Keynote Apps, Pills & Bytes. Toward more Personalized E-Care for Asthma Patients. Prof. Dr. W.J.A.M. van den Heuvel (Prof. Dr. Thys van de Molen)

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1 Keynote Apps, Pills & Bytes Toward more Personalized E-Care for Asthma Patients Prof. Dr. W.J.A.M. van den Heuvel (Prof. Dr. Thys van de Molen) Agenda: 3-Ps 1. Practices: The UMCG AC Service 2. PAIRIT: mhealth implementation and experimentation 3. Parley: discussion 1

2 I. Practices The Asthma/COPD Service Method Pulmonologist Patient visits his GP 1 Patient fills in questionnaires 2 AC Service Cloud 4. Diagnosis and treatment advise based on questionnaires and assessment Assessment by the AC service 3 2

3 Exemplary Screen Shot AC Fingerprint 14 regional pulmonologists 17K assessments Diagnosis given in 78% of the assessments 94% of spirometry results were well assessable 3

4 Results AC service 2011 Groningen Asthma and COPD patients with 1 exacerbation 35 % 35 % 25 % 24 % 4

5 Well controlled asthma patients (ACQ ) p<

6 II. PAIR-IT Rationale 1. Discrepancy between objective parameters and the associated treatment and the patient s subjectively felt disease burden of asthma 2. The asthma disease burden is highly personal and determined in multifactorial and context-dependent manner 3. Asthma progresses very erratically, and concerns relatively young (appsavvy) patients. 6

7 Rationale cont d 1. Periodic visits (bi-yearly) visits to the doctor s practice may not be the most appropriate approach for asthma patients; 2. It is notably hard to determine effective interventions based on standard treatment protocols (e.g., NHG); 3. Deteriorating compliance to treatment therapy, more exacerbations, needlessly high disease burden Asthma Apps not the Panacea! Myriad of asthma apps; No end-to-end support; Outside span of control; Assume one-size-fits them all ( Zeeman) approach; Ill-integrated in current practices and systems/records; Adopt a fully automated and interned approach (no care provider in the loop); <44% Based on international clinical guidelines if any. Apps for asthma self-management: a systematic assessment of content and tools, Kit Huckvale1, Mate Car1, Cecily Morrison12 and Josip Car1, BM<C Medicine,

8 PAIR-IT in a Nutshell Mobile application assisting asthma patients in improved self-management of their disease under the auspices of AC services. Personalized apps for Asthma patients, providing personalized information, personal goals & advise, support for medical trials etc.; 24/7 Feedback loops with care providers, viz. lung doctors/specialists/personal coaches at the AC Service; Asthma disease management to deal with the evolving state of Asthma disease; Configuration of apps based on (25+) proven medical Asthma parameters (from ZM+) catering for more personalized medical trials and treatment PAIR-IT Exemplified Smart surveys based on clinically validated evidence; Easy-to-use, easy-tounderstand interfaces; Pro-active and personalized questions/answer categories; Alerts and reminders to patients; Joint goal (re-)setting; Direct communication with coaches (e.g. to plan appointments, checks, etc.). 8

9 PAIR-IT PITCH Improved individuals behaviour related to wellbeing, asthma prevention or management with new personalised behavioural health interventions. New highly personalized and dynamic mobile apps connected through a secure and scalable, cloud-based platform Improved care and more efficient usage of scarce healthcare resources, less prevention and treatment costs (bi-yearly e- surveys and consultation) New, value-adding COPD prevention and treatment insurance models, in compliance with data protection requirements. As a logical continuation of the PICASSO project that will extend the Dutch national ziektelastmeter for Asthma patients, PAIR-IT will implement this extension as a personalized apps that will ultimately assist Asthma patients in better managing their disease, while connecting them to care providers (e.g., coaches, lab assistants, lung specialist) at regional Asthma/COPD lab. Our Strategy: Twin-Track Ziektelast meter (Picasso) profiling & trials (pre-test phase in AC Groningen) PAIRIT blueprint & app development & trials (AC Groningen )

10 III. PARLEY Discussion: Pharmacy 2.0 What could/should be the role of Pharmacy? Pharmacist as a Care Service : New medicine-questionnaire; Online coaching; Day-and-night from anywhere access to medicine/dynamic drop-off points; 10

11 Contact: 11

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