How To Measure And Promote Participation Of Children With A Brain Injury

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1 Measuring & Promoting Participation of Children & Youth with Acquired Brain Injuries Gary Bedell, Ph.D., OTR/L Alyn Hospital Pediatric Rehabilitation Conference, Jerusalem, Israel (9/12/12) References Achenbach, T. M. (1991). Manual for the Child Behavior Checklist/4-18 and 1991 profile. Burlington, VT: University of Vermont, Department of Psychiatry. Achenbach, T. M. & Ruffle, T.M. (2000). The Child Behavior Checklist and related forms for assessing behavioral/emotional problems and competencies Pediatrics in Review 21(1), Anaby, D., Law, M., Hanna, S., & DeMatteo, C. (2012). Predictors of change in participation rates following acquired brain injury: Results of a longitudinal study. Developmental Medicine & Child Neurology, 54, Bedell, G. (2012). Measurement of Social Participation. In V. Anderson, & M. Beauchamp (Eds.), Developmental Social Neuroscience and Childhood Brain Insult: Implication for Theory and Practice. New York, NY: Guilford Publications. Bedell, G. (2009). Further validation of the Child and Adolescent Scale of Participation (CASP). Developmental Neurorehabilitation, 12(5), Bedell, G. M. (2004). Developing a follow-up survey focused on participation of children and youth with acquired brain injuries after discharge from inpatient rehabilitation. NeuroRehabilitation, 19, Bedell, G. M., Cohn, E. S., & Dumas, H. M. (2005). Exploring parents' use of strategies to promote social participation of school-age children with acquired brain injuries. American Journal of Occupational Therapy, 59(3),

2 Bedell, G. & Coster, W. (2008). Measuring participation of school-aged children with traumatic brain injuries: Considerations and approaches. Journal of Head Trauma Rehabilitation, 23(4), Bedell, G. M. & Dumas, H.M. (2004). Social participation of children and youth with acquired brain injuries discharged from inpatient rehabilitation: A follow-up study. Brain Injury, 18(1), Bedell, G., Khetani, M.A., Cousins, M.A., Coster, W.J., & Law, M.C. (2011). Parent perspectives to inform development of measures of children's participation and environment. Archive of Physical Medicine & Rehabilitation, 92, Berg, C. & LaVesser, P. (2006). The Preschool Activity Card Sort. Occupational Therapy Journal of Research 26(4), Coster, W., Bedell, G., Law, M., Khetani, M., Teplicky, R., Liljenquist, K., Gleason, K. & Kao, Y. (2011). Psychometric evaluation of the Participation and Environment Measure for Children and Youth (PEM-CY). Developmental Medicine & Child Neurology, 53, Coster, W., & Law, M., Bedell, G., Khetani, M. Cousins, M., Teplicky, R. (2012). Development of the Participation and Environment Measure for Children and Youth (PEM-CY): Conceptual basis. Disability and Rehabilitation, 34, Coster, W. J., Deeney, T., Haltiwanger, J., & Haley, S.M. (1998). School Function Assessment. San Antonio, TX: PsychCorp. Coster, W., & Khetani, M. A. (2008). Measuring participation of children with disabilities: Issues and challenges. Disability and Rehabilitation, 30(8),

3 Cusik, A., Lannin, N. A., & Lowe, K. (2007). Adapting the Canadian Occupational Performance Measure for use in a paediatric clinical trial. Disability and Rehabilitation, 29(10), Cusik, A., McIntyre, S., Novak, I., Lannin, N., & Lowe, K.. (2006). A comparison of Goal Attainment Scaling and the Canadian Occupational Performance Measure for paediatric rehabilitation research. Pediatric Rehabilitation, 9(2), DeMatteo, C., Cousins, M.A., Lin, C.A., Law, M., Colantonio, A., & Macarthur, C. (2008). Exploring postinjury living environments for children and youth with Acquired Brain Injury. Archives of Physical Medicine & Rehabilitation, 89, Dijkers, M. P. (2010). Issues in the conceptualization and measurement of participation: An overview. Archives of Physical Medicine and Rehabilitation, 91(Supplement 1), S5-S16. Dumas, H., Bedell, G., & Hamill, S. (2003). Strategies to promote activity performance and participation in children and youth with acquired brain injuries. International Journal of Rehabilitation Research, 26, Dunst, C. J., Hamby, D. W., Trivette, C. M., Raab, M., & Bruder, M. B. (2002). Young children's participation in everyday family and community activity. Psychological Reports, 91, Dunn, W., Cox, J., Foster, L., Mische-Lawson, & Tanquary, J. (2012). Impact of contextual intervention on child participation and parent competence among children with Autism Spectrum Disorders: A pretest-posttest repeated-measures design. American Journal of Occupational Therapy, 66, Eccles, J. S., Barber, B.L., Stone, M., & Hunt, J. (2003). Extracurricular activities and adolescent development. Journal of Social Issues, 59(4),

4 Feinstein, A. R. (1987). Clinimetrics. New Haven: Yale University Press. Fletcher, A. C., Nickerson, P., & Wright, K. L. (2003). Structured leisure activities in middle childhood: Links to well-being. Journal of Community Psychology, 31(6), Galvin, J, Froude, EH, & McAleer, J. (2010). Children s participation in home, school and community life after acquired brain injury. Australian Occupational Therapy Journal, 57, Glang, A., Todis, B., Cooley, E., Wells, J., Voss, J. (1997). Building social networks for children and adolescents with traumatic brain injury: A school-based intervention. Journal of Head Trauma Rehabilitation, 12(2), Graham, F., Rodger, S. & Ziviani, J. (2010). Enabling occupational performance of children through coaching parents: Three case reports. Physical & Occupational Therapy in Pediatrics, 30, Graham, F., Rodger, S. & Ziviani, J. (2009). Coaching parents to enable children s participation: An approach for working with parents and their children. Australian Occupational Therapy Journal, 56, King, G., Law, M., King, S., Hurley, P., Rosenbaum, P., Hanna, S., Kertoy, M., & Young, N. (2004). Children's Assessment of Participation & Enjoyment (CAPE) and Preferences for Activities of Children (PAC). San Antonio, TX: PsychCorp. King, G., Law, M., King, S., Rosenbaum, P., Kertoy, M. K., & Young, N. (2003). Conceptual model of the factors affecting recreation and leisure participation of children with disabilities. Physical and Occupational Therapy in Pediatrics, 23, Larson, R. W. & Verma, S. (1999). How children and adolescents spend time across the world: Work, play, and developmental opportunities Psychological Bulletin, 125(6),

5 Law, M. (2002). Participation in the occupations of everyday life. American Journal of Occupational Therapy, 56(6), Law, M., Anaby, D., DeMatteo, & Hanna, S. (2011). Participation patterns of children with acquired brain injury. Brain Injury, 25, Magasi, S. & Post, M. W. (2010). A comparative review of contemporary participation measures' psychometric properties and content coverage. Archives of Physical Medicine and Rehabilitation, 91(Supplement 1), S17-S28. Mahoney, J. L., & Cairns, R.B. (1997). Do extracurricular activities protect against early school dropout? Developmental Psychology, 33(2), Mahoney, J. L., Cairns, B.D., & Farmer, T.W. (2003). Promoting interpersonal competence and educational success through extracurricular activity participation. Journal of Educational Psychology, 95(2), Malec, J. F. (2004). The Mayo-Portland Participation Index: A brief and psychometrically sound measure of brain injury outcome. Archives of Physical Medicine & Rehabilitation, 85(12), McCauley, S.R, Wilde, E.A., Anderson, V., Bedell, G., Beers, S., & Yeates, K.O. (2012). Recommendations for the use of common outcome measures on pediatric traumatic brain injury research. Journal of Neurotrauma,29, McConachie, H., Colver, A.F., Forsyth, R.J., Jarvis, S.N., & Parkinson, K.N. (2006). Participation of disabled children: How should it be characterised and measured? Disability and Rehabilitation, 28,

6 Mealings, M. & Douglas, J. (2010). School s a big part of your life : Adolescent perspectives of their school participation following Traumatic Brain Injury. Brain Impairment, 11, Noreau, L., Fougeyrollas, P., & Tremblay, J. (2005). Measure of Life Habits (LIFE-H): User's Manual. Quebec: Reseau International sur le Processus de Production du Handicap (RIPPH). Noreau, L., Lepage, C., Boissiere, L., Picard, R., Fougeyrollas, P., Mathieu, J., Desmarais, G., & Nadeau, L. (2007). Measuring participation in children with disabilities using the Assessment of Life Habits. Developmental Medicine & Child Neurology, 49(9), Palisano, R.J., Chiarello, King, G.A., Novak, I., Stoner, T., & Fiss, A. (2012). Participationbased therapy for children with physical disabilities. Disability and Rehabilitation, 34, Prigatano, G. P. & Gupta, S. (2006). Friends after traumatic brain injury in children. Journal of Head Trauma Rehabilitation, 21(6), Rosenberg, L., Jarus, T., & Bart, O. (2010). Development and initial validation of the Child Participation Questionnaire (CPQ). Disability & Rehabilitation, 32(20), Rutter, M. (1987). Psychosocial resilience and protective mechanisms. American Journal of Orthopsychiatry, 57,, Sakzewski, L., Ziviani, J., Abbott, D.F., Macdonnell, R.A., Jackson, G.D., & Boyd, R.N. (2011). Participation outcomes in a randomized trial of 2 models of upper-limb rehabilitation for children with congenital hemiplegia. Archives of Physical medicine & Rehabilitation, 92,

7 Sharp, N., Bye, R., Llewellyn, G., & Cusick, A. (2006). Fitting back in: Adolescents returning to school after severe acquired brain injury. Disability and Rehabilitation, 28, Shashua Foo, W., Galvin, J., & Olsen, J. (2012). Participation of children with ABI and the relationship with discharge status. Developmental Neurorehabilitation, 15, Simeonsson, R. J., Carlson, D., Huntington, G.S., McMillen, J., & Brent, L. (2001). Students with disabilities: A national survey of participation in school activities. Disability and Rehabilitation, 23, Sparrow, S. S., Cicchetti, D.V., & Balla, D. (2005). Vineland Adaptive Behavior Scales, Second Edition Circle Pines, MN: AGS Publishing. Wells, R, Minnes, P, & Phillips, M. (2009). Predicting social and functional outcomes for individuals sustaining paediatric traumatic brain injury. Developmental Neurorehabilitation, 12, Whiteneck, G. & Dijkers, MP. (2009). Difficult to measure constructs: Conceptual and methodological issues concerning participation and environemental factors. Archives of Physical Medicine and Rehabilitation, 90(11 Supplement 1), S World Health Organization [WHO]. (2001). International Classification of Functioning, Disability and Health. Geneva: World Health Organization. World Health Organization [WHO]. (2007). International Classification of Functioning, Disability and Health. Version for Children and Youth. Geneva: World Health Organization. Yeates, K. O., Swift, E., Taylor, H.G., Wade, S.L., Drotar, D., Stancin, T., & Minich, N. (2004). Short- and long-term social outcomes following pediatric traumatic brain injury. Journal of the International Neuropsychological Society, 2004(10),

8 Van Tol, E., Gorter, J.W., DeMatteo, C., & Meester-Delver, A. (2011). Participation outcomes for children with acquired brain injury: A narrative review. Brain Injury, 25, Ziviani, J., Desha, L., Feeney, R., & Boyd, R. (2010). Measures of participation outcomes and environmental considerations for children with Acquired Brain Injury: A systematic review. Brain Impairment, 11(2),