How To Be A Good Nurse

Transcription

1 North East Regional Forum on Learning Disability Notes from a meeting held on 15 th June 2011 at the TAD Centre, Middlesbrough Who was there Dave Norman 1 Regional Co-ordinator

2 David Hodgson Paul Regan Sharon Cook Laurence Cook Andy Fox Paul Mackay Jane Mackay John Bland Helen Gibb Gillian Ions Sharon Schmidt Sam Smeaton Barbara Taylor John Soulsby Alex Tate Audrey Wilkes Janet Hall Steven Stuart John Soulsby Brian Devine Andy Collins Stephen G Brian Smith Stephen Louise Moon Northumberland User Forum Gateshead People / National Forum rep Sunderland People First Sunderland People First Sunderland People First Northumberland User Forum Northumberland User Forum Northumberland User Forum Northumberland User Forum Northumberland User Forum Spiral Skills Spiral Skills North East Regional Mencap Gateshead People Your Voice Counts Gateshead People Gateshead People Gateshead People Gateshead People Durham Parliament Durham Parliament Durham Parliament Supporter, Durham Parliament Newcastle Champions Newcastle Champions 2

3 Sarah Bartley Jason Muldownie Karren PCA Independent TEWV Learning Disability Reference Group Jason s supporter Who could not be there Skills for people Quality Checkers Better Days Phil Parkin National Forum rep Panorama programme abuse at Winterborne View Most people had seen the BBC programme about the abuse at Winterborne View. We broke up in to small groups and talked about how to stop this happening in the future. People said : 3

4 Services need to be checked by people who use them. The checks need to be done without warning. People with learning disabilities need to be trained to do this. Training builds on their experience of using these services. We support the idea of the Experts By Experience programme which the Care Quality Commission are developing. There is a problem with the way that services are commissioned for people with socalled challenging behaviour. People get upset and kick off because their needs are not being met and they are treated badly. We should ask questions at Partnership Boards and Health sub groups. We need to meet with health and social care commissioners to talk about how they need to change what they pay for. We should write to MPs. People with learning disabilities need to train staff. Staff in these services should be paid better. There needs to be much better ways of choosing staff, so that people with poor attitudes are not given jobs in these services. 4

5 Buddy schemes could be good people with learning disabilities are the best people to help eachother. There needs to be really good independent advocacy to make sure people get their rights. There needs to be better ways for people to blow the whistle. We looked at the press release that the National Forum had done. Barbara Taylor North East Regional Mencap Stand by me campaign about hate crime Barbara Taylor talked about the Mencap campaign about hate crime that was being run leading up to Learning Disability Week. Her presentation is with these meeting notes. There was a lot of discussion people said : 5

6 There needs to be better and easier ways of reporting incidents so that the police can get a more accurate picture of what happened. Put the Police Promise into action. Sign the Mencap petition. Having good neighbours is really important. People have a problem about using the 999 emergency number what is an emergency is viewed differently by someone on the receiving end of hate crime and by the police. 111 is being tried out in Durham. Sharon from Sunderland talked about the Safe Places Scheme this means somewhere friendly and easy to report hate crime. People suggested inviting someone from a north east police force to the next meeting. 6

7 Nurse training consultation Sandra Duggan and Alison Williams, School of Health, Teesside University Sandra and Alison came along to the meeting to ask people what things they thought people training to be nurses needed to know. We broke up into small groups and came up with a long list : 7

8 What does a good nurse do? being on time - punctual easier speech with pictures if necessary talks to us directly not just to our carers (staff or family) makes eye contact asks if you have any questions ask if you want support staff with you - gives you the choice should know my needs (e.g. couldn t get to early appointment no transport) helps you find your way around (ward or outpatients) personal touch listens to me explains what they re doing patience - gives us time (to say what we want to) reassuring - calms me down (might be stressed by the situation) clear communication friendly allows extra time if necessary makes good relationship consistently sees me - the same nurse allows prior visits if necessary so that you re not worried understands about learning disability (e.g. challenging behaviour) is sensitive to possibility of negative prior experiences (e.g. may not want to have nurse of opposite sex ) 8

9 has some direct experience of people with learning disabilities possibly have volunteers on ward who know about people with learning disabilities Talk to you. Be nice to me. Talk to me in a way that I can understand. They (should) ask me do you want more food. Not to rush. Make sure you are calm before going for your operation. Should ask if you are OK to take medication Explain what they are going to do Tell you how your operation went. Give you dressings before you leave hospital for your nurse Speak clear so you can understand. Use easy language no jargon Speak to the person not just Mum and Dad Make sure they stand up for people with other staff Use HAPs and hospital passports Ask if you need any painkillers Don t be frightened of people Should have proper training Patient give people more time Choice of male or female Keep people involved Treat people with respect Ask if want someone with them 9

10 Gather detailed info about eating and drinking Named nurse have one person to get to know Same nurse if you can or tell them about me when they change over Giving people enough time - to settle into hospital - to understand check if people understand Challenge bad practice question people who are rude or discriminating Make notes for carers to help explain Use liaison nurse Stand up for people s rights Have other nurses around to help Don t take it out on the patient if having a bad day What do you think we should teach student nurses? communication to have more patience to show respect to be able to cope to recognise when people need extra support - consider the whole person confidentiality 10

11 to be helpful how to signpost on to other resources some need to be trained in sign language or Makaton. Drama and role play. Medication Communication and understanding Dignity Respect What it really feels like to be a patient / service user (take the role on for a while) Placement as a patient How to support people to speak up Makaton Body language How to keep people clean Epilepsy and fits Experiences that people have had Valuing people Autism Disabilities Blindness History of services that people have used Different ideas about values DVDs made by us The lives of people with learning disabilities (told by us) How people tick (psychology) 11

12 Awareness of the different needs that people might have e.g. communication needs and issues Health and Safety, First Aid Training by people with learning disabilities about abuse Mystery shoppers very useful Assertiveness / negotiation What activities could we use at the beginning of the training programme? Meet people with Learning Disabilities - the earlier the better. - form links with local groups - come to groups like this - we could visit the students Role play with people with learning disabilities playing the parts 12

13 How can we involve people in assessing students? Mock interviews - we could assess their communication skills Could assess them at Dr s surgery - how well did they treat us? Another idea: Could have someone with LD on panel to help train students Bigger, clearer, simpler signage in hospitals ( Nice to be nice report in development) Service users to do report on students ask patients how they are treated. Interviewing before start training Show different videos of good and bad practice and ask them what they would do. 13

14 Words to describe a good nurse Kind Caring Calm Nice Good at sign language Friendly Care about people and check on them Polite Non-judgemental Good listener see what isn t said Non-condescending Trustworthy Confidential Assertive Practical Ideas Use Self-advocacy groups Day centres and supported housing (same person) Independent sector and SS and health 14

15 Time with Speech and Language Therapists and psychology (short-term Mental Health) What does a good nurse do? Check with me (if I have a supporter) whether I want a supporter with me or not. Use their initiative Be well organised! Give people enough time Reads all the notes and gets all the information Doesn t make assumptions about me find out! Gives you really good, clear information Is focused on my needs, not the system e.g. longer appointments, visits beforehand etc. Doesn t lose their temper Has a good bedside manner for example, checks with people, is calm, doesn t lose their rag, has a good sense of humour. Finds out about communication needs 15

16 Is flexible Checks things I m allergic to. Be able to chose a male or female nurse ( a good nurse would ask) Makes sure people know they can talk to you Good attitude for example, talk to the patient not their supporters Asks whether people have got a health action plan and annual health check Make sure people really agree (consent) to things Doesn t lose their temper Understanding people with learning disabilities awareness of people s communication needs, for example Be a really good listener Helps me a prepare for an appointment (for example, talks me through things) Tells other staff things they need to know Treats us as they would want to be treated for example, with dignity and respect Challenges bosses and colleagues when things are not right (whistle blowing!) Ask if you want to talk to family members or supporters Has different ways of helping people to relax and deal with things they re scared of. Keeps up to date with things that are happening (new government laws, policies Health Action Plans, for example) 16

17 Report from the National Forum The Government had cut the money for the National and regional forums by around half. This meant that only one rep could go to national meetings from each region. National meetings were now only one day rather than two. The Government planned to put the support contract for the National Forum out to tender, and planned to make a decision about this by the end of September