Ethical, legal, social and medical perspectives on chronic disorders of consciousness International Neuroethics Workshop, Munich

Transcription

1 Program Vegetative State: A Paradigmatic Problem of Modern Society Ethical, legal, social and medical perspectives on chronic disorders of consciousness International Neuroethics Workshop, Munich March 21-26, 2011 Chair: Ralf Jox Organizer: Katja Kuehlmeyer Contact: Ludwig-Maximilians-University (LMU) Munich Institute for Ethics, History and Theory of Medicine Lessingstr. 2, D Munich katja.kuehlmeyer@med.uni-muenchen.de Tel.: Fax : Place: Internationales Begegnungszentrum der Wissenschaft München e.v. () Amalienstraße München Monday, a.m. Welcome Introduction, expectations, program Ralf Jox, Munich, Germany 10:30 a.m. Methods Presentation for an interdisciplinary audience Susanne Frölich-Steffen, Zorneding 12:00 a.m. Lunch break 1:30 p.m. 1:30 2:10 p.m. 2:15 2:55 p.m. Leading Question 1: What is the Vegetative State? 1.1. Vegetative State? A definition revisited. Kirsten Brukamp, Aachen, Germany 1.2. Uncovering Hidden Awareness Using the Sensory Modality Assessment and Rehabilitation Technique (SMART) to reduce incidences of potential misdiagnosis. Alison McCann, Dublin, Ireland 1

2 3:00 p.m. Coffee break 3:30 p.m. 3:30 4:10 p.m. Leading Question 1: What is the Vegetative State? 1.3. Levels of awareness Christian Martin, Munich, Germany 4.15 p.m. Summary 4:30 p.m. Guided city tour 6:30 p.m. Joint dinner Weißes Bräuhaus 2

3 Tuesday, 22 8:00 a.m. Trip Munich - Salzburg 10:00 a.m. Excursion Functional imaging Manuel Schabus, Salzburg, Austria Salzburg 12:00 a.m. Lunch break, sightseeing and discussion 1:30 p.m. Trip Salzburg - Munich 3:30 p.m. 3:30 4:10 p.m. 4:15 4:55 p.m. Leading Question 2 (Part 1): What is it like to be in the Vegetative State? 2.1. Ethical Aspects of the Vegetative State Orsolya Friedrich, Juelich, Germany 2.2. Pain perceptions of patients in a Vegetative State Lisa Tambornino, Juelich, Germany 5:00 6:00 p.m. Break 6:00 p.m. 6:00 6:15 p.m. 6:15 6:30 p.m. 6:30 7:15 p.m. 7:15 8:00 p.m. Public Lecture Munich Competence Center Ethics (MKE) Welcome Ralf Jox Introduction Wilhelm Vossenkuhl, Munich, Germany Neuroethics and disorders of consciousness: Perspectives on research, healthcare and public understanding Eric Racine, Montréal, Canada MKE Room 210 3

4 Wednesday, a.m. Welcome reflection, daily program, announcements 9:30 a.m. 9:30 10:10 a.m. 10:15-10:55 a.m. 11:00 11:40 a.m. Leading Question 2 (Part 2): What is it like to be in the Vegetative State? 2.3 Need-oriented, emotional-communicative dialogue in music therapy with coma/apallic syndrome patients (vegetative state) in neurological early rehabilitation Karin Boeseler, Oldenburg, Germany Leading Question 3: What is it like to live with patients in the Vegetative State? 3.1 Family caregivers perspectives on the Vegetative State a qualitative interview study Katja Kuehlmeyer, Munich, Germany 3.2 What is it like to live with patients in the Vegetative State? Beatrice Huber, Berlin, Germany 11:45 a.m. Summary 12:00 a.m. Lunch break 1:30 p.m. Excursion A specialist rehabilitation center for patients in the persistent Vegetative State. Holger Damme, Munich, Germany St. Josef 3:30 p.m. 3:30 4:10 p.m. 4:15 4:55 p.m. Leading Question 5: How does society respond to the Vegetative State? 5.1 Assistance for post-coma patients in the vegetative state: two Italian regional regulations Maria Congedo, Trieste, Italy 5.2. Ethical Choices for Patients in the Vegetative State: Discerning the Catholic Moral Tradition in Contemporary Health Care Christopher M. Mahar, Leuven, Belgium 5:00 p.m. Summary 4

5 Evening Optional: A concert or theatre visit; details to be announced 5

6 Thursday, a.m. Welcome reflection, daily program, announcements 9:30 a.m. 9:30 10:10 a.m. 10:15 10:55 a.m. 11:00 11:40 a.m. Leading question 4: How are decisions made and should be made? 4.1 Ethics in disorders of consciousness: how do neuroscientists think? Athena Demertzi, Liege, Belgium 4.2 Experience and attitudes of healthcare professionals regarding ethical issues and end-of-life decision making in patients suffering from chronic disorders of consciousness Catherine Rodrigue, Montréal, Canada 4.3. Decision making in the vegetative state: Legal issues raised by the use of neuroscientific techniques Caroline Roediger, Bonn, Germany 11:40 a.m. Summary 12:00 a.m. Excursion Interdisciplinary Center for Palliative Medicine (IZP), Munich University Hospital, Munich-Grosshadern Stefan Lorenzl, Munich, Germany Methods: interdisciplinary cooperation Traugott Roser, Munich, Germany IZP Catering/lunch included 3:00 p.m. End 3:30 p.m. Literature study LMU University Library and Bayerische Staatsbibliothek UB/BSB 6

7 Friday, a.m. Welcome reflection, daily program, announcements 9:30 a.m. 9:30 10:10 a.m. 10:15 10:55 a.m. Leading question 4: How are decisions made and should be made? 4.4. Assessing the moral status of patients diagnosed with vegetative state Anna Pacholczyk, Manchester, England 4.5 Blessing in disguise or: legal reflections on how third parties may benefit from VS patients a German perspective Sebastian T. Vogel, Halle, Germany 11:00 11:40 a.m. 11:40 a.m. Summary 12:00 a.m. Lunch break 4.6 Vegetative State Patients in English Medicine, Law & Ethics: From Principles to Procedures Richard Huxtable, Bristol, UK 1:30 p.m. Methods Preparation and publication of the presentation of the results Ralf Jox, Munich, Germany 3:00 p.m. Coffee break 3:30 p.m. Group work and dialogue 5:00 p.m. Break 8:00 p.m. Closing party Negrini Bar 7

8 Saturday, 26 10:00 a.m. 1:30 p.m. Film Matinée Pedro Almodovar: Hable con ella/ talk to her/ Sprich mit ihr with discussion and presentation of the results Free entry, open to the public official ending/good bye Filmtheater am Sendlinger Tor 8