physical disability services (N=3) [n=17] Mental health services (N=8) [n=64] NGO and State Variable size Length time Time 1 Oct-March 2011/12 Time 2 May July 2012 Time 3 Nov-May 2012/13 Time 4: April- Aug2014

4 Time 1 Time 4 Congregated Congregated Group Homes Personalised Personalised Personalised Family Carers Family Carers

5 The number of persons in each accommodation option at the four time points 100 T1 T2 T3 T Personalised Group Home Congregated Family

6 Use of specialist services Personal supports Use ordinary services Better Life Living arrangements Relationships Healthy Lifestyles Valued Roles

7 Information Gathering Structured Questions Rating Scales Interviews

8 Domain Personalised accommodation Personalised Supports Relationships with people not paid Valued roles in the community Healthy Lifestyle Use of mainstream public services Use of specialist disability services Significant indicators Has a key to the house Free to come and go as you please Chooses own support staff Had training in advocacy Has individual plan Friends visited for a meal Friends stayed over Neighbours have provided help Made new friends in past year In paid employment Has done voluntary work in the community Helped neighbours Less anxiety Average weight Participates in sports, swimming, fitness Does not attend a day centre

9 % with Key to the house Family at T1, T3, T4 Personalised at T1, T3, T4 Congregated at T1 to Personalised at T3 or T4 Congregated T1 to Group Home T3 or T4 Congregated at T1,T3, T4 % Yes Time 4 % Yes Time 3 % Yes Time 1 0% 20% 40% 60% 80% 100%

10 % with Friends come for a meal Family at T1, T3, T4 Personalised at T1, T3, T4 Congregated at T1 to Personalised at T3 or T4 Congregated T1 to Group Home T3 or T4 Congregated at T1,T3, T4 % Yes Time 4 % Yes Time 3 % Yes Time 1 0% 20% 40% 60% 80%

11 % taking part in sports, fitness Family at T1, T3, T4 Personalised at T1, T3, T4 Congregated at T1 to Personalised at T3 or T4 Congregated T1 to Group Home T3 or T4 % Yes Time 4 % Yes Time 3 % Yes Time 1 Congregated at T1,T3, T4 0% 20% 40% 60%

12 Informants People Supported Key Workers Relatives Service Managers

13 Organisation Leadership was crucial, right from the board of directors - recognising that we were going in a different direction to the one we had done... to the managers and also recognising the leadership capacity in individuals right across the organisation.

14 Genio Organisation We were part of a loose alliance of organisations who were all interested in doing this and who were sharing examples with each other of things they had done. It was kind of a learning community

15 Genio Organisation Staffing The other major factor for us was that our clients didn t see these people as staff. They had no previous history with them. People saw our Genio support workers as something different, something for them, so they took ownership of them. Once they took ownership of it, they flew with it.

16 Genio Organisation Staffing We thought our job was to get people their own homes and help them in their homes but in fact the job became helping people to discover who they were and how to make choices and what they actually wanted. Service Users

17 Genio The mindset of families is that they actually believe that Organisation their sons and daughters are children they don t fall into the category of adults. And that is our fault as service providers, to have let that happen and not to have challenged that. Relatives Staffing Service Users

18 Genio Organisation The project has made the wider organisation see that the closure of the institution is a reality and community integration with a valued meaningful life chosen by the clients can be a reality Relatives Commun -ication Staffing Service Users

19 Genio Organisation Staffing Finances Commun -ication Community Contacts Housing Relatives Service Users

20 Service Labels Personal Budgets Identity Forming National Personalisation Implementation

21 Contact