Proposed Children and Youth Health Survey: Progress and Consultations. Andrew MacKenzie

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2 Proposed Children and Youth Health Survey: Progress and Consultations Andrew MacKenzie

3 Overview Background Feasibility study recommendations Content suggestions received to date Discussion questions 2

4 Background: Canadian Community Health Survey (CCHS) Redesign Five objectives based on critical review of CCHS Review content and create long term plan for Add internet collection option Transition to common household frame Revisit sample allocation strategy Study feasibility of adding children less than 12 3

5 Feasibility Study On Children's Health To be completed fall 2013 Two options for a children's health survey: Adding a children's component to the CCHS annual survey Conducting a separate survey on children's health Recommendation from the feasibility study: Most efficient approach is dedicated children s survey Integrate within CCHS team to leverage existing infrastructure 4

6 Recommended Goals Goals could match the CCHS annual: To support health surveillance programs by providing health data at the national, provincial and intra-provincial levels To provide a single data source for health research on small populations and rare characteristics To provide timely release of information easily accessible to a diverse community of users 5

7 Recommended Governance Interdepartmental Working Group Statistics Canada (SC), Health Canada (HC), Public Health Agency of Canada (PHAC) Population Health Survey Advisory Committee Provincial and Territorial ministries of Health Some regional and statistical members Canadian Population Health Survey Program (CPHSP) Steering Committee Executive level committee from SC, HC & PHAC 6

8 Technical Recommendations Canadian Child Tax Benefit (CCTB) file as a frame 96%+ coverage in provinces for children %+ coverage in territories for children 1-17 Babies <1 would be excluded Poor coverage on CCTB Move children from CCHS to children s survey CCHS-Annual would become 18+ in

9 Technical Recommendations Con t Collection every two years Mixed mode format Internet data collection, follow-up by telephone Possibility for health region estimates Similar precision to CCHS Dependant on funding decisions 8

10 Technical Recommendations Con t Similar content approach to CCHS Annual Long term content plan 40 minute questionnaire Already received more suggestions than feasible Core content asked every cycle Theme content asked on fixed rotation Rapid response option 2-3 minutes of survey time Cost recovery Initial analysis suggests ~25% overlap with CCHS 9

11 1-year theme 2-year theme Core content (20 minutes) Proposed CCHS Content Plan Age with Confirmation - Main Occupation - Demographics - Labour Force - Income - Administration - General Health - Height & Weight - Chronic Conditions - Physical Activities for Adults - Physical Activites for Youth - Fruit and Vegetables Consumption - Exposure to Second- Hand Smoke - Maternal Experiences - Alcohol Use - Smoking - Flu Shots - Primary Health Care Providers - Consultations with Health Professionals Healthy Behaviors V1 Healthy Behaviors V2 Healthy Behaviors V1 Healthy Behaviors V2 Health Condition V1 Health Condition V2 Health Condition V1 Health Condition V2 Functional Health Disability Measure Functional Health Disability Measure Patient Experience Food Security Patient Experience Food Security Mental Health V1 Mental Health V2 Mental Health V3 Screening & Monitoring Economic Burden Mental Health V1 Mental Health V2 TBD Screening & Monitoring Economic Burden 10

12 Next Steps Secure funding Content development Phase 2 consultations Methodology Project plan approval by the Canadian Population Health Survey Program (CPHSP) steering committee 11

13 Milestones Activity Completion Expand CCHS team & prepare Summer 2013 Phase 1 consultations Fall 2013 Proposals for content plan Winter 2013 Phase 2 consultations Spring 2014 Electronic questionnaire Summer 2014 Qualitative testing Fall 2014 Pilot test TBD Process and analyse pilot test 9 months Application and field preparation Fall 2016 Begin data collection Jan

14 Content Suggestions Received Drug use Alcohol consumption Smoking Sexual behavior Unplanned during intoxication Nutrition Awareness of proper nutrition Ability / involvement preparing quality food Energy drinks Food security 13

15 Content Suggestions Received Con t Physical activity Sedentary activity / screen time Organised sport Socio-economic ability to participate Injury and risk Proximity and accessibility of sports facilities 14

16 Content Suggestions Received Con t Mental health Anxiety, depression, suicide Bullying, coping strategies, peer pressure School readiness Volunteering Sense of belonging Extracurricular activities Social connections Social media Cell phones 15

17 Content Suggestions Received Con t Chronic Conditions Vaccines and reasons for resistance Criminal activity Safe environments Perceptions of monitoring Parental control of internet, friends, cell phone Exposure to inappropriate media Games, movies, advertising 16

18 Content Suggestions Received Con t Barriers to health care Dental care Child maltreatment / family violence Family time Intergenerational Knowledge of children s rights Family dynamics School absenteeism Relationship with health 17

19 Discussion How frequently do you need children and youth health information? What data sources are you currently using to obtain data on children and youth s health? What are the data needs at the federal, provincial, territorial and regional levels? What are the age groups of interest? 1-5, 6-11, 12-17? 18