EUROPEAN CLUB FOR FETAL SURGERY
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1 EUROPEAN CLUB FOR FETAL SURGERY First Workshop Open Fetal Surgery for Myelomeningocele January 14-16, 2015 Wednesday, MAP DAY 13:45 14:00 Opening 14:00 14:30 N. Scott Adzick (USA): A View from the Mountain Top: Alpine Perspectives on the 4 th Decade of Fetal Surgery 14:30 16:00 Session 1: Myelomeningocele: Prenatal Diagnosis, Prenatal Counselling, and Current Management in different European Countries 16:00 16:30 Break 16:30 18:00 Session 2: Myelomeningocele: Prenatal Diagnosis, Prenatal Counselling, and Current Management in different European Countries 18:00 19:30 Leisure time 19:30 Dinner plus Thursday, WOMB DAY 09:00 10:30 Session 3: Diagnostic Workup, Patient Selection and Preoperative Management 10:30 11:00 Break 11:00 12:25 Session 4: Fetal Surgery 12:30 13:30 Lunch 13:30 14:15 Session 5: Postoperative Prenatal Outcome 14:15 14:45 Break 14:45 16:00 Session 6: Other Interesting Aspects 16:00 16:30 Break 16:30 Outdoor event with dinner Friday, BIRTH DAY 09:00 10:15 Session 7: Birth and Postnatal Outcome 10:15 10:45 Break 10:45 12:00 Session 8: closing panel discussion 12:00 13:00 Closing and Departero 1
2 Wednesday, MAP DAY Sessions 1 & 2 MYELOMENINGOCELE: PRENATAL DIAGNOSIS, PRENATAL COUNSELLING, AND CURRENT MANAGEMENT IN DIFFERENT EUROPEAN COUNTRIES Chairs: N. Scott Adzick (USA) / Martin Meuli (Switzerland) Nicole Ochsenbein / Ueli Moehrlen (Switzerland): Prenatal MMC management in Switzerland Karl-Philipp Gloning (Germany): Prenatal MMC: Diagnosis and treatment options in Germany Matthias Scheier (Austria): and current management in Austria Romain Favre (France): Epidemiology and Ultrasound screening of NTD in France Maria Pia Pisoni (Italy): and current management in Italy Ross Welch (UK): UK Practice Anton Mikhailov (Russia): and current management in Russia Janusz Bohosiewicz (Poland): Fetal surgery in Poland Peter Lindgren (Sweden): Current management of MMC in the Scandinavian countries Alex J. Eggink (The Netherlands): Referral for Fetal Therapy for Spina Bifida. The Dutch Way. and current management in Belgium Ratko Matijevic (Croatia): Prenatal Diagnosis and Counselling on Myelomeningocele in Croatia 15 min 90 min + 90 min 2
3 Thursday, WOMB DAY Session 3 DIAGNOSTIC WORKUP, PATIENT SELECTION AND PREOPERATIVE MANAGEMENT Chairs: Alan Flake (USA) / Nicole Ochsenbein (Switzerland) Referrals for suspicion of spina bifida and for fetal surgery in Belgium Anton Mikhailov (Russia): Spinal neural tube defects: prenatal diagnosis, counselling, care and perspectives Diagnostic workup and preoperative management at CHOP Roland Zimmermann (Switzerland): Diagnostic Workup, Patient Selection and Preoperative Management the Zurich Approach Mateusz Zamlynski (Poland): Pre-selection and quailification of the patients for prenatal myelomeningocele closure Polish experience Klaudia Korecka (Poland): Babies with myelomeningocele in Poland: parents attitudes on fetal surgery versus termination of pregnancy 10 min 90 min 3
4 Session 4 FETAL SURGERY Chairs: N. Scott Adzick (USA) / Ueli Moehrlen (Switzerland) Fetal surgery at CHOP Martin Meuli (Switzerland): SOP Zurich and a few questions Peter Biro (Switzerland): Anesthesia for MMC repair a tightrope walk Fetal surgery in Leuven Anita Olejek (Poland): Maternal-fetal surgical procedures for intrauterine myelomeningocele repair 15 min 80 min Session 5 POSTOPERATIVE PRENATAL OUTCOME Chairs: Romain Favre (France) / Roland Zimmermann (Switzerland) Postoperative prenatal outcome at CHOP 7 min + 3 min Postoperative feto-maternal outcomes and prospective controlled study on perioperative tocolysis Katarzyna Olszak-Wasik (Poland): Postoperative care and outcomes of the patients that underwent IUMR 7 min + 3 min Nicole Ochsenbein (Switzerland): Postoperative prenatal outcome in Zurich 7 min + 3 min 45 min 4
5 Session 6 OTHER INTERESTING ASPECTS Chairs: Matthias Scheier (Austria) / Margaret Huesler (Switzerland) Luc Joyeux (Belgium): Fetoscopic Repair of Myelomeningocele: Techniques, results and maternal-fetal outcomes 10 min + 2 min Luca Mazzone (Switzerland): Skingineering: Fetal tissue engineering Gloria Pelizzo (Italia): Amniotic stem cells in myelomeningocele model. The cells reprogramming role. Martin Meuli (Switzerland): 3-D-model Stanislav Ivanov (Russia): Fetal ultrasound diagnosis and treatment of paralytic clubfoot in children with myelomeningocele. Ibrahim Wesam (Toshiba European Headquarter): Fusion with needle navigation basics and potentials. 12 min Barbara Casanova (Switzerland): Coordinator Fetal Surgery Program Martin Meuli (Switzerland): Fetal Surgery movie 12 min 70 min 5
6 Friday, BIRTH DAY Session 7 BIRTH AND POSTNATAL OUTCOME Chairs: Luca Mazzone (Switzerland) / Andrea Klein (Switzerland) Birth and postnatal outcome at CHOP Birth and postnatal outcome in Leuven David Wille (Switzerland): Neurological outcome in MMC patients after fetal surgery results from the Zurich cohort. Janusz Bohosiewicz (Poland): Influence of various preoperative parameters on the results of postnatal outcome. Agnieszka Pastuszka (Poland): The final effect of prenatal operation on lower urinary tract function is as yet unknown. 10 min 75 min Session 8 CLOSING PANEL DISCUSSION: POSITION STATEMENT ON FETAL MYELOMENINGOCELE REPAIR and EUROPEAN REGISTRY Moderation: Martin Meuli (Switzerland) Scott Adzick (USA) Matthias Scheier (Austria) Peter Lindgren (Sweden) Ross Welch (UK) Maria Pia Pisoni (Italia) Karl-Philipp Gloning (Germany) 75 min 6
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