Program during VII Course. Siracusa ( Italy ) October 24 28, 2011

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1 Program during VII Course REHABILITATION IN GENETICALLY AND NON-GENETICALLY DETERMINED RARE DISEASES Siracusa ( Italy ) October 24 28, 2011 E.M.R.S.S. President Francesco Cirillo Scientific Committee: Jorge Lains, David Fletzer, Alessandro Giustini, Nicolas Christodoulou, Raffaele Gimigliano, Calogero Foti, Marco Franceschini, Franco Franchignoni, Roberto Casale Venue : Auditorium Fondazione Sant' Angela Merici Planning Secretary: Alfredo Romeo - Organization Secretary: Irene Gionfriddo, Chiara Amato International relation office: Lucy Pistritto - Congress Secretariat: Medicon Italia

2 INDEX PROGRAM MONDAY OCTOBER 24 PROGRAM TUESDAY OCTOBER 25 PROGRAM WEDNESDAY OCTOBER 26 PROGRAM THURSDAY OCTOBER 27 PROGRAM FRIDAY OCTOBER 28 LIST OF THE TEACHERS INFORMATION

3 DAY 1 : MONDAY OCTOBER 24 TH REHABILITATION IN GENETICALLY DETERMINED RARE DISEASES MUSCOLAR DYSTROPHY (MD): PATHOPHYSIOLOGY AND SCIENTIFIC RESEARCH Chairman : A. Giustini Greetings from Institutional Authorities and Scientific Authorities 9:20 9:40 Introduction to the Course - A. Giustini F. Cirillo M.D. Pathophysiology - J. Lains 10:45 Break 11:00 The clinical management of M.D. patients - N. Christodoulou 12:00 Rare diseases: activities and challenges - Marco Salvatore 13:00 Lunch Afternoon Session REHABILITATION IN M.D Rehabilitative approach in M.D.- K. Grabljevec 15:00 16:00 17:00 Role of technology in M.D. patients caretaking - C. Marincek Management of relations with the patient - G. Frazzica End of session.

4 DAY 2 : TUESDAY OCTOBER 25 TH AMYOTROPHIC LATERAL SCLEROSIS (A.L.S.): PATHOPHYSIOLOGY AND SCIENTIFIC RESEARCH Chairman: R. Gimigliano 9:00 10:00 Pathophysiology of A.L.S.- G. Akyuz Clinical management of A.L.S. patients A. Assucena Break Scientific research in A.L.S. V. Bonetto 12:15 Caregivers Training in M.D. and A.L.S. patients - F. Gimigliano 13:15 Lunch Afternoon Session REHABILITATION IN A.L.S Rehabilitative approach in A.L.S. M. Lazovic 15:15 16:15 Role of technology for A.L.S. patients caretakers- C. Marincek Laughter Therapy - F. Scirpo End of session

5 DAY 3 WEDNESDAY OCTOBER 26 TH DIAGNOSIS AND THERAPY IN NEUROLOGICAL RARE DISEASES Chairman: R. Casale 9:00 9:45 10:30 10:45 Diagnostic electromyography and biomechanical aspects of the walk ( gait analysis) M. Cioni Assessment and clinical rehabilitation program in spinocerebellar hereditary ataxia - D. Le Pera Break. Assessment of cognitive, communication and behavioral functions in neurological rare diseases - F. La Porta 11:30 12:15 Botulinum toxin: possible local treatment in hereditary spastic paraplegia- G. Della Bella Conclusion. At the end of the session the EMRSS trainees will be free to tour the city at their own convenience. They will also have the chance to plan trips with our travel agent: Zuccalà

6 DAY 4 : THURSDAY OCTOBER 27 th MUSCULAR ATROPHIES: WHICH STRATEGY? Chairman : C. Foti 9:00 Pathophysiology of muscle atrophy from disuse and atrophy in genetically determined diseases - V. Perciavalle 9:45 10:30 Electrical Stimulation, indications and limits in the muscle atrophy from disuse and atrophy in genetically determined diseases - T. Sciarra Vibration therapy, indication and limits in the muscle atrophy from disuse and atrophy in genetically determined diseases R. Casale Break Therapeutic exercise, indication and limits in the muscle atrophy from disuse and atrophy in genetically determined diseases P. Marano 12:15 Nutritional therapy, indication and limits in the muscle atrophy from disuse and atrophy in genetically determined diseases A. Trovatello 13:00 Lunch AFTERNOON SESSION 14:00 - The UEMS PRM Board activities for PRM trainees F. Franchignoni 17:30 End of session - SCALE OF ASSESSMENT AND ICF IN THE M.D. & A.L.S. Assessment with rating scales and questionnaires - F. Franchignoni I.C.F. - M. Zampolini FAREWELL PARTY. THE EVENING ( at h.9,00 p.m ) WILL BE DEDICATED TO A MOMENT OF CONVIVIALITY INVOLVING PROFESSORS AND TRAINESS

7 DAY 5 : FRIDAY OCTOBER 28 th EMPOWERMENT AND AUTONOMY IN GENETICALLY AND NON- GENETICALLY DETERMINED PATHOLOGIES Chairman: D. Fletzer 9:00 Empowerment of disabled people R. Casale 9:30 Systems for assisting and supporting autonomy - M. Franceschini 10:30 Tecnothon s technological research - F. Miotto 11:00 Report on Empowerment of Mediterranean realities by Student Course FINAL SESSION Intervention of the S.I.M.F.E.R. President Certification- giving ceremony: with the presence of the Mayor of Siracusa or his representative. 12:00 Closing the course THANKS: ISTITUTO SUPERIORE DI SANITA' ( I.S.S.), WORDLD HEALTH ORGANIZATION ( W.H.O. ) INTERNATIONAL SOCIETY P.R.M. ( I.S.P.R.M. ), EUROPEAN SOCIETY P.R.M. ( E.S.P.R.M. ), MEDITERRANEAN FORUM P. R. M. ( M.F.P.R.M. ) - SOCIETA' ITALIANA DI MEDICINA FISICA E RIABILITATIVA ( S.I.M.F.E.R.), UNIONE EUROPEA MEDICI SPECIALISTI ( U.E.M.S. - EUROPEAN BOARD P.R.M. ), TELETHON, CONSORZIO UNIVERSITARIO ARCHIMEDE, CONSORZIO UNIVERITARIO MEGARA IBLEO, REGIONE SICILIANA, ASSESSORATO SANITA', PROVINCIA REGIONALE DI SIRACUSA, COMUNE DI SIRACUSA, FONDAZIONE SANT'ANGELA MERICI

8 TEACHERS : Assucena Martinez A.: Director of Rehabilitation Department-Valencia-, Member of the Mediterranean Forum PRM Akyuz G.: President of the Turkish Society Physical & Rehabilitation Medicine, Member of the Mediterranean Forum PRM Bonetto V.: Dulbecco Telethon Institute, Istituto di Ricerche Farmacologiche "Mario Negri" - Milano Casale R.: Direttore U.O. Neurofisiologia - Fondazione Maugeri- Pavia Christodoulou N.: President of the UEMS PRM Section, President of the Cyprus Society Physical & Rehabilitation Medicine, Honorary Member of the Mediterranean Forum PRM Cioni M.: Presidente Corso di Specializzazione in Medicina Fisica e Riabilitativa Università di Catania Cirillo F.: President of Euro Mediterranean Rehabilitation Summer School Haim Ring School - Honorary Member of the Mediterranean Forum PRM Della Bella G.: Medico Ricercatore Università Tor Vergata - Roma Fletzer D.: Direttore Centro Paraplegici di Ostia- A.S.P. Roma, Presidente della Società Italiana di Medicina Fisica e Riabilitativa ( SIMFER ). Foti C.: Direttore Cattedra Medicina Fisica-Riabilitativa Università Tor Vergata - Roma Franchignoni F.: Direttore U.O. Fisiatria Occup e Ergonomia - Fondazione Maugeri- Veruno (NO), Past President UEMS PRM Board. Franceschini M.: Direttore U.O. Riabilitazione San Raffaele - Roma Frazzica G. : Direttore C.E.F.P.A.S. - Caltanissetta Gimigliano F.: Medico Ricercatore Medicina Fisica e Riabilitativa Università Napoli, Member of the Mediterranean Forum PRM Gimigliano R.: Direttore Cattedra di Medicina Fisica e Riabilitativa Università Napoli, V. President of the Mediterranean Forum PRM Giustini A. : President of the European Society Physical & Rehabilitation Medicine (ESPRM) Grabljevec K.: Member of the Mediterranean Forum PRM, Institute for Rehabilitation, Dept, for Brain Injury Rehabilitation, Ljubljana (SLO) Lains J : President of the Mediterranean Forum PRM, President of the Portugal Society of Physical & Rehabilitation Medicine Lazovic M.: Member of the Mediterranean Forum PRM, Director, Institute for Rehabilitation, Faculty of Medicine, Belgrade Le Pera D. : Dirigente U.O. Riabilitazione San Raffaele Roma La Porta F.: Dirigente U.O. Riabilitazione ASP Modena Marano P. : Direttore U.O. Riabilitazione Villa dei Gerani- Catania Marco S. : Biologo Ricercatore Istituto Superiore di Sanità - Roma Marincek C.: Prof. of the University Rehabilitation Institute, Ljubljana Miotto F.: Responsabile Tecnothon ( Telethon ) Perciavalle V.: Direttore Cattedra di Fisiologia, Università di Catania Sciarra T.: Medico Ricercatore Università Tor Vergata - Roma Trovatello A.: Dirigente U.O. Chirurgia ASP Siracusa. Zampolini M.: Direttore U.O. Riabilitazione Ospedale di Foligno

9 INFORMATION: The program will be held at the Fondazione Sant'Angela Merici, via Ada Meli 1 Siracusa (see the website ), the students will be our guests at the Hotel del Santuario (see the website tel fax , info@hoteldelsantuario.it ), B&B in multiple rooms. It's possible to be accommodated in single or double rooms, with an extra charge paid by the trainees. Transfers by bus are provided: from the hotel to the Fondazione in the mornings, for the lessons start and from the Fondazione to the Hotel in the afternoons after the lessons. On Wedsneday and Friday the return to the hotel is at the end of the morning lessons, as scheduled. In the Fondazione the trainees will be helped by a tutor. Free lunches will be served in the Fondazione, on Monday, Tuesday and Thursday during the lunch breaks as scheduled. Lunches will not be offered on Wednesday (in order to have more time for sightseeing) and on Friday (for departures), because the lessons will end at 12,30 pm. At the end of each day, trainees will be free to organize their spare time. Taxis at discounted prices will be indicated. About dinners, restaurants, with special deals for our trainees, will be indicates. On Thursday evening trainees and professors will be our guests for a dinner together. For further information, please contact Chiara Amato: chiara.amato@santangelamerici.it For hotel accommodation, please contact Irene Gionfriddo: irene.gionfriddo@hotmail.it For international relations, please contact Lucy Pistritto: lpistri@simail.com For transfers and tourist services, please contact Claudio Zuccalà: claudio@zuccalabus.com Any further information will be available on the website: