MY PLAN Making Your Personal Life Wishes: Act Now Having a say in your healthcare when it matters most

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1 MY PLAN Making Your Personal Life Wishes: Act Now Having a say in your healthcare when it matters most Advance Care Planning (ACP) and Advance Directive Basics Drew Weil, BS SJPHS ACP and MY PLAN Coordinator April 2014

2 Objectives Understand Advance Care Planning and the 5 key steps Obtain tools and knowledge to start the Advance Care Planning process Michigan Requirements for Advance Directives (as of April 2014) Begin having the conversation

3 Please note: in the video, they use the terms Living Will and Advance Directive interchangeably legally, that is not the case in Michigan, and a Living Will is not the same as an Advance Directive.

4 Having Discussions -- The Conversation Having discussions about future healthcare decisions, including at the end-of-life can be difficult Talking about your core values and beliefs is very personal Discussions can produce strong emotions and fears that we usually may want to avoid The conversation is complex, can be timeconsuming, and may be on-going Family members and loved ones may be scared to discuss these things

5 Why is this Important? Desire 60 percent of people say that making sure their family is not burdened by tough decisions is extremely important 80 percent say that if seriously ill, they d want to talk to their doctor about end-of-life care Actuality 56 percent have not communicated their end-of-life wishes 7 percent report having had an end-of-life conversation with their doctor 70 percent say they d prefer to die at home 70 percent die in some medical facility 82 percent say that it s important to put their wishes in writing 23 percent have actually done it An OBVIOUS Disconnect

6 What is Advance Care Planning? The process of coming to understand, reflect, discuss, and plan for a time when you cannot make your own medical decisions; planning for the unexpected. Defines the right care in the right place at the right time. Should be reviewed annually

7 Advance Care Planning Key Steps 1. Reflect 2. Identify a Patient Advocate 3. Determine your preferences of care 4. Document your plan in an Advance Directive 5. Communicate and share your plan

8 How do I do these things?

9 #1) Reflect What experiences or stories do you have that relate to these situations? What values, beliefs, or preferences do you hold dearly? Who may you want to include in your reflection and future discussions? Ex: Primary Care Physician, Faith Leader, Mental Health Professional

10 #2) Identify a Patient Advocate Any person who is 18 years or older Does not have to be a family member or next of kin Accepts the responsibility of being your Patient Advocate Someone you can trust to honor your wishes no matter how difficult the situation

11 #3) Determine your Preferences of Care How serious would the illness or injury be for your goals of care to change? Aggressive treatment VS. comfort care Define vague terms EX: Heroic efforts, quality of life, terminal, etc. What preferences do you have regarding acceptable medical interventions? How do your religious, cultural, or personal beliefs affect care preferences?

12 #4) Document your Plan in an Advance Directive An important part of the Advance Care Planning process Combines your preferences for care and identifying your Patient Advocate Can be updated whenever you want just destroy the older version and communicate the new one More to come!

13 #5) Communicate your Plan Discuss the plan with your Patient Advocate AND your family and loved ones Give a copy to your Patient Advocate and Successor Advocate(s) Keep one in your home where you and your friends can easily find it in an emergency Give one to each of your physicians and/or mental health professions Carry the wallet card with the name of your Patient Advocate

14 Advance Directive Written document in which you can specify what type of medical care you would want in the future, who you want to make decisions for you should you lose the ability to make decisions for yourself. Advance Directives have no bearing on financial matters

15 Types of Advanced Directives Advance Directive for Health Care SJPHS and other Health Systems State Bar of MI 5 Wishes Attorney drafted documents: Power of Attorney for Health Care Living Will- not legally recognized in MI Documents from other states are valid in MI.

16 Parts of an Advance Directive Living Will Guidelines for your healthcare (page 8) Is it legally binding? NO Organ Donation Optional to complete (page 10) Is it legally binding? YES Mental Health Guidelines for your mental healthcare (optional) (page 11) Is it legally binding? NO Patient Advocate Acceptance Form (page 13) Is it legally binding? YES

17 Michigan Requirements for Advance Directives Do I need a lawyer to complete an Advance Directive? NO Does it have to be notarized? NO Just has to be witnessed by two people The two people cannot be: Anyone who could financially gain if you passed away Healthcare employees Lawyer (if applicable) Family members Patient Advocate

18 Don t Get Confused Living Will not a legally recognized document in MI. Can be used as an advisory document Durable Power of Attorney for Health Care vs. Durable Power of Attorney (financial matters) Different Distinctions Patient Advocate vs. Healthcare Proxy vs. Healthcare Agent All can refer to the same person Patient Advocate is the term officially used by the State of Michigan

19 What tools or resources are there?

20 Tools and Resources Advance Care Planning Overview and Basics Entire page of additional Advance Care Planning resources Free, downloadable, printable Advance Directive Your healthcare provider or Primary Care Physician Centers for Disease Control (CDC) assembled list of resources

21 Please Note: This is an educational video that was created as a resource to help people better understand and normalize the topic of ACP, make it more approachable, as well as create awareness and exposure to it.

22 Conversation Tips Where to begin Start reflecting on your wishes Think about past stories that you have Talk to your Patient Advocate and loved ones about their wishes and your own Share your what matters to me Play the SJPHS Advance Care Planning video Remember, this is just a conversation

23 Questions?

24 Contact Information Drew Weil Advance Care Planning and MY PLAN Coordinator, SJPHS Phone: (586) OR- Website: