FACT sheet. Look out! Big changes are coming. Are you deaf and aged 16 or over? Do you know about P IP and the changes to DLA?

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1 Are you deaf and aged 16 or over? This is for deaf young people who are 16 and over, or will soon be 16 years old. Do you know about P IP and the changes to DLA? The government pays a benefit to some deaf people who need help or have problems getting around because they are deaf. This benefit is called DLA (Disability Living Allowance), but DLA is changing to PIP (Personal Independent Payments). This will be a big change and it will affect all deaf young people. PIP will be harder to get than DLA and it will be assessed very differently. This factsheet is for deaf young people who are 16 and over, or will soon be 16 years old. It explains what PIP is and how you find out if you can get it. Claiming PIP can be complicated so it s important that you contact NDCS or another agency such as the Citizen s Advice Bureau or local Law Centre to get information and support before you fill in the questionnaire or go to an assessment Contact the NDCS Helpline on the details at the end of this factsheet. If you are a deaf young person moving from abroad, you should contact the Citizens Advice Bureau or local advice agencies before you apply for PIP. Look out! Big changes are coming 1 of 8

2 What is P IP? PIP is money (a benefit) paid to disabled adults and young people aged 16 and over. The money is usually paid to the young person or adult, not their parent. You can claim PIP if you are working, unemployed or in education. You won t have to pay tax on it and it will not reduce any other benefits you get. In some cases it will mean you get more of other benefits. Some deaf young people can get PIP it depends on how much your deafness affects your life. To find out if you can get it you need to fill out a questionnaire about your deafness and your life this is called claiming PIP. The information that you give will be checked and you will be given a score, which will be added up to see if you should get PIP. PIP is in two parts (called components ): the Daily Living Component is for things that you find hard in your normal, day-to-day life the Mobility Component is for any problems you have getting around. The Daily Living Component is for things that you find hard in your normal, day-to-day life. The Mobility Component is for any problems you have getting around. For each component there are various activities which are considered. For each activity, there are several descriptors. These are various tasks that you might have difficulty with. If you cannot do some of these things safely, reliably, repeatedly, and in a reasonable time, you score a number of points. You add together the points for the highest scoring 2 of 8

3 descriptor which applies to you in each activity. If your total score is high enough you qualify for PIP. The areas of activity are: Daily Living Component: 1. Preparing food. 2. Eating and drinking. 3. Managing therapy or monitoring a health condition, including taking medication. 4. Washing and bathing. 5. Managing toilet needs or incontinence. 6. Dressing and undressing. 7. Communicating verbally. 8. Reading and understanding signs, symbols and words. 9. Dealing with other people face to face. 10. Making decisions about money. Mobility Component: 1. Planning and following journeys and staying safe. 2. Moving around. You can find the full list of descriptors and how these are graded here in the NDCS Parents guide to PIP for deaf young people factsheet. It s a good idea to read the full list so that you are able to make an application that shows exactly what support you need. 3 of 8

4 Who should claim P IP? If you are 16 or older and don t get DLA at the moment, you can claim PIP now. If you are under 16 and get DLA now, you will be sent a letter after your 16 th birthday telling you to claim PIP. If you are 16 or older and you get DLA now, you will be sent a letter when it is time for you to claim PIP. If you are sent a letter telling you to claim PIP you must fill in the forms that are sent with the letter or your DLA will stop. If you make a claim for PIP, your DLA will carry on until your PIP claim is dealt with. How to claim Phone the PIP Claim Line The government wants people to start their claim by phone. To do this you need to phone the PIP Claim Line to give your personal details. The phone number is and the text phone number is If you cannot use a phone someone else can phone the Claim Line to ask for a form to fill out instead, but you must be there when they call. Paper claim forms If you cannot use the phone, you can also write in and ask for a paper claim form called a PIP1. The address to write to is: Personal Independence Payment PO Box 1303 Blackpool FY1 9HF. When you phone or fill in the form you need to have the following details ready: Your name Your address Your postcode 4 of 8

5 Your telephone number (if you can use a phone to receive calls) Your National Insurance (NI) number (if you do not have an NI number you will be told how to get one when you claim PIP) Your bank details Your nationality Information about any time in the last three years that you have not been in the UK Details about your GP: their name their address their postcode their telephone number q Details about any other doctors or professionals that you see, such as audiologists, Teachers of the Deaf, speech and language therapists, social workers, etc.: > their name > their address > their postcode > their telephone number Getting all this information ready can take some time so it s a good idea to write it all down before you fill in the form or phone the PIP Claim Line. You could ask a parent or carer to help you find everything you need. After you have made the phone call or sent in the form you will be sent the PIP questionnaire (called PIP2 How Your Disability Affects You) to fill out. q Information about any times you have stayed in hospital or been in residential care (staying somewhere that is not your home while you have medical treatment) or a residential care home, school or college. 5 of 8

6 Filling out the PIP form You will be sent the PIP questionnaire in the post. It is very important that you fill it in and send it back within four weeks, because if it is late your PIP claim will be refused. Any DLA that you currently get will stop and you will have to start the claim process again. If you can t meet the deadline, you must ask for more time to fill it in the letter that comes with the questionnaire explains how to do this. It is a good idea to get help with the form. The NDCS helpline may be able to help, or you could get help from your local Citizens Advice Bureau or other advice agency. The questionnaire will ask you about your deafness and how it affects your life. You need to explain about anything you find difficult because of your deafness and any help that you need these might be things like using an interpreter, having to ask for things to be repeated a lot or not being able to hear traffic when you are out. You also need to make sure you write about any other disabilities or difficulties you have and how these affect your life. Again, explain what you find difficult and any help that you need. It is important to describe these things carefully to show exactly how they affect you. Sometimes we want to make things sound better or worse than they really are, but you should make sure that you are honest about everything you write on this form. If you usually wear hearing aids or cochlear implants, your answers to the questions should be true for when you are wearing your technology. But you should also explain why you can t wear them all the time, for example when you are swimming or doing certain activities. You should also mention if you sometimes cannot use your aids or implants because of discomfort, tiredness, or if you get frequent ear infections. The questionnaire is important because it is your chance to show how your deafness affects your life. You need to give yourself time to think carefully about your answers so don t rush it or leave it until the last day before you have to send it back. After they send their questionnaire in, most people get a letter asking them to meet a PIP assessor (a health-care professional) to talk about what they said on their form. This is called an assessment. 6 of 8 How to fill out the PIP questionnaire (called PIP2 How Your Disability Affects You) Give yourself time to think carefully about your answers. Don t rush it.

7 The PIP assessment The assessment is a chance for the person dealing with your claim to meet you and find out more about you and your needs. It means they can check that all the information they have is correct. It is a good idea to write some notes before you go to remind you of how your deafness affects you and what support you need. The assessment will be at an assessment centre or your home the letter will explain where and when it is. If you can t go you need to arrange a different time the letter will explain how to do this. If you miss your assessment you may not get any PIP. It is a good idea to bring someone, like a friend, family member or teacher, to the assessment to help you explain how your deafness affects your life. This person can also take notes about what happens in the assessment in case you need to ask the PIP office to look at your claim again or appeal. It is possible that NDCS may be able to arrange for someone to go to the assessment with you, but we cannot promise this. If you need a sign language interpreter, use the contact details on the letter to arrange for one to be at the assessment. If you normally wear hearing aids or cochlear implants, you should wear these for the assessment. When you re talking to the assessor it is very important to be honest. You don t need to pretend that you find things any easier or harder than you do just explain exactly how they are. Make you sure you tell them about everything that you find difficult because of your deafness and any help that you need. 7 of 8

8 After the assessment After the assessment the assessor will send a report to the PIP office, who will decide whether you should get PIP and how much. If you are not happy with the decision, perhaps because your claim has been turned down or you have been given less PIP than you think you should get, you can ask them to look at your claim again. You must ask for this within one month of the decision. If you are still not happy with the outcome you will be able to appeal. You can get more information about how to appeal from the NDCS Helpline, your local Citizens Advice Bureau or other advice agency and the NDCS factsheet, Personal Independence Payment (PIP) Revisions and Appeals. It is very important that you get advice before challenging a decision if you have been awarded some PIP but think you should get more. When you ask them to look at it again, or appeal, it is possible for your benefit to go down as well as up. NDCS are here to help you. Contact us: NDCS Freephone Helpline: (voice and text) Published by the National Deaf Children s Society NDCS July Dufferin Street, London EC1Y 8UR NDCS is a registered charity in England and Wales no and in Scotland no. SC of 8

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