Role Name Organisation Chief Investigator Co-Investigator/s Co-Investigator/s Co-Investigator/s Research Funder What is the phone interview about?

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1 The project is being carried out by the following researchers: Role Name Organisation Chief Investigator Professor Julian Trollor Department of Developmental Disability Neuropsychiatry, UNSW Co-Investigator/s Dr Elizabeth Evans As above Co-Investigator/s Ms Thea Kremser As above Co-Investigator/s Ms Kimberley Smith As above Research Funder NSW Ageing, Disability and Home Care (ADHC) What is the phone interview about? You are invited to take part in this phone interview because you currently work in a role supporting people with an intellectual disability. The aim of the interview is to find out about your experiences, knowledge and opinions in relation to working with people with an intellectual disability and a mental disorder. The interview is part of the wider Intellectual Disability Mental Health (IDMH) e-learning project, which aims to improve workforce knowledge on the mental health of people with an intellectual disability. In 2013, the department launched an online learning resource specifically tailored to mental health professionals. We are now in the process of expanding this to provide disability professionals with tailored modules that are appropriate for their roles. The findings from this interview will inform the content for the online resource. To participate in the phone interview you need to meet the following inclusion criteria: Be currently employed in a role that supports people with an intellectual disability Do I have to take part in this phone interview? Participation in the interview is completely voluntary. This Participant Information Statement tells you about the interview. Knowing what is involved will help you decide if you want to take part. Please read this information carefully. Ask questions about anything that you don t understand or want to know more about. If you decide you want to take part in the interview, you will be asked to: Sign the consent form; Keep a copy of this Participant Information Statement.

2 If you don t wish to take part, you don t have to. Your decision will not affect your relationship with The University of New South Wales or your employer. What does participation in this interview require, and are there any risks involved? If you choose to take part in the phone interview you will be contacted to arrange a suitable time to complete the interview. Prior to the interview two documents will be forwarded to you containing samples of material for the new disability e-learning modules. You do not need to do anything with these; however reading beforehand will assist in answering the interview questions. The phone interview will be conducted by a member of staff from the Department of Developmental Disability Neuropsychiatry and will run for around 30 minutes. You will be asked questions about your experiences working with people with an intellectual disability, your knowledge and attitudes of mental health services, and your experiences supporting people with an intellectual disability receiving mental health care. There will also be questions about the sample material sent to you, any feedback you have, and your thoughts on further training in relation to mental disorders that you feel would be helpful. With your permission we would like to digitially record the interview using an audio device. Aside from giving up your time, we do not expect that there will be any risks or costs associated with taking part in this interview. Will I be paid to participate in this phone interview? There are no costs associated with participating in this interview, nor will you be paid. What are the possible benefits of participation? We hope to use information we get from this interview to improve mental health care for people with an intellectual disability, through providing education about mental disorders for people who provide support What will happen to information about me? By signing the consent form you consent to the research team collecting and using information about you for the e-learning project, for the purpose outlined in the Participant Information Statement. It will only be disclosed with your permission. The audio digital recordings are for the purposes of the e-learning project only. After the phone interview we will transcribe the digital recordings. Your confidentiality will be ensured by de-identifying any personal details with

3 pseudonyms or codes. We will keep your digital recordings as an electronic file stored on a secure department network for seven years. Transcribed information only will be used in any publications or presentations. We will store written information about you in a locked filing cabinet at the Department of Developmental Disorders Neuropsychiatry for seven years. It is anticipated that the results of this phone interview will be published and/or presented in a variety of forums. In any publication and/or presentation, information will be provided in such a way that you will not be individually identifiable. You have the right to request access to the information about you that is collected and stored by the research team. You also have the right to request that any information with which you disagree be corrected. You can do this by contacting a member of the research team. How and when will I find out what the results of the phone interviews are? You have a right to receive feedback about the overall results of this study. You can tell us that you wish to receive feedback by ticking the appropriate box on the consent form and providing an address where suggested. This feedback will be in the form of a short summary of the findings from all of the phone interviews. You will receive this feedback after the phone interviews are finished. What if I want to withdraw from the project? If you do consent to participate, you may withdraw at any time. If you do withdraw, you will be asked to complete and sign the Withdrawal of Consent Form which is provided at the end of this document. You are free to stop the interview at any time. Unless you say that you want us to keep them, any recordings will be erased and the information you have provided will not be included in the study results. You may also refuse to answer any questions that you do not wish to answer during the interview. If you decide to leave the project, the researchers will not collect additional information from you. Please let us know at the time when you withdraw what you would like us to do with the information we have collected about you up to that point. If you wish your information will be removed from our study records and will not be included in the study results, up to the point that we have analysed and published the results. What should I do if I have further questions about my involvement in the project? The person you may need to contact will depend on the nature of your query. If you want any further information concerning this project or if you have any problems which may be related to your involvement in the project, you can contact the following member/s of the project team:

4 Research Team Contact Name Kimberley Smith Position Project Officer Telephone (02) If at any stage during the project you become distressed or require additional support from someone not involved in the research please call the contact below for a list of appropriate resources: Contact for feelings of distress Name/Organisation Kimberley Smith Position Project Officer Telephone (02) kimberley.smith@unsw.edu.au What if I have a complaint or any concerns about the project? If you have any complaints about any aspect of the project, the way it is being conducted, then you may contact: Complaints Contact Position Human Research Ethics Coordinator Telephone humanethics@unsw.edu.au HC Reference HC15182 Number

5 Consent Form Declaration by the participant I have read the Participant Information Sheet about the phone interview and/or have discussed the research project with one of the researchers listed above; I understand the purposes, study tasks and risks of the research described in the project; I agree to being audio recorded for the purposes outlined in the Participant Information Sheet; I have had an opportunity to ask questions and I am satisfied with the answers I have received; I freely agree to participate in the phone interview described and understand that I am free to withdraw at any time during the project and withdrawal will not affect my relationship with any of the named organisations and/or research team members; I understand that the data collected from my participation will be used for the development of training materials, for publication in peer reviewed journals, and for presentation at scientific conferences, and I consent for it to be used in that manner. I wish to receive findings from this study and my address is:... Participant Signature Name of Participant (please print) Signature of Research Participant Date

6 Declaration by Researcher* I have given a verbal explanation of the project, its study activities and risks and I believe that the participant has understood that explanation. Researcher Signature* Name of Researcher (please print) Signature of Researcher Date

7 Withdrawal of Participation I wish to WITHDRAW my consent to participate in the phone interview described above and understand that such withdrawal WILL NOT affect my relationship with The University of New South Wales, or my place of employment. Participant Signature Name of Participant (please print) Signature of Research Participant Date The section for Withdrawal of Participation should be forwarded to: CI Name: Professor Julian Trollor j.trollor@unsw.edu.au Phone: (02) Postal Address: 34 Botany Street, Randwick, NSW 2031