Cancer Information and Support

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1 Cancer Information and Support Learning More From Your Treatment Team It is only natural to have lots of questions about your disease, about who can help you or what you can do to help yourself and what will happen to you. Our staff are open to questions all the time. That is why we believe that patient education is an important role for everyone who works here. If you have questions or want some up-to-date information ask anyone...they will be glad to help. Who Should I Ask for Information? All members of your health care team can answer questions. For example, your primary nurse and oncologist can tell you about the physical impact of your disease, medical procedures, the types of treatment you will receive, and their possible side effects. Your primary nurse can also put you in touch with other people or outside organizations or agencies, and give suggestions about how to go about your daily activities. Therapists and nurses will help you understand how to deal with your treatments and refer you to other health care professionals as necessary. Our dietitians will help you select the right foods, and the pharmacists will explain what you need to know about your medications. Our dental staff can help you take care of your mouth and teeth while on treatment. And there are so many others that can help you in so many important ways, such as the psychologists and social workers who were referred to earlier in the Supportive Care section of this information binder. Are There Other Resources I Should Know About? Patient Library The Patient Library is in the main lobby of the Cancer Centre. We have books, magazines, newsletters and videos that you and your family can borrow for home use, even if you live outside of Sudbury. We provide accurate information about different kinds of cancer, the kinds of treatment that are available, how to prevent cancer, and how to find emotional help to cope. Internet access is also available for checking your or searching for more information. Information for Patients and Family Cancer Information and Support 4.1

2 You can call the Patient Library at (705) ext or ext Stop by to meet the Patient Library staff; we are here Monday to Friday from 9:00-1:00 pm. There are also collections of cancer books located through the Northeast region. Please drop by the Patient Library or refer to our website: to find the collection nearest you. Internet Information Tips: There is an amazing amount of information about cancer on the Internet. It can be hard to tell whether information is good or bad or if the information applies to you and your health. Here are some things to look for that may help you decide: Your best information comes from your treatment team. Print and on-line information does not replace the advice of a health care professional. If you are searching the Internet, stick to government or reliable cancer organization websites. You can trust the National Cancer Institute and the Canadian Cancer Society information. Look for websites ending in.gov or.edu. Many.ORG sites have good information. When visiting.org and.com sites, review the site carefully for untested information or commercial bias. Commercial bias means that the site is trying to sell you something. Look for print materials that have a recent publication date. Information about cancer diagnosis and treatment changes rapidly. Products or therapies that claim to cure you and have no side effects are likely a scam. Drugs and therapies that affect cancer cells always have some side effects. No one treatment works for everybody. All cancers are different. People with a diagnosis of cancer in the same part of the body may need different kinds of treatment. Natural doesn t always mean effective or safe. Some natural products can cause harm if taken during cancer treatment. Always talk to your oncologist, primary nurse or pharmacist before starting new medicines or therapies. Our Patient Library staff has created lists of books and websites for different kinds of cancer called Pathfinders that are accurate and current. You can drop by at any time to pick up a Pathfinder. 4.2 Information for Patients and Family Cancer Information and Support

3 Canadian Cancer Society: The Canadian Cancer Encyclopedia The Canadian Cancer Society has a comprehensive on-line database of cancer information covering a wide range of topics including risk reduction, screening, diagnosis, treatment and supportive care. If you do not have a computer at home, our Librarians can help you use a computer in out Patient Library. You can access this information at: Canadian Cancer Society Services Introduction The Canadian Cancer Society is a national, community-based organization of volunteers, whose mission is the eradication of cancer, and the enhancement of the quality of life of people living with cancer. The Canadian Cancer Society achieves its mission through research, education, patient services and advocacy for healthy public policy. These efforts are supported by volunteers and staff and funds raised in communities across Canada. Diversity is integral to the Canadian Cancer Society s vision to create a world where no Canadian fears cancer. The Society embraces all aspects of human existence and uniqueness, and recognizes that some persons and groups may face individual and organizational barriers that hinder or preclude them from fully participating in the life of the Society as clients, volunteers and employees. The Canadian Cancer Society is committed to removing barriers in order to build a more inclusive and accessible organization for diverse communities. The Society takes its responsibility seriously to offer cancer patients, their families and the community at large equal access to the information, peer support and the services they need. What we do Thanks to the work of our volunteers and staff, and the generosity of our donors, the Canadian Cancer Society is leading the way in the fight against cancer. The Canadian Cancer Society: Funds research on all types of cancer Offers comprehensive and credible information on cancer, risk reduction and treatment Provides support for people living with cancer, family members and friends Information for Patients and Family Cancer Information and Support 4.3

4 Reliable Information The Society provides comprehensive and credible information about all types of cancer, including risk reduction, early detection, diagnosis, treatments and dealing with side effects. The Society also offers information to support healthy lifestyles and to help people cope with a cancer diagnosis. Information is available over the phone, in print publications and on our website By telephone: Through the Canadian Cancer Society s Cancer Information Service, information specialists are available to help when it is needed most. Only a phone call away, they can answer questions about cancer, ways to reduce cancer risk, early detection and treatment and locate helpful services in communities across Ontario. The Canadian Cancer Society s Cancer Information Service offers reliable and personalized information that is free and confidential. Talk to a cancer information specialist Monday to Friday 9 a.m. to 6 p.m. at 1 (888) In print: The Canadian Cancer Society offers a variety of print material that provides reliable information about risk reduction, screening information, diagnosis and treatment. Most of our publications are available in English and French. To find out more about the Society s publications, please contact the Canadian Cancer Society in your community or call a cancer information specialist at 1 (888) On the web The Canadian Cancer Society s website offers information about cancer, ways to reduce one s risk, early detection and treatment. The site also helps visitors locate support services in communities across Ontario through the Community Services Directory. The site highlights research projects and progress and offers visitors the opportunity to volunteer or to donate. Located at information is available in English and French, 24 hours a day. Community Services Locator: The Canadian Cancer Society s online Community Services Locator can help users find support services close to home. Located at the locator can be searched 24 hours a day by a specific service name and/or location. It lists approximately 4,000 community services Canadians can turn to for help. The directory covers a huge range of services including screening programs, treatment locations, support groups, smoking cessation programs, wigs and prostheses. 4.4 Information for Patients and Family Cancer Information and Support

5 Support Services The Canadian Cancer Society can provide support to people living with cancer, their families and friends. Support is just a phone call away Don t face cancer alone. The Canadian Cancer Society can connect people living with cancer to others who have shared a similar experience. We provide one-on-one and group support services for people living with cancer and their caregivers. The Society s peer support program is made up of one-to-one and group support. The current services gathered under the umbrella of the peer support program can be delivered in a one-to-one context over the phone or in person or in a group setting. One-to-one support The Canadian Cancer Society offers a bilingual nationwide telephone support service that matches people living with cancer or their caregivers with a trained volunteer who has been through a similar cancer experience. In some communities, the service responds to requests for in-person visits. Whenever possible, matches are based upon the cancer-specific experiences and personal attributes that are important to the client. The service is free, confidential, responsive and accessible. Volunteers are trained to offer encouragement, compassion and helpful resources to clients immediately after diagnosis, before surgery, in the Hospital or at any time during treatment. The service can also match people in 18 different languages. Online Support CancerConnection.ca Share your cancer experience and develop supportive relationships in our safe and secure online community. Visit CancerConnection.ca Our online community CancerConnection/ParlonsCancer.ca is for cancer patients, their families and friends. This community is a safe and welcoming place where both English and French speaking Canadians can share their experiences of cancer and build relationships that will support them in their fight against the disease. The service is free, confidential, responsive and accessible. Information for Patients and Family Cancer Information and Support 4.5

6 Group support The Canadian Cancer Society also offers a group support service for adults. Trained volunteers facilitate educational and informal discussions to help people living with cancer and their caregivers work through the issues related to a cancer diagnosis. The Society s support groups are available in numerous communities in Ontario. To obtain more information about the Society s peer support program, please contact the Canadian Cancer Society and speak with an information specialist at Help getting to treatment If people living with cancer do not have the means to travel, the Canadian Cancer Society can help them get to the cancer-related care they need. Our trained volunteer drivers pick patients up and take them to the local hospital or regional cancer centre and offer friendly support along the way. And if a volunteer driver is not available, or if it is too far for a volunteer to drive, then assistance may be available for people living with cancer to use public transportation, to access the Northern Health Travel Grant or to drive their child to treatment. To find out more about transportation options, contact the Canadian Cancer Society in your community, call a cancer information specialist at 1 (888) or search the Community Services Locator at Smokers Helpline Smokers Helpline is a Canadian Cancer Society service that uses the most up-to-date information on how to quit. Trained Quit Specialists at Smokers Helpline help thousands of people quit smoking each year with a personalized approach that helps make quitting easier. Smokers Helpline is free, anywhere in Ontario. Quit Specialists are available to take your call Monday to Thursday between 9:00 a.m. and 9:00 p.m. and Friday between 9:00 a.m. and 5:00 p.m. Call 1 (877) Smokers' Helpline Online (www.smokershelpline.ca) is an interactive, web-based service available 24 hours a day, 7 days a week offering tips, tools and support to help with quitting smoking or other tobacco use. 4.6 Information for Patients and Family Cancer Information and Support

7 Making Contact Algoma & District Unit 390 McNabb Street Sault Ste Marie, ON P6B 1Z1 Tel: (705) or 1 (888) The Algoma & District Unit of the Canadian Cancer Society services the communities of the North Shore, Bruce Mines, Dubreuilville, Elliot Lake, Sault Ste. Marie, St. Joseph s Island, Thessalon, and Wawa. North Bay & District Unit 147 McIntyre Street West North Bay, On P1B 2V5 Tel: (705) or 1 (888) The North Bay & District Unit of the Canadian Cancer Society services the communities of Sturgeon Falls, Temiskaming Shores, Mattawa, Sundridge/South River, Almaguin, Parry Sound, Burks Falls, Powasson, Magnetawan and North Bay. Sudbury & District Unit 1780 Regent Street South Sudbury, ON P3E 3Z8 Tel: (705) or 1 (800) The Sudbury & District Unit of the Canadian Cancer Society services the communities of Chapleau, East Manitoulin, Espanola, Killarney, Massey, Walford, West Manitoulin and Greater Sudbury. Timmins & District Unit 273, 3 rd Avenue, Suite 101 Timmins, ON P4N 1E2 Tel: (705) or 1 (800) The Timmins and District Unit of the Canadian Cancer Society services the communities of Cochrane, Englehart, Iroquois Falls, Hearst, Hornepayne, Kapuskasing, Kirkland Lake, Matheson, Smooth Rock Falls and Timmins. Information for Patients and Family Cancer Information and Support 4.7

8 Community Support Services In addition to the information and support provided by the Supportive Care Program (see page 3.11), and the Canadian Cancer Society (see page 4.3), the following services are available: Red Cross Care Partners Red Cross Care Partners provides many integrated services designed to support seniors and vulnerable individuals throughout Ontario. Our network of services are available to clients in urban, rural and remote communities across Ontario. Our dedicated team of nurses, therapists and community support workers deliver a broad range of expert and cost-effective services ranging from chronic illness management, nutrition, physiotherapy, to personal grooming and support. For more information contact: or Fertility Preservation and Support Fertile Future Fertile Future is a Canadian national non-profit organization that provides fertility preservation information and support services to cancer patients and oncology professionals. Our mission is to inform, educate and support cancer patients who are facing fertility-risking medical treatment, and oncology professionals who are providing this care. For more information contact: or HOPE-066. Look Good Feel Better Programs This is an important part of coping with cancer for women it is all about caring for you, inside and out. This, free, two-hour workshop is led by a volunteer cosmetologist. At this fun and supportive event you will learn about simple makeup and skin care techniques, how to wear headscarves, and get advice on dealing with temporary hair loss. All participants receive a complimentary product kit. In Sudbury, sessions are held at the Daffodil Terrace Lodge s Craft Room twice a month. Please call (705) , ext for more information or to register. 4.8 Information for Patients and Family Cancer Information and Support

9 To find out whether this program is also available in your community, contact Look Good Feel Better toll-free at 1 (800) or on the Internet Prostate Cancer Awareness/Support Groups To find a prostate cancer support group in your community within northeastern Ontario, please contact the Cancer Information Service toll-free at 1 (888) or Palliative Care Services Palliative care focuses on relieving and preventing the suffering of patients. Palliative medicine is appropriate for patients in all disease stages, including those undergoing treatment for curable illnesses and those living with chronic diseases, as well as patients who are nearing the end of life. For a listing of palliative services in your northeastern Ontario community, contact the Cancer Information Service toll-free at 1 (888) or on the Internet at You can also contact a NE-CCAC Case Manager toll-free at 1 (800) For more information about NE-CCAC s palliative services: Warmhearts Palliative Caregivers - Sudbury/ Manitoulin Qualified, caring volunteers providing compassionate support and enhanced quality of life for individuals and their families in our community. Warmhearts Palliative Caregivers Sudbury/Manitoulin is a volunteer community-based, non-profit organization whose mission is to provide end of life support to clients and their families. Our mission is achieved through hospice volunteer visiting, advocacy, education, and bereavement support to clients and families within the Sudbury/Manitoulin District. If you would like more information on our services, please call (705) , or visit Warmhearts Palliative Caregivers Sudbury/Manitoulin, 303 York Street, Suite 283, Sudbury Ontario. Information for Patients and Family Cancer Information and Support 4.9

10 Other Community Support Groups Circle of Hope Breast Cancer Support Group - Mindemoya Greater Sudbury Brain Tumour Support Group or Prostate Cancer Canada Sudbury and District Ostomy Association 1-(705) The Sisterhood of Hope - Sudbury 1-(705) Information for Patients and Family Cancer Information and Support

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