The Camp Quality Team

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2 In 2010, Camp Quality conducted an extensive Family Research Project. The aim was to develop a broader understanding of the needs of children with cancer and their families, how these needs were being met by Camp Quality and other organisations, and to identify further scope to enhance Camp Quality s programs. We are thankful to all the Camp Quality families, Camp Quality volunteer companions and health care professionals throughout Australia who participated. This research has been an important part of our commitment to better meet and adapt to the changing needs of families. The results have shaped this 5 Year Strategic Plan.

3 1

4 We are committed to delivering national programs that build resilience and optimistic behaviours for all children (0-13 years) living with cancer in Australia. The Camp Quality Team 2

5 Five Facts Five facts about childhood cancer in Australia (0-13 years) In Australia approximately 10,000 children are either newly diagnosed with cancer, under treatment or in remission. Cancer is a leading cause of death. 3 in 10 children diagnosed with cancer will die from cancer. Childhood cancer represents a significant number of life years lost, second only to breast cancer. For every $1 donated to childhood cancer $2.17 is returned in health benefits. No current Australian support organisation offers face to face programs for 3-13 year old children who have a parent with cancer and age appropriate and psychological support is limited. Fact 1-4. Australian Government Australian Institute of Health and Welfare Website Fact 5. Flinders University study on Caring For Young Children Whose Parents Have Cancer

6 Optimistic and resilient people are happier, healthier and live longer. Dr Martin Seligman Authentic Happiness 4

7 From the CEO Camp Quality started in the lounge room of a normal suburban Sydney home in From these humble beginnings, we have grown to become a leader in our field of support for children living with cancer and their families throughout Australia. Our grass roots ethos and people focus has ensured a high quality of service delivery that creates and celebrates a better life for every child. Along the way our strong values and positive, accountable and transparent behaviours have made us one of Australia s most trusted charities. 1 Our success over the years has created a strong foundation which now allows us to build for the future and address the needs of our families within an ever changing environment. With this in mind, I m excited to share with you our vision for the future which has been shaped by extensive research both internally and externally. No stone has been left unturned in addressing how we could better serve the families we support and the communities we work within. A major part of our review was the undertaking of a year long Family Research Project. The outcomes of this have provided us with a greater understanding of the psychosocial needs of children with cancer, their siblings and parents throughout their cancer journey. This evidence based data has enabled us to tackle key strategic questions and redefine our position to be more effective and provide greater equity throughout Australia. We have been brave in our decisions, most significantly the decision to reduce our age range from 0-18 years to 0-13 years as well as expand our services through palliative and bereaved care whilst also looking to support children whose parents have cancer (referred to as Offspring). These decisions form the basis of eight key drivers that underpin this five year strategic plan. Other external key factors considered while defining our future direction, include the continuing volatile world economy, the need for collaboration in the non profit sector, the rate of advances in technology, the mobility and flexibility required by today s workforce, our multicultural population, and the need to reach regional and remote Australia. Our plan is brave, innovative and exciting. It will require a significant investment from each one of us working together as one team. It will require a new approach and a diversification of how we raise our revenue and how we operate across the country, but I am confident that together we can achieve this vision for every child living with cancer in Australia and their families. Please join me on this exciting journey at Camp Quality. Simon Rountree CEO 1 Camp Quality won the 2010 PwC Transparency Award for quality and transparency reporting ($5m to $20m revenue category) 5

8 Executive Summary Camp Quality will focus on sustainable expansion over the next 5 years to ensure the programs and services we provide are meeting the changing needs of every child living with cancer and their families in Australia. We have a clear purpose, two strong achievable goals with 16 clear outcomes. Our Purpose To create a better life for every child living with cancer in Australia. Our Goals Goal One: To deliver programs with more relevance, equity, reach and effectiveness Goal Two: To build a braver, more optimistic and sustainable organisation Our Strategic Direction Led by the Family Research Project results, four key decisions were made by board and management. These led to eight key drivers which underpin the direction for Camp Quality. These four decisions relate to (1) Age Range, (2) Our Scope, (3) Entire Journey and (4) Collaboration. They are: 1. To reduce the age range we support from 0-18 years to 0-13 years and transition our years to a more appropriate service provider to meet their needs To reduce duplication in the sector as other organisations are better equipped to meet the needs of adolescents and young adults To enable us to focus on other key identified areas of need e.g. needs of siblings and offspring children (0-13 years) Is a better use of donor funds due to a reduction in duplication 12% of current Camp Quality children joined after their 14th birthday 2. To support children (0-13 years) who have a parent with cancer (offspring) and increase support to siblings Great need identified through research both siblings and offspring No national organisation is providing our type of support to offspring children in this age range 3. To support families across their entire cancer journey and increase support at diagnosis, palliative and bereaved stages Identified need across the cancer journey Camp Quality does not currently provide equitable support across the cancer journey 4. To commit to collaboration within the cancer sector to avoid duplication and use expertise Work with our charity partners and the health sector 6

9 Strategy Development Process 7

10 Dear Camp Quality, Our family recently attended our first family camp. We just want to thank you for providing us with a much needed opportunity to spend time as a family and meet other families. It helped us forget the recent upheaval in our lives. It was particularly valuable for our two eldest children, both eight, as they have not had our undivided attention for some time. Once again, thank you for giving us the opportunity to focus purely on having fun with my family, instead of worrying about everything else we have been dealing with, we all had a ball. Please pass on our thanks to all the staff and volunteers involved. We all had a fantastic time, the kids can t stop talking about all the fun they had. It will live with us for a long time to come. Katrina, Rodney, Tegan, Tayla, Jed & Maddie 8

11 Key Drivers Underpinning Our Strategy 1. Meeting Need 2. Equity & Reach 3. Entire Journey 4. Age Range All programs will undergo comprehensive assessment to ensure method and delivery is appropriate and effective. Research and development of new programs will be aligned with evidence based data. (Family Research Project and Offspring Survey Results) We will research and develop equitable programs that increase our reach across Australia and support parents, children with cancer and siblings no matter where they live. We will develop and pioneer new programs for children 0-13 years that have a parent with cancer. (Referred to as offspring) 2 We will strengthen current programs and develop appropriate new programs to ensure families are supported at each stage of the cancer journey from diagnosis, through to treatment, remission, palliative and bereavement. We will create new programs based on data within the stages of diagnosis, palliative and bereaved to complement our other programs. We will reduce our age range to support children up to the age of 13 years to enable increased reach into other areas of need and avoid duplication. We will transition children during the year they turn 13 into appropriate peer support programs to meet their needs. We will continue to support young people with special needs beyond 13 years if required. We will expand to support children 0-13 years that have a parent with cancer. 5. Quality 6. Communicate & Collaborate 7. Efficient & Effective 8. Safe & Sustainable We will only deliver programs that are aligned to the strategic plan and our constitution. We will create and deliver an optimistic and resilient culture and programs for all our stakeholders. 3 We commit to collaborating with relevant service providers in the Not For Profit sector to ensure family needs are met, duplication is avoided and support is seamless. We are committed to stronger referrals, information sharing and effective communication and relationships with all our stakeholders. We are committed to a cost effective and efficient organisation. We will build support to families proportional to the level of financial and/or human resources required. We are committed to pro-actively assessing and managing risks to prevent incidents so that everyone is safe (inc. Occupation Health and Safety and Child Protection). We will invest in our people and culture through ongoing learning and career development. We are committed to sustainability so will strengthen and diversify our revenue streams to support our programs into the future. 2 The Camp Quality Offspring Survey Results 2010 identified specific needs currently not serviced by any organisation nationally. 3 Stakeholders include Camp Quality families, staff, volunteers, partners and supporters. 9

12 Our Programs Led by the Camp Quality Family Research Project results our new program streams strengthen psychosocial support to all children (0-13 yrs) living with cancer and their families throughout the cancer journey. Over the next five years we will also expand to support children who have a parent with cancer. Our programs will support children and their families by building optimism and resilience and providing them with the tools they need throughout their journey with cancer and beyond. We have a solid framework for assessing all key program decisions to ensure we are delivering programs based on the identified needs of families. Our Assessment Process 1. Meets identified needs Meets identified needs outlined in the Camp Quality Family Research Project. 2. National equity and reach Designed to provide national reach and deliver equitable support for families across Australia. 3. Supports cancer journey 4. Targeted age range 5. Quality and measurement Supports families throughout their cancer journey from diagnosis, through treatment and into remission, or helps increase support during palliative or bereaved stages. Supports children with cancer (0-13 yrs) their siblings (0-13 yrs) and parents, or children (0-13 yrs) who have a parent with cancer. Alignment with Camp Quality s strategic goals and focus areas and can be effectively measured and evaluated. 6. Collaborate and avoid duplication There is no alternative provider better equipped or qualified to provide the program. 7. Efficient and effective The benefit to families is proportional to the level of resources required to achieve it. 8. Safe and sustainable We can ensure the safety and sustainability of program delivery. 10

13 New Program Developments All the exciting developments to current and new programs are aligned to meet specific needs identified in the Camp Quality Family Research Project. To cater for this expanding suite of programs, we have created a new program model to replace our current one, which included Education, Hospital, Family Support and Recreation Programs. From July 2012 Camp Quality will have four program streams, listed below. Our Four Program Streams 1 Engage Connecting kids living with cancer, their parents and their schools through interactive education, information and resources. 2 Just for Kids Using the power of positive thinking, a resilient attitude and fun to create a better life. 3 Family Matters Creating the opportunity for families to embrace normality and celebrate life. 4 Together Providing quality time and a supportive environment for families during palliative care and bereavement. Program Development Five Year Summary Under these program streams there will be a range of programs, many to be developed over the next five years. In the first year our focus will be improving current programs with new camp models to meet age specific needs. Our Family Camp Program will expand to reach further into regional areas and ensure equity of support. Dedicated teams across the country will help families access support, regardless of where they live, as part of our new Connect Care Program. We will also be resourcing, scoping and developing many of the new programs. In year two we will launch our new family Support Pack and introduce and integrate our new Optimism and Resilience Program into our Kids Camp and Volunteer Programs. We will continue to increase our reach to include all siblings and expand our Play Therapy Program to support families at diagnosis. In line with our decision to reduce age range, we will hold our first graduation camp to transition our senior kids (13 yrs+) to a specific program for teenagers (a joint initiative with CanTeen). In our third year we will expand support for palliative and bereaved families, introduce optional parental counselling as part of the Family Camp Program, continue our Play Therapy expansion and launch our Returning Home Support. Most significantly we will also begin to support children who have a parent with cancer with programs created specifically to meet their greatest needs. By year five we will have expanded our Primary School Education Program - The McDonald s Camp Quality Puppets. We will also have a nationwide program for children who have a parent with cancer and will be funding a national Play Therapy Program. We will have launched our national online Parents Hub to help connect and enable families to share experiences, provide support and access valuable information. Turn over to see what our program suite will look like by

14 Our New Program Model 12

15 New Program Streams Engage Programs Connecting kids living with cancer, their parents and their schools through interactive education, information and resources. We are developing our Support Pack and Connect Care Programs to help resource each member of the family through the cancer journey. Dedicated teams across the country will work alongside families to help them access support regardless of where they live. We will further develop our Primary School Program - The McDonald s Camp Quality Puppets, for children living with cancer, through performance and education to facilitate greater support and understanding in their school community. Our Parents Hub will be a nationwide online service that will provide information, professional seminars and valuable peer support. The Hub will be especially valuable for parents living in remote areas. Just for Kids Programs Using the power of positive thinking, a resilient attitude and fun to create a better life. Both our Kids Camps and Fun Days Programs provide the opportunity for kids living with cancer to experience fun and freedom, creating great new friendships with kids just like them. These experiences help build confidence, independence, optimism and resilience. Based on the research findings we will develop a greater range of age-specific activities and will integrate an Optimism and Resilience Program into camps. We are also expanding activities for special needs children and will ensure every child with cancer, and their siblings, in Australia have the opportunity to attend camps and fun days. By 2017 we will have expanded our psychosocial support for the newly diagnosed child and their siblings by supporting Play Therapists in children s hospitals across the country. Family Matters Programs Creating the opportunity for families to embrace normality and celebrate life. Our Family Camps and Fun Days Programs are cornerstones at Camp Quality. They provide the opportunity for families to spend time away from cancer in a safe and supportive environment, create new friendships, connect with other families who understand and spend valuable time as a family. We will be expanding camps for families with younger children into more regional areas and introduce new activities to help build optimism and resilience. We will also provide parents the opportunity to take part in a professional counselling session during camp if they wish. We will be developing Returning Home Support and Respite Programs to help families adjust to returning home from hospital. Research identified this time as being particularly stressful for siblings. Together Programs Providing quality time and a supportive environment for families during palliative care and bereavement. Our new Respite and Domestic Support Programs will enable families to spend precious time together and create important memories. The expansion of our Bereavement Camp Program will provide a supportive and safe environment away from home for families to reconnect, access counselling, make supportive friends and have some fun together as a family again.

16 Goal One Goal 1: To deliver programs with more relevance, equity, reach and effectiveness By 2017 we will have achieved these four key outcomes: Programs 1 Improved current programs to ensure relevance, equity, reach and effectiveness 2 New programs meet greatest needs and expand reach 3 Pioneered relevant services for offspring children 4 Evaluation underpins our program strategy 14

17 Goal Two Goal 2: To build a braver, more optimistic and sustainable organisation By 2017 we will have achieved these twelve key outcomes: People Governance Brand & Revenue Culture 5 Strong, sustainable and diverse revenue streams 6 Results achieved through our people and culture 10 Strengthened organisational governance (including risk management) 7 Optimism and resilience are second nature to us 11 Strengthened board governance 8 A more diverse, skilled and effective volunteer base 12 Safety matters and is delivered by everyone 9 Unique brand supporting reach, revenue and culture 13 Reduced environmental footprint Systems 14 Better quality work through efficient systems 15 Robust fiscal management 16 Transformed and simplified business processes 15

18 Thanks for listening to our needs. A big thank you to the families pictured in this document who have given permission for Camp Quality to use their photos. The majority of photos were taken at a Family Camp, February All rights reserved.

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