November 12, Dear Senator:
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- Clifton Edwards
- 8 years ago
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1 November 12, 2014 Dear Senator: The undersigned members of the Ad Hoc Group for Medical Research, which represents patients and their families, scientists, research institutions, health care providers, and industry, strongly urge you and your colleagues to make fiscal year (FY) 2015 appropriations legislation a priority when you return in November and to work in a bipartisan manner to pass final, omnibus spending legislation before the end of the calendar year. This omnibus spending package should include an FY 2015 Labor-HHS-Education appropriations bill that restores funding for the National Institutes of Health (NIH) to, at a minimum, pre-sequestration levels. The breakdown of this year s appropriations process and the need once again to enact a short-term continuing resolution (CR) to continue funding for medical research creates inefficiencies, and impedes long term planning by NIH and the institutions and scientists it supports throughout the nation. Under a CR, NIH typically cannot issue new grants and often withholds funds from existing projects, adding uncertainty to a system that is already under stress. More concerning, it delays hope to the millions of Americans who look to medical research as the answer to disease and disability. In addition, Congress has repeatedly failed even to debate the Labor-HHS spending bill through regular order. It has been almost a decade since the last Labor-HHS spending bill was enacted as stand-alone legislation, and it has been three years since the House has even introduced a Labor- HHS spending bill. We also are concerned that important emergency funding added to the CR has been offset by an across-the-board-cut. While relatively small, this cut compounds the impact of deep cuts already taken since 2010 due to federal austerity measures, including sequestration. Sustained, predictable, real growth in federal support for medical research funded by NIH in your state is essential for making real and continued progress in bringing treatments and cures to patients. Yet, the NIH budget has failed to keep pace with inflation for the past decade, declining by more than 22 percent since 2003 after adjusting for inflation. This is happening at the same time that countries are greatly increasing their investments in biomedical research, thereby creating an innovation deficit for the United States. An omnibus spending bill with a Labor-HHS appropriation restoring NIH to at least pre-sequester funding levels would mark an important step toward a more sustainable, predictable research environment for patients and their families, as well as for those working to address disease. It also would be a step in the right direction to close the innovation deficit. Members in both chambers and from both parties have expressed enthusiastic endorsements for the life-saving medical research conducted and funded by NIH. Congress needs to finish the job and enact omnibus spending legislation for FY 2015 that restores NIH funding to, at a minimum, presequestration levels. Only through thoughtful and transparent consideration of appropriations bills can lawmakers ensure we are able to address our nation s health challenges. The American people are depending on it.
2 Sincerely, Academic Pediatric Association AcademyHealth The Academy of Clinical Laboratory Physicians and Scientists Academy of Radiology Research Ad Hoc Group for Medical Research African American Health Alliance The AIDS Institute Alabaster Alliance for Academic Internal Medicine (AAIM) Alliance for Aging Research Alpha-1 Foundation The ALS Association Alzheimer's Association Alzheimer s Foundation of America American Academy of Dermatology Association American Academy of Pediatrics American Academy of Physical Medicine and Rehabilitation The American Academy of Sleep Medicine American Association for Cancer Research American Association for Dental Research (AADR) American Association for the Advancement of Science American Association for the Study of Liver Diseases American Association for Thoracic Surgery The American Association of Anatomists American Association of Colleges of Nursing American Association of Colleges of Osteopathic Medicine American Association of Colleges of Pharmacy The American Association of Immunologists American Association of Oral and Maxillofacial Surgeons American Autoimmune Related Diseases Association The American Board of Addiction Medicine Foundation American Brain Coalition American Brain Tumor Association American Cancer Society Cancer Action Network American College of Gastroenterology American College of Radiology American College of Rheumatology American Congress of Obstetricians and Gynecologists American Diabetes Association American Gastroenterological Association American Federation for Aging Research American Headache Society American Heart Association American Institute for Medical and Biological Engineering
3 American Lung Association American Occupational Therapy Association American Pancreatic Association American Pediatric Society American Physiological Society American Psychiatric Association American Psychological Association American Society for Bioethics and Humanities American Society for Cell Biology American Society for Gastrointestinal Endoscopy The American Society for Investigative Pathology American Society for Microbiology American Society for Nutrition American Society for Pharmacology & Experimental Therapeutics American Society for Reproductive Medicine American Society of Clinical Oncology American Society of Gastrointestinal Endoscopy American Society of Hematology American Society of Human Genetics American Society of Nephrology American Society of Transplantation (AST) American Sociological Association American Thoracic Society American Urogynecologic Society Americans for Medical Progress Asbestos Disease Awareness Organization Associated Medical Schools of New York The Association for Frontotemporal Degeneration (AFTD) Association for Clinical and Translational Science Association for Glycogen Storage Disease Association for Psychological Science Association for Research in Vision and Ophthalmology Association for Surgical Education Association of Academic Departments of Otolaryngology Association of Academic Health Sciences Libraries (AAHSL) Association of American Cancer Institutes Association of American Geographers Association of American Medical Colleges Association of American Universities Association of American Veterinary Medical Colleges The Association of Anatomy, Cell Biology and Neurobiology Chairs (AACBNC) Association of Independent Research Institutes The Association of Medical School Microbiology and Immunology Chairs The Association of Medical School Neuroscience Department Chairs (AMSNDC) The Association of Medical School Pediatric Department Chairs (AMSPDC) Association of Minority Health Professions Schools
4 Association of Pathology Chairs Association of Psychologists in Academic Health Centers (APAHC) Association of Public and Land-grant Universities (APLU) Association of University Anesthesiologists The Association of University Radiologists AVAC: Global Advocacy for HIV Prevention Benign Essential Blepharospasm Research Foundation Beth Israel Deaconess Medical Center Boston Biophysical Society Boston University School of Medicine Case Western Reserve University The Cave Institute Cedars-Sinai Medical Center Center on Aging, NORC at the University of Chicago Children s Hospital Association The Children s Hospital of Philadelphia Research Institute The Cholangiocarcinoma Foundation Christopher & Dana Reeve Foundation City of Hope The Clinical Research Forum Coalition for Clinical and Translational Science Coalition for the Life Sciences Coalition to Promote Research College of American Pathologists Columbia University Conference of Boston Teaching Hospitals Consortium of Academic Health Centers for Integrative Medicine Consortium of Social Science Associations Cooley s Anemia Foundation COPD Foundation Creighton University School of Medicine Crohn s and Colitis Foundation of America Cure Alzheimer's Fund Cure CADASIL Cystic Fibrosis Foundation Cystinosis Foundation David Geffen School of Medicine at UCLA Debbie's Dream Foundation: Curing Stomach Cancer DebRA of America Digestive Disease National Coalition Duke University School of Medicine Dystonia Medical Research Foundation Emory University Endocrine Society Esophageal Cancer Action Network Federation of American Societies for Experimental Biology
5 Federation of Associations in Behavioral & Brain Sciences Florida Atlantic University Foundation Fighting Blindness GBS/CIDP Foundation International Georgia Regents University Greater New Orleans, Inc. Green and Healthy Homes Initiative Gut Check Clostridium Septicum Foundation Harvard University The Heart Failure Society of America Henry Ford Health System Hepatitis B Foundation Hepatitis Foundation International Histiocytosis Association HIV Medicine Association Hospice and Palliative Nurses Association Hydrocephalus Association Hypoparathyroidism Association, Inc. Indiana University Infectious Diseases Society of America International Association of Medical Science Educators International FOP Association International Foundation for Functional Gastrointestinal Disorders Interstitial Cystitis Association Jeffrey Modell Foundation Johns Hopkins University Kent State University The LAM Foundation Lifespan Loyola University Chicago LSU Health Sciences Center - New Orleans LSU Health Sciences Center Shreveport Lung Cancer Alliance Lupus Foundation of America Lupus Research Institute March of Dimes The Marfan Foundation Mayo Clinic M-CM Network Medical College of Wisconsin Medical Library Association (MLA) Meharry Medical College Melanoma Research Alliance Meridian Health Mesothelioma Applied Research Foundation Michigan State University
6 Moebius Syndrome Foundation Moffitt Cancer Center Morehouse School of Medicine Mucolipidosis Type IV Foundation Myotonic Dystrophy Foundation National Alopecia Areata Foundation National Association of Social Workers (NASW) National Association of State Alcohol and Drug Abuse Directors National Alliance for Eye and Vision Research National Brain Tumor Society National Center for Learning Disabilities National Coalition for Cancer Research (NCCR) National Eosinophilia Myalgia Syndrome Network National Fragile X Foundation National MPS Society National Multiple Sclerosis Society National Organization for Albinism and Hypopigmentation National Organization for Rare Disorders (NORD) National Ovarian Cancer Coalition National Pancreas Foundation National PKU Alliance National Tay-Sachs & Allied Diseases Association NephCure Kidney International Neurofibromatosis Network New York Medical College New York Stem Cell Foundation North American Society for Pediatric Gastroenterology, Hepatology and Nutrition North Louisiana Economic Partnership Northeast Ohio Medical University Northeastern University NTM Info & Research, Inc. NYU Langone Medical Center The Ohio State University Wexner Medical Center One Voice Against Cancer Oregon Health & Science University Ovarian Cancer National Alliance Oxalosis & Hyperoxaluria Foundation (OHF) Pancreatic Cancer Action Network Parkinson's Action Network Partners HealthCare Penn Medicine Penn State University Phelan McDermid Syndrome Population Association of America and Association of Population Centers Prostate Cancer Foundation PSC Partners Seeking a Cure
7 Pulmonary Hypertension Association Racial and Ethnic Health Disparities Coalition Research!America The Research Institute at Nationwide Children s Hospital Roswell Park Cancer Institute Saint Francis Care, Inc Saint Louis University Sarcoma Foundation of America Scleroderma Foundation Sleep Research Society Society for Cardiovascular Magnetic Resonance Society for Gynecologic Oncology Society for Investigative Dermatology Society for Neuroscience Society for Pediatric Research Society for Women s Health Research (SWHR ) Society of Academic Anesthesiology Associations (SAAA) Society of Cardiovascular Computed Tomography Society of General Internal Medicine Society of Hospital Medicine Society of University Otolaryngologists Society of University Urologists Society of Urology Chairpersons and Program Directors Stanford University School of Medicine The State University of New York Stony Brook Medicine SUNY Upstate Medical University, Syracuse Tarlov Cyst Disease Foundation Temple University School of Medicine Tourette Syndrome Association, Inc Tuberous Sclerosis Alliance Tulane University Turner Syndrome Society of the U.S. Tuskegee University College of Veterinary Medicine, Nursing, and Allied Health Unite 2 Fight Paralysis United for Medical Research University at Buffalo University of California University of California, Davis University of California, San Francisco University of Cincinnati University of Colorado, Anschutz Medical Campus University of Connecticut School of Medicine University of Hawaii University of Illinois University of Illinois Chicago College of Medicine
8 University of Kentucky University of New Mexico Health Sciences Center University of North Carolina at Chapel Hill University of North Carolina School of Medicine University of North Dakota University of Massachusetts Medical School University of Michigan University of Minnesota University of Pittsburgh School of Medicine University of Rochester The University of Texas Medical Branch University of Toledo College of Medicine and Life Sciences University of Vermont College of Medicine University of Virginia University of Virginia School of Medicine University of Washington University of Wisconsin-Madison Upstate University Hospital, Syracuse U.S. Hereditary Angioedema Association Vanderbilt University Vasculitis Foundation Virginia Tech Carilion School of Medicine and Research Institute Wake Forest Baptist Medical Center Washington University in St. Louis Wayne State University Wayne State University School of Medicine Weill Cornell Medical College Western Michigan University Yale University
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