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1 sign on to save lives

2 Saving lives Thank you for taking the time to consider being an organ and tissue donor after death. For people with serious or life-threatening illness, organ or tissue transplantation may mean a second chance at life. More than Australians have received transplants in the last 60 years. Improved survival rates now mean that most recipients of organs or tissue can look forward to a better quality of life. Organs that can be donated include the kidneys, heart, lungs, liver and pancreas. Tissue that can be donated includes heart valves, bone tissue, skin tissue, eye tissue and pancreas tissue. The Australian Organ Donor Register The Australian Organ Donor Register (the Donor Register) lets people record their decision about becoming an organ and tissue donor for transplantation after their death. The Donor Register is not for recording decisions about donating organs and tissue for scientific research purposes or for the manufacture of biological medical products. Who can register as a donor? Only people aged 18 years and over can register their legally valid consent or objection on the Donor Register. If you are 16 or 17 you can still register your intention to donate by completing and returning the form attached to this brochure. People under 18 years of age can become organ and tissue donors, although consent from a family member will be needed at the time of death.

3 Who can donate organs and tissue? Anyone can donate organs and tissue there is no age limit on the donation of some organs and tissue. While your age and medical history will be considered, you shouldn t assume you are too young, too old or not healthy enough. How do I record my consent on the Donor Register? To make sure your consent to organ and tissue donation for transplantation is recorded on the Donor Register, please complete and return the form attached to this brochure. Registration is easy, voluntary and allows you to choose which organs and tissue you are willing to donate. It s the ultimate gift. 3

4 What if I m already registered as a donor somewhere else? It is important that you register your consent to be an organ and tissue donor on the Donor Register it is the only national register for organ and tissue donation for transplantation. Even if you have previously expressed an intention to donate organs and tissue, for example by ticking a box on a driver s licence renewal or registering elsewhere, it is very important that you update your details and register your consent to be an organ or tissue donor on the Donor Register. By recording your consent on the Donor Register, you can be confident that your consent will be recognised should the circumstances arise when you may become an organ or tissue donor. Can I register a no? If you do not want to become an organ or tissue donor, you can register your decision not to donate on the Donor Register by completing and returning the form attached to this brochure. Why do I need to provide my Medicare card number? The provision of your Medicare card number is optional and if provided will assist the Donor Register in maintaining your current details including change of address information. The main benefit in maintaining current details is the ability to identify and locate individuals over time. Without this ability the information may not be used and a life saving opportunity may be lost. 4

5 It s a personal decision, but I ve discussed the options with my family. Should I discuss my decision about donation with my family, partner or friends? It is important to discuss your decision with your family, partner or close friends. By registering your decision on the Donor Register, you will ease the burden on your family of having to make this decision on your behalf. They will be an important part of the donation process so you need to make sure they are aware of your decision to register your consent on the Donor Register. Your family member, partner or friend will be asked to confirm that you had not changed your mind since you registered your consent or your decision not to donate. Where you have recorded your consent to donate organs and tissue, your family member, partner or friend will be asked questions regarding your medical history to determine which organs and tissue may be suitable for transplantation. The more family members who know of your decision about organ and tissue donation, the easier they will find it to ensure your decision is respected and fulfilled. 5

6 When can organ and tissue donation occur? The way in which a person dies determines whether they are able to donate organs or tissue or both. Organ Donation In most cases, a person may only donate organs where they have been declared brain dead in an intensive care unit in hospital. Brain death is when blood circulation to the brain ceases, and the brain stops functioning and dies with no possibility of recovery. A series of tests carried out by two independent and appropriately qualified senior doctors establishes that brain death has occurred. Less than one per cent of all people who die in hospital each year die in this way and therefore can donate their organs. People are sometimes concerned or confused about the difference between brain death and coma. Brain death is completely different from coma. A patient in a coma is unconscious because their brain is injured in some way, but their brain can continue to function and may heal. Medical tests can clearly distinguish between brain death and coma. Organ donation may also be possible after a person s heart has stopped beating, referred to as cardiac death, but this is less common. Tissue Donation A far greater number of people have the opportunity to donate tissue for transplantation. Unlike organs, tissue may be stored for a period of time and tissue donation does not require the donor s death to have occurred in the same limited circumstances as organ donation for transplantation to be successful. 6

7 ÒIÕve had a good life, I want to be able to pass that on to others.ó How are organs and tissue removed? The removal of organs and tissue is no different to any other surgical operation and is performed by highly skilled health professionals. The donor s body is always treated with dignity and respect. The donation of organs and tissue does not alter the physical appearance of the body, nor does it affect funeral arrangements. How can I change my details recorded on the Donor Register? You can change your details recorded on the Donor Register, including your consent to donate, by completing a Change of Details form. To get a copy of this form: call visit visit your local Medicare office 7

8 Further information about the Australian Organ Donor Register If you require more copies of this brochure and registration form, or other specific information about the Australian Organ Donor Register, please: Call: TTY: (hearing or speech impaired) TIS: (translating and interpreting service) Mail: Australian Organ Donor Register Reply Paid 711 Hobart TAS Visit: 8

9 For more information about organ and tissue donation, please contact the Network: NATIONAL: Australian Organ and Tissue Authority Phone: (02) ACT: Phone: (02) NSW: NT: QLD: SA: TAS: WA: VIC: NSW Organ & Tissue Donation Service South Eastern Sydney Illawarra Area Health Service Phone: (02) Phone: (08) Phone: (07) Phone: (08) Phone (03) Phone: (08) Phone: (03)

10 sign on to save lives

11 New registration or change of details Please: Register me on the Australian Organ Donor Register Change my details on the Australian Organ Donor Register Registration details Remove me from the Australian Organ Donor Register Medicare number Reference number (this is the number to the left of your name on the Medicare card) Or if the Medicare number is not known/available, I authorise Medicare Australia to link the below details to my Medicare record. Title (e.g. Mr, Mrs, Ms, Miss) Family name First given name (as per Medicare card) Date of birth / / Postal address Male Second initial Female Donor Registration number (if known) R Statement Please register me, or change/remove my details on the Australian Organ Donor Register. I give permission for all details I have provided to be included on the Australian Organ Donor Register. I have discussed this decision with my family, partner or friend. I am aware that I can change these details at any time. Your signature - Date / / When we have processed your new registration we will send a confirmation letter to your postal address. Would other members of your family like to register? Postcode Do you want this recorded as your permanent postal address? Yes If Yes we will update your Medicare Australia records to reflect this. Daytime phone ( ) number address Organ and tissue donation details I wish to register my consent to donate the following organs and/or tissues for transplantation, in the event of my death. Tick All or as many as apply. All Bone tissue Eye tissue Heart Heart valves Kidneys Liver Lungs Pancreas Skin tissue I wish to register my decision not to be an organ and/or tissue donor. Yes We will send you another form allowing up to four people who live at the same address to register. Returning this form To return your completed form, please leave it at your nearest Medicare office fold and seal this form and send it reply paid fax to For enquiries, please call ** Privacy note The establishment of the Australian Organ Donor Register (the Donor Register) is authorised by a service arrangement under subsection 7(2) of the Medicare Australia Act The information on the Donor Register will be available to authorised personnel in the organ and tissue donation network who have signed confidentiality agreements covering your personal information. ** Call charges apply from mobile and pay phones only CODE B

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