Nephrotic Syndrome Trust. Charity Fundraising Pack

Transcription

1 Charity Fundraising Pack 1

2 Great choice! We re thrilled you ve chosen to raise funds for NeST. Whatever crazy antics you re planning, from facing your fears screaming bungeeeee to facing a custard pie at a quirky quiz night, in this fundraising pack you ll find everything you need to make the event a huge success. Let s strive to beat nephrotic syndrome together and get everyone involved. The more we spread the message, the more we can raise the condition s profile, invest more money into research and one day say we ve found a cure. Get inspired, get ready and most importantly get raising! We know you ll do us proud. We hope we can answer every question you might have in this pack but for more guidance and to get your hands on leaflets and other promotional materials to wear and sell at your event, contact us here: Mrs Wendy Cook Fundraising Co-Ordinator & Trustee e wendy@nstrust.co.uk NeST, Registered Charity No in England & Wales 2

3 Contents Start Planning 4 Get inspired 5 Figure it all out 6 Stay safe, stay legal 7 On the day 8 Your Donations 9 How your donations help 10 There are two ways to collect donations 11 Boost your donations 13 Sponsor me form 14 Now That It s Over 16 Thank-you 17 3

4 Start Planning NeST, Registered Charity No in England & Wales 4

5 Get inspired Don t get stuck in a rut thinking up fundraising ideas, get stuck into this lot! Remember, there are no restrictions on your imagination go wild, the zanier, the better. Tuck in Host a mad hatter s tea party and get everyone to dress up as their favourite character from Alice in Wonderland Hold a cake sale or run a bake-off Mary Berry style Flog it Become the biggest bargain hunter since David Dickenson at your own car boot sale Raid your grandparents house (with their permission!) and auction off ornaments, books and collectables that have been sat gathering dust Get active Train for a running race, cycling event or triathlon, record your journey online and get a t-shirt printed with your name and our logo so crowds can encourage you on the day Rope everyone in your school or workplace into a team sport event such as Tough Mudder or a local swimathon where you each swim a leg to achieve more together Conquer it Face your fears head on if you re scared of spiders, go to your local pet shop or wildlife centre and ask if they ll get involved and let one of their furry friends crawl up your arm for a few minutes Be brave and sign up for a sponsored skydive. Go to new heights to push yourself to the limit Goof around Be silly! This is a great time to let loose and let your real personality shine through. Organise a terrible tie day at work and wear the craziest tie you can find Gather the hairiest colleagues in the office and wax them bare. Remember, no pain, no gain 5

6 Figure it all out Not sure where to start or how to keep track of your goal? Check out these eight steps to keep you motivated and organised. 1 Choose your event 2 Organise, prioritise and plan a schedule 6 The day is here, enjoy it! 3 Set up your 5 Get those names down 7 Get all the money you JustGiving page on your sponsor sheet raised over to NeST 4 Promote the event 8 Give yourself a big personally and digitally pat on the back 6

7 Stay safe, stay legal Your event might look great on paper but unless it matches up in the eyes of other people and the law, you could be pulling the plug on it before it even begins. Depending on the type of event you re holding, there are a number of rules that you might need to consider so ask yourself these questions before setting anything in stone: Do I need to follow guidelines to hold a raffle or lottery? There are different regulations if your raffle is not part of a larger event so double check to be doubly sure. Do I need a license for my event? You will need a license if you are collecting money, selling alcohol, extending hours of a certain organisation, selling in a public place and raising money by door-to-door collections. Always check with your local council if you are unsure. What about people s consent? If children are involved in your event, you will need parental approval. Consent from a landlord if land is private will also need to be arranged. What about insurance and liability? Whilst we are more grateful than words can express for your fundraising efforts, we cannot accept responsibility for your event or anyone attending or participating in the event. What should I remember if I m serving food? To avoid illness including food poisoning and salmonella, always remind yourself and your team to remember the 4 C s: Cleaning, Cooking, Chilling and Cross contamination. 7

8 On the day Time to get the show on the road! Today is the culmination of all your hard efforts the day when you rise to the challenge on your own or as part of a team to make your event go down in history. Ok, so not everything will go down in the Guinness Book of World Records but that s no reason not to give it your all, make everyone proud, take home some unforgettable memories and most of all have fun while knowing you re making a huge difference to people managing nephrotic syndrome. Here are a few things to think about on the day to make sure everything runs smoothly: Smile! Make sure everyone knows they re welcome and that you re glad to have them there supporting you whether they stay for 5 minutes or all day. Stay organised! Have an agenda for the day and try to stick to it the best you can. If other people are attending the event, they ll need to know the time, location, whether they re expected to bring anything and what exactly will be happening on the day. Keep safe! Whether that means learning the ropes literally as you plan to skydive, or ensuring hygiene levels are kept in check as you host your own Come Dine With Me, making sure nothing can rain on your parade will mean the event is more enjoyable for everyone. Making sure someone at your event knows first aid means you won t panic should something unexpected happen. Be prepared! Change is good but you might not feel that way when something out of your control happens on the big day. Stay cool, stay calm and adapt to anything that might happen on the day that you re not prepared for such as a road closure, poor weather or people that aren t able to attend anymore. Remember it! You ll be surprised how quickly the event goes so make sure you capture every moment in photos or on video so you can both share it with others on Facebook, Twitter and YouTube and look back on the day yourself. 8

9 Your Donations NeST, Registered Charity No in England & Wales 9

10 How your donations help When the going gets tough, you need some tough love to remind yourself exactly why you re sat in a bath of cold baked beans or just how much good hurling yourself out of a moving plane will really do. Every donation gives us more determination than ever to find a cure for nephrotic syndrome. Whether you raise a little or a lot, your donations make a big difference: Raise 10 and we can keep human kidney cells healthy in the lab for a month Raise 50 and we ll sequence a patient s DNA to discover rare mutations Raise 100 and we can say we ve profiled a patients blood proteins using sophisticated electrospray technology The projects we re currently working on at the hospital include: 1 Identifying rogue proteins in the 2 Discovering new drugs that work better 3 Completing the genetic sequencing blood that cause Nephrotic Syndrome than steroids in nephrotic syndrome of every sufferer in the UK 10

11 There are two ways to collect donations! As well as filling up your Sponsor Me Form on p14 and p15 you can set up a JustGiving page to make it even more convenient for people to sponsor you. Set up a JustGiving page What is JustGiving? JustGiving is the easiest and most convenient way for people to donate. It costs nothing to create and since the donations are sent straight to us, there s no need to chase up sponsors when your event is over. Creating your JustGiving page Go to Click on get started Enter your details Search for NeST or enter our charity number and select NeST as the charity you would like to support Select the option that best describes what you re doing and why you re doing it Fill in the details of your event and click create your page Write a description of what you re doing so that you can share your story with your family and friends Share your page on Facebook to boost your donations Alternatively people can donate straight to our JustGiving page at 11

12 Sponsor Me Form Fill out your Sponsor Me Form on page 14. It might seem like an old fashioned way of doing things, but there is no denying that it works. Your friends and family are a good place to start but why stop there? Ask your colleagues to help you reach your target, maybe there s a local sport team that will be keen to show their support and don t forget everyone from your book club! Make sure people fill out their information on the Sponsor Me Form so that you can collect all the donations when the event is over. If your donations are from UK tax payers, ask them to tick the Gift Aid box and the government will pay us an extra 25% on top of the donation. You can send your entire pot of donations to us via JustGiving using your credit or debit card. Just click onto If you d rather send us a cheque, please make it payable to Nephrotic Syndrome Trust and address to: Nephrotic Syndrome Trust 38 Southway Drive, Yeovil, Somerset, BA21 3ED 12

13 Boost your donations Not many people know about Nephrotic Syndrome even though it affects approximately 10,000 people in the UK each year. That s why it s important to make as many people as we can aware of the condition and show them just how far we re willing to go to get their support. Here are a few ways to extend your donations and make sure they keep on counting: Get everyone involved Grab your friends and family, their friends and family, your colleagues at work, people you see at spinning, randoms you meet at the library, whoever you strike up a conversation with, work your event into the exchange and multiply your donations. Update your status and get tweeting Skip the selfies and forget posting what you had for dinner. Turn your social media stream into something that really makes a difference by encouraging people to sponsor you in your chosen event. Asking your workplace to kindly match what you ve already raised is a great way to double your efforts instantly. Hold a raffle at your event You needn t shell out on the prizes yourself. Ask for donations from friends, family and/or local businesses. Agree to plug their business when you announce the winners and firms will be quick to sign up. Everyone s a winner! Feed their empathy Most events require people to stand around and mingle for a period of time and it s always great to have something to nibble on and a glass of fizz to raise to all your hard efforts. Ask local shops and supermarkets if they are willing to donate food and drink or grab a few friends and whip up some tasty recipes. It needn t cost the earth, check out online recipes if you re on a budget. 13

14 Sponsor Me Form Name:... Event:... Date:... If you pay UK tax* and tick the Gift Aid box the Government will give us 25% on top of your donation. It won t cost you a penny. Please give your full name and home address and tick below or we can t claim Gift Aid We know what you re thinking. Not this again. Didn t I only sponsor someone last week? Maybe I ve done my bit this month and can skip this one others will help out surely. Sadly for people managing nephrotic syndrome though, because not many people have heard of the condition, there just isn t the potential for people to help regularly. That s why we d be eternally grateful if you could give as much as you can afford to help us one day find a cure for the 10,000 children and adults in the UK who are affected by this debilitating condition day in, day out. If you are a UK taxpayer and you tick the Gift Aid box along with leaving your full name and address, the government will also give us an extra 25% of your donation at no extra cost to you. It s a win-win for everyone! Help us to make a difference! Visit us at: Full Name Home Address Postcode Amount Date Collected Need more info? e info@nstrust.co.uk w NeST, Registered Charity No in England & Wales * You will need to have paid UK Income and/or Capital Gains Tax this year at least equal to the 25% NeST will claim on your donations. Council Tax and VAT do not count for Gift Aid purposes. 14

15 Full Name Home Address Postcode Amount Date Collected Total Raised Need more info? e info@nstrust.co.uk w NeST, Registered Charity No in England & Wales * You will need to have paid UK Income and/or Capital Gains Tax this year at least equal to the 25% NeST will claim on your donations. Council Tax and VAT do not count for Gift Aid purposes. 15

16 Now That It s Over NeST, Registered Charity No in England & Wales 16

17 Thank you Consider this our virtual thank you card, signed by everyone here at NeST plus each of the 10,000 people currently managing nephrotic syndrome in the UK today. Thanks to your fundraising efforts, we can invest more in the equipment we use and the time we spend developing new research methods that one day will mean we can say finally, we ve found a cure. Whatever your event, you ve achieved something extraordinary helping people with a few more complexities than you look forward to a life a little more simple. We hope we ve answered every question you might have in this pack but for more guidance and to get your hands on promotional materials to wear and sell at your event, contact us here: Wendy Cook Mrs Wendy Cook Fundraising Co-Ordinator & Trustee e wendy@nstrust.co.uk NeST, Registered Charity No in England & Wales 17