Is every Nordic patient really a research patient?

Transcription

1 Is every Nordic patient really a research patient? - case HUH Comprehensive Cancer Center Tuula Helander Development Manager Comprehensive Cancer Center, Helsinki University Hospital, and Comprehensive Cancer Center Finland (FICAN); Secretary General, Finnish Cancer Institute Nordic Cooperation Meeting, August, 25 th 2016

2 CANCER PATIENTS SURVIVAL RATES AMONG THE BEST Prostate Breast Melanoma Colon Non-Hodgkin lymphoma Rectum RCC Finland Northern Europe Entire Europe Ovarian Ventricular Lung reasearch and education Eurocare-5 Study: Lancet Oncology Tuula Helander

3 CANCER SURVIVAL IN EUROPE : RESULTS OF EUROCARE-4 AND -5 POPULATION BASED STUDIES EUROCARE'4)study:)Cancer)survival)) rates)in)finland)among)highest)in)europe) Cancer survival rates among highest in Finland, Sweden and Norway 2.7 million patients diagnosed Berrino et al., Lancet Oncology 2007 Eurocare-5 (Dec, 2013): cancer registry coverage 100% in Nordic countries - 29 countries - includes data for more than 10 million patients diagnosed

4 TUCH TUH OUH HUCH HUS is a municipal federation owned by 26 Uusimaa area municipalities. KUH Population of the district: 1.5 Million Budget 1.6 Billion The largest hospital in Finland HUH Comprehensive Cancer Center Hanko 9000 new cancer patients/year treated patients 2015 Budget for cancer care: 125 m Lohja Hospital Area Lohja Hospital Paloniemi Hospital Raasepori Länsi-Uusimaa Hospital Area Nummi- Pusula Tammiharju Hospital Hyvinkää Hospital Lohja Karjalohja Karkkila Vihti Kellokoski Hospital Hyvinkää Mäntsälä Askola Nurmijärvi Järvenpää Pornainen Tuusula Kerava Porvoo Vantaa Sipoo Espoo Kauniainen Siuntio Helsinki Kirkkonummi Inkoo Jorvi Hospital Länsi-Uusimaa Hospital Hyvinkää Hospital Area Peijas Hospital HUH Comprehensive Cancer Center Lapinjärvi Loviisa Porvoo Hospital Porvoo Hospital Area Cancer care is highly centralized

5 CANCER TREATMENT HELSINKI UNIVERSITY HOSPITAL ACCREDITED AS COMPREHENSIVE CANCER CENTER Accredited by the Organization of European Cancer Institutes (OECI) The only certified cancer center in the Nordic countries Responsible for the oncological treatment of cancer throughout the area with a population base of 1.6 million. Hospitals throughout the world participate in clinical studies led from our center (as breast cancer study called SOLD; 70 hospitals from 7 countries) The only Finnish hospital in the NordicNECT cooperation network to perform early clinical trials in oncology.

6 OECI, ORGANISATION OF EUROPEAN CANCER INSTITUTES - a cancer network - almost 80 centers and institutions in Europe

7 THE MISSION OF THE OECI Organisations of cancer centres Improve quality of cancer care and translational research Increase comprehensive care Integration of research in care Production and diffusion of knowledge Ultimately: improving patients quality of life

8 MULTIDISCIPLINARY TEAMS (MDTs) All MDT procedures carefully re-evaluated New MDTs started in gynecological and prostate cancer and CML Tuula Helander

9 PATIENT INFORMATION OF ONGOING TRIALS medical-services/oncology/researchand-development/pages/ongoingresearch-projects.aspx Tuula Helander

10 CANCER SURVIVORSHIP To provide sufficient care and support for survivors Increasing the size of the psychosocial unit and the number of personnel (both psychiatric and physiotherapeutic) Patient information center launched Mobile follow-ups of breast cancer patients and of prostate cancer patients (after prostatectomy or radiotherapy) are developed, and mobile follow-ups will be developed (already ongoing) on all other cancers as well

11 PATIENT INVOLVEMENT To promote patient and family advocacy Group information for patients Continuous patient satisfaction tool (in the web) Patient information center launched Patient as educator program being planned Patient Advisory Board created in the end of 2015; first Meeting in August 2016.

12 HYKS SYÖPÄKESKUS NORDIC NECT PATIENT ACCESS TO INVESTIGATIONAL DRUGS (FI, DK, N, S)

13 NORDIC COLLABORATION - Nordic Nect (early cancer trials, phase I/II) - Nordic Lymphoma Group - Scandinavian Sarcoma Group (SSG) - Colorectal cancer - Breast cancer (NETBCG) - etc.

14 CANCER BIG CHALLENGES - the amount of cancer patients is increasing - some treatments are becoming yet more demanding - costs are increasing - regional differences are growing? à a national cancer center is needed!

15 COMPREHENSIVE CANCER CENTER FINLAND, FICAN - university hospital districts (joint authorities) and universities establish FICAN - five regional cancer centers are in charge of the operations - coordinated by a joint central unit (FICAN- NCC) located in connection of the FICAN South. - operating in January, 1st FICAN North FICAN East FICAN Centre FICAN West FICAN South National Coordination Centre, FICAN NCC

16 COMPREHENSIVE CANCER CENTER FINLAND, FICAN - basic research and patient care meet: faster and more efficient clinical application of research innovations. - highly selective drugs and precision diagnostics meet: better, more effective care. - possibilities for concentrated treatment of rare forms of cancer: better treatment results. - a better training environment for researchers and the personnel involved in patient care. - an active and attractive partner for international companies.

17 Environment of the Comprehensive Cancer Center Finland Foreign Cooperation Partners (Universities, Scientific Organisations, Research Financiers) Finnish Cancer Organisations, Patient Cancer Associations Enterprises Ministries (STM,OKM, TEM) CCC Comprehensive Cancer Center Finland Joint Enterprises Finnish Cancer Registry, FIMM, VTT Tampere CC Kuopio CC Oulu CC From the Proposal of the Finnish Cancer Institute, 2009

18 NATIONAL COORDINATION CENTER, AND PROFILES OF REGIONAL CENTERS - The operations of FICAN would be coordinated by a central unit (located in connection of one regional center, in Helsinki) - Regional profiling i.e. naming certain focus areas in accordance with the expertise of the region (university hospital/university). FICAN: a national top expert and preparatory organ that the entire cancer treatment process operates efficiently, both from the aspect of the patient and the service system, from the phase of prevention to early diagnosis and all the way to high-quality treatment and rehabilitation.

19 COMPREHENSIVE CANCER CENTER FINLAND, FICAN 1. Combines diagnostics and treatment with high-quality research and education 2. Forms a nationwide cooperation and innovation environment 3. Safeguards the equality and high quality of cancer treatment in future Finland

20 ASCO, Annual Meeting 2016, June, 2-7