1 Cindy Mann, RN, BSN Unit Manager Centra Senior Psychiatric Program
2 Sundowning Physical aggression Wandering Identification of Problematic Behavior Verbal aggression Hiding possessions Combativeness with interaction
3 Type of dementia CONSIDER Area of brain affected Stage of disease
4 Is NOT a specific disease. Alzheimer's disease is the most common cause of a progressive dementia. Is a GROUP OF SYMPTOMS affecting intellectual and social abilities severely enough to interfere with daily functioning. Memory loss generally occurs in dementia, but memory loss alone does not imply you have dementia. E
5 Alzheimer s Disease Vascular Dementia Mixed Dementia Parkinson s Disease Dementia Dementia with Lewy Bodies Frontotemporal Dementia
6 ALZHEIMER S DISEASE Brain disorder, most common form of dementia Affects 5% of people at age 65 Increased Confusion Affects 50% of people age 85+ Increased Anxiety Late-onset (65+) is most common, slowestprogressing Increased Frustration Average course of DAT: 6-20 years
7 VASCULAR DEMENTIA 2nd most common dementia after Alzheimer's disease Result of a damage to the brain caused by problems with the arteries serving the brain or heart Poor Impulse Control ASSOCIATED SYMPTOMS: Confusion and agitation; depression Unsteady gait Problems with memory Urinary frequency, urgency, incontinence Night wandering Decline in ability to organize thoughts/actions, difficulty planning Poor attention/concentration Impaired Judgment Inability to Make Decisions Approx % of all dementias are VaD
8 LEWY BODY DEMENTIA Deposition of Lewy bodies in both, cortical and subcortical SYMPTOMS - Core criteria (must have two): Fluctuating attention and concentration Recurrent, well-formed visual hallucinations Newly emerged PD-type motor problems Visual Hallucinations Affects 1% of those age 65, 5% over age 85 Usually progresses more rapidly than DAT (average = 6 years)
9 FRONTOTEMPORAL DEMENTIA Group of diseases characterized by the degeneration of nerve cells in the F-T areas of the brain (Fronto-temporal areas of the brain are generally associated with personality, behavior and language). In these dementias, portions of these lobes atrophy. ASSOCIATED SYMPTOMS: socially inappropriate behaviors loss of mental flexibility decline in personal hygiene language problems, and movement disorders difficulty with concentration and thinking. Changes in personality Changes in temperament Begins earlier and progresses faster than AD Changes in demeanor Occurs at ages younger than AD, i.e.,
11 Physical Changes, Illness or Injury? Is the person responding to Changes in hearing/vision OR Delirium OR Pain
12 FALL RISKS Fall Risks Vision Changes Medications Sedation Orthostatic Hypotension Muscle Weakness Orthopedic changes
13 Is there an underlying Mood Disorder? Are they depressed? Are they anxious?
14 SUICIDE RISK History of depression, suicidal ideation/attempts Family history of suicide reduces the taboo Medical advances increase life expectancies Fear of institutionalization Financial stressors of growing older Grief (family, friends, career, autonomy, health, wealth)
15 Is there an Underlying Thought Disorder? Having Trouble Processing Psychotic Fearful
16 Identification of Triggers What precipitated the behavior?
17 Could it have been.. Over- Stimulation? Fatigue? Change of Residence or Caregiver? Misinterpretation of Situation? Receptive Aphasia?
18 Know the Person Know their Life Story To better understand WHY a person responds the way they do Understand WHO a person is and has been.
19 A traumatic or abusive history? The lifestyle or work history they led? Are their behaviors or responses related to. Their level of education? Relationships they ve had? Religious or Cultural backgrounds? Medical history?
20 Are their needs being met? Potty Positioning Pain Personal Items P.O. intake
21 Tools and measures have been developed to help predict aggression in acute inpatient psychiatric settings
23 IRRITABILITY IMPULSIVITY UNWILLINGNESS TO FOLLOW DIRECTIONS SENSITIVITY TO PERCEIVED PROVOCATION EASILY ANGERED WHEN REQUESTS ARE DENIED NEGATIVE ATTITUDE ANXIOUS OR FEARFUL LOW EMPATHY OR REMORSE PAST VICTIM OF SEXUAL OR PHYSICAL ABUSE PHYSICAL AGGRESSION TOWARD OBJECTS IN PAST 24 HOURS VERBAL AGGRESSION TOWARD A PERSON IN PAST 24 HOURS PHYSICAL AGGRESSION TOWARD A PERSON IN PAST 24 HOURS
24 Inform ALL Care Providers and Increase Monitoring Responses to Warning Signs Possible Changes in Medication Re-assess Behavioral Strategies
25 Remain Positive & Focus upon the feelings of the individual, not the facts. In most situations, their behaviors are telling you what the person no longer can.
26 Beth B. Ulrich, LCSW Community Liaison, Centra Senior Psychiatric Program
27 PREVENTION Affection Control Security Basic Needs Inclusion
28 PREVENTION Challenging behaviors, including aggression, are usually the person s search for security, control, identity, affection or a sense of purpose or achievement.
29 PREVENTION Goal of Prevention Not stopping the behavior but addressing the needs that lie behind it.
30 PREVENTION Fundamental Questions How do we perceive behaviors? Person s effort to cope/communicate a need NOT something that must be eliminated. The approach is to identify alternatives and increase understanding rather than imposing controls.
31 REWARDS AND CONSEQUENCES DO NOT WORK
32 PREVENTION Fundamental Questions How do we see our role with cognitively impaired patients? Paternalistic versus becoming her partner Paternalistic determining what she needs or what is best for her Becoming her partner entering her world
33 Get to know the patient It is important to engage with the patient. Life story Preferences Food Activities Values Identity Mother Husband Vocation How do we see our role with cognitively impaired patients? Paternalistic versus becoming her partner Paternalistic determining what she needs or what is best for her Becoming her partner entering her world
34 PREVENTION Fundamental Questions How do we understand the behavioral and functional manifestations of dementia? Caregiver must understand the disability in order to meet the needs of the patient. Apraxia Aphasia Amnesia Agnosia Executive dysfunction
35 PREVENTION Do we ask our patients to do things that are impossible for them to do?
36 PREVENTION Fundamental Questions How do we respond to an individual s needs? The need to meet physical & psycho-social needs Security or Restriction? Identify compensation measures to meet the needs of the patient i.e., providing specific activities and forms of assistance, addressing specific needs.
37 THE 4-D APPROACH Define Decode Devise Determine Observations, details, facts Where, when, how, with whom, after/ before what? What may be contributing to cause the problem? Treatment Plan: What are we going to do? What outcome is expected? Do the interventions work?
38 DEFINE DIFFICULT BEHAVIORS VERBAL yelling, screaming, threatening through body posture PHYSICAL hitting, pushing, shoving, kicking, spitting Focus on specific behavior e.g., hits while being bathed Usually a precipitant or provocation can be identified related to the behavior.
39 DEFINE Serious problem leading to injury, distress in patients & distress to others The form the behavior takes It is important to describe: Against whom it is directed The context in which it occurs Consequences, such as injury DIFFICULT BEHAVIORS Time of day Also to examine: Frequency What the patient says
40 Decode: HEAR Health & Medical Conditions Environment Approach Resident Factors
41 Decode: HEAR Health and Medical Conditions Psychiatric Disorder or History may be related to delusions, hallucinations, suspicious behavior or paranoia Medical Disorder/History Also depression, mania, sleep deprivation Delirium Pain Constipation Visual/Hearing Impairments Certain medications (steroids, etc.) Hydration and nutrition A thorough medical exam including consideration of psychiatric history should be conducted. Include a head CT.
42 Decode: HEAR Environment over stimulating or under stimulating? Is there a lack of structure and activity?
43 Decode: HEAR Approach being pushed, approached from behind, inadequate communication A supportive and attentive approach helps to prevent problematic behaviors.
44 Decode: HEAR Resident Factors Be aware of patients Needs Wants Habits Desires
45 Decode Aphasia patient may be frustrated by an inability to express himself or to understand something being said to him. Agnosia patient may not recognize a person who is approaching him and may strike out in self defense Consider the symptoms of dementia or other cognitive disorders Apraxia patient cannot identify an object so he throws it (i.e. TV or lamp) Amnesia patient tells the same story repeatedly or cannot remember what he had for breakfast Executive Disorder inhibitions related to aggressive urges no longer exist
46 Decode Could it be a catastrophic reaction?
47 Decode Catastrophic Reaction Sudden expression of negative emotion i.e., crying, yelling precipitated by an environmental event or a task failure Person behaves as if a catastrophe has happened even though the precipitant is minor.
48 DEVISE Change caregiver approach Remove the precipitant Use distraction Stay calm Keep patient out of harm s way even if it means grabbing the patient or blocking him Make environmental changes Pay attention and spend time with your patient develop a trusting relationship Know how to identify precipitants especially related to catastrophic reactions
49 DEVISE CHANGE CAREGIVER APPROACH Stop correcting Don t argue (delusions and hallucinations) The patient is always right Walk away and try again later with a different approach Show the person what you want him or her to do by demonstrating and praising nonverbally through hugs or a caring smile Don t talk about the person in front of him/her
50 DEVISE REMOVE THE PRECIPITANT Certain people Time of day Certain places Understand the task failure Reassure And use distraction
51 DEVISE USE DISTRACTION What does he/she like to do? Reminisce Favorite foods Favorite music Avoid TV, especially soaps and talk shows (old sit coms and old Westerns are better).
52 DEVISE STAY CALM I m sorry. Listen without judgment
53 DEVISE KEEP PATIENT OUT OF HARM S WAY Even if it means grabbing the patient or blocking him Learn caregiver protection techniques-mandt Blocking arm swings Getting out of holds Controlling patients hands
54 DEVISE MAKE ENVIRONMENTAL CHANGES Temperature Noise level Providing comfortable clothes Decorating with familiar pictures Soothing aromas Enjoyable sounds
55 DEVISE Develop a Trusting Relationship Get to know her history
56 DEVISE Provide activity and structure Examine communication techniques
57 COMMUNICATION Speak slowly in a lowpitched voice Enunciate your words Begin your conversations socially Use short, familiar words and simple sentences Talk in a warm, easygoing, pleasant manner Ask simple questions that require a choice of a yes/no answer Listen carefully Give positive instructions and avoid don t... can t or negative commands Avoid questions that require short-term memory; e.g., Did your son come to see you today? Communicate using the person s long-term memory: I hear you have a wonderful son. Give simple instructions for one task at a time (the simple task of brushing teeth contains 11 steps) Keep talking to the person with dementia, even if he cannot talk back Focus on a word or phrase that makes sense Respond to the emotional tone of the statement, not the words Stay calm and be patient Ask family members about possible meanings for words, names, or phrases Respond as though you understand Try a hug and change the subject Simply say, Wow! Whoa!
58 DEVISE Learn caregiver protection techniques MANDT Blocking arm swings Getting out of holds Controlling patients hands Hospitalization on Geri Psych may be indicated if patient is a danger to self or others Medication interventions may be necessary
59 DETERMINE May not reach complete resolution but minimize the behavior and its consequences as much as possible It may take several weeks so... BE CONSISTENT!
60 Labeling behavior can hide the real problem.
61 In Conclusion...
62 Person with problematic behavior can actually be: Defending himself Paying someone back Letting someone know that he has had enough Telling someone he is in pain Protecting something precious
63 Is attacking her Is threatening her The solution is to identify and stop what the patient feels: Started it Is hurting her Is antagonizing her
64 Problematic behavior is generally not a vindictive action, though it may feel like an attack.
65 THE ULTIMATE RESULT Problematic behavior is reduced, improving the quality of life for the patient. The caregiver-patient relationship improves, preventing compassion fatigue and caregiver burnout.
66 References Rabbins, Peter V.; Lykestsos, Constance G.; Steele, Cynthia D. Practical Dementia Care. New York: Oxford University Press, 2006 Mace, Nancy L.; Rabbins, Peter V. The 36-Hour Day. New York: Wellness Central/ The Johns Hopkins Press, 1999 Brackey, Jolene. Creating Moments of Joy. West Lafayett: Perdue University Press, 2007
67 CONTACT Cindy Mann, RN, BSN Unit Manager Centra Senior Psychiatric Program Beth B. Ulrich, LCSW Community Liaison Centra Senior Psychiatric Program
Take Care A handbook for family caregivers Caregiver Support Program Tel: 604-877-4699 Fax: 604-872-2368 firstname.lastname@example.org www.caregivers.vch.ca Pre-recorded Event and Information Line: Tel: 604-877-4683
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