POSITION GUIDE. Leukemia & Lymphoma Society (LLS) MISSION

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1 POSITION GUIDE INSTITUTION: POSITION: REPORTS TO: LOCATION: Leukemia & Lymphoma Society (LLS) Executive Director, Indiana Chapter Region Vice President Indianapolis, IN MISSION The mission of the Leukemia & Lymphoma Society (LLS) is to cure leukemia, lymphoma, Hodgkin s disease and myeloma, and improve the quality of life of patients and families. LLS exists to find cures and ensure access to treatment for blood cancer patients. We are the voice for all blood cancer patients and we work to ensure access to treatments for all blood cancer patients. BACKGROUND LLS is the world's largest voluntary health agency dedicated to blood cancer. LLS has committed over $1B to research over 67 years to develop cures for all blood cancers. LLS funds lifesaving blood cancer research around the world and provides free information and support services to patients and their families. When LLS was founded in 1949, a blood cancer diagnosis was almost always fatal. Thanks in part to innovative research funded by LLS, survival rates have doubled, tripled and even quadrupled for blood cancer patients. LLS key priorities include: Prioritize Research Programs: Pro-actively direct Grant and TAP programs to address specific research gaps and medical needs. Drive Advocacy & Policy Agenda: Develop a coordinated advocacy network and a robust internal policy capability that,

2 together, can influence and educate key policy decision makers on priority access issues to break down barriers. Maximize Patient Impact: Reach more patients and have greater impact through improved efficiency, urgency and effectiveness of support, education, and information delivery. Increase Awareness: Raise LLS brand awareness and engagement to drive revenue & establish LLS as the leading cancer organization driving cures & access. Improve Net Profitability: Maximize net income from existing channels through prioritization, organizational alignment and optimization of resources. Diversify Revenue: Identify and develop high-growth, highmargin revenue opportunities focusing on volunteer initiatives, e-revenue, donor development and new partner development. Enhance Organizational Performance: Assess resources, improve productivity and optimize organizational capacity. In 2015, LLS President & CEO Dr. Louis J. DeGennaro articulated a five year vision that laid the plan for the new LLS. The vision includes: 1) Give every newly diagnosed blood cancer patient with the right information at the right time. 2) Grow annual research investment to $100M. 3) Help drive the most critical cancer related legislation in Washington DC. To support all of this he laid out a five year goal to double annual revenue to $500M/year. To achieve this goal requires that each chapter within LLS proactively engage volunteers in a range of signature fundraising events. The fundraising for LLS is implemented through 57 chapters field offices across the country. THE OPPORTUNITY The Indiana Chapter has enjoyed strong and stable leadership for more than a decade. There is a dedicated and talented team of 12 who raise approximately $3M. Funds are raised through four signature events: Light the Night Walk, Man & Woman of the Year, Team in Training, and Student Series as well as an increasing focus on individual giving and major gifts cultivation. While the chapter is statewide the primary geographic focus of the chapter is Indianapolis, Ft. Wayne and South Bend. The primary source of support is generated through events which requires engaging high impact volunteers effectively in leadership roles for the chapter. The expectation to engage high level volunteers is essential for the success of the events. Growing volunteer engagement in all events is key to the future success of the Indiana Chapter. Building a pipeline for personal giving is also a key strategy. The Indiana Chapter has been very successful and has a strong internal culture that is supportive and cooperative. There is openness to building on

3 this foundation to create an increasingly collaborative team that is more goal-oriented than task oriented. The opportunity now exists to recruit an exceptional relationship builder and leader to grow the success of the Indiana chapter. POSITION SUMMARY Reporting to the Region Vice President, this top level management position is responsible for providing overall leadership and management for fundraising strategies and operations designed to create cost effective and on-going sources of revenue growth, community outreach, volunteer expansion and engagement, and mission enhancement for the Leukemia & Lymphoma Society (LLS) within the chapter's chartered territory. In addition, the Executive Director is responsible for leading talent acquisition and development, developing and managing high performing and aligned matrix chapter teams, driving marketing and sales activation, managing the Chapter s annual budget, and executing the operating plan; and in administering LLS policies and procedures necessary to the efficient functioning of the chapter. As a critical member of the LLS management team, the Executive Director is responsible for supporting the development and implementation of LLS s new enterprise-wide Strategic Relationship Management model and processes via engaged and proactive collaboration with donor development and the product teams (TNT, LTN, Student Series, MWOY). Moreover, the Executive Director will be responsible for being an effective leader and role model at the Chapter level modeling the behavior and characteristics for driving LLS s values of COAT (Collaboration, Openness, Accountability, and Transparency) and for driving a culture of innovation and risk taking towards continuous financial improvement. The Executive Director is responsible for managing chapter human and financial resources through the development of an annual budget and Plan of Operations, and in administering LLS policies and procedures necessary to the efficient functioning of the chapter. This includes serving as the bridge to the National office. The Executive Director has direct responsibility for working with the Board of Trustees including recruitment and ongoing engagement and cultivation of existing Board members and all other volunteers. 1. Volunteer Development and Fundraising Recruit, develop, maintain, and support a strong Board of Directors that is reflective of the local community and build Board involvement and engagement with strategic direction for both ongoing local operations as well as for national rollouts.

4 Guide the Standing Committees of the Chapter Board of Trustees providing leadership, fundraising acumen, cultivation, acknowledgement, material support, and assistance in building and implementing committee annual plans. Recruit, develop and support high level volunteers to lead the local chapter fundraising campaigns. Work with staff to support the lead volunteers in expanding the reach and fundraising for the Mission. Serves as the Chief Fundraising Officer of the Chapter driving best practices and top level revenue-enhancing focus and drive to achieve gross revenue goals and other specific financial measurements for maximum results. Serves as primary staff spokesperson to promote the understanding of the LLS mission and presence in the chapter territory. Oversees the recruitment and engagement of key volunteers to support the annual plan of work across donor development and the campaigns (TNT, LTN, MWOY, Student Series, etc.). Directs the cultivation and acquisition of major donors, foundation and corporate contributions through grants, sponsorship and material and/or in-kind support. 2. Chapter Mission, Strategy and Operations Works collaboratively with National Office, Local Board and Chapter Staff to ensure that the mission is fulfilled through effective programs, strategic and operational planning and community outreach (both donors and volunteers). Accountable for strategic planning to ensure that LLS s strategy is effectively translated to the Chapter level to drive market & donor development and sustained revenue growth. Accountable for implementing the optimal resources, organization structure (i.e., FTE s, Matrix, etc.) and operations to protect margins. 3. Chapter Leadership & Management and Communications Ensures ongoing Chapter operations excellence, rigorous program evaluation, and consistent quality of finance and administration, fundraising, communications, and systems: recommend timelines and resources needed to achieve strategic goals. Lead, coach, develop, and retain Chapter s staff, management team and volunteers. Accountable for fiscal management that generally anticipates operating within the approved budget, ensures maximum resource allocation, and maintenance of the Chapter in a positive financial position.

5 Ensures Chapter wide connector meetings across campaigns. Provides leadership, direction, management and training for chapter staff in the development and implementation of operational plans. Serves as catalyst to identify, recruit, train, develop, recognize and retain volunteer leadership at all levels of chapter operations to achieve strategic initiatives. Cultivates productive relationships with the media and various constituent and related groups including professional, educational and political leadership. Oversees the efficient and effective operation of chapter personnel and the facility in accordance with the policies and procedures established by LLS. Ensures and oversees the preparation of reports, chapter records and other documentation as requested which present the progress and status of the chapter's plans and activities. Implement the approval process for all contracts, purchases and banking activities in accordance with LLS operational policies and/or practices. Provide leadership in building confidence and a strong working relationship between the Chapter office and National Office. Maintain a working knowledge of the LLS mission and programs to promote the field and campaign fundraising initiatives. CANDIDATE PROFILE LLS-IN is seeking a skilled leader and manager with a track record of over 10 years of progressively responsible related experience with a minimum of 4 years in a senior management capacity Prior experience successfully engaging key stakeholders will define his or her accomplishments. Entrepreneurial experience that proves the candidate s ability to recognize and act on revenue generating opportunities would be highly valued. A spirit of inquisitiveness, an ability to think strategically and a strong work ethic are essential. Ability to leverage relationships and negotiate agreements is sought as well as a proven sales acumen. The Executive Director will be well-grounded and self-confident and will possess an appropriate blend of analytical and interpersonal skills allowing effective communication with a variety of audiences. The successful candidate will be highly motivated and enthusiastic and will embrace the mission of LLS. Skilled in goal setting and assessment, the successful candidate will be results-oriented with strong political, analytical and organizational skills. A creative and energetic individual who functions well within a fast-paced,

6 team environment, which includes cross-department coordination, is sought. The ideal candidate is a poised individual who is supportive, diplomatic, personable, able to manage multiple priorities and comfortable rolling up his or her sleeves. Candidates must demonstrate their ability to actively seek out new volunteer, prospect or donor relationships, appreciate the cultivation and stewardship process and successfully close gifts. The person we seek should present a proven track record of successful and progressive fund raising experience as well as team building and creating a positive tone for staff and volunteers. Candidates with ability to assess and hire talent, set the vision, get buy-in on goals, and create strong teams based on high individual accountability are sought. The qualified candidate will be an excellent manager who is able to delegate effectively. The individual must have the ability to lead not only direct reports but also volunteers that are to be involved in signature events and other philanthropic activities. The candidate should be able to relate well to people of all ages and socioeconomic backgrounds and demonstrate a willingness to participate in the life of the institution at all levels. The successful candidate will have financial management experience with strong analytic capabilities. An understanding of business principles applied to a nonprofit enterprise, including a background of good budget management, is necessary. The ideal candidate will have training and/or experience in community development and strategic planning. We seek an exceptional communicator, who can demonstrate a successful background in external relations, including serving as the primary staff spokesperson and experience speaking with the media in a variety of situations. Bachelor's degree (B. A.) or equivalent is required, advanced degree preferred. Demonstrated knowledge and use of digital, social media & emerging online channels is preferred. Knowledge of Microsoft Office Suite desired. Professional education in such areas as comprehensive campaign implementation and leadership development would be a plus. Active participation in local business and social clubs, civic organizations and community activities would be expected. To apply, please submit a current resume and letter of introduction via electronic mail to For more information, please visit the LLS website at Leukemia & Lymphoma Society is an Equal Opportunity Employer

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