Person-Centered AR: Spreading the Word

Transcription

1 Person-Centered AR: Spreading the Word

2 Coordinating Committee Jean-Pierre Gagné, Coordinator Elizabeth Mauzé, Associate Coordinator Kathy Cienkowski Sarah Ferguson Mary Rose McInerney Sue Ann Erdman, Editor - Perspectives

3 Person-Centered AR: Spreading the Word AR Bibliography AR Short Courses & Workshops

4 Prior ASHA AR Bibliographies ASHA. (1990). Aural rehabilitation: an annotated bibliography. Asha, 32 (Suppl. 1), ASHA. (2001). AR BIB: Audiologic rehabilitation basic information bibliography. Rockville, MD: Author.

5 I. Psychosocial/Behavioral Adjustment A. Disability and Handicap B. Psychosocial Adjustment C. Stigma D. Marital and Family Impact II. Deaf Culture III. Functional Communication Assessment A. Self-Assessment 1. General Considerations 2. Disability and Handicap Scales 3. Spouse/Family 4. Hearing Aid Benefit/Satisfaction 5. Additional Measures B. Auditory Perception C. Speechreading D. Speech Production E. Language/Literacy (Adults/Children) F. Central Auditory Processing IV. Rehabilitation Procedures A. Demographic Considerations B. Service Delivery C. Counseling D. Communication Strategies E. Auditory Training/Learning F. Speechreading G. Speech Production H. Language/Literacy I. Central Auditory Processing J. Hearing Aid Orientation V. Rehabilitation Technology A. Hearing Aids B. Cochlear Implants C. Vibrotactile Aids D. ALDs/ Hearing Assistive Technologies VI. Communication & Education Approaches A. ASL/Bilingualism B. Cued Speech C. Oral D. A/V, Acoupedic, Aural E. Total/Simultaneous VII. Theory of Mind VIII. Sensory Integration IX. Communication Environments X. Efficacy and Outcome XI. Textbooks and Monographs

6 A decade later Scope of practice and our knowledge base have expanded even further. A single bibliography would be unwieldy, inevitably limited, and would quickly become out-dated. Online literature search engines are now common. Easy to locate references and full articles on general or specific topics.

7 But something is missing Audiology has become increasingly dominated by diagnostics and technology. Focus is on the audiogram rather than on the person and what it means to live with hearing impairment. This problem is evident throughout the audiologic literature and in audiology curriculum & practicum requirements. Decision: Create a bibliographic database that will promote a paradigm shift.

8 Person-Centered AR Bibliography Expand our horizons: Draw from relevant literature throughout healthcare and social and behavioral sciences Identify literature that promotes person-centered care promotes a biopsychosocial model of service delivery is consistent with the WHO ICF Bibliography is a foundation to facilitate changes in AR curriculum & practicum develop CE programs provide directions for AR research

9 Why person-centered care? Warmth, empathy, trust, respect and unconditional positive regard : Define the working alliance Are personal attributes that the effective counselor/clinician presents to the client Are more salient than any other variables in the treatment process Carl Rogers,

10 Why person-centered care? Compared to medical/disease focused approaches, patient-centered approaches to care result in greater patient satisfaction, enhanced treatment adherence, and better treatment outcomes

11 The biopsychosocial model George Engel insisted that the biomedical model is inherently flawed because it cannot account for individual differences in perceived illness (i.e., the subjective experience of disease and disability). Engel s patient-centered approach is considered to be one of the 20th century s most significant contributions to healthcare. According to Google scholar, The Need for a New Medical Model: A Challenge for Biomedicine (1977) has been cited 5,073 times. George L. Engel ( )

12 What is included in a biopsychosocial model? View of the patient as a whole, a person whose fundamental nature is biologic, psychologic, and social Triadic process of observation, introspection, and dialogue through which the patient s subjective experiences become scientific data A patient narrative is elicited without interruptions and with minimal prompting or interrogation Mutual understanding of the patient s narrative ensures inclusion of his or her perceptions and experiences in the assessment and diagnostic process Practitioner-patient relationship that fosters shared and complementary communication and responsibilities Patient engagement in the treatment process and plans that are intended to alleviate or resolve perceived illness or disability Systems theory rather than reductionism as the approach to analyzing and understanding health and illness.

13 SIG 7 AR Bibliography Currently has references Biopsychosocial model: 52 Patient/Person Centered: 41 Narratives, the patient s story: 26 Counseling: 211 Self-efficacy: 33 Empathy: 38 Therapeutic/working alliance: 36 Adjustment: 82 Mindful practice: 12

14 New Literature to Explore Families, Systems, & Health Gerontologist Health Psychology Journals of Gerontology Journal of Rehabilitation Medical Education Rehabilitation Counseling Bulletin Rehabilitation Psychology Patient Education and Counseling Social Science & Medicine

15 Person-Centered AR Workshops Person-centered AR: A biopsychosocial paradigm Worldwide AR: ICF and IDA AR in academia: What s in/out? What s needed? The role of counseling in person-centered AR The effective counselor Narratives: Implications of the person s story Goal setting: Using narratives & self-assessment Ingredients of successful AR New emphases: Empathy, self-efficacy, adherence, therapeutic alliance, mindful practice Outcome assessment: Program evaluation & research Overcoming obstacles to change in academic and clinical settings

16 Workshop Presenters Sue Ann Erdman Jean-Pierre Gagné Mary Beth Jennings Elizabeth Mauzé David J. Wark