National Health Council 1730 M Street NW, Suite 500 Washington, DC

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1 National Health Council 1730 M Street NW, Suite 500 Washington, DC Communication Affinity Group Greg Cash Director, The ALS Association 1275 K Street NW Suite 1050 Washington, DC Phone: Fax: Niles Frantz Senior Associate Director PR Director Alzheimer's Association 225 North Michigan Ave 17th Floor Chicago, IL Phone: Fax: Virginia T. Ladd, RT President & Executive Director American Autoimmune Related Diseases Association Gratiot Avenue East Detroit, MI Phone: Fax: Andrew Becker Director, Media Relations Greg Donaldson National Vice President, Corporate Fax: Judy Fortin Sarah Goodwin Director, Internal Fax: Wendi Klevan Director, Medical & Scientific Fax: Page 1 of 9

2 Amy Swygert Director, Strategic Planning 1599 Clifton Road NE Atlanta, GA Fax: Steve Weiss Director of Media Advocacy 1599 Clifton Road NE Atlanta, GA Phone: Fax: Christine Feheley Managing Director, External American Diabetes Association 1701 North Beauregard Street Alexandria, VA Phone: Fax: Kevin Kase Director of Internal & Volunteer American Diabetes Association 1701 North Beauregard Street Alexandria, VA Phone: Fax: Suzanne Takeuchi, MBA, PMP Director, Marketing Operations American Diabetes Association 1701 North Beauregard Street Alexandria, VA Phone: Lois A. Witkop, MBA Senior Vice President Marketing American Diabetes Association 1701 North Beauregard Street Alexandria, VA Phone: Robert T. Gebbia Executive Director American Foundation for Suicide Prevention 120 Wall Street 22nd Floor New York, NY Phone: Fax: Lance Teegarden Manager American Foundation for Suicide Prevention 120 Wall Street 22nd Floor New York, NY Phone: Wylie Tene Public Relations Manager American Foundation for Suicide Prevention 120 Wall Street 22nd Floor New York, NY Phone: Matthew Bannister Executive Vice President, Phone: Page 2 of 9

3 Tim Elsner Director, Public Relations Dallas, TX Maggie Francis Manager Phone: Fax: Patricia Beatty Gonzalez Senior Manager Phone: Brigid McHugh Vice President, Dallas, TX Phone: Fax: Tagni McRae Manager, Corporate and Media Relations Phone: Penelope Solis Regulatory Relations Manager Retha Sherrod Director, Media Advocacy - Washington Office 1150 Connecticut Avenue NW Suite 300 Washington, DC Phone: Tamara Ruggiero Vice President, and Marketing American Kidney Fund Rockville Pike Suite 300 Rockville, MD Phone: Fax: Diann Rohde Vice President of American Liver Foundation 39 Broadway Suite 2700 New York, NY Phone: Mary Beth Gibson Manager Amputee Coalition 900 East Hill Avenue Suite 205 Knoxville, TN Phone: Kevin Manuel Specialist Amputee Coalition 900 East Hill Avenue Suite 205 Knoxville, TX Page 3 of 9

4 Susan Stout Chief & Policy Officer Amputee Coalition 900 East Hill Avenue Suite 205 Knoxville, TN Phone: Fax: Delia Carter Vice President, Brand and Marketing Arthritis Foundation 1330 West Peachtree Street, GA Phone: Carol Galbreath Associate Vice President, Public Relations Arthritis Foundation 1330 West Peachtree Street Suite 100 Atlanta, GA Phone: Fax: Cathy Tyler Director, Mission Arthritis Foundation 1330 West Peachtree Street, GA Phone: Liana Burns Manager of Policy and Programs Asthma and Allergy Foundation of America 8201 Corporate Drive Suite 1000 Landover, MD Phone: Mike Tringale Vice President, External Affairs Asthma and Allergy Foundation of America 8201 Corporate Drive Suite 1000 Landover, MD Phone: Fax: Angel Waldron Marketing and Manager Asthma and Allergy Foundation of America 8201 Corporate Drive Suite 1000 Landover, MD Phone: Marguerite Kirst Colston Vice President, Constituent Relations Autism Society of America 4340 East-West Highway Suite 350 Bethesda, MD Phone: Fax: Amanda Glensky Media Specialist Autism Society of America 4340 East-West Highway Suite 350 Bethesda, MD Phone: Page 4 of 9

5 Lindsay Groff, MBA Executive Director Barth Syndrome Foundation PO Box 618 Larchmont, NY Phone: Fax: Sara Brewster Vice President, Marketing Easter Seals 233 South Wacker Drive Suite 2400 Chicago, IL Phone: Fax: Ken Lowenberg Epilepsy Foundation 8301 Professional Place Landover, MD Phone: Debra Lovecky Director of Program Services & Advocacy Huntington's Disease Society of America 505 Eighth Avenue Suite 902 New York, NY Phone: Fax: Fred Taubman Director of Marketing Development & Huntington's Disease Society of America 505 Eighth Avenue Suite 902 New York, NY Phone: Randi Corey Director of Special Events Hydrocephalus Association 870 Market Street Suite 705 San Francisco, CA Michelle Emick Ronholm Marketing Director Hydrocephalus Association 870 Market Street Suite 705 San Francisco, CA Phone: Christine Belser Vice President, Programs and Immune Deficiency Foundation 40 West Chesapeake Avenue Suite 308 Towson, MD Phone: Katherine McLane Vice President, and External Affairs LIVESTRONG Foundation 2201 E. 6th Street Austin, TX Phone: Fax: Brooke McMillan Online Community Manager LIVESTRONG Foundation 2201 East Sixth Street Austin, TX Phone: Page 5 of 9

6 Maggie Maloney Public Relations Manager Lupus Foundation of America 2000 L Street NW Suite 410 Washington, DC Phone: Duane Peters Vice President, Advocacy and Public Relations Lupus Foundation of America 2000 L Street, NW Suite 410 Washington, DC Phone: Fax: Nate Brown Manager, Public Affairs March of Dimes Foundation 1275 Mamaroneck Avenue White Plains, NY Phone: Todd Dezen March of Dimes Foundation 1275 Mamaroneck Avenue White Plains, NY Phone: Elizabeth Lynch March of Dimes Foundation 1275 Mamaroneck Avenue White Plains, NY Phone: Maja Belamaric Director, Mesothelioma Applied Research Foundation 1317 King Street Alexandria, VA Phone: Martha Jones Myasthenia Gravis Foundation of America 355 Lexington Avenue 15th Floor New York, NY Phone: Kendra Myers Coordinator Myasthenia Gravis Foundation of America 1821 University Avenue West Suite S256 St. Paul, MN Phone: Fax: Lisa Gallagher Director of Support, Government & Public Affairs National Alopecia Areata Foundation 14 Mitchell Boulevard San Rafael, CA Phone: Fax: Vicki Kalabokes President & Chief Executive Officer National Alopecia Areata Foundation 14 Mitchell Boulevard San Rafael, CA Phone: Fax: Page 6 of 9

7 Gary Sherwood Director, Communication National Alopecia Areata Foundation 14 Mitchell Boulevard San Rafael, CA Phone: Julie Cevallos National Down Syndrome Society 666 Broadway 8th Floor New York, NY Phone: Theresa Renaldi Media Relations Manager National Down Syndrome Society 666 Broadway 8th Floor New York, NY Phone: Fax: Sara Weir Vice President, Advocacy &. Affiliate Relations National Down Syndrome Society 666 Broadway 8th Floor New York, NY Phone: Julie Block President & Chief Executive Officer National Eczema Association 4460 Redwood Highway Suite 16D San Rafael, CA Phone: Fax: Jodi Edgar Reinhardt Director, Public Relations National Foundation for Ectodermal Dysplasias 410 East Main Street PO Box 114 Mascoutah, IL Phone: John Indence Vice President, & Marketing National Hemophilia Foundation 116 West 32nd Street 11th Floor New York, NY Phone: (212) Eileen Masciale Director of National Marfan Foundation 22 Manhasset Avenue Port Washington, NY Phone: Fax: Arney Rosenblat Director, Public Affairs National Multiple Sclerosis Society 900 South Broadway Suite 200 Denver, Colorado Phone: Fax: Page 7 of 9

8 Valerie Patmintra Director, and Marketing National Osteoporosis Foundation th Street NW Suite 850 Washington, DC Phone: Catie Coman Vice President of Marketing and National Psoriasis Foundation 6600 SW 92nd Avenue Suite 300 Portland, OR Phone: Fax: Erika Ruebensaal Director of Marketing/ Osteogenesis Imperfecta Foundation 804 West Diamond Avenue Suite 210 Gaithersburg, MD Phone: Carol Blymire Director, Parkinson's Action Network 1025 Vermont Ave NW Suite 1120 Washington, DC Phone: Fax: Hayley Carpenter Director of Outreach Parkinson's Action Network 1025 Vermont Avenue NW Suite 1120 Washington, DC Phone: Dave Switzer National Director, Education Programs PKD Foundation 8330 Ward Parkway Suite 510 Kansas City, MO Phone: Sarah Hecker Director, Media Relations Prevent Blindness America 211 West Wacker Drive Suite 1700 Chicago, IL Phone: Fax: Barbara Collura Executive Director RESOLVE: The National Infertility Association 1760 Old Meadow Road Suite 500 McLean, VA Phone: Fax: Page 8 of 9

9 Rebecca Flick Director, Strategic Partnerships & Projects RESOLVE: The National Infertility Association 1760 Old Meadow Road Suite 500 McLean, VA Phone: Sheriese DeFruscio Vice President, Development Sjögren's Syndrome Foundation 6707 Democracy Boulevard Suite 325 Bethesda, MD Phone: Fax: Adam Gerard Vice President, Operations Sjögren's Syndrome Foundation 6707 Democracy Boulevard Suite 325 Bethesda, MD Phone: Fax: Amanda Darnley Director, Spina Bifida Association 4590 MacArthur Boulevard NW Suite 250 Washington, DC Phone: Fax: Pamela Barrett Director of Development and Us TOO International Prostate Cancer Education & Support Network 5003 Fairview Avenue Downers Grove, IL Phone: Fax: Robert Campbell Manager Alpha-1 Foundation 2937 SW 27th Avenue Suite 302 Miami, FL Phone: Fax: Elizabeth Trocchio Sjögren's Syndrome Foundation 6707 Democracy Boulevard Suite 325 Bethesda, MD Phone: Page 9 of 9

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