TIPS FOR ACCESSING HELP IN SOUTHWEST PA

Transcription

1 TIPS FOR ACCESSING HELP IN SOUTHWEST PA PA DEPARTMENT OF HEALTH SWD Regional Resources 877-PA-HEALTH Phone FAX West Otterman St Greensburg, PA Carol J Gettemy RNC, BSN Special Health Care Needs Consultant cgettemy@state.pa.us Corrine Putt RN, BSN Maternal Child Health Consultant coputt@state.pa.us Joseph P Donahue RN, BS, MBA School Health Consultant jodonahue@state.pa.us Armstrong, Beaver, Butler, Cambria, Fayette, Greene, Indiana, Somerset, Washington, Westmoreland Allegheny County Health Department Pam Long, Chief of MCH SPECIAL KIDS NETWORK/Recreation and Leisure Systems of Care TTY: Family to Family Please contact Joan Badger-Health Information Coordinator PEAL Center at ext Toll Free TTY Parent To Parent of PA Janice Forosisky-Jennifer Grybosky-Nicole Zilli Patient Representative Department Children s Hospital Pittsburgh November

2 Health Insurance Apply for Medical Assistance (Medicaid)/MAWD/CHIP/adultBasic on the same application: To apply: Call toll-free KIDS OR GO BASIC Contact toll-free number of contractor by referencing: keyword: CHIP or adultbasic Apply online at Statewide Customer Service Center (SCSC) or in Philadelphia->Customer Service Center or Choose: Apply for Benefits DPW Helpline TTY/TTD MEDICAL ASSISTANCE Parents of Children with Special Needs / Chronic Medical Conditions Are you aware your child may be eligible for medical assistance? These benefits are not dependent on parent s income Your child may be eligible even if you have other insurance This may pay for services denied by other insurance and copays All children born premature or with developmental delays should apply Contact your County Assistance Office (CAO) If you experience problems: Ask to speak to a supervisor Write boldly on application MA only Child with a Disability Submit a current statement from your doctor explaining about all medical conditions Provide this information to both your CAO and if applying to the SS office CARE COORDINATION PROGRAMS: Ask for a Case Manager in the Special Needs Unit UPMC for You #2 #2 Director- Tina Novotni Gateway #1 #2 Director- Mona Jordan Hawkins Unison Director- Toni Elk Access Plus ext 1507 Tina Ross-Knapp ACCESS Plus Consumer Helpline: Care Coordination for Children with Special Health Care Needs and Their Families (Highmark CHIP) Amy Shannon Insurance programs-contact the Commonwealth of PA Insurance Department at: o Automated Consumer Hotline: Special Health Care Programs - PA DEPT OF HEALTH call This number is for SKN-ask to be connected to the Harrisburg Programs for the following conditions: (Income Eligibility/Use a participating provider) Cooley s Anemia Cystic Fibrosis Congenital Heart Spina Bifida Chronic Respiratory Cleft Palate Orthopedic Hemophilia End Stage Renal Disease Traumatic Brain Injury Hearing/Speech/Language Impairments For Medications-PA Patient Assistance Program Clearinghouse (worth a call) 2 2 2

3 TIPS FOR TRANSITION FROM SCHOOL TO ADULT SERVICES Youth may be able to continue on their family s private insurance plan as long as they are considered an adult disabled dependent child or are in school/college Ask Human Resources or Insurance Company for information/application. This information should include the process and form for the doctor to complete Include all medical conditions This may be available as the youth leaves high school Adult Disabled Dependent Child - Depending on Company and Policy May continue on family plan if dependent for life Be on family plan prior to turning 18 Annual re-certification - disability & dependent Student Status - Depending on Company and Policy Proof of college class load each semester (often requires full-time status) Ages 18-22, sometimes older Annual re-certification For more information please visit The Health Insurance Portability and Accountability Act (HIPAA) - stands also for portability When changing Group Health Insurance get a certificate of coverage for portability This will waive the waiting time and any increased costs for pre-existing conditions You can contact your health insurance plan for more information about how the certificate of coverage will apply to your specific situation Social Security as an adult is one pathway to public insurance (Medical Assistance) Youth receiving SSDI benefits as a child will need to reapply as an adult with disabilities Youth may want to apply for MAWD-Medical Assistance for Workers with Disabilities It is critical to have current evaluations and assessments including educational, medical and psychological. These are needed to apply and qualify for many services and programs Remember to return to the doctor for prescriptions and referrals for testing and services paid by public and private insurance Depending on whether private or public insurance is used as primary, explore the type and level of services available. Check if covered services meet the needs of the youth Be sure to show all service providers all insurance cards Keep updated on National Healthcare Reform Law or or in PA call REMEMBER: at certain ages, services and benefits change from entitlement to eligibility 3 3

4 3 STATE HEALTH CENTER (SHC): PA DEPARTMENT OF HEALTH Registered Nurses are at each site. Armstrong County SHC Kittanning Beaver County SHC Beaver Butler County Butler Cambria County SHC Johnstown Fayette County SHC Uniontown Greene County SHC Waynesburg Indiana County SHC Indiana Somerset SHC Somerset Washington SHC Washington Westmoreland County SHC Greensburg Mon Valley SHC Monessen Community Health Nurse Supervisors Maureen Barron, RN, MSN Cambria, Somerset, Indiana, Westmoreland, Mon Valley Barbara Motto, RN, BC Beaver, Fayette, Greene, Washington Sandra Kniess, RN Armstrong, Butler LINKAGE CLINICS Partnership between Children s Hospital and PA DOH 4 Sites in W PA - Can contact Nancy O Neill- Manager Rehabilitation Services at Children s County Phone Community Health Nurse Indiana County SHC Joan Reidell, RN Fayette County SHC Carol Stewart RN, BSN Beaver County SHC Kathy Brodala RN Lawrence County SHC Jodie Skiba, RN 4 4 4

5 PA DEPARTMENT OF HEALTH Southwest District Office (233 W Otterman St Greensburg, PA) or PA HEALTH SPECIALTY District Executive Director District Nurse Administrator District Epidemiology Manager Public Health Physician Business Manager CONTACT PERSON Artis Hall, MPH Anita Lukacs, RN, BS, MN Kelly Mills, RN, BSN, MSN Virginia Dato MD MPH Pauline Ostrowski School Health Consultant Joseph Donahue, RN, BS, MBA Maternal/Child Health Consultant Corrine Putt, RN, BSN Special Health Care Needs Consultant Carol Gettemy, RN, BSN Chronic Disease /Supervisor Sandra Kniess, RN Injury Prevention Coordinator Eileen Smith, RN, BS Cardiovascular Risk Coordinator Maureen Smith, RN, BSN Tobacco Prevention Donna Vilcoss, RN, BSN Public Health Educator vacant EMS Program Specialist Richard Packer, MS Communicable Disease Consultant/TB Cindy Thomas, RN, BSN Communicable Disease Consultant Christine Murphy, RN, BSN Environmental Health Specialist Perry Fox, BS Sanitarian vacant Immunization Consultant Ellen Donahue, RN, BSN Immunization Consultant Pam Sturtz, RN, BSN QA Immunization Consultant Collene Musho, RN, BSN, C HIV Nurse Consultant Barbara Hoza, RN HIV Representative Bob Fuhrman, BA, MS STD Representative Alan McNamara, BA Support Staff Nancy Pater, Kathy Hallam, Linda Bahnak Other PA Department of Health District Offices Northwest North Central South Central Northeast Southeast ALLEGHENY COUNTY HEALTH DEPARTMENT: Pamela Long RN, BSN Nurse Administrator MCH

6 LICC CONTACT person -Local Interagency Coordinating Council (Birth to five years-parents and providers of Early Intervention) Allegheny/Pittsburgh-Christine Buffington Armstrong/Indiana - Sue Perfetti Beaver-David Gengarella Butler/Lawrence/Mercer-Melissa Hollen Cambria-Kerry Mastrine ext 1353 Fayette-Lynn Clinigan Greene-Lauren Chambers Somerset-Carol Rosemyer Washington-Vicki Amos Westmoreland-Lisa Spoonhoward ext 228 LTF Chair-Right to Education Local Task Force INTERAGENCY (School age providers and parents) IU S COORDINATORS IU 28 Armstrong/Indiana Lisa Anderson Transition Coordinator Adrienne Stiteler IU 27 Beaver Joe Rubino Transition Coordinator Diane Dufour-Gaudio IU 4 Butler/Mercer/Lawrence Sue Pfahles/Bryda Zahniser Transition Coordinator Jon Weatherby IU 8 Cambria/Somerset Megan Evans Transition Coordinator Barbara Cassel/Megan Evans IU 1 Fayette/Wash/Greene Anita Walters ( ) Transition Coordinator Kristen Salamone IU 7 Westmoreland Laura DePhillips Transition Coordinator Christine Fiorina IU 3 Allegheny Robert Gevaudan Transition Coordinator Susan Grant IU 2 Pittsburgh Larry Hubbard Transition Coordinator Crystal Evans CASSP COORDINATORS: (Children and Adolescent Service System Program) Armstrong/Indiana Co Karen Winning Beaver Co Carol Egliski Butler Co Leslie Johnson Cambria Co Rosemary Zenone Fayette Co Kellie Gavran Greene Co Dean Virgili/Diane Krall Somerset Co Melissa Lenart Washington Co Gail Abercrombie Westmoreland Co Renee Dadey Allegheny Co Georgianne Palaoro/Ruth Anne Koss

7 FAMILY CENTERS: Pittsburgh Area-for information call Family Resource Initiative of Cambria County Family Resource Center Butler County Greene County Family Center Indiana County-Family Focus Program Ext 1234 Salisbury Area Family Center Family Center Program-Monessen Washington County Family Center AMERICAN RESPIRATORY ALLIANCE of Western PA Jeannie Simms Field Program Director ASSISTIVE TECHNOLOGY LENDING LIBRARY Contact People Counties Phone Donya Smith Bedford, Blair, Cambria, Fayette, Greene, Somerset, Washington Nancy Letterman Allegheny, Armstrong,Beaver,Butler,Indiana,Lawrence,Westm d CareBreak at The Watson Institute (Respite) Mary Jo Alimena Caruso Coordinator CareBreak THE CHILDREN S INSTITUTE OF PITTSBURGH DePaul Institute Dr. Dennis Barrott EVERY CHILD, INC Executive Director Susan I. Davis (SAP) PA Network for Student Assistance Program for each school district Region VIII Coordinator Renee Urick - Allegheny, Beaver, Washington, Greene, Fayette, Westmoreland Marie Bozelli Butler, Armstrong, Indiana, Lawrence, Mercer Deborah Strayer Cambria, Somerset, Bedford, Blair Contact can be made to speaking to your School Nurse SHRINERS HOSPITAL-Erie, PA Lou Ann Thorp RN lthorp@shrinenet.org Care Coordination WESTERN PA SCHOOL FOR THE DEAF Deborah K. Fell dfell@wpsd.org Coordinator Children s Services WESTERN PA SCHOOL FOR BLIND CHILDREN Mary Ann Loebig mloebig@wpsbc.org School Nurse PITTSBURGH SPEECH, HEARING AND DEAF SERVICES Diane Gallagher VENTILATOR ASSISTED PROGRAM Debbie Heinecke KID-VENT 7 7 7

8 ELKS HOME SERVICE NURSES: Pat O'Connor, RN Program Director Saint Mary s, PA Margie Wood, RN Assistant Program Director Dianna McCord, RN Washington/Greene/Fayette Angela Yackuboskey, LPN Armstrong/Indiana ext 1108 Kathy Camilleri, RN Westmoreland ext 1059 Carol Przybocki, RN Cambria/Somerset/Bedford/Blair ext 307 Ginger Bauer, RN Allegheny Ricky Hood, RN Beaver/Butler/Lawrence , ext. 659 MEDICAL HOME PROJECTS IN PA PEDIATRIC MEDICAL HOME - EPIC Integrated Care Program Renee M. Turchi, MD, MPH, Principal Investigator renee.turchi@drexelmed.edu Molly Gatto, Associate Program Director mgatto@paaap.org PA Chapter, American Academy of Pediatrics, EPIC Integrated Care, Rose Tree II, 1400 N. Providence Road, Media, PA 19063, FAX YOUTH AND ADULT MEDICAL HOME PROJECT- PA Academy of Family Physicians (PAFP) Dana Boyd, Medical Home Coordinator dboyd@pafp.com PAFP Foundation, 2704 Commerce Drive, Harrisburg, PA 17110, Fax WHAT IS A MEDICAL HOME A medical home is not a building, house or hospital, but rather an approach to providing health services in a high-quality and cost-effective manner. A medical home is defined as health care that includes coordination of care WHAT DOES IT MEAN FOR YOUTH With health care services for adolescents who have special needs, the focus is on promoting physical and mental health as part of a successful transition from youth to adulthood WHAT CAN FAMILIES AND YOUTH DO Contact the PAAAP or the PAFP to see if there is a medical home practice near you Talk with your doctors to see if they are connected to the PAAAP or PAFP and are they interested in participating in the Medical Home Projects For more information you or your doctors may contact the above programs 8 8

9 WEB SITES: PA Department of Health/Education/Welfare Social Security TTY Centers for Disease Control 5 A DAY Online March of Dimes PA Developmental Disabilities Council 8 OTHER HELPFUL NUMBERS POISON CONTROL CENTER PFI Pennsylvania Families Incorporated Dianna Brocious, Project Director pafamilies@comcast.net Child s Way (Child Care for Medically Fragile) Birth Certificates ECELS (PAAAP) The Food ALLERGY Network LEAD Information Line Learning Disabilities Assoc. of America MANAGED CARE COMPLAINTS-PA DOH Office of Long Term Living Programs-Harrisburg PIN (Mental Health Support) SELF-DETERMINATION INITIATIVE OF PENNSYLVANIA Medic Alert medicid@medicid.org 711 TELECOMMUNICATION RELAY SERVICE LEGAL ADVICE Americans with Disabilities Act HOTLINE Special Needs Trusts Google: Special Needs Planning PA HEALTH LAW PROJECT THE DISABILITY RIGHTS NETWORK OF PA (formerly The Education Law Center and the Disability Law Project) (Phil) (Pitts) JOSEPH ROMANO FAX: Web site: Info@josephromanolaw.com EDUCATION/TRANSITION HELP Special Education CONSULT LINE Office of Dispute Resolution PATTAN (PA Training & Technical Assistance Network) PEAL Parent Education & Advocacy Leadership Center PEN Parent Education Network AHEDD Education Law Center 9 9

10 EARLY INTERVENTION Call: CONNECT County MHMR 0-3 years Intermediate Unit 3-5 years Armstrong or call Family Counseling Indiana or call Indiana Co Guidance Center DDU (IU 28) EI Secretary Same as Armstrong Co Beaver or call talk to Intake (IU27) EI Secretary Butler (IU 4) call EI Secretary Cambria (IU 8) call EI Secretary Somerset (IU 8) call Same as Cambria Fayette MHMR Children s Unit EI Coordinator Greene EI Coordinator Greene Lauren Chambers Washington EI Coordinator Washinton Vicky Amos (IU 1) call ext 220 EI Secretary Same as Fayette Same as Fayette Westmoreland Mon Valley or call Westm d Casemanagement (IU 7) EI Secretary/EI Coordinator Allegheny Pittsburgh call ACHD Pam Long (IU 3) (IU 2)

11 The Epilepsy Foundation Western/Central Pennsylvania The Epilepsy Foundation Western/Central Pennsylvania (EFWCP) will ensure that people with seizures are able to participate in all life experiences; and will prevent, control and cure epilepsy through services, education, advocacy and research. Programs and services include: Free seizure recognition and first aid trainings for schools, businesses, and community groups Assistance with special education issues - Educational seminars, workshops, and conferences Summer camp - Parent and adult support groups - Family and adult social events Job search assistance Emergency medication assistance - Emergency Preparedness Information and referral - Assistance with Transition Planning For more information, please contact your local EFWCP office or visit Pittsburgh Erie Johnstown Harrisburg TDD EOP/AUX AID PA-Tourette Syndrome Association, Inc. 132 West Middle Street Gettysburg, PA (717) or (800) pfkpatsa@cvn.net Brain STEPS The Brain Injury School Re-Entry Program Brain Injury Association of Pennsylvania The Brain Injury Association of Pennsylvania, under contract from the PA Department of Health and partnered with the PA Department of Education, has created the Child & Adolescent Brain Injury School Re-Entry Program called Brain STEPS (Strategies Teaching Educators, Parents, and Students). For more information, contact: Brenda Eagan Brown, M.S.Ed. Brain Injury School Re-entry Program Coordinator Brain Injury Association of Pennsylvania eaganbrown@biapa.org Phone:

12 PA DEPARTMENT OF HEALTH PA-HEALTH Family Health Team of Nurse Consultants DOH District Offices Counties CMHD SHC: Kristen Cheslick 665 Carey Avenue, Suite 5 NORTHEAST DISTRICT kcheslick@state.pa.us Wilkes-Barre PA Carbon Lackawanna Lehigh SHCNC: Linda Denault Luzerne Monroe Northampton Pike Susquehanna Wayne ldenault@state.pa.us (fax) Wyoming *Allentown MCHC: Gail Ide *Bethlehem *Wilkes-Barre gide@state.pa.us SHC: Sheri Mountz smountz@state.pa.us SHCNC: Monika Antosy mantosy@state.pa.us MCHC: Iwona Boraks- Pielecharty Iboraks-pe@state.pa.us SHC: Deb Frey defray@state.pa.us SHCNC: Jessica Bower jesbower@state.pa.us MCHC: Pam Klotz pklotz@state.pa.us 625 Cherry Street Reading PA (fax) 1000 Commerce Park Drive Suite 109 Williamsport PA (fax) SOUTHEAST DISTRICT Berks Delaware Lancaster Schuylkill *Bucks *Chester *Montgomery *Philadelphia NORTHCENTRAL DISTRICT Bradford Centre Clinton Columbia Lycoming Montour Northumberland Potter Snyder Sullivan Tioga Union SHC: Linda Katherman lkatherman@state.pa.us SHCNC: Carol Miller carolmille@state.pa.us MCHC: Tara Clark taclark@state.pa.us 30 Kline Plaza Harrisburg PA (fax) SOUTHCENTRAL DISTRICT Adams Bedford Blair Cumberland Dauphin Franklin Fulton Huntingdon Juniata Lebanon Mifflin Perry York *York City SHC: SHCNC: Lisa Snyder lisnyder@state.pa.us MCHC: Joy Gresick jgresick@state.pa.us SHC: Joseph Donahue jodonahue@state.pa.us SHCNC: Carol Gettemy cgettemy@state.pa.us MCHC: Corrine Putt cputt@state.pa.us 19 McQuiston Drive Jackson Center PA (fax) 233 West Otterman Street Greensburg, PA (fax) NORTHWEST DISTRICT Cameron Clarion Clearfield Crawford Elk Forest Jefferson Lawrence McKean Mercer Venango Warren *Erie SOUTHWEST DISTRICT Armstrong Beaver Butler Cambria Fayette Greene Indiana Somerset Washington Westmoreland *Allegheny SH: School Health SHCN: Special Health Care Needs MCH: Maternal Child Health *County/Municipal Health Departments (CMHD)