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1 in this issue >>> Spring 2012 Issue Profile: Graeme Bell Brain Injury Awareness Month Annual General Meeting Big BAM! head lines current topics >>> Concussions Bylaw Update Brain Basics Pacific Coast Brain Injury Conference Brain Injury Awareness Month Services Calendar What s APP? Volunteers Rock! Get Connected! Like us on facebook! Follow us on Twitter Brain Care Centre/pages/Brain-Care-Centre Check out our June is Brain Injury Awareness month! Education and Prevention Is The Key! Brain Injury Awareness Month is a national effort to bring awareness of the causes of acquired brain injury and its prevention. Brain Injury Association of Canada states that brain injuries are the number one killer and disabler of people under the age of 44 in Canada. It is estimated that approximately 1.3 million Canadians are living with an acquired brain injury (ABI), according to BIAC. During BIAM, Brain Care Centre, in association with multiple agencies in the Edmonton Community, will be hosting various events and activities designed to entertain, and educate bring awareness to brain injury and its effects. This year s theme, Heads Up! Concussion Prevention, is an effort to bring awareness to the rising and important topic of concussions. Concussions are not only sports related injuries. Work place incidents and motor vehicle incidents can also result in concussion. Please join us over the month of June to learn more. Go to for more details on events!

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3 Executive Director s Message There have been a number of exciting events occurring at Brain Care Centre since the last issue of the Newsletter. Firstly, the title of our quarterly publication has been changed to BCC Headlines. This title was created by Janine Tremblay, our Volunteer Coordinator. Please give your comments on the new title to our editor, Andrea Papirny. Andrea has been very busy planning seven events for the month of June. They include the Brain Injury Awareness Breakfast at the Sutton Place Hotel on June 8, Tickets can be purchased on our web site The other events include a bike safety festival at Northlands on June 9, 2012 and Brain Injury Awareness Day June 1, 2012 from 11:00AM to 2:00PM at Churchill Square. Details of all of these events are described in this issue or online at Exactly one year ago, the BCC was writing our proposal for the RFP for Alberta Health Services Contract. This occupied a significant amount of staff resources and time. At the same time, the staff were planning events for the Brain Injury Awareness Month and still trying to maintain their client responsibilities. In the last year, BCC has hired key personnel, who can be dedicated to the Volunteer and Events Programs. Andrea and Janine have made a significant contribution in a very short period of time and the environment this year compared to last is much more controlled. Finally, BCC is working with community stakeholders including Dr. Marty Mrazik to develop an educational program for adults post concussion. There will be more detail on that program in future issues of Headlines. I wish to acknowledge the incredible work that the BCC staff do and the high standard of services provided to our clients and caregivers. We have a great team and our future looks very bright. Brain Tumor Foundation of Canada Brain Tumour Info Days 2012 By Jessica Bidulock Dr. Garnet Cummings Executive Director, Brain Care Centre On Saturday April 28, 2012, Brain Care Centre was honored to present as the key speaker for Brain Tumour Info Days Hosted by Brain Tumour Foundation of Canada at the Cross Cancer Institute, Carolyn Biron, Jessica Bidulock, and Jean Roy represented Brain Care Centre and presented on topics including BCC Services and Approaches for New Learning After Brain Injury. Joined by Ashley Brosda and Madison Steele who hosted an information table, BCC was well represented and provided valuable information and tools for individuals who have experienced illness due to Brain Trauma and their families and caregivers. The morning was a great success as the team was able to reach out to approximately 75 individuals. Great work ladies! BAM Bottle Drive U of A student group, Brain Awareness Movement, held a bottle drive in February in which proceeds went, in part, to Brain Care Centre. We would like to thank them for their committed support! The 9th Annual AABIS "Celebration Of Abilities" Artists Reception Thursday June 7th, Stollery Gallery Nina Haggerty Centre for the Arts Avenue NW 3

4 Bylaw Amendment >>> Letter to the Editor >>> Brain Care Centre Bylaw Amendment: At the special meeting held on March 13, 2012 the BCC Bylaws section Officers of the Society may receive such remuneration as the Board decides from time to time. was deleted from the bylaws. The motion passed unanimously. Brain Care Centre would like to formally thank online volunteer Phyllis Chui for her amazing effort in editing this newsletter! Hi I was working my way through your newsletter (keep up the good work by the way) and wound up scratching my head at the sentence beginning on Line 29. << "On a scale if 0 to % of family members surveyed rated the care at the long term care facility as 9 or 10 out of 10 in 2010/11 compared with 44% in 2007/08. This represents a modest but significant improvement in the global rating of quality of care.">> No matter how I tried to do the math, it just didn't make sense. Fortunately, the website provided had the entire report, where I learned that one of those sneaky typos had crept into your article. An extra "10" and a "." were typed after the first 10, changing 47% (from hqca website) to 10.47%, a staggering reduction in care quality compared to 44% reported in 2007/08. You might wish to print a retraction or an OOOP's in your next letter. On a more positive note, as a brain injury survivor, who now has to be very careful how she reads/interprets her numbers, I was very pleased with myself to note the error. Sincerely, Velma Sterenberg Letter From the Editor >>> Allow me to introduce myself; my name is Andrea Carroll Papirny, events coordinator and newsletter editor at Brain Care Centre. You may have noticed the new layout for our newsletter and I hope you enjoy the new design and content within the pages of our publication. As we progress as an organization we will strive to bring you informative articles, keep you updated on what is happening at Brain Care Centre and include ways that you can become involved with us in the community. As Brain Care Centre evolves so too will our publication. I would like to thank Janine Tremblay, our volunteer coordinator, for coming up with the clever name of our publication and the assisting with the initial layout changes. Social Media is how many of us communicate today and in our effort to becoming completely visible in the community Brain Care Centre is now on Twitter and Facebook. Stay connected with the most up to date information coming from Brain Care Centre by liking us on Facebook and following us on Twitter! Have an idea for an article, a funny joke, or a digital print you want displayed in our newsletter? To submit an article, comment on something you have seen in this publication or purchase advertising space contact us at or call us at and ask for Andrea. 4

5 THE 2012 BRAIN CARE CENTRE BREAKFAST: CONCUSSIONS COUNT! Join us Friday June 8, 2012 from 7:00am 8:30am at Sutton Place Hotel in the main ballroom for an inspiring morning, learn about the new programs coming to BCC and help Brain Care Centre launch our new concussion program. From Sidney Crosby to Bob Probert, Sport Concussions have taken a centre stage in sports medicine. Concerns about the short-term and long-term outcomes of concussions have emerged in recent years, leading to changes in the way hockey and other sports are played and the rules that govern fair play. Dr. Mrazik will be addressing this controversial and topic of concern by highlighting current statistics and outlining the scope of sport concussions in Canada. He will present an overview of state-of-the-art research that measures biomechanical forces associated with concussions and what implications this research will have on the management of sport concussions. The presentation will provide the keys to ensuring the health and safety for athletes of all ages. Our program will include the presentation of the 2012 Ginny Awards for outstanding community support and outstanding caregiver, and the introduction to a new program being launched by Brain Care Centre in concussion prevention and education. You will not want to miss this! To register please visit our website and follow the link. Or go directly to the registration page: Tables of 10: $ Individual Seats: $50.00 *Charitable receipts available: $15.00 per individual ticket and $ for a table of 10 IF YOU WISH TO DONATE A TICKET SO THAT A CLIENT OF BRAIN CARE CENTRE CAN ATTEND THE BREAKFAST PLEASE CALL TO MAKE ARRANGEMENTS! 5

6 Interagency Update >>> BCC is actively seeking to develop strategic planning and by extension the service capacity of the interagency committee. BCC proposed 7 pillars of service which the committee can implement. BCC has taken the initiative to bring in a strategic planning consultant, Alexis Leclair from Uptake Consulting, to aid in the establishment of a realistic objectives based framework for going forward, using these pillars of service as the starting point. More information will be available in the next newsletter. Brain Care Centre Celebrate Its First Birthday!! ^^^ Artwork by Wayne Coltman, Brain Care Centre Client BCC Hours >>> Brain Care Centre office is open from 8:30am 4:30pm Monday through Friday. The office is closed daily from 12pm-1pm for lunch. Thank you for your cooperation. We are proud to announce that April 1st, 2012 marked Brain Care Centre s first birthday since the amalgamation. We celebrated with a wonderful party thrown by the Social Committee and reminisced about the past year. We would like to take this opportunity to thank everyone involved with Brain Care Centre for their patience, support and dedication to the organization. We look forward to the future. Amazing Birthday Cupcakes provided by the ever so talented Madison Steele. 6

7 Concussions Mark Langer MD CCFP Concussion, or Mild Traumatic Brain Injury (MTBI), is increasingly prevalent in the media because of injuries to soldiers in Iraq and Afghanistan, as well as injuries to sports figures like hockey players Sidney Crosby and Chris Pronger, boxers like Mohammed Ali, and the deaths of NHL tough guys Rick Rypien, Derek Boogaard, Wade Belak, and Bob Probert. As a doctor, I find the research into concussions fascinating; as a father, I'm wary of head injuries potentially affecting my own children; as a survivor of head injury, I've experienced the devastation head injuries can cause; and as a sports fan, I am concerned about the effects of concussion on my idols. Several guidelines have been published recently to guide health care teams as they diagnose and treat concussion (Ontario Neurotrauma Foundation 1, Veteran's Affairs/Department of Defense 2, New South Wales Motor Accident Authority 3, Defense and Veteran's Brain Injury Center 4, New Zealand Guidelines Group 5, Concussion in Sport Group 6, and others 7-9 ), resulting in less controversy about diagnosing concussion. As it stands, there are no blood tests to show who has a concussion, and there is only slow progress on imaging tests for concussion 10. The diagnosis is based on a history of head injury with less than 30 seconds of being knocked-out, and symptoms like headache, dizziness, and nausea 1. There are a few tests such as the Abbreviated Westmead Post- Traumatic Amnesia Scale 11, the Rivermead Post-Concussion Symptoms Questionnaire 12, and the Fatigue Severity Scale 1, which are sensitive enough to pick up subtle changes that are present with concussion. Professional sports teams and, increasingly, amateur sports teams, take baseline measurements of memory, attention, and cognition from their athletes, which can be repeated after a head injury to determine if a concussion has occurred and how bad it is. The athlete can then be followed to see when they have recovered enough to return to play 6. The Brain Care Centre, and others, advocate for such measurements to be taken for athletes in Alberta. Hockey Canada and Soccer Canada have also taken steps to ensure coaches and trainers are aware of concussion, teaching them the mantra "If in doubt, sit them out" 6, 13.. Athletes who return to play too soon are more likely to suffer long-term injury, particularly if they suffer a second MTBI before they've fully recovered from the first 13. Long-term post-concussion symptoms affect up to 15% of MTBI patients, and often take up to a year to resolve 1. For really unknown reasons, they are more common after an accident or fall than a sports-related injury 2. The effects, like depression, persistent headaches, sleep disturbance, and inability to concentrate, can be very hard to manage, and victims are unfortunately sometimes permanently disabled 1. The good news is that research is on-going into preventing concussion 14, improving diagnosis and treatment, and educating the public and government. We now have helmet laws because of these kinds of efforts, preventing countless thousands of serious head injuries. Hopefully measures to prevent minor, but no less devastating, injuries, will soon follow. References: Marshall S, Bayley M et al. Clinical Practice Guidelines for Mild Traumatic Brain Injury and Persistent Symptoms. Canadian Family Physician 2012:58: The Management of Concussion//mTBI Working Group. VA/DoD clinical practice guideline for management of concussion/ mild traumatic brain injury. Washington DC Department of Veterans Affairs and Department of Defense; 2009 New South Wales Motor Accident Authority. Guidelines for mild traumatic brain injury following closed head injury. Sydney Australia: New South Wales Motor Accident Authority; 2008 Defense and Veterans Brain Injury Center. Updated mtbi clinical guidance. Wasshington DC: Defense and Veterans Brain Injury Center; 2008 Available from: CONUS. pdf New Zealand Guidelines Group. Traumatic Brain Injury: diagnosis, acute management, and rehabilitation. Wellington, NZ New Zealand Guidelines Group; 2006 McRory P, Johnston K, et al. Summary and Agreement Statement of the 2nd International Conference on Concussion in Sport, Prague 2004 Br J Sports Med 2005;39(4): Department of Labor and Employment. Traumatic brain injury medical treatment guidelines. Division of Worker's Compensation. Denver CO: State of Colorado; 2005 Workplace Safety and Insurance Board of Ontario. Program of care for mild traumatic brain injury. Toronto ON : Workplace Safety and Insurance Board of Ontario, Available from: 230éArticleéDetailé24338Évg National Institute for Health and Clinical Excellence. Head Injury: triage, assessment, investigation and early management of head injury in infants, children, and adults. London UK: National Collaborating Centre for Acute Care; 2007 Difiori JP, et al. UCLA Division of Sports Medicine. New techniques in Concussion Imaging. Curr Sports Med Rep. 2010:Jan- Feb;9(1):35-9 Ponsford J, Willmott C, et al. Use of the Westmead PTA scale to monitor the recovery of memory after mild head injury. Brain Inj 2004;18(6): Eyres S, Carey A, et al. Construct validity and reliability of the Rivermead Post- Concussion Symptoms Questionnaire. Clin Rehabil 2005;19(8): McRory P, Meeuwisse W, et al. Concensus statement on concussion in sport: the 3rd international conference on concussion in sport held in Zurich, November Br J Sports Med 2009;43(Suppl 1): McRorry P, Do mouthguards; prevent concussions Br J Sports Med 2001;35:81-2 7

8 BAM News >>> Big BAM Event On March 29th, the Brain Awareness Movement hosted a Dinner and Silent Auction at the University of Alberta Campus. The event featured keynote speakers Trent Brown, a former Edmonton Eskimo, Grey Cup Champion and injury lawyer as well as Dr. Garnet Cummings, the Executive Director of the Brain Care Centre and former Head of the Emergency Department at the Royal Alexandra Hospital. Both speakers shared their personal experience with brain injury and heartfelt recollections of their journey to recovery. The evening also featured comedian Susan Wirtanen and musical performers. There were also a variety of silent auction items from FLAMAN Fitness, The Seven Drawers, Watch it, Hallmark and many more local businesses. Over 100 students and community members were in attendance helping us raise over $4000. Proceeds from the event will go towards supporting the Brain Care Centre and the Networks Activity Centre. Pictures >>> Susan Wirtanen The Sit-down Comedian Brain Awareness Movement Trent Brown and Dr. Garnet Cummings Keynote Speakers 8

9 From Disability to Possibility >>> What can occupational therapists do for a person with brain injury? By Gillian Muller (OT student) Occupational therapists (or OTs) are among the many professionals who work with people who have brain injuries. The Brain Care Centre has two OTs on staff, Lily and Jessica, and recently hosted myself and one of my fellow OT students for a six-week placement as part of our training. As occupational therapists, we focus on occupation that is, the things you do to occupy yourself. This occupational performance can include activities in self-care, leisure and productivity. We like to help people do the things that are meaningful to them. This may be accomplished by helping the person improve his or her abilities, adapting or providing tools for the person to use, or changing their environment. We are trained to look at people holistically the physical, mental and emotional, the many environments they live in, and all the occupations that they can do and want to do. As students at the Brain Care Centre, we have been involved in many things. We helped to facilitate a 4-week course on Executive Functioning. Executive functions are the important higher-level thought processes that direct complex thinking tasks. They include goal-setting, planning, decision-making, problem-solving, self-monitoring and reasoning, among other things. Occupational therapists can help their clients by teaching them life skills like these. We have also done cognitive assessments of memory with some clients. Once we figure out what their areas of strength and weakness are, we help them to use their strengths in order to improve their functioning in memory. Together with the client, we can come up with strategies and creative ways to help them do the things that are meaningful to them. We put information like this into reports and explain the results and our recommendations to clients, their families, their service coordinators and other people who may work with them. We also participated in the caregivers support group put on by the Brain Care Centre. We got the caregivers to put together collages of what occupations they use to keep themselves resilient and act as a buffer against stress. We hope to return to one more caregivers group to review some specific strategies for relaxation. Occupational therapists help people with what we call their activities of daily living. An example of this would be taking the bus or DATS. When we are helping people to participate in an activity like this, we might start by breaking the task down into its many small steps. This is called task analysis. We analyze what skills a person needs in order to do each of those steps. This helps us to understand what steps may be problematic for a client. When teaching the task, we sometimes use grading. That means that we make the task harder or easier depending on what level the client is at. It may start out easy, and then gradually get harder as the client is expected to do more. Sometimes our clients came to us at the Brain Care Centre, and sometimes we went to their homes. In the client s home environment, we can see what features may be helping them to participate in their occupations and what may be making things more difficult. We can make recommendations to the client and work with them to change things in a way that they are comfortable with. We hope that as occupational therapists, we help people with brain injuries to participate in the occupations that are meaningful to them! We like to see our clients gain satisfaction in the their performance of daily activities. 9

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11 Brain Basics The Class! By Barbara Baer Pillay On Thursday, April 19, 29 people met in the basement conference room at the Glenrose for the first ever Brain Basics class offered by Brain Care Centre. Brain Basics, put together by a committee of BCC staff, has been developed to help people understand a little bit about brain injury and its possible effects. This class is in response to the requests we receive and our anecdotal evidence that there is a wide range of people in the greater public who need this sort of one shot educational extended family, friends of someone with brain injury, co-workers of the person with injury, other professionals who come across and/or work with persons with brain injury. That is exactly who came out to learn about: how does one get a brain injury; how often does it occur; what are some possible effects; The Thinking Company; strategies to use and finally, what is Brain Care Centre and what do we do? Pre and post assessments tell us that everyone learned something; here is what some had to say: I think everyone that works with brain injured people should come to this presentation. answered many of my questions there are times when I think I can do it on my own. You will never know how grateful I am that you are still there for me when I come back We will continue to offer this session on a regular basis so if you missed the first one or the one scheduled for May 15, call Shamim at and tell her you want to be on the list for the next Brain Basics the Class. Annual General Meeting Announcement>>> Calling all members and persons interested in attending the 2012 Brain Care Centre Annual General Meeting! The BCC AGM will take place Wednesday June 13, 2012 at 7:00pm in the Dr. Bill Black Auditorium at the Glenrose Rehabilitation Hospital. With our inaugural year as Brain Care Centre behind us we are planning a celebration (with cake) to commemorate the momentous occasion. We are also extremely excited to use this event as the launch of our new and improved Brain Care Centre website! Join us as we hit the big red button and make our website live to the world for the first time. The new website will include online games, publications as well as up to date service information and state of the art design features. We are so pleased to have partnered with oops design! on this exciting project. During the business portion of the Annual General Meeting we will hear from Dr. Garnet Cummings, Executive Director of Brain Care Centre presenting the state of the organization address, as well as, reports from each department at BCC, introduction of new staff members, and the annual financial report. We will also be handing out the Volunteer Awards to very deserving individuals for their exemplary contributions to our organization throughout the year. 11

12 Profile >>> Graeme Bell: Concussions Count! CFL player Graeme Bell has a unique vantage point on traumatic brain injury. Not only has he seen friends and fellow players contend with concussions, he has endured severe trauma to the brain himself. Graeme s shocking and tragic ordeal, followed by his miraculous recovery from severe traumatic brain injury (TBI), set the stage for a discussion of mild and severe TBI as well as some preventative considerations in this edition of the BCC s newsletter. Writer: Aja Mason Online Volunteer Edited by: Thomas Corcoran Graeme had already played three years of football in the CFL when, in a valiant attempt to intervene a gang related attack outside of a bar in Saskatoon on May 12th, 2007, he acquired severe brain trauma. Graeme s brain began to swell immediately after his skull was maliciously smashed open with the blunt end of a baseball bat. He was rushed to the hospital and within five hours, had undergone surgery to relieve the swelling. He d lost the ability to speak and doctors told him that he would never play professional football again. However, Graeme s tenacity and dogged determination lead to a remarkable recovery. Despite the odds against him, in a little over one year after the incident, Graeme was back on the field playing football. While Graeme is still playing for the CFL, he nonetheless recognizes the need for change in the way sports Concussion is an acquired traumatic brain injury which results from some external mechanical force being exerted. The brain, as it is cased in the skull, is largely cushioned by layers of tissue and fluid. Most of the time, these layers serve as a natural shock absorber. However, when a blow to the skull has enough force, it causes a quick acceleration or deceleration, and the brain jostle sback and forth within the skull. The places where the brain makes contact with bone can result in severe bruising or tissue damage. Any subsequent tissue damage can in turn translate into a multitude of potential neuropsychological disturbances depending on the location and the severity of trauma. Despite the presence of tissue damage, one of the more troubling aspects of concussion is that its occurrence is not always obvious. In a 2005 study involving 175 professional rugby players, it was noted that...concussion rarely involved a loss of consciousness with the most common indicators of concussion being amnesia, headache and unsteadiness [1]. The authors of the Australian study went on to suggest that, coaches, trainers and players need more education in the recognition and management of concussion. [1] Troubling still is the emerging body of evidence which suggests that there are cumulative effects of concussion. [1] Hinton-Bayre, G Geffen, P Friis, Presentation and mechanisms of concussion in professional Rugby League football, Journal of Science and Medicine in Sport, Volume 7, Issue 3, September 2004, Pages , ISSN , /S (04) ( ) [2] [3] Montreal Neurological Institute and Hospital (2008, January 18). Neurological Basis Of Depression Following Sports Concussion 12

13 Dr. Kevin Guskiewicz of the University of North Carolina, co-author of the National Collegiate Athletic Association s Concussion Study says that "...once you have had a concussion, within a seven-year window, you are at a greater risk of sustaining another injury. Once you have had three or more concussions in seven years, you have at least three times more risk of sustaining another injury." [2] There are also neuropsychiatric concerns involved with concussion. A 2008 study from the researchers at the Montreal Neurological Institute of McGill University found that...depression is one of a number of persisting symptoms experienced by athletes following sports concussion. The prevalence of depression in the general population is around 5%, whilst the prevalence of depression in head trauma patients can reach an astounding 40% [3]. There is no denying that the research reveals previously overlooked long term consequences of concussion. Advancements in brain imaging techniques and a better understanding of brain function in general indicate that, on some scales, the brain is very much capable of regeneration. But there is a limit to the kind of trauma a brain can endure. Parents with children in minor sports and professional sports players alike are, as a result, reconsidering the implications of physical aggression in sports such as football and hockey. Furthermore, as Graeme so aptly pointed out, we are dealing with progressively stronger, faster and fitter athletes. The suck it up and get out there mentality is so deeply engrained in football culture, Graeme went on further, that it is not enough to expect it to change overnight. There are technologies and software available that could really affect the way players understand concussions. In particular, Graeme was referring to the impact test and the placement of accelerometers in helmets. After a baseline is established, the impact software uses various cognitive assessments which measure things like response time and accuracy to gauge the severity of a tentative concussion. Applicable to anyone over the age of 10, Graeme suggests that, a coach could use this as an app tool on an ipad or laptop to identify the presence and severity of a concussion in players. This software is invaluable for young players, however, as Graeme pointed out, it is more often than not inaccessible due to its high cost. If made less expensive, this could be an invaluable program for tracking concussive and sub concussive impacts. Another consideration that might be of interest to both minor and major sports players are accelerometers. Using Bluetooth technology, a transmitting device would be placed in the helmets of players. The changes in their acceleration and deceleration could be measured and tracked in relation to impacts on the field. Players in turn could use this information to better understand what it feels like to be running at a pace which could result in a forceful enough blow to impart a concussion on the receiving end. That suck it up and get out there maxim has survived in sport for a number of factors that span well beyond the scope of this article. As I spoke to Mr. Bell, he paused, seeming to choose his advice for parents quite carefully. In large part that mentality has stemmed from ignorance. Fortunately for the players, our ignorance surrounding the brain is changing. There is technology out there that can help us take better care of our brains and our kids brains. In light of the recent media attention on professional hockey and football players whose careers and lives have been detrimentally affected by concussion, there is considerable pressure to change sports rules and technologies. Not everyone can be as quick to recover from brain trauma as Graeme Bell. 13

14 BCC Services >>> Service Coordination Brain Care Centre coordinates services for individuals (aged 18 or older) and families who are affected by brain injury. Our service area not only includes the greater Edmonton area but also the communities west of the city: Drayton Valley, Edson, Hinton and Jasper. During the intake meeting, the Service Coordinator and the client identify areas of need in which service provision will be required. The outcome of the intake is to formulate an Individual Service Plan (ISP). The ISP assists people with injury to connect with community resources and services. Housing Vocation Social skills training Housing Vocation Social skills training Financial Cognitive strategies Co-existing diagnoses Support Financial Facilitation Cognitive strategies Co-existing diagnoses To further Education Education enhance and support an ISP, Brain Physical health Advocacy Physical Care Centre health offers a Support Facilitation Advocacy program. This service includes one to one Health Health sessions designed to assist individuals, Adjustment couples support support and families with discovering and utilizing resources and strategies for maximizing wellness after brain injury. This process may include a review of intake information, identifying personal strengths and needs for support, goal setting, information about brain injury, introduction to coping strategies and educational resources, and/or referral to community resources. Community Rehabilitation Our rehabilitation professionals assist clients and families with managing cognitive changes after brain injury. Focus is on enabling participation in the community and independence in life. Therapists and community support staff meet individually with participants to set goals and work on skill development and applying strategies in real-life situations. Goal areas may include using public transit, self-care skills and more. Thorough assessment helps staff create tailored plans with clients. Formal assessments for many areas are available through Community Rehabilitation services. These include independent living skills, cognitive ability, general ability, memory, vocational interest, social and communication skills, and performance in domestic activities. Referral to community rehabilitation services can be made through a Brain Care Centre Service Coordinator. Information & Education Brain Care Centre offers comprehensive, up-to-date information related to brain injury and community resources. This program provides local and provincial education seminars. We actively participate in the community by presenting a weekly display at the University of Alberta Neurosurgery Unit as well as numerous other community presentations. Life Skill Classes Understanding Brain Injury: A six week course designed to offer information to individuals with acquired brain injury who are interested in learning more about the brain, brain injury and strategies for positive living. Self-Esteem: This course uses proven cognitive techniques to help you learn how to control the self-critical inner voice and build up a healthy sense of self worth. You will leave this eight-week course with useful skills that can easily be applied to your day to day life and strategies to use when you face situations in which your sense of self worth is challenged. Effective Communication: This course will discuss how brain injury can affect communication and social skills. You will learn about types of communication, effective listening, and perspective taking. Practical strategies for conflict resolution and assertiveness will be taught and practiced in this 8-class course. Executive Functioning: This course offers practical strategies for planning, problem-solving, attention, goal-setting, and decision-making. Participants will also develop awareness of their strengths and areas for improvement in this interactive course. 14

15 Groups Women s Group: Focuses on issues related to women, health and wellness, and provides opportunities for peer support. Members of this group will have the opportunity to explore the many successes and challenges associated with living with brain injury. Men s Group: A weekly peer support group for adult males with acquired brain injury. This group focuses on issues related to health and wellness, changing roles, employment issues as well as the grief and loss associated with brain injury. Young Adult Groups: The Young Adult Groups (YAG) are for young adults between the ages of 18 and 30. These groups focus on support, personal growth and community inclusion. In collaboration with Networks Activity Centre, these groups include a recreational component. Care Givers Group: This group is designed for caregivers who are providing support to someone who has sustained a brain injury. Peer support is encouraged to assist caregivers in developing a stronger sense of their ability to cope and feel connected with others experiencing similar challenges. Substance Use and Brain Injury Group (SUBI): A 10 week support group for individuals struggling with addiction and brain injury. Club CONNECT Communication Group: This group promotes peer connection, healthy living and provides opportunities for discussion. Come and join us for a lively hour and a half of learning and discussion. Snacks provided! Workshops Time Management: Participants whose time management skills have been affected by a brain injury will learn new strategies and techniques to improve their current time management systems as well as new systems as needed. Stress Management: This workshop will discuss the nature of stress and introduce strategies for preventing and managing stress in your day to day life. Nutrition: Learn about good nutrition, assess your eating habits, learn to read labels and prepare delicious healthy meals. Drayton Valley BI Group First and Third Monday of each Mitch s # Street 1:00pm- 3:00pm Edson Support Group First and third Wednesday of each Brain Care Centre office Street 1:00pm 3:00pm For more information on these groups or services provided in Edson and Drayton Valley please contact Brain Care Centre Toll Free at Computer Courses: Jean / Mitchell Understanding Brian Injury: (UBI) Madison Women s Group: Teresa / Ashley Men s Group: Mitchell SUBI: Julie Caregivers Group: Teresa/ Lisa Young Adult Group (YAG): Jaimie Effective Communication: Jean Executive Functions: Lily Stress Management: Lily Edson Group: Laura Drayton Valley Group: Tannis 15

16 What s Coming Up >>> June is Brain Injury Awareness Month! HEADS UP! Post Concussion Awareness & Prevention June 1 Public Awareness Day on Churchill Square Come join us from 11:00am-2:00pm and check out all the awesome activities we have happening on the square. June 7 9th Annual AABIS Celebration of Abilities Artists Reception June Brain Care Centre Breakfast: Concussions Count! June 9 Bike Safety Event June 10 Stroke Recovery Annual Picnic June 12 Brain Care Centre Annual General Meeting June 15 Networks BBQ June 22 Education Day presented by the Glenrose Rehabilitation Hospital June 18 - WCB Golf Tournament & Cummings Andrew MacKay Golf Tournament (Partial proceeds going to Brain Care Centre ) For information on all this and more, go to The GoGo s A social group for those impacted by brain injury. The Go Go s meet on the first Wednesday of each month from 6-8pm. May 2, 2012 Humpty s In West Gate Ave June 6, 2012 Lingnan Family Restaurant Street Please register with Susan for reservation purposes. (780)

17 Sun Mon Tue Wed Thu Fri Sat May Executive Functions 2 Computer 1-3pm Men s Group 3 Executive Functions YAG 7-9pm 4 Computer 10-12pm Women s Group 10-11:30am Computer 1-3pm Club Connect 10 Caregiver s Group 7-9pm YAG 7-9pm 11 Computer 10-12pm Women s Group 10-11:30am Mother s Day 14 Frustration Management Computer 1-3pm Men s Group 17 YAG 7-9pm 18 Computer 10-12pm Women s Group 10-11:30am Victoria Day Office Closed Computer 1-3pm Men s Group 24 Caregiver s Group 7-9pm YAG 7-9pm 25 Computer 10-12pm Women s Group 10-11:30am Frustration Management 29 Effective Communication 30 Computer 1-3pm Club Connect 31 Effective Communication YAG 7-9pm June 2012 Sun Mon Tue Wed Thu Fri Sat BRAIN INJURY AWARENESS MONTH HEADS UP! Concussion Awareness & Prevention 1 Brain Injury Awareness Churchill Square 11-2 Women s Group 10-11:30am Women s Group1:30-3pm Frustration Management 5 Effective Communication 6 Computer 1-3pm Men s Group 7 Effective Communication Caregiver s Group 7-9pm YAG 7-9pm 8 7-8:30 am Brain Care Centre Breakfast: Concussions Count! Women s Group 10-11:30am Women s Group 1:30-3pm Frustration Management 12 Effective Communication 13 Computer 1-3pm Club Connect 6:30pm Brain Care Centre s AGM 14 Effective Communication YAG 7-9pm Brain Injury Awareness Month: Appreciation BBQ hosted by Networks Activity Centre Father s Day 18 WCB Golf Tournament & Cummings, Andrew MacKay Golf Tournament Frustration Management 19 Effective Communication 20 Computer 1-3pm Men s Group 21 Effective Communication Caregiver s Group 7-9pm YAG 7-9pm 22 Brain Injury Awareness Month: Education Day Women s Group 10-11:30am Women s Group 1:30-3pm Frustration Management 26 Nutrition Workshop Part One Computer 1-3pm Club Connect 28 Nutrition Workshop Part Two YAG 7-9pm 29 Women s Group 10-11:30am Women s Group 1:30-3pm 30 17

18 July 2012 Sun Mon Tue Wed Thu Fri Sat 1 Canada Day! 2Canada Day Holiday Office Closed 3 4 Men s Group 5 YAG 7-9pm l Club Connect Women s Group 10-11:30 am Men s Group 19 YAG 7-9pm Club Connect Women s Group 10-11:30 am l30 31 August 2012 Sun Mon Tue Wed Thu Fri Sat 1 Men s Group 2 YAG 7-9pm Heritage Day Office Closed 7 8 Club Connect 9 10 Women s Group 10-11:30 am Men s Group 16 YAG 7-9pm Men s Group Club Connect Women s Group 10-11:30 am 30 YAG 7-9pm

19 Classes and Support Groups are offered to individuals with brain injury. (Understanding Brain Injury and Caregivers Group are offered to caregivers of people living with Brain Injury.) PRE-REGISTRATION and/ or an ASSESSMENT IS REQUIRED for all groups and classes offered at Brain Care Centre. Space is limited so please register early. Dates may be subject to change. Please see the calendar for specific dates. Computer Classes Basic Computer Class: Learn basic computer operations, including how to start and shut down the system; using the mouse (left/right clicking and double-clicking); using shortcuts, paint program and identify icons, screens, and programs in Microsoft Windows. -Internet: Students will create an account, learn to send, receive; create an address book and how to use attachments. They will learn to search the internet and bookmark pages of interest. Google: Students will be taught to use Google calendar as a memory aid, use Google maps to help with directions and use Google images and video for entertainment purposes. Internet Safety Class: This class will help students to use basic precautions such as virus protection, evaluate website validity and learn the importance of passwords and accessing safe internet sites. Intermediate Word: This course is designed for users who have completed the Basic Microsoft Word course, or who have basic knowledge of Microsoft Word (font formatting, Ribbon tabs, image insertion). The version of Microsoft Word used in this course is Microsoft Word Advance Word Objective: This course is designed for users who have completed the Basic and Intermediate Microsoft Word courses, or who have intermediate knowledge of Microsoft Word (bullets, text boxes, tables, etc.). The version of Microsoft Word used in this course is Microsoft Word Facebook/Skype: Students will be taught to use Facebook safely for social networking and to use Skype for Face to Face chat. Image Editing: Using Picasa software, participants will learn a simple way to view, edit, and organize the photos on their computer. 1 on 1 cell phone training is available. Please call Jean for more information: ext 26. Depending on the client s needs and skills, one-to-one computer training is also available. 19

20 What s APP? >>> This APP s For You! Do you have an Apple device such as an I phone, IPad, or IPod Touch? If so, you have access to millions of Apps that can be downloaded and used on your device! Each newsletter we will take a look at some apps we use in the Community Living Program to help individuals with brain injury. This addition let s look at j, a journal App. Event Updates >>> -Jean and Mitchell, Community Living If you re looking for an App for your IPad that allows you to write what s on your mind to the comfort of your favorite songs, Private Journal may be just what you need! With a simple design that gets rid of unnecessary complications, what truly separates this App from other notebook and journal Apps is its user friendly approach. While simplistic, the App gives you the ability to add different emoticons, sticky notes, and images from your device photo albums. As any quality journal should, Private Journal also gives you the option to make your journal entries completely confidential with its password protected settings. Best of all, this App is currently FREE of charge! If you re looking for a fun and easy way to express yourself, we suggest taking a look at Private Journal. June is Brain Injury Awareness Month in Canada and you know Brain Care Centre will not miss an opportunity to bring awareness and education to the community! As the chair of the Brain Injury Awareness Month committee in Edmonton, I must say we have some exciting events in the works that you will not want to miss, and to make sure our audience has all the information at your fingertips new for 2012 is a website created specifically for Brain Injury Awareness Month and all event related information for Edmonton and surrounding areas. Come visit us at and get all the event details or send us a request to become involved! We encourage all interested participants to contact us! Our signature event, the 2012 Brain Care Centre Breakfast: Concussions Count!, is happening at the Sutton Place Hotel on June 8 beginning at 7:00am. Our keynote speaker Dr. Martin Mrazik will challenge how you think of concussions through his riveting research. Tickets are on sale online, go to to register. You don t want to miss this event! June 1 st will see the BCC staff and event partners from all over the Brain Injury family coming together on Sir Winston Churchill Square to bring awareness of the seriousness of concussions and the importance of helmet use to the Edmonton community. This year we have partnered with the Canadian Military to educate the public on helmet safety and work place safety. We encourage everyone to come to the square between 11:00am and 2:00pm and help us by filling out our quick survey on helmet use and sign up for a chance to win some awesome prizes it might be an IPad. We are pleased to be assisting in other events happening throughout the month such as the Network s BBQ and the Education Day happening at the Glenrose Rehabilitation Hospital. For more information on each event happening in June visit Mark your calendar September 22, 2012 we will be hosting the 2012 Gala in support of Brain Care Centre. If you are interested in becoming a sponsor, donating an auction item(s) or volunteering for our event please contact Andrea at More event specific details coming soon 20 By Andrea Papirny


PROSTATE CANCER CANADA NETWORK SUPPORT GROUP HANDBOOK PROSTATE CANCER CANADA NETWORK SUPPORT GROUP HANDBOOK July 2010 1 Table of Contents 1. Introduction 2. In the Beginning 3. Programs & Activities 4. The Meeting 5. Awareness 6.

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