Findings from Carers Survey March 2015

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1 Findings from Carers Survey March

2 Introduction The and surveys provided additional information on carers and the services they received. The information forms the baseline for a time series to show whether or not these services have improved carers ability to care and live a life outside this role. The need to take into account the impact on carers of the provision and quality of services provided to service users is also important. The survey aims to collect information about carers experiences of social care services and support, and will feed into monitoring of the impact of the national carers strategy. Methodology Carers eligible for inclusion in the survey are: those carers aged 18 or over and are helping or looking after someone aged 18 or over and who have been assessed or reviewed, either separately or jointly with the cared for person by social services during the past 12 months prior to the sample being extracted The questionnaire contains 27 core questions with additional questions included that were designed to capture some specific areas of interest to Derby City Council. A total of 842 people received a postal questionnaire in October 2014; there were 356 responses received. This equates to a 42% response rate providing the required confidence levels specified in the guidance. There is a minimum requirement that the survey should achieve a margin of error around their results of no more than +/-5%. 2

3 Carers Survey (ASCOF) Below are the key measures for the Carer s surveys: Key Measures Carer s Survey 2012/ / /15 Quality of Life Overall satisfaction of Carers with Social Services 38.5% 28.5% 46.7% Proportion of Carers consulted in discussions about the person receiving care 65.5% 67.5% 73.3% Control of daily life 63.8% 64.1% 62.3% Proportion of Carers finding information for the person being cared for easy to find 64.4% 64.0% 63.4% The overall satisfaction of Carers with Social services has improved with the percentage increasing from 38.5% in to 46.7% in There has been a consistent rise in percentage with Carers feeling that they are now more involved and consulted in discussions about the person receiving care. The percentage has increased by 7.8% from to

4 Key Findings The main findings from the consultation with carers can be found in the tables within this section with a comparison of the previous two years ( and ). Although there were a total of 356 responses, not all respondents answered all questions. Base numbers are provided on each table. It is also worth noting that when questions were answer all that apply totals will not add up to 100% Question 1: How old is the person you care for? The majority of carers looked after a person over the age of 65 for the past three years. Age Group (Cared for Person) % 7.1% 2.8% % 5.1% 5.3% % 4.6% 6.5% % 7.1% 9.6% % 10.9% 11.2% % 18.8% 21.1% % 46.3% 25.3% % (75+) 18.3% Question 2: Does the person you care for have... select all that apply? A significant amount of people who are cared for have several areas of health difficulties with the most common being Physical Disability followed by Long-Standing Illness. This is common for the three years where carers were surveyed. Disability (Cared for Person) Dementia 22.5% 28.2% 24.4% Physical Disability 55.8% 56.4% 58.7% Sight or Hearing Loss 32.5% 29.3% 29.5% A Mental Health Problem 19.6% 23.5% 22.8% Problems Connecting to Ageing 37.8% 32.1% 32.6% A Learning Disability or Difficulty 19.0% 17.7% 16.6% Long-standing Illness 42.9% 49.8% 49.2% Terminal Illness 3.7% 3.4% 5.9% Alcohol or Drug Dependency 1.1% 0.9% 1.4% Question 3: Where does the person you care for usually live? The majority of people live with the person they care for. 4

5 Location With me 86.2% 81.4% 89.9% Somewhere else 86.2% 18.6% 10.1% Question 4: Overall, how satisfied or dissatisfied are you with the support or services you and the person you care for have received from Social Services in the last 12 months? 77% of respondents who have received support services from Social Services are satisfied. this is an increase from (68.5%) and (61.6%). We haven't received any support or services from Social Services in the last 12 months 27.5% 34.1% 42.0% I am extremely satisfied 13.3% 9.1% 16.6% I am very satisfied 24.1% 19.2% 30.2% I am quite satisfied 31.1% 33.3% 30.2% I am neither satisfied nor dissatisfied 16.3% 22.0% 10.1% I am quite dissatisfied 6.3% 7.5% 6.0% I am very dissatisfied 2.2% 5.0% 4.0% I am extremely dissatisfied 6.7% 3.8% 3.0% * Carers who haven t received support have been removed from the overall satisfaction rating. Question 5: Has the person you care for used any of the support or services listed below in the last 12 months? Equipment or adaptations (49.7%) are the most common service used for those clients who are being cared for followed by Lifeline Alarms (25%). a. Support or services allowing you to take a break from caring at short notice or in an emergency. b. Support or services allowing you to take a break from caring for more than 24 hours c. Support or services to allow you to have a rest from caring for between 1 and 24 hours (e.g. a sitting service) Yes No Don t Know 14.0% 83.0% 3.0% 13.0% 85.1% 1.9% 19.6% 77.3% 3.1% d. Personal assistant 11.4% 87.7% 1.0% e. Home care/home help 20.2% 79.2% 0.7% f. Day centre or day activities 22.2% 76.8% 1.0% g. Lunch club 3.6% 95.4% 1.0% h. Meals Services 1.0% 98.3% 0.7% 5

6 i. Equipment or adaptation to their home (such as a wheelchair or handrails) 49.7% 50.0% 0.3% j. Lifeline Alarm (Carelink) 25.0% 74.7% 0.3% k. They are permanently resident in a care home 2.0% 97.3% 0.7% Question 6: Have you used any of the support or services listed below, to help you as a carer over the last 12 months? Majority of the carers have used additional services for information and advice (54.3%). Yes No Don t Know a. Information and advice 54.3% 42.5% 3.2% b. Support from carers groups or someone to talk to in confidence 37.3% 60.5% 2.2% c. Training for carers 4.0% 95.0% 1.0% d. Support to keep you in employment 1.4% 96.2% 2.4% Question 7: Which of the following statements best describes how you spend your time? It is evident throughout the three years that carers are able to do all or some of the things which they value and enjoy with an average of 85.5%. However 14.5% state that they don t do anything that they value or enjoy with their time. I'm able to spend my time as I want, doing things I value or enjoy I do some of the things I value or enjoy with my time but not enough 18.0% 18.7% 20.3% 67.5% 65.9% 65.5% I don't do anything I value or enjoy with my time 14.5% 15.4% 14.2% Question 8: Which of the following statements best describes how much control you have over your daily life? On average throughout the three years, 63.5% feel that although they have some control over their daily life, but it is not enough, with a smaller percentage of an average of 13.8% feel they don t have any control over their daily life. I have as much control over my daily life as I want 23.8% 24.2% 22.3% I have some control over my daily life but not enough 63.8% 64.1% 62.5% I have no control over my daily life 12.4% 11.7% 15.2% Question 9: Thinking about how much time you have to look after yourself - in terms of getting enough sleep or eating well - which statement best describes your present situation? 6

7 On average 53.1% of carers surveyed felt that they are able to look after themselves whilst a smaller number of 17.4% feel that they are neglecting themselves. This seems to be common throughout the three years and consistent over the last two years with 18.2% feeling like this. I look after myself 58.0% 49.1% 52.2% Sometimes I can't look after myself well enough 26.3% 32.6% 29.7% I feel I am neglecting myself 15.7% 18.2% 18.2% Question 10: Thinking about your personal safety, which of the statements best describes your present situation? There has been a decrease from 1.6% in to 0.9% in over the past three years with carers feeling less worried about their personal safety. I have no worries about my personal safety 88.3% 83.7% 86.5% I have some worries about my personal safety 10.0% 14.8% 12.6% I am extremely worried about my personal safety 1.6% 1.5% 0.9% Question 11: Thinking about how much social contact you've had with people you like, which of the following statements best describes your social situation? The number of carers stating that they do have some social contact but feel that that is not enough has increased from by 1.0% in I have as much social contact as I want with people I like 36.9% 35.2% 33.5% I have some social contact with people but not enough 48.2% 50.2% 50.9% I have little social contact with people and feel socially isolated 14.9% 14.6% 15.6% Question 12: Thinking about encouragement and support in your caring role, which of the following statements best describes your present situation? The percentage of carers who feel encouraged and supported has risen from 39.4% to 40.6% from to with those who feel they are not encouraged or supported has decreased by 3.1% from to I feel I have encouragement and support 39.4% 36.0% 40.6% I feel I have some encouragement and support but not enough 44.9% 47.0% 45.5% 7

8 I feel I have no encouragement and support 15.7% 17.0% 13.9% Question 13: In the last 12 months, have you found it easy or difficult to find information and advice about support, services or benefits? An average of 28.4% of carers have not asked for information or advice about support, advice or benefits in the past three years. Those who have asked for information and advice, 63.4% felt that it was easy to find such information in whilst 36.6% felt it was difficult for them. I have not tried to find information or advice in the last 12 months 28.3% 23.9% 32.9% Very easy to find 15.8% 14.9% 17.7% Fairly easy to find 48.5% 46.1% 45.7% Fairly difficult to find 23.5% 24.8% 22.8% Very difficult to find 12.3% 14.3% 13.8% *Clients who haven t tried to find out information and advice in the last 12 months have been removed from the overall rating Question 14: In the last 12 months, how helpful..have you found it easy or difficult to find information and advice about support, services or benefits? 88.8% of carers found it easy to obtain information about services, support or benefits. This was a decrease from the previous 2 years. I have not received any information or advice in the last 12 months 24.6% 27.1% 29.4% Very helpful 31.2% 29.8% 29.6% Quite helpful 60.5% 59.1% 59.2% Quite unhelpful 4.1% 5.5% 7.5% Very unhelpful 4.1% 5.5% 3.8% *Clients who haven t received any information and advice in the last 12 months have been removed from the overall rating Question 15: In the last 12 months, do you feel you have been involved or consulted as much as you wanted to be, in discussions about the support or services provided to the person you care for? 73.3% of carers somewhat felt involved or consulted in discussions about support or services provided to the person they cared for. This was an increase from the previous 2 years. 8

9 There have been no discussions that I am aware of, in the last 12 months 35.4% 40.0% 36.9% I always felt involved or consulted 35.0% 32.8% 40.1% I usually felt involved or consulted 29.9% 34.7% 33.2% I sometimes felt involved or consulted 26.1% 21.5% 20.3% I never felt involved or consulted 9.0% 10.9% 6.5% * Clients who aren t aware of any discussions in the last 12 months have been removed from the overall rating Question 16: In addition to your caring role, please tell us which of the following also applies to you? 63.96% of carers who were surveyed in are retired followed by 21.8% who are no in paid work. This can be seen in the previous two years. Retired 63.7% 59.0% 63.9% Employed full-time 3.3% 5.6% 3.2% Employed part-time (working 30 hours or less) 10.6% 12.7% 8.9% Self-employed full-time.5% 0.6% 0.3% Self-employed part-time 1.6% 1.3% 1.4% Not in paid work 18.7% 19.4% 21.8% Doing voluntary work 5.1% 5.4% 5.4% Other 6.5% 5.8% 7.4% Question 17: Thinking about combining paid work and caring, which of the following statements best describes your current situation? On average 45.5% of the carers throughout the three years are either self-employed or retired with only a small percentage of carers are in paid employment. I am in paid employment and I feel supported by my employer 8.7% 11.5% 6.5% I am in paid employment but I don't feel supported by my employer I do not need any support from my employer to combine work and caring I am not in paid employment because of my caring responsibilities 3.9% 4.3% 3.7% 4.8% 4.5% 3.1% 21.9% 25.1% 27.7% I am not in paid employment for other reasons 14.2% 12.6% 10.9% I am self-employed or retired 46.5% 42.0% 48.0% 9

10 Question 18: About how long have you been looking after or helping the person you care for? Majority of the carers (27.4%) who were surveyed in have been looking after or helping the person they care for between five to ten years. However, a high number of percentage (23.6%) of carers have been caring for over 20 years. This can be seen throughout the three years. Less than 6 months 0.8% 0.4% 0.3% Over 6 months but less than a year 2.2% 2.2% 1.4% Over 1 year but less than 3 years 14.6% 16.7% 10.7% Over 3 years but less than 5 years 21.4% 17.1% 16.7% Over 5 years but less than 10 years 21.1% 24.9% 27.4% Over 10 years but less than 15 years 12.5% 12.4% 13.0% Over 15 years but less than 20 years 7.6% 5.9% 6.9% 20 years or more 19.8% 2.4% 23.6% Question 19: About how long do you spend each week looking after or helping the person you care for? 53.4% of carers surveyed in on average care for 100 hours or more per week with a 0.9% care for 0-9 hours per week. 0-9 hours per week 2.4% 2.4% 0.9% hours per week 3.0% 4.4% 1.7% hours per week 6.3% 6.0% 5.0% hours per week 12.3% 9.7% 6.1% hours per week 8.1% 10.4% 6.4% hours per week 9.3% 7.3% 10.5% 100 or more hours per week 41.0% 34.3% 53.4% Varies - Under 20 hours per week 1.5% 2.4% 1.7% Varies - 20 hours or more per week 6.6% 7.1% 8.7% Other 9.3% 15.9% 5.5% Question 20: Over the last 12 months, what kinds of things did you usually do for the person you care for? 10

11 95.7% of carers provided practical support for the cared for person. These include things like preparing their meals, doing their shopping, gardening, etc). This is common over the past three years. Personal care? (Things like dressing, bathing, washing, shaving, cutting nails, feeding, using the toilet) Physical help? (Such as helping with walking, getting up and down stairs, getting into and out of bed) Helping with dealing with care services and benefits? (Things like making appointments and phone calls, filling in forms) Helping with paperwork or financial matters? (Such as writing letters, sending cards, filling in forms, dealing with bills, banking) Other practical help? (Things like preparing meals, doing his/her shopping, laundry, housework, gardening, decorating, household repairs, taking to doctor's or hospital) Keeping him/her company? (Things like visiting, sitting with, reading to, talking to, playing cards or games) Taking him/her out? (Such as taking out for a walk or drive, taking to see friends or relatives) Giving medicines? (Things like making sure he/she takes pills, giving injections, changing dressings) 70.6% 68.8% 73.3% 63.6% 62.8% 63.8% 82.7% 82.0% 85.3% 83.8% 85.1% 84.8% 96.8% 95.7% 95.7% 85.2% 80.5% 84.2% 84.6% 80.5% 77.9% 82.5% 78.1% 81.6% Keeping an eye on him/her to see he/she is all right? 92.7% 95.5% 93.7% Giving emotional support? 91.4% 89.8% 89.9% Other help? 16.7% 21.2% 24.4% Carer Details Below are personal questions asked about the carers themselves: Question 21: Do you have any of the following? A physical impairment or disability 26.0% 18.6% 25.3% Sight or hearing loss 18.0% 11.6% 19.0% A mental health problem or illness 6.9% 8.6% 8.6% A learning disability or difficulty 2.6% 1.9% 3.0% A long-standing illness 29.7% 21.4% 31.0% Other 12.6% 9.3% 18.2% None of the above 35.7% 28.5% 32.4% Age of respondent Age Group of Carer % 0.2% 0.3% 11

12 % 3.1% 1.8% % 5.8% 6.2% % 16.6% 14.4% % 22.9% 21.4% % 27.6% 25.8% % 23.8% 30.2% Gender of respondent Gender of Carer Male 37.3% 38.0% 36.2% Female 62.7% 62.0% 63.8% Ethnicity of respondent Ethnicity of Carer White (British, Irish, any other White background) 70.1% 91.7% 77.2% Asian or Asian British (Indian, Pakistani, Bangladeshi, any other Asian background) Black or Black British (Caribbean, African, or any other Black background) Mixed (White and Black Caribbean, White and Black African, White and Asian, any other Mixed background) 2.6% 5.9% 4.5% 1.9% 1.8% 0.6% 0% 0.7% 0.6% Any other ethnic group 0.3% 0% 0.3% Unknown 25.1% N/A 16.9% Did you have help completing the survey? Yes 7.8% 7% 8.4% No 92.2% 93% 91.6% 12

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