SUPPORT GROUPS FOR CARERS IN THE NORTHERN ILLAWARRA REGION. (Wollongong, Shellharbour and Kiama)

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1 SUPPORT GROUPS FOR CARERS IN THE NORTHERN ILLAWARRA REGION (Wollongong, Shellharbour and Kiama) 1

2 For information about other local supports and services in the community for carers please contact the Illawarra Respite and Carelink Centre on This can include information on respite options to attend a support group. There may also be on-line carer support groups and programs available that may suit you. Contact Carers NSW on or your illness specific organisation. There are a number of carer counselling services also available in the community. These are: Your Time Carer Counselling Service CatholicCare (Wollongong, Shellharbour, Kiama areas) Auburn St, Wollongong Ph: Anglicare (Shoalhaven area) Ph: Carer Counselling and Support Service Carer Program Illawarra Shoalhaven Local Health District (Wollongong, Shellharbour, Kiama, Shoalhaven areas) Ph: Access and Referral Centre National Carer Counselling Program Carers NSW Carer Line Ph:

3 Index Amputees... p. 4 Brain Injury p. 4 Brain Tumor p. 4 Cancer p. 5 Children p. 7 Chronic Fatigue p. 11 Dementia p. 11 Diabetes. p. 14 Disability.. p. 15 General Carers... p. 15 Hepatitis C p. 17 Mental Illness. p. 18 Motor Neurone p. 20 Multiple Sclerosis p. 20 Older People p. 20 Parkinson s Disease p. 21 Stroke p. 22 Tinnitus. p. 22 3

4 Amputees Name Support for Amputees Family and Friends Group Venue Southern Prosthetics and Orthotics, 16 Second Ave, Unanderra Meeting details Meets 2 nd Saturday of month at 10.00am Comments Support group for amputees, family and carers Contact Port Kembla Hospital Physiotherapy Phone Brain Injury Name Illawarra Brain Injury Service Family Support Group Venue Port Kembla Hospital bi-monthly and community venue bi-monthly Meeting details 1st Tues of month am Comments Support group for carers of people with a brain injury. Group provides information, support, social outings and education Contact Illawarra Brain Injury Service Phone Brain Tumour Name Venue Illawarra Brain Tumour Support Group "Headway" 4 Mercury Street, Wollongong Meeting details 2 nd Tues of month 10.00am - Comments Support group for people diagnosed with a Primary Brain Tumour and their carers. Contact Wollongong Cancer Care Centre Phone

5 Cancer Name Venue Meeting details Comments General Cancer Information Support Group Ribbonwood Centre Princes Hwy, Dapto Meets 1 st Tues monthly, 10am to 12pm Provides education and information Contact Jean Phone Name Venue Bowel Cancer Support Group Ribbonwood Centre Princes Hwy, Dapto Meeting details Meets 4th Thurs of month, 9.30 am to am Comments Provides education and information on bowel cancer and its treatment. Phone and register in case of venue change. Contact Victoria Calder Phone or Name Chronic Myeloid Leukaemia Support Group Venue Leukaemia Foundation, Meeting details Meets every 3 months on Saturdays Comments Provides supports for people diagnosed with a blood cancer or related disorder Contact Coordinator Phone or

6 Name Wollongong Multiple Myeloma Support Group Venue Ribbonwood Centre, Princes Hwy, Dapto Meeting details Meets 3 rd Weds every second month Comments Provides supports for people diagnosed with a blood cancer Contact Coordinator Leukaemia Foundation Phone or Name Gynaecological Cancer Support Group Venue Ribbonwood Centre, Princes Highway, Dapto Meeting details Meets 1 st Weds monthly, 2.00pm to 4.00pm Comments Patients & carers of someone with gynaecological cancer Contact Victoria Calder Phone or Name Illawarra Ostomy Information Group Venue Education Room, Figtree Private Hospital Meeting details Meets 2 nd Weds monthly at 10.00am Comments Support group for ostomates, people who have undergone a complete or partial removal of their colon or bladder Contact Stomal Therapy Nurse Phone (Mondays) Name Melanoma Support Group Venue Nationwide Transport, 37 Five islands Rd, Port Kembla Meeting details Meets 4 th Friday every second month at 6.30pm to 8.30pm Comments For people diagnosed with melanoma and their families Contact Jay Phone or 6

7 Name Prostate Cancer Support Group Venue St Marks Church Hall, Princes Highway, Wollongong West Meeting details Meets 2 nd Thurs monthly, 7.00pm Comments For patients &carers of someone with prostate cancer Contact Dennis Hamilton Phone Name South Illawarra Breast Cancer Support Group Venue Kiama Catholic Church, Manning St, Kiama Meeting details Meets 2 nd Tues monthly at 10.00am to Comments For patients and carers of someone with breast cancer Contact Moira Phone Children Disability or Chronic Illness Name Aspect South Coast School Coffee mornings Venue Southern The Shellharbour Club Northern Towradgi Beach Hotel, 170 Pioneer Rd, Towradgi Meeting details Southern Meets 2 nd Weds monthly Northern Meets last Weds monthly Comments Families of children with an Autism Spectrum Disorder Contact Aspect South Coast School Phone

8 Name Aspect South Coast School Grandparent Support Group Venue Dapto Leagues Club Meeting details Meets 3 rd Monday monthly, 10.00am 11.30am Comments Grandparents of children with an Autism Spectrum Disorder Contact Aspect South Coast School Phone Name Aspect South Coast School Dads Night Venue Towradgi Beach Hotel Meeting details Meets 2nd Monday monthly, 7.00pm 9.00pm Comments Grandparents of children with an Autism Spectrum Disorder Contact Aspect South Coast School Phone Name Parents of Children with a Disability a casual coffee and chat Venue Shellharbour Village Bobby s Diner, Addison St, Shellharbour (at top of hill) Meeting details Meets every Friday weekly 10.00am Comments Parent or carers of a child with a disability Contact Jodie Dunning Phone Name Miracle Babies Illawarra Nurture Group Venue Lighthouse Church, Railway Parade Wollongong Meeting details Meets every fortnightly on a Monday 10.00am to Comments Support group for parents of babies and children 0-5yrs that required care in a Neonatal Intensive Care Unit (NICU) or Special Care Nursing (SCN) Contact Co-ordinator

9 Name My Time Support Group peer support group and supported playgroup for children - Wollongong Venue Wollongong TAFE, Northfields Ave, Wollongong Meeting details Meets weekly Thursdays 9.30am to 11.30am Comments Carers of children under school age with a disability or chronic medical condition. Contact Interchange Phone Name My Time Support Group peer support group and supported playgroup for children - Shellharbour Venue Albion Park Public School, Schools as Community Centre Meeting details Meets weekly Tuesday 9.30am to 11.30am Comments Carers of children under school age with a disability or chronic medical condition. Contact Playgroup NSW Phone Name Down Syndrome Illawarra Playgroup Venue Illawarra Multicultural Services, 17 Auburn Street, Wollongong Meeting details Meets weekly Monday 10.00am to and monthly outings Comments Families with a child with Down s Syndrome Contact Shirley Bungard Phone

10 Name PlayConnect Venue Groups are held in Wollongong and Albion Park Meeting details Mondays and Fridays Comments Families who have a child aged 0-6 years with Autism Spectrum Disorder (ASD) or ASD-like behaviours Contact Playgroup NSW Phone Name ADHD Support group Venue CityLife Church, 129 Jardine St, Fairy Meadow Meeting details Meets last Friday of month 10.30am to Comments Parents of children with ADD, ADHD and associated disorders (including Aspergers and learning difficulties) Phone City Life Church Name Saturday SIBS Club Venue Various locations in the Illawarra Meeting details Meets on Saturdays once a month Comments Social and recreational outings and activities for siblings (aged 5-12 yrs) of a child with a disability or chronic illness Contact CatholicCare Phone (Mon Wed Thurs) or Name Venue Shepherd Centre Wollongong 48 Dempster St, Wollongong West Meeting details Meets every Tuesday 10.00am to Comments Playgroup and guest speakers for children with hearing impairment and their family friends and Contact The Shepherd Centre

11 Name Parents Social group Venue Illawarra Multicultural Services, 17 Auburn St, Wollongong Meeting details Meets every Wednesday 12.30pm to 2.30pm Comments Place for parents and grandparents who are caring for a child with a disability to meet Contact Illawarra Multicultural Services Phone Chronic Fatigue Syndrome Name ME/CFS/FM Support Group Venue Greenacres Centre, 8 Rowland St, West Wollongong Meeting details Meets 1 st Saturday monthly 10.30am to Comments People with ME/CFS/FM and their carers/families Contact John and Winsome Stephenson Phone Dementia Name Alzheimer s Support Group - Wollongong Venue Illawarra Master Builders Club, Church St, Wollongong Meeting details Meets 4 th Tues monthly 10.30am to Comments For carers of people with dementia Contact Carunya Dementia Support Centre Phone

12 Name Alzheimer s Support Group Shellharbour Venue Warilla Bowling and Recreation Club, Jason Ave, Barrack Heights Meeting details Meets 1 st Tues monthly 10.00am to Comments Carers of people with dementia Contact Carunya Dementia Support Centre Phone Name Dementia Support Group Corrimal Venue Flametree Room, Corrimal Community Centre, Short St, Corrimal Meeting details Meets 2 nd Weds monthly 10.00am to 12.30pm Comments Carers and friends of people with dementia Contact Support group leader Val Fell Phone Name Italian Speaking Dementia Carer s Support Group Venue Illawarra Master Builders Club, Church St, Wollongong Meeting details Meets last Weds monthly 10.00am to12.30 pm Comments Carers of people with dementia from Italian background Contact Multicultural Health Phone

13 Name Serbian Speaking Dementia Carer s Support Group Venue Warilla Community Health Centre, Belfast Ave, Warilla Meeting details Meets 3 rd Monday monthly 10.00am to12.00 pm Comments Carers of people with dementia from Italian background Contact Multicultural Health Phone Name Carers Café - Gerringong Venue Sea Vista Café, Fern St, Gerringong Meeting details Meets 1st Thurs monthly 10.00am to 11.30am Comments Carers of people with dementia Contact Illawarra In Home Support Phone Name Multicultural Dementia Carer Support Group Venue Cringila HACC Centre, Lake Ave, Cringila Meeting details 3 rd Tues of month am to Comments Carer support group for people from a Non English-Speaking Background who care for people with dementia. Translators may be used to assist communication if required. Contact Cringila HACC Centre Phone

14 Name Younger Onset Dementia Support Group Venue Meadow Cottage, 29 McGrath St, Fairy Meadow Meeting details Bi-monthly am to /2, 3/4, 12/6, 7/8, 2/10, 27/11 Comments Support group for people with early onset dementia (under 65) and their carers Contact Community Options Phone Name Venue Dapto Dementia Carer Support Group Dapto Anglican Church Café, Moombara St, Dapto Meeting details Meets 1 st Monday monthly am to Comments Carers of people with dementia Contact Dementia Advisory Service Phone Diabetes Name Australian Diabetes Council - Wollongong Support group Venue Uniting Church Hall Fisher Street, West Wollongong Meeting details Meets 2nd Wed of month 10.00am Comments Group provides support and information to people with diabetes and their families. Contact Phone

15 Disability Name Carer Support Group Venue Albion Park HACC Centre Showground Albion Park Meeting details Meets last Tues monthly 10.00am to Comments Carers of older people and younger people with disabilities (HACC target group) Contact HACC Centre Phone General Carers Name Carers Café Club - Wollongong Venue PIATO Cafe, upper level Gateway Mall, Wollongong Meeting details Meets 2 nd Tuesday monthly 10.30am 11.30am Comments All carers Contact Your Time Carer Counselling and Support Phone or Name Illawarra In Home Support Carers Support Group (Kiama) Venue Alternates between Kiama Showground Pavilion, Bong Bong St, Kiama and IRT Harbourside common room, Terralong st, Kiama Meeting details Meets 3 rd Thurs monthly 10.00am to Comments All carers Contact Illawarra In Home Support Phone

16 Name Greek Carers Support Group Venue Greek Welfare Centre, 224 Corrimal St, Wollongong Meeting details Meets 3rd Weds monthly 10.00am to Comments Carers from Greek background Contact Multicultural Health Phone Name Indo-Chinese Support Group Venue 76 Storey St, Fairy Meadow Meeting details Tues weekly 10.30am to 2.00pm (respite worker available to see people) Comments Carers of people from Indo-Chinese background. A day centre also operates weekly in Gwynneville (Contact Gai Ta or ) Contact Hoa Nguyen Quan Tran Name Macedonian Carer Support Group Venue Senior Citizens Centre, Cnr Allan St and Wentworth Lane, Port Kembla Meeting details 2nd Wed of the month 10am -12pm Comments Provides support for carers of frail aged people in the Macedonian community. Information and referral provided Contact Macedonian Welfare Association Phone

17 Name Portuguese Carers Support Group Venue South Coast Portuguese Association, Flagstaff Rd, Warrawong Meeting details Meets 1 st Tues monthly 11.00pm to 1.00pm Comments Carers from Portuguese background Contact Portuguese Association Phone Name Serbian Carers Support Group Venue Church Hall, 82 Kenny Street, Wollongong Meeting details Meets 1st Mon of every month 10.00am to Comments Carers from Serbian background Contact Multicultural Health Worker Serbian, Bosnian, Croatian speaking Phone Name Venue Meeting details Spanish Speaking Carer Support Group St Michaels' Anglican Cathedral Church Hall Market St, Wollongong 3rd Fri of the month Comments Carers from Spanish background Phone Hepatitis C Name Liver Clinic Support Group Venue Wollongong Hospital, level 5, Allied Health Meeting Room Meeting details 1st Tuesday of each month from am. Comments Morning tea provided. Group for people living with Hep C and their carers. Contact Pat , Adele Micaela , Catherine

18 Mental Illness Name Venue Mental Health Carer Support Group McGrath Street, Fairy Meadow Meeting details 3rd Wed of each Month 11.30am pm Comments A support group for older Carers (over 65 years or 55 if indigenous carers) that look after an adult child with a mental illness. Contact Illawarra Respite and Carelink Centre Phone Name CALD Carers Group Venue Illawarra Yacht Club, Northcliffe Drive, Warrawong Meeting details Meets 2 nd Monday of month to 2.00pm Comments Carers of someone with mental illness from culturally and linguistically diverse background Contact Schizophrenia Fellowship Respite Services Phone Name Venue Meeting details Comments Mental Health Carers ARAFMI Illawarra Illawarra Multicultural Centre 17 Auburn Street, Wollongong Meets every Thurs 6.30pm to 8.30pm Carers of someone with a mental illness Contact ARAFMI Illawarra Phone

19 Name Pampering for Carers Venue Bulli Community Centre, 328 Princes Highway, Bulli Meeting details Fortnightly on Mondays 9.30am to 11.30am Comments Pampering activities for carers of someone with mental illness Contact Schizophrenia Fellowship Respite Services Phone Name Aftercare s Carers Support Group - Thirroul Venue Red Cedar Room, Thirroul Community Centre, Lawrence Hargreaves Drive, Thirroul Meeting details Meets 1 st Monday of month 1.00pm to 3.00pm Comments Carers of someone with mental illness Contact Aftercare Phone Name Aftercare s Carers Support Group - Warilla Venue Meeting Room, Warilla Community Centre, Benaud Crescent, Warilla Meeting details Meets 4th Monday of month 1.00pm to 3.00pm Comments Carers of someone with mental illness Contact Aftercare Phone

20 Motor Neurone Disease Name Motor Neurone Disease Support Group Venue Port Kembla Hospital, Cowper St, Warrawong, Diversional Therapy Room Meeting details Meets 2 nd Tues monthly 10.00am to Comments People with Motor Neurone Disease and their Carers Contact Port Kembla Hospital Phone Multiple Sclerosis Name Multiple Sclerosis (MS) Support Group Venue Corrimal Bowling Club Meeting details Meets 2 nd Weds monthly 2.00pm to 3.00pm Comments People with MS, carers and family Contact Community Support Worker MS Society NSW/VIC Phone or Freecall number Older People Name Blue Haven Carers Group Venue Blue Haven, Kokoda Wing Hostel, Havillah Place, Kiama Meeting details Meets 2 nd Thurs monthly 1.00pm to 3.00pm Comments Carers of older people living in Blue Haven Aged Care facility and in the community Contact Blue Haven Phone

21 Name Diment Towers Carer Support Group Venue Diment Towers, 45 Staff Street, Wollongong Meeting details Meets Thurs 2.00pm to 4.00pm every 6 weeks Comments Carers of older people living in Diment Towers Aged Care Facility Contact Illawarra Retirement Trust Welfare Officer Phone Parkinson s Disease Name Parkinson s Support Group Illawarra Northern Venue Corrimal Community Centre, Myrtle Room, Short Street, Corrimal Meeting details Meets 2 nd Tues monthly 10.30am to12.30pm Comments People with Parkinson s Disease and their carers /families Contact John Phone Name Parkinson s Support Group Illawarra Southern Venue Albion Park Community Centre, Russell St, Albion Park Meeting details Meets 2 nd Thurs monthly 10.00am to Comments People with Parkinson s Disease and their carers /families Contact Cherie Rice Phone

22 Stroke Name Illawarra Stroke Recovery Group Northern Illawarra Venue Woonona/ Bulli RSL Club 455 Princes Hwy, W Meeting details First Thurs of the month am noon. Bus trip every second Thurs Comments For people who have had a stroke and their carers and family Contact Secretary Phone Name Stroke Recovery Group Southern Illawarra (The Strokers) Venue Shellharbour Workers Club, Macquarie Room, Shellharbour Rd, Shellharbour Meeting details Meets 2 nd Tuesday monthly 10.30am to, Meets 4 th Tuesday for an outing Comments People who have had a stroke, their carers and family Contact President Phone Tinnitus Name Tinnitus Self Help Group - Illawarra Venue Banksia Room Ribbonwood Centre, Dapto Meeting details 2nd Tues of month 9.30am to am Comments Information & support for people with Tinnitus, their family members and friends. Phone (02)

23 Produced by The Wollongong Hospital Carer Program and Social Work Department February 2014 To report incorrect details or update information in this booklet please contact the Social Work Department on

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