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1 Downloaded from UvA-DARE, the institutional repository of the University of Amsterdam (UvA) File ID Filename Version uvapub: Portfolio unknown SOURCE (OR PART OF THE FOLLOWING SOURCE): Type PhD thesis Title Health-related quality of life in dermatology: measurement, interpretation and application Author(s) C.A.C. Prinsen Faculty AMC-UvA Year 2013 FULL BIBLIOGRAPHIC DETAILS: Copyright It is not permitted to download or to forward/distribute the text or part of it without the consent of the author(s) and/or copyright holder(s), other than for strictly personal, individual use, unless the work is under an open content licence (like Creative Commons). UvA-DARE is a service provided by the library of the University of Amsterdam ( (pagedate: )

interpretation and application Author(s) C.A.C. Prinsen Faculty AMC-UvA Year 2013 FULL BIBLIOGRAPHIC DETAILS: http://hdl.handle.net/11245/1.

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4 Portfolio AMC GRADUATE SCHOOL FOR MEDICAL SCIENCES PHD PORTFOLIO Summary of PhD training, teaching and parameters of esteem Name: C.A.C. (Sanna) Prinsen PhD period: March 2009 December 2013 Promotores: Co-promotores: Institution: Prof.dr. M.A. de Rie, Prof.dr. M.A.G. Sprangers Dr. J. de Korte, Dr. Ph.I. Spuls, Dr. R. Lindeboom Department of Dermatology, Academic Medical Center, University of Amsterdam, Amsterdam, The Netherlands I PhD training General courses Year Workload (ECTS) Career Development Scientific Writing in English for Publication Oral Presentation in English Systematic Reviews Clinical Data Management (CRF design, database design and data entry screens, data entry and data validation, data transformation, merging and data export) Practical Biostatistics Expert Management of Medical Literature Qualitative Health Research Basic Course Legislation and Organization for Clinical Researchers (BROK) (Good Clinical Practice (GCP), project organization and data management, medical ethics, the role of the Medical Ethical Committee, methodological aspects of medical research, laboratory, pharmacy, legal aspects in medical research) The AMC World of Science: Fundamental Knowledge and Skills for Scientific Research in Preparing the PhD Thesis Specific courses Advanced Biostatistics (the R statistical package, main statistical concepts, visual display, regression models, prediction, missing values, survival analysis) Advanced Topics in Clinical Epidemiology (evaluation of medical tests, issues in clinical trials, prognostic and predictive models, screening, causality) Seminars, workshops and master classes Master Class by Professor G.H. Guyatt Master Class by Dr. D. Feldman-Stewart Master Class by Professor J.A. Sloan (Inter)national oral presentations Dutch Society of Experimental Dermatology (NVED), Ede, The Netherlands. Interpretation of Skindex-29 score differences using item response theory modelling. 6 th International Congress on Dermato-Epidemiology Association Congress (IDEA), Malmö, Sweden. Interpretation of Skindex-29 scores using Rasch analysis. Lustrum Congress Master Study Evidence Based Practice, University of Amsterdam, Amsterdam, The Netherlands. Een onderhuids gevoel bij diagnostische criteria en uitkomstparameters & 205

e, Prof.dr. M.A.G. Sprangers Dr. J. de Korte, Dr. Ph.I. Spuls, Dr. R.

5 Portfolio 14 th Congress of the European Society for Dermatology and Psychiatry (ESDaP), Zaragoza, Spain. Severe impairment of health-related quality of life: patients at risk. 18 th Congress of the European Academy of Dermatology and Venereology (EADV), Berlin, Germany. Health-related quality of life assessment in dermatology: interpretation of Skindex-29 scores using patient-based anchors. 10 e dermatologisch verpleegkundig congres, V&VN, Ede, The Netherlands. Kwaliteit van Leven in de Dermatologische Praktijk International poster presentations 14 th Congress of the European Society for Dermatology and Psychiatry (ESDaP), Zaragoza, Spain. Identification of patients with mild, moderate, and severe impairment of health-related quality of life (Inter)national conferences Dutch Society of Experimental Dermatology (NVED), Ede, The Netherlands Dutch Society of Quality of Life Research (ISOQOL-NL), Utrecht (2008), Amsterdam (2010), Utrecht (2012), Tilburg (2013), The Netherlands International Dermato-Epidemiology Association Congress - European Dermato- Epidemiology Network (IDEA-EDEN), Nottingham (UK), Malmö (Sweden) , European Society for Dermatology and Psychiatry (ESDaP), Zaragoza (Spain) International Society for Quality of Life Research (ISOQOL), London (UK) European Academy of Dermatology and Venereology (EADV), Paris (France, 2008), Berlin (Germany, 2009), Göteborg (Sweden, 2010) Dutch Society of Psychodermatology (NVPD), Utrecht (2008), Nijmegen (2009), Utrecht (2010), The Netherlands Other Postdoc Career Development Initiative (PCDI) Retreat II Teaching Year Workload (ECTS) Lecturing University Medical Center Utrecht, Utrecht, The Netherlands. Kwaliteit van Leven in de Dermatologische Praktijk. Master study Evidence Based Practice, University of Amsterdam, Amsterdam, The Netherlands. Master Class Health-related quality of life assessment in dermatology: interpretation of Skindex-29 scores using patient-based anchors Supervising Sandra Nijland, master thesis Evidence Based Practice Hélène Fortuin, bachelor thesis Huidtherapie Leonore Westerhoud, bachelor thesis Huidtherapie Josine de Bes, master thesis Medicine Other Hogeschool Utrecht, Huidtherapie, Utrecht, The Netherlands. Guest lecture Kwalitatief onderzoek in de gezondheidszorg. Isala Clinics, Zwolle, The Netherlands. Guest lecture Kwaliteit van Leven Assessment in de Dermatologische Praktijk. Psoriasis Vereniging Nederland, Rotterdam, The Netherlands. Guest lecture Leven met een Chronische Huidziekte Kwaliteit van Leven bij Psoriasis

Health-related quality of life assessment in dermatology: interpretation of Skindex-29 scores using patient-based anchors. 10 e dermatologisch verpleegkundig congres, V&VN, Ede, The Netherlands.

6 Portfolio III Parameters of Esteem Grants Year Workload (ECTS) Grant for Health-related quality of life assessment and communication during 48 weeks of treatment of moderate to severe psoriasis a randomized controlled clinical trial. (Principal investigator: J de Korte, PhD) Grant for Vragenlijstonderzoek behandeltevredenheid en kwaliteit van leven bij lichen planus en lichen sclerosus. (Principal investigator: J de Korte, PhD) Awards and prizes The paper Health-related quality of life assessment in dermatology: interpretation of Skindex-29 scores using patient-based anchors received the Herman Musaph Literature Prize 2010 by the Dutch Society of Psychodermatology (NVPD) Other Member of the Harmonising Outcome Measures for Eczema (HOME) Initiative Member of the European Academy of Dermatology and Venereology (EADV) Taskforce on Quality of Life present Peer reviewer for several international scientific medical journals present Member of the ISOQOL New Investigators Special Interest Group Co-chair at the European Society for Dermatology and Psychiatry (ESDaP) congress, Zaragoza, Spain. Symposium 4, Plenary Room, Long Term Issues. Symposium organized: Kwaliteit-van-leven assessment in de dermatologische praktijk. Stichting Aquamarijn, Zeist, The Netherlands & 207

(Principal investigator: J de Korte, PhD) 2009-2012 - 2011-2012 - Awards and prizes The paper Health-related quality of life assessment in dermatology: interpretation of Skindex-29 scores using

Downloaded from UvA-DARE, the institutional repository of the University of Amsterdam (UvA) http://hdl.handle.net/11245/2.122992

Downloaded from UvA-DARE, the institutional repository of the University of Amsterdam (UvA) http://hdl.handle.net/11245/2.122992 File ID Filename Version uvapub:122992 1: Introduction unknown SOURCE (OR