Below is a list of some useful contacts that you may find useful:

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1 Useful Organisations Below is a list of some useful contacts that you may find useful: Accessible Britain FREE Rough Guide to Accessible Britain if you hold a Blue Badge, Disabled Person's Railcard or you're a Motability customer. Usual cost To obtain your book either download a form or telephone For large print or Braille versions of the guide telephone Arthritis Care Arthritis Care is a national registered charity that works with and for people with arthritis. It provides information and helpline services, support, self-help, information and campaigns on issues related to arthritis. Address: 4 th Floor, Linen Court, London, N1 6AD Telephone: Helpline Info@arthritiscare.org.uk Association for Spina Bifida and Hydrocephalus Address: ASBAH House, 42 Park Road, Peterborough, Cambridgeshire, PE1 2UQ Telephone: Fax: helpline@asbah.org Association of Wheelchair Children The Association of Wheelchair Children (AWC) is a national charity that runs expert wheelchair training courses for children and their families across the whole of the UK and Ireland. Address: 6 Woodman Parade, North Woolwich, London, E16 2LL Telephone: Fax: address: headoffice@wheelchairchildren.org.uk

2 Family Information Service Directory This is a useful information website to find information about services and events for parents/carers, young people and children. Limbless Association The Limbless Association is a charity which provides support for individuals without one or more limbs, their carers and prospective amputees. Services include a helpline for people born without upper or lower limbs or who have had amputations. It offers emotional support and advice on a variety of issues including prostheses, aids and adaptations, welfare benefits and holidays. It also promotes rehabilitation through a home/hospital visiting service and makes representations to statutory authorities. Address: Jubilee House, 3 The Drive, Warley Hill, Brentwood, CM13 3FR Telephone: Fax: address: enquiries@limbless-association.org Motability If the patient is receiving motability they can use part of their allowance towards the cost of a scooter or powered chair. Address: Motability Operations, City Gate House, 22 Southwark Bridge Road, London, SE1 9HB. Telephone: (8.30am till 5.30pm Monday to Friday) If you have specialist Minicom equipment, call ou text phone on Motor Neurone Disease Association The Motor Neurone Disease Association is an organisation which supports people with motor neurone disease (group of related progressive and fatal diseases affecting the motor neurones in the brain and spinal cord). It provides an information and advice service (Mind Connect), regional care development advisors, local branches, the loan of specialist equipment and limited financial support. It also funds research into Motor Neurone Disease. Address: PO Box 246, Northampton, NN1 2PR Telephone: Helpline , Fax: address: enquiries@mndassociation.org

3 Multiple Sclerosis Society The Multiple Sclerosis Society is a national charity which provides information and support for anyone affected by multiple sclerosis (MS). It has local branches across the country providing information on symptoms, treatments, welfare benefits, employment, education, complementary therapies, relationship problems and sexuality. It produces numerous publications on MS and runs a freephone specialist helpline. Address: MS National Centre, 372 Edgware Road, London, NW2 6ND Telephone: Helpline , Admin Fax : address: info@mssociety.org.uk Muscular Dystrophy Campaign The Muscular Dystrophy Campaign is a national charity which funds research to find effective treatments and cures and campaigns to raise awareness of Muscular Dystrophy. It awards grants towards the cost of specialist equipment, such as powered wheelchairs and care advisors based in hospitals provide practical, medical and emotional support to people affected by the condition. It also provides telephone information and support relating to neuromuscular conditions. Address: 61 Southwark Street, London, SE1 0HL Telephone: , address: info@muscular-dystrophy.org The Neurological Alliance The Neurological Alliance is a charity which campaigns for better services for people with neurological conditions and their carers. They represent neurological charities working to achieve better health and support services for people with neurological conditions. Address: Dana Centre, 165 Queen's Gate, London, SW7 5HE. Telephone: address: admin@neural.org.uk

4 SCOPE SCOPE is a national disability charity whose focus is people with cerebral palsy, a physical condition that affects movement. It provides residential services, independent living schemes, education and employment opportunities, support for families and carers, advocacy, support for self-help groups. It also provides Scope Response, a telephone helpline offering information, advice and support on cerebral palsy and related disability issues. Address: PO Box 833, Milton Keynes, MK12 5NY Telephone:Scope Response address: response@scope.org.uk Spinal Injuries Association (SIA) The Spinal Injuries Association (SIA) is a charity which offers support to people affected by spinal cord injury, including the family and friends of the disabled person. Its services include an advice line and peer support for people with spinal cord injuries, a community link scheme putting people who have shared similar experiences or conditions in touch. Address: SIA House, 2 Trueman Place, Oldbrook, Milton Keynes, MK6 2HH Telephone: Helpline , General enquiries Fax: address: sia@spinal.co.uk Steps Steps is a charity which provides support and information for families of children and individuals with lower limb abnormalities and for health professionals. Services include a telephone helpline and information service and a one to one support programme for parents with children with lower limb conditions. Parents who have experience of children with lower limb conditions volunteer to support parents who are beginning the treatment with their child. Formerly known as steps - Association for People with Lower Limb Abnormalities. Address: Warrington Lane, Lymm, Cheshire, WA13 0SA Telephone: Helpline Fax: address: info@steps-charity.org.uk

5 Stroke Association The Stroke Association is a national charity which provides information for people affected by strokes, their carers and professionals. It runs a range of local services including communication support groups, family and carer support services and supports a network of affiliated stroke groups. It also funds research and gives one-off welfare grants. Address: Stroke House, 240 City Road, London, EC1V 2PR Phone number: Helpline , Switchboard Fax: address: info@stroke.org.uk Whizz-Kidz Whizz-Kidz is a charity which provides customised mobility equipment for disabled children and young people that is not available via the NHS. Equipment includes powered and manual wheelchairs, tricycles, specialist walking frames and sports wheelchairs. It also campaigns on children's mobility issues. Address: Elliot House, Allington Street, London, SW1E 5EH Phone number: Events hotline Fax: address: info@whizz-kidz.org.uk

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