Complex Regional Pain Syndrome (CRPS)
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1 Patient & Family Guide 2016 Complex Regional Pain Syndrome (CRPS)
2 Complex Regional Pain Syndrome (CRPS) What is CRPS? Complex regional pain syndrome (CRPS) is a condition that causes pain symptoms out of proportion to the severity of the injury. The cause of CRPS is not clearly understood and there is no single test that can diagnose the condition. Diagnosis is done by physical exam and a review of your medical history. What causes CRPS? CRPS can happen following: Sprains and strains Surgery Trauma (for example: crush injuries, fractures, burns, amputation) Nerve injuries Stroke or heart attack Infections 1
3 Signs and symptoms can include: A feeling of burning or throbbing pain that doesn t stop. Changes in skin colour the skin in the affected area may look white, red, blue, or any combination of these. Your skin may also look shiny. Changes in skin temperature from very warm to very cold. Sensitivity to cold or touch that would normally not cause pain. Swelling in the affected area. Changes to nail growth the nails on the affected limb may grow faster or become dull, ridged, or brittle. Changes to hair growth in the affected area the hair may grow darker, thicker, and faster in the affected area. Having a hard time moving the affected limb because of pain. Symptoms of pain, swelling, redness, hypersensitivity, and changes in temperature happen first. Your symptoms may change over time. 2
4 Not moving your limb can lead to: Muscle weakness Atrophy (muscle loss) Joint and muscle stiffness After a long period of pain and suffering, you may see secondary psychological changes. You may have sleep disturbances, anxiety, or depression. How is CRPS treated? Medication Your doctor may recommend that you take medication to manage your symptoms. Talk to your doctor about what would be best for you. Medications that might be recommended include: Pain relievers (including topical) Antidepressants and anticonvulsants Corticosteroids Bone loss medications Sympathetic nerve blocks Vitamin D 3
5 Physiotherapy Your doctor will refer you to physiotherapy. The goal of treatment will be to lower your pain, get movement back, and return you to your previous level of activity, including work and leisure. You and the physiotherapist will make a plan together and talk about treatment options. Treatment may include: Heat and/or cold Immersion in water (aqua therapy) Transcutaneous electrical nerve stimulation (TENS) Acupuncture Exercise for range of motion and strengthening Weight-bearing exercises Desensitizing the affected area (making sensation in the affected area normal) Mirror therapy Exercise can help with: Pain relief and lowering stress Improved joint flexibility and better muscle strength Better bone density by putting weight on the affected limb 4
6 During your recovery, taking care of your physical and mental health is important. Pace your activities. Rest as needed. Keep doing normal activities as much as you can. Stay connected with friends and family. Participate in activities and hobbies that make you happy. Notes: What are your questions? Please ask. We are here to help you. 5
7 Looking for more health information? Find this pamphlet and all our patient resources here: Contact your local public library for books, videos, magazines, and other resources. For more information go to Nova Scotia Health Authority promotes a smoke-free, vape-free, and scent-free environment. Please do not use perfumed products. Thank you! Nova Scotia Health Authority Prepared by: Pain Management Unit Revised by: Orthopedic Clinic Designed by: Nova Scotia Health Authority, Central Zone Patient Education Team The information in this brochure is for informational and educational purposes only. The information is not intended to be and does not constitute healthcare or medical advice. If you have any questions, please ask your healthcare provider. PM Updated December 2016 The information in this pamphlet is to be updated every 3 years or as needed.
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