Cancer Symptoms Survey. Key Points Summary

Transcription

1 Cancer Symptoms Survey Key Points Summary March 2012

2 The Cancer Symptoms Survey has now closed with fieldwork complete. Response rates for each of the 22 cancer groups surveyed are as follows: Sample Size Completed Moved Deceased Blank/Ill/ Refused Not Returned Response Rate Cancer Type Ineligible Colon Cancer % Rectal Cancer % Breast Cancer % Cervical Cancer % Acute Leukaemia % Chronic Lymphocytic Leukaemia % Chronic Myeloid Leukaemia % Lung Cancer % Myeloma % Non-Hodgkins Lymphoma % Malignant_Melanoma % Oesophagus Cancer % Stomach Cancer % Oral Cancer % Ovarian Cancer % Pancreas % Prostate Cancer % Bone or Soft Tissue Sarcoma % Secondary Cancer % Bladder Cancer % Kidney, Pelvis and Ureter Cancer % Uterine Cancer % % We have used a common form of description across all the separate groups of survey results, to describe the key findings of each set of tumour group patients. The analysis being undertaken at Kings by Amanda and Lindsay will provide the definitive description of the results in due course. The data has not been scored or recalculated and therefore the figures quoted are for the proportion of all respondents unless otherwise stated. 1

3 Sarcoma GP referral - 62% Painless lump - 50% Lump increasing in size - 41% Less than 2 weeks - 27% 3 months or more - 23% GP started treating for another condition - 9% GP said symptom wasn't serious - wasn't told to come back if it continued - 4% GP said symptom wasn't serious - was told to come back if it continued - 6% Did anything put you off going to see a Dr about the main health problem/symptom (q7) Didn't realise problem/symptom was serious - 45% Worried about wasting Drs time - 10% Painless lump - 9% to cancer (q10) Painless lump - 14% Lump increasing in size - 8% Gap from time they noticed the first health problem/symptom and first seeing a Dr (q12) Less than 2 weeks - 20% More than 3 months - 38% 2

4 Bladder GP referral - 85% Blood in urine - 81% Urinating more than usual - 27% Having to rush to the toilet to urinate - 14% Less than 2 weeks- 56% 3 months or more - 11% Started treating for another condition - 4% Said symptom wasn't serious; wasn't told to come back -3% Said symptom wasn't serious ; was told to come back - 2% Did anything put you off going to see a Dr about the main health problem/symptom (q7) Didn't realise problem/symptom was serious - 24% cancer: (q9): Blood in urine - 15% Urinating more often than usual - 9% Blood in urine - 32% Less than 2 weeks - 47% 3 months or more - 14% 3

5 Kidney Pelvis and Ureter GP referral - 65% Blood in urine - 39% Back pain - 21% Extreme fatigue/tiredness - 16% Less than 2 weeks - 51% 3 months or more - 18% Started treating for another condition - 4% Said symptoms weren't serious; wasn't told to come back - 5% Said symptoms weren't serious; was told to come back - 5% Didn't realise problem/symptom was serious - 28% Worried about wasting Drs time - 7% cancer: (q9): Back pain - 15% Extreme fatigue/tiredness - 11% Blood in urine - 8% Blood in urine - 16% Back pain - 14% Extreme fatigue/tiredness - 10% Less than 2 weeks - 29% 3 months or more - 26% 4

6 Secondary Cancer GP referral - 69% No symptoms at all - 19% Extreme fatigue/tiredness - 17% Lump in neck, groin or armpit - 15% Less than 2 weeks - 41% 3 months or more - 14% Started treating for another condition - 7% Said symptom wasn't serious - not told to come back - 4% Said symptom wasn't serious - told to come back - 3% Didn't realise the problem/symptom was serious - 31% Extreme fatigue/tiredness - 15% Pain in my bones - 7% Extreme fatigue/tiredness - 12% Lump in neck, groin, armpit - 7% Pain in my bones - 6% Less than 2 weeks - 31% 3 months or more - 29% 5

7 Uterine Cancer GP referral - 82% Vaginal bleeding after menopause - 62% Vaginal discharge - 21% Extreme fatigue/tiredness - 20% Pain/discomfort in tummy/pelvis - 16% Less than 2 weeks - 38% 3 months or more - 28% Started treating for another condition - 5% Said symptoms were not serious - wasn't told to come back -!% Said symptoms were not serious - was told to come back - 4% Didn't realise problem was serious - 27% Extreme fatigue/tiredness - 13% Pain/discomfort in tummy/pelvis - 11% Vaginal bleeding after menopause - 10% Vaginal bleeding after menopause - 17% Less than 2 weeks - 26% 3 months or more - 35% 6

8 Prostate Cancer GP referral - 85% Getting up at night to urinate - 46% Urinating more often than usual - 38% Having to wait for urine to come out - 25% Loss of erections - 21% No symptoms at all - 21% Having to rush to urinate - 17% Pain in my back - 14% Less than 2 weeks - 17% 3 months or more - 44% Started treating for another condition - 2% Said symptoms not serious - wasn't told to come back - 5% Said symptoms not serious - was told to come back - 2% Didn't realise the problem was serious - 32% Getting up at night to urinate - 14% Urinating more often than usual - 12% Having to wait for urine to come out - 11% Getting up at night to urinate - 16% Urinating more often than usual - 14% Having to wait for urine to come out - 9% Less than 2 weeks - 13% 3 months or more - 46% 7

9 Ovarian Cancer GP referral - 74% Persistent bloating/swelling of tummy - 45% Pain/discomfort in tummy/pelvis - 45% Urinating more often than usual - 24% Extreme fatigue/tiredness - 24% Feeling unusually full after food - 19% Bleeding from vagina - 17% Less than 2 weeks - 37% 3 months or more - 20% Started treating for another condition - 14% Said symptom wasn't serious - wasn't told to come back - 2% Said symptom wasn't serious - was told to come back - 5% Didn't realise problem/symptom was serious - 47% Worried about wasting Drs time - 10% Persistent swelling/bloating of tummy - 21% Pain/discomfort in tummy/pelvis - 20% Extreme fatigue/tiredness - 15% Feeling unusually full after food - 11% Urinating more often than usual - 11% Pain/discomfort in tummy/pelvis - 18% Persistent swelling/bloating of tummy - 17% Less than 2 weeks - 31% 3 months or more - 24% 8

10 Pancreatic Cancer GP referral - 76% Skin went yellow - 43% Faeces went pale, urine went dark - 37% Pain/discomfort in tummy - 27% Unexpected weight loss - 23% Extreme fatigue/tiredness - 23% Less than 2 weeks - 41% 3 months or over - 14% Started treating for another condition - 6% Said symptom wasn't serious - wasn't told to come back - 7% Said symptom wasn't serious - was told to come back - 2% Didn't realise problem was serious - 37% Extreme fatigue/tiredness - 18% Pain/discomfort in tummy - 13% Unexpected weight loss - 11% Skin went yellow - 10% Extreme fatigue/tiredness - 15% Pain/discomfort in tummy - 11% Pain/discomfort in back - 11% Skin went yellow - 10% Less than 2 weeks - 27% 3 months or more - 23% 9

11 Myeloma GP referral - 61% Pain/discomfort in bones - 46% Extreme fatigue/tiredness - 34% Shortness of breath - 15% Unexpected weight loss - 13% Less than 2 weeks - 31% 3 months or more - 14% Started treating for another condition - 18% Said symptom wasn't serious - wasn't told to come back - 6% Said symptom wasn't serious - was told to come back - 8% Didn't realise problem was serious - 33% Extreme fatigue/tiredness - 19% Pain/discomfort in bones - 19% Pain/discomfort in bones - 27% Extreme fatigue/tiredness - 13% Less than 2 weeks - 21% 3 months or more - 24% 10

12 Non Hodgkin's Lymphoma GP referral - 79% Lump in neck, groin, armpit - 47% Extreme fatigue/tiredness - 29% Pain/discomfort in tummy - 20% Unusual sweating at night - 16% Shortness of breath - 16% Unexpected weight loss - 15% Less than 2 weeks - 38% 3 months or more - 18% Started treating for another condition - 11% Said symptoms weren't serious - wasn't told to come back - 2% Said symptoms weren't serious - was told to come back - 9% Didn't realise problem/symptom was serious - 35% Extreme fatigue/tiredness - 22% Unusual sweating at night - 16% Extreme fatigue/tiredness - 14% Lump in neck, groin, armpit - 13% Pain/discomfort in tummy - 12% Less than 2 weeks - 26% 3 months or more - 33% 11

13 Melanoma GP referral - 91% Mole growing bigger - 36% Mole changing colour - 29% Mole changing shape - 28% Mole bleeding or crusting - 24% Mole got itchy - 18% Less than 2 weeks - 30% 3 months or more - 27% Started treating for another condition - 6% Said symptom wasn't serious - wasn't told to come back - 3% Said symptom wasn't serious - was told to come back - 3% Didn't realise problem was serious - 43% Worried about wasting Drs time - 9% Mole growing bigger - 11% Mole changing shape - 9% Mole growing bigger - 9% Mole changing colour - 6% Less than 2 weeks - 28% 3 months or more - 26% 12

14 Oesophageal Cancer GP referral - 88% Feeling of food getting stuck on way down - 63% Indigestion/heartburn - 26% Feeling sick/vomiting/regurgitating - 23% Extreme fatigue/tiredness - 19% Less than 2 weeks - 29% 3 months or more - 17% Started treating for another condition - 7% Said symptom wasn't serious - wasn't told to come back - 1% Said symptom wasn't serious - was told to come back - 4% Didn't realise problem/symptom was serious - 43% Worried about wasting Drs time - 8% Indigestion/heartburn - 26% Feeling of food getting stuck on way down - 19% Extreme fatigue/tiredness - 13% Loss of appetite - 10% Feeling of food getting stuck on way down - 27% Indigestion/heartburn - 14% Extreme fatigue/tiredness - 10% Gap from time they noticed the first health problem/symptom and first seeing a Dr (q12) Less than 2 weeks - 23% 3 months or more - 35% 13

15 Stomach Cancer GP referral - 85% Indigestion or heartburn - 43% Feeling of food getting stuck on way down - 33% Extreme fatigue/tiredness - 29% Feeling sick/vomiting/regurgitating food - 23% Unexpected weight loss - 21% Loss of appetite - 19% Feeling unusually full after food - 17% Less than 2 weeks - 27% 3 months or more - 20% Started treating for another condition - 10% Said symptom wasn't serious - wasn't told to come back - 0% Said symptom wasn't serious - was told to come back - 5% Didn't realise problem/symptom was serious - 46% Indigestion/heartburn - 21% Pain/discomfort in tummy - 13% Extreme fatigue/tiredness - 11% Indigestion/heartburn - 19% Pain/discomfort in tummy - 11% Extreme fatigue/tiredness - 9% Feeling of food getting stuck on way down - 9% Less than 2 weeks - 24% 3 months or more - 25% 14

16 Oral Cancer GP referral - 59% Mouth ulcer - 27% Lump in face or neck - 25% Pain or soreness in mouth or throat - 22% Red or white patches in mouth - 19% Lump in mouth - 16% Less than 2 weeks - 20% 3 months or more - 15% Stared treating for another condition - 9% Said symptom wasn't serious - wasn't told to come back - 4% Said symptom wasn't serious - was told to come back - 6% Didn't realise problem/symptom was serious - 48% Mouth ulcer - 6% Pain or soreness in mouth or throat - 6% Mouth ulcer - 7% Red or white patches in mouth - 7% Pain/soreness in mouth/throat - 6% Lump in face or neck - 6% Less than 2 weeks - 20% 3 months or more - 20% 15

17 Cervical Cancer GP referral - 53% Vaginal bleeding between periods - 23% Vaginal discharge - 22% Pain/discomfort in tummy/pelvis - 21% Vaginal bleeding after sex - 20% Vaginal bleeding after menopause - 20% Less than 2 weeks - 28% 3 month or more - 26% Started treating for another condition - 8% Said symptom wasn't serious - wasn't told to come back - 1% Said symptom wasn't serious - was told to come back - 7% Didn't realise problem/symptom was serious - 27% Worried about wasting Drs time - 8% Extreme fatigue/tiredness - 16% Pain/discomfort in tummy or pelvis - 13% Vaginal bleeding between periods - 12% Vaginal bleeding between periods - 12% Less than 2 weeks - 23% 3 months or more - 42% 16

18 Acute Leukaemia GP referral - 66% Extreme fatigue/tiredness - 65% Shortness of breath - 36% Looking unusually pale - 29% Unusual bruising rash or red spots - 27% Pain/discomfort in bones - 19% Lots of coughs and colds - 19% Unusual sweating at night - 17% Less than 2 weeks - 37% 3 months or more - 7% Started treating for another condition -12% Said symptoms weren't serious - wasn't told to come back - 6% Said symptoms weren't serious - was told to come back - 4% Didn't realise problem or symptom was serious - 52% Worried about wasting Drs time - 12% Extreme fatigue/tiredness - 24% Extreme fatigue/tiredness - 24% Less than 2 weeks - 22% 3 months or more - 15% 17

19 CLL (Chronic Lymphocytic Leukaemia) GP referral - 74% Lump in neck/groin/armpit - 35% Extreme fatigue/tiredness - 33% Unusual sweating at night - 24% Shortness of breath - 23% Lots of coughs and colds - 14% Less than 2 weeks - 33% 3 months or more - 17% Started treating for another condition - 7% Said symptom wasn't serious - wasn't told to come back - 5% Said symptom wasn't serious - was told to come back - 5% Didn't realise problem/symptom was serious - 30% Extreme fatigue/tiredness - 21% Unusual sweating at night - 21% Lump in neck/groin/armpit - 14% Lump in neck/groin/armpit - 18% Extreme fatigue/tiredness - 18% Unusual sweating at night - 13% Less than 2 weeks - 15% 3 months or more - 29% 18

20 CML (Chronic Myeloid Leukaemia) GP referral - 77% Extreme fatigue/tiredness - 51% Unusual sweating at night - 33% Unexpected weight loss - 27% Pain/discomfort in tummy - 24% Shortness of breath - 19% Less than 2 weeks - 27% 3 months or more - 23% Started treating for another condition - 9% Said symptom wasn't serious - wasn't told to come back - 2% Said symptom wasn't serious - was told to come back - 3% Didn't realise problem/symptom was serious - 54% Too busy to make time to go to Dr - 11% Extreme fatigue/tiredness - 30% Unusual sweating at night - 20% Extreme fatigue/tiredness - 21% Unusual sweating at night - 13% Less than 2 weeks - 9% 3 months or more - 53% 19

21 Lung Cancer GP referral - 67% Cough - 41% Shortness of breath - 31% Chest infection that didn't go away - 26% Pain in chest or shoulder - 19% Extreme fatigue/tiredness - 17% Less than 2 weeks - 36% 3 months or more - 10% Started treating for another condition - 10% Said symptom wasn't serious - wasn't told to come back - 2% Said symptom wasn't serious - was told to come back - 6% Didn't realise problem/symptom was serious - 39% Cough - 18% Chest infection that didn't go away - 12% Shortness of breath - 12% Extreme fatigue/tiredness - 11% Cough - 19% Chest infection that didn't go away - 13% Shortness of breath - 12% Less than 2 weeks - 32% 3 months or more - 19% 20

22 Breast Cancer GP referral - 52% Lump, swelling or thickening in breast or armpit - 45% No symptoms at all - 16% Pain or discomfort in breast/armpit - 11% Less than 2 weeks - 48% 3 months or more - 7% Started treating for another condition - 1% Said symptom wasn't serious - wasn't told to come back - 1% Said symptom wasn't serious - was told to come back - 0% Didn't realise problem/symptom was serious - 13% Had too many things to worry about - 6% Lump/swelling/thickening in breast or armpit - 6% Pain or discomfort in breast or armpit - 5% Lump/swelling/thickening in breast or armpit - 10% Less than 2 weeks - 43% 3 months or more - 18% 21

23 Colon Cancer GP referral - 60% Pain/discomfort in tummy - 27% Extreme fatigue/tiredness - 24% Bleeding from back passage/blood in faeces -23% Less than 2 weeks - 29% 3 months or more - 23% Started treating for another condition - 12% Said symptom wasn't serious - wasn't told to come back - 2% Said symptom wasn't serious - was told to come back - 5% Didn't realise problem was serious - 33% Extreme fatigue/tiredness - 17% Bleeding from back passage/blood in faeces - 10% Pain/discomfort in tummy - 10% Bleeding from back passage/blood in faeces - 16% Pain/discomfort in tummy - 13% Extreme fatigue/tiredness - 10% Less than 2 weeks - 14% 3 months or more - 36% 22

24 Rectal Cancer GP referral - 68% Bleeding from back passage/blood in faeces - 63% Defecating more than normal - 31% Loose faeces - 15% Extreme fatigue/tiredness - 13% Less than 2 weeks - 18% 3 months or more - 37% Started treating for another condition - 10% Said symptom wasn't serious - wasn't told to come back - 3% Said symptom wasn't serious - was told to come back - 6% Didn't realise problem/symptom was serious - 38% Too worried about what Dr might find - 9% cancer: (q9): Bleeding from back passage/blood in faeces - 22% Defecating more than normal - 14% Loose faeces - 11% Bleeding from back passage/blood in faeces - 29% Less than 2 weeks - 21% 3 months or more - 39% Dr Reg Race Quality Health 23