Cancer Registries and Medical Records Rich Data Resources

Size: px
Start display at page:

Download "Cancer Registries and Medical Records Rich Data Resources"

Transcription

1 Cancer Registries and Medical Records Rich Data Resources Carol Lowenstein, MBA, CTR Assistant Director Survey and Data Management Core Dana-Farber Cancer Institute Co-Coordinator, Survey & Statistical Methods Core

2 Describe cancer registries Objectives Review the history of cancer registries why we collect data Review the types of registries and data available Understand the varied uses of registry data where to go, what to use, and the limitations Explore the value added through linkages of registry data with other data sources Discuss medical record review vs. cancer registry data Describe medical record review

3 What Is a Cancer Registry? Information system designed to: Collect Manage Analyze data on persons with the diagnosis of a malignant or neoplastic disease (cancer). Cancer registries can be classified into three general types: Hospital based registries: maintain data on all patients diagnosed and/or treated for cancer at their facility and report cancer cases to the central or state cancer registry as required by law. Population-based central registries: maintain data on all cancer patients within certain geographical areas. Special purpose registries: maintain data on a particular type of cancer, such as brain tumors. Source: National Cancer Registrars Association

4 What Is a Cancer Registry? Registry data is: Used to make public health decisions A valuable research tool for those interested in the etiology, diagnosis and treatment of cancer Used in fundamental research on the epidemiology of cancer Source: National Cancer Registrars Association

5 What Is a Cancer Registry? Information maintained in a cancer registry: Demographic Information: Age, gender, race/ethnicity, birthplace and residence. Medical History: Physical findings, screening information, occupation and any history of a previous cancer. Diagnostic Findings: Types, dates and results of procedures used to diagnose cancer. Cancer information: Primary site, cell type and extent of disease. Cancer Therapy: Surgery, radiation therapy, chemotherapy, hormone or immunotherapy. Follow-up: Annual information concerning treatment, recurrence, and patient status is updated to maintain accurate surveillance information. Source: National Cancer Registrars Association

6 What Is a Cancer Registry? How are these data used? Evaluate patient outcome, quality of life, and satisfaction issues and implement procedures for improvement Provide follow-up information for cancer surveillance Calculate survival rates by various data items Provide information for cancer program activities Analyze referral patterns Allocate resources at the health care facility, the community, region or state level Develop educational programs for health care providers, patients and the general public Report cancer incidence as required under state law Evaluate efficacy of treatment modalities Source: National Cancer Registrars Association

7 History of Cancer Registries Key Events 2500 B.C. Earliest known description of "cancer": the "Edwin Smith" and "George Ebers" papyri which describe surgery, pharmacology, and mechanical and magical treatments 400 B.C. Hippocrates described a breast "cancer" as "karkinoma" (known now as carcinoma) during surgical removal of a tumor 1629 A.D. Cancer is first mentioned as a cause of death in the Bills of Mortality in England 1728 London's "General Census of Cancer" - the first known systematic collection of information on cancer is generated Source: NCI SEER Program

8 History of Cancer Registries Key Events 1839 Implementation of death registration (what we now know as "death certification") in the United States 1901 Earliest known population-based systematic collection of data on people with leprosy in Norway (a population-based leprosy registry) 1926 A bone sarcoma registry established by Dr. Ernest Codman at Massachusetts General Hospital, one of the earliest registries established for a specific type of cancer The first hospital-based cancer registry at Yale-New Haven Hospital was organized in New Haven, Connecticut Source: NCI SEER Program

9 History of Cancer Registries Key Events Ernest Amory Codman, M.D Kept track of his patients with End Results Cards Tracked the outcomes of patient treatments Identified areas of improvement in patient care Believed that this information should be made public and that this, not seniority, be the basis for physician promotion Help found the American College of Surgeons and the Joint Commission on Accreditation of Healthcare Organizations Source: Countway Medical Library

10 History of Cancer Registries Key Events 1935 First population-based cancer registry in the United States established in Connecticut 1956 The American College of Surgeons requires a cancer registry as a component of an approved cancer program 1971 The U.S. National Cancer Act budgets monies to the National Cancer Institute for research, detection, and treatment of cancer 1973 The Surveillance, Epidemiology and End Results (SEER) Program of NCI establishes the first national cancer registry program Source: NCI SEER Program

11 History of Cancer Registries Key Events 1992 U.S. Public Law establishes the National Program of Cancer Registries (NPCR) and is administered by the US Centers for Disease Control and Prevention (CDC) 1993 Many state laws make cancer a reportable disease Source: NCI SEER Program

12 History of Cancer Registries Cancer Registration Late 16 th Century Prompted by the seemingly random geographic ravages of the plague, the English Crown appointed elderly, epidemic-scarred women to prowl the countryside in search of the dead and dying. These 'Ancient Matrons' published weekly 'Bills of Mortality' for each parish, tabulating deaths by causes such as 'the purples' (probably leukemia), 'riting of the lights', 'consumption' (often an effect of cancer), and of course, the plague. Just how this information was used is not recorded. Perhaps the royalty found it helpful to determine where the plague was active so they could be somewhere else Source: NCI SEER Program

13 History of Cancer Registries Cancer Registration Mid 17 th Century Around 1665 a London businessman, John Graunt, created medical history by subjecting decades of mortality data to critical and mathematical analysis. He literally invented the science of medical epidemiology and statistics, publishing a pamphlet with 108 conclusions. The list included such revolutionary observations as the facts that women saw physicians twice as often as men yet lived longer, and plague epidemics moved outward from swampy areas. Graunt also was the first person to use mortality statistics to project population survival, probably by crudely fitting data samples to a logarithmic curve. Source: NCI SEER Program

14 Early 1900 s History of Cancer Registries Cancer Registration Bone sarcoma registry at MGH Yale-New Haven Hospital Cancer Registry Other hospitals began to develop registries as physicians saw the benefits of comprehensive data collection Connecticut population-based cancer registry

15 History of Cancer Registries Cancer Registration First National Cancer Survey Initiative of the newly formed NCI Directed by Harold F. Dorn Included only MD dx d cases, histolgic confirmation 3 regions of the US north, south, west 10 registries in metropolitan areas, MD abstractors Included 10% of the overall population, Resulted in several papers Sparked questions about genetic factors, racial, gender and economic disparities Harold F. Dorn Source: Lilienfeld, Am J Public Health, Dec 2008

16 History of Cancer Registries Cancer Registration Second National Cancer Survey 1956 American College of Surgeons Commission on Cancer (CoC) requires hospital cancer registries for Commission approved cancer programs Third National Cancer Survey

17 History of Cancer Registries Cancer Registration 1973 SEER Registry 1992 NPCR funding for state cancer registries

18 History of Cancer Registries Cancer Registration What were they trying to achieve? A standard classification of disease A systematic form of data collection Analysis and use of the data

19 Sources of Cancer Registry Data Levels of registries Hospital Central National International

20 Sources of Cancer Registry Data Data collected using ICD-O Based on ICD-9 codes Separate codes for site (T topography codes) and histology (M morphology codes) Coding manual Topography numerical Morphology numerical Alphabetic index

21 Sources of Cancer Registry Data Reliance on data standards Each data item collected has a very specific set of rules Edits Developed by national organizations Applied at hospital and central levels

22

23 Sources of Cancer Registry Data Hospital Cancer Registries Massachusetts Cancer Registry (MCR) North American Association of Central Cancer Registries (NAACCR) Surveillance Epidemiology and End Results (SEER) International Agency for Research o Cancer (IARC)

24 Hospital Cancer Registries Cancer Reporting Law in MA Variability in Size Collect a large data set established by national organizations Sophisticated edits process

25 Hospital Cancer Registries Demographic Data - Address, age, gender, race, ethnicity, insurance, census tract, birthplace, occ/ind, tobacco/alcohol hx, family hx Tumor Data - Primary site, histology, grade, stage, laterality Treatment Data - Surgery, chemo, XRT, hormone, BRM Vital Status- Follow up Data Report to the state/central registry Within 6 months to 1 year after diagnosis capture first course of treatment

26 Hospital Cancer Registries Quality of data Varies ACoS vs non-acos approved programs Size of hospital Teaching/research vs. community hospital Involvement and interest of MD s and administration Standardized data collection software Standard edits developed by national organizations

27 Hospital Cancer Registries Data Produced ACos required studies Requirement of ACoS approval Site specific Quality and outcomes focused Patient care improvements Annual report Administrative reports Ad-hoc reports/requests for data

28 Questions Answered With Hospital Cancer Registry Data Who are we serving? Where are patients coming from? How were they referred to our facility? Was access a problem? How sick are they when they re diagnosed? How are they treated? How well do they fare compared to others? Do we have adequate numbers to support various clinical trials?

29 American College of Surgeons National Cancer Database (NCDB) Joint program of the ACoS Commission on Cancer (CoC) and the American Cancer Society Nationwide oncology outcomes database for more than 1,500 Commission-accredited cancer programs in the United States and Puerto Rico 70 percent of all newly diagnosed cases of cancer in the United States are captured at the institutional level and reported to the NCDB Primarily used by CoC-accredited cancer programs as a means by which to evaluate and compare the cancer care delivered to patients diagnosed and/or treated at their facility with that provided at state, regional, and national cancer facilities

30 Massachusetts Cancer Registry Population based state cancer registry Data from 1982 Massachusetts Population Total: 6,547,629 - White: 80.4% - Black: 6.6% - American Indian/Alaskan Native: 0.3% - Asian: 5.3% - Native Hawaiian-Other Pacific Islander: 0.0% - Reporting two or more races: 2.6% - Latino or Hispanic Origin: 9.6% - White, not Hispanic: 76.1%

31 Massachusetts Cancer Registry Race/Ethnicity Mass US White 80.4% 72.4% Black American Indian and Alaska Native Asian Native Hawaiian and Other Pacific Islander Persons reporting two or more races Hispanic or Latino origin White not Hispanic

32 Massachusetts Cancer Registry Data collected same data items as hospital data set Provides the Abstracting and Coding Manual for Hospitals Consolidation of information from all reporting sources Incidence data each tumor (occurrence of cancer) counted once Primarily reported from hospitals Some outpatient/path lab reporting Data stored at multiple levels Patient level data Tumor level data Treatment level data

33 Massachusetts Cancer Registry Patient A Name Address Age etc. Tumor 1 Site Histology Stage etc. Tumor 2 Site Histology Stage, etc. Treatment A CTX Treatment B Surgery Treatment A CTX Treatment B XRT

34 Massachusetts Cancer Registry Consolidation Process Algorithms to dictate Match Non-match Review Consolidation rules Multiple primary rules Lymphomas and leukemias Laterality Benign vs. malignant

35 Massachusetts Cancer Registry Consolidation Process Patient A Hospital 1 Patient A Hospital 2 Name: Jones Name: Jonnes Primary Site: LLL Lung Histology: Small cell Primary Site: LUL Lung Histology: Adenoca

36 Massachusetts Cancer Registry Consolidation Process Hospital A Name: Jones Primary site: LLL Lung Histology: Small Cell Consolidated Patient Record Name: Jones Consolidated Tumor Record Site: LLL Lung Histology: Adneoca Hospital B Name: Jonnes Primary site: LUL Lung Histology Adenoca

37 Massachusetts Cancer Registry Consolidation Process Very time consuming! Always looking for ways to further automate Also involves real-time edit resolution Males with endometrial ca Impossible/rare site-histology combinations Age flags

38 Massachusetts Cancer Registry Data - Reports Two main reports: Cancer Incidence and Mortality in Massachusetts The City/Town Supplement Special reports Cervical and Uterine Cancers in MA Cancer Incidence and Mortality in Boston Neighborhoods Childhood Cancers in MA Cancer in MA by Race and Ethnicity and more on their website

39 Massachusetts Cancer Registry Data - Reports MassCHIP - Massachusetts Community Health Information Profile Online access to health and social indicators Linkages and data requests Linkages with data sets provided to them Approval for all data requests by the MDPH Human Research Review Committee

40 Massachusetts Cancer Registry Data - Reports MCR website:

41 Questions Answered With Massachusetts Cancer Registry Data What is the race, gender, age breakdown for cancers in the state? What do certain areas look like in terms of cancer type and demographic variables? How does our hospital population compare to the state in terms of stage at diagnosis? Are there sufficient numbers of patients to justify a new service or to open a trial?

42 North American Association of Central Cancer Registries Promotes uniform data standards Provides education and training; certifies population-based registries Gold and Silver status Aggregates and publishes data from central cancer registries Promotes the use of cancer surveillance data

43

44 North American Association of Central Cancer Registries All central cancer registries in the United States and Canada are members Cancer In North America (CINA) Published annually Contains: general demographic information about each state, data quality indicators, site specific incidence rates Individual states US Combined Report

45 North American Association of Central Cancer Registries - Reports Cancer Incidence in North America (CINA) Monographs - four published volumes of cancer statistics for a five-year period CINA+ Online - an on-line query system utilizing CINA data CINA Monograph Data in SAS Data Set - published data in CINA Monograph (all four volumes) available for use in SAS CINA Plus in SEER*Stat - data from CINA+ Online that are available in SEER*Stat software, allowing more flexible queries and statistical testing. Only available to NAACCR members or collaborators with NAACCR members. CINA Deluxe - a multi-registry NAACCR members analytical data file for cancer researchers that includes more detailed data variables and groupings. Only available to NAACCR members or collaborators with NAACCR members.

46 CDC National Program of Cancer Registries (NPCR) Established by Congress through the Cancer Registries Amendment Act in 1992 Provided funding, supplemental and start up, to state cancer registries Contracted with NAACCR to provide guidance in the areas of data standards and quality control In collaboration with the NAACCR, produce the United States Cancer Statistics: Incidence and Mortality report

47 NPCR - Program Contacts by Funding Status

48 NCI SEER Data from 18 population based central cancer registries Covers approximately 26% of the US population 23.4% of Whites 22.7% of African Americans 40.4% of Hispanics 42.2% of American Indians and Alaska Natives 53.3% of Asians 69.8% Hawaiian/Pacific Islanders

49 NCI SEER

50 NCI SEER

51 Collect data NCI SEER Goals of the SEER Program Conduct quality control and quality improvement programs Report on the cancer burden in selected segments of the population Identify unusual changes and differences in patterns of occurrence Describe temporal changes in the extent of disease at diagnosis, trends in therapy and changes in survival Monitor the occurrence of possible cancers that are caused by cancer therapy

52 NCI SEER Goals of the SEER Program Collaborate with other organizations on cancer surveillance activities, data standards and training Serve as a research resource to the NCI regarding studies dealing with cancer prevention and control, program and registry operations Provide research resources to the general research community Provide training materials and web-based training resources to the cancer registry community.

53 NCI SEER Data Available SEER data are updated annually Provided in print and electronic formats SEER web site (http://seer.cancer.gov) Reports on cancer statistics Instructions on how to access the SEER public use file free of charge on a CD-ROM or access provided through a server at NCI. Software provided free of charge by NCI that aids in the analysis of the SEER database (SEER*Stat) and can be used to analyze data from other cancer registries (SEER*Prep and SEER*Stat).

54 Three major categories of data: NCI SEER Data Available 1. Cancer Statistics Web-based systems provide access to statistical tables, graphs, and maps from various data sources. 2. Datasets and Software Use SEER data to address multiple issues, such as looking at ne stage at diagnosis by race/ethnicity, calculating survival by stage at diagnosis, age at diagnosis, and grade or size of tumor, or determining trends and incidence rates of cancers at various sites over time. 3. Publications The statistical publications provided were produced by the SEER program or through collaborative efforts between SEER and other organizations.

55 NCI SEER Data Available Cancer Statistics Cancer Stat Fact Sheets Printable summaries of the latest cancer statistics for major cancer types. Cancer Statistics Review (CSR), Detailed report published annually to present a broad profile of cancer statistics to the public. Fast Stats Build your own tables and graphs of key SEER and US cancer statistics. Cancer Query Systems Provides more flexibility and a larger set of cancer statistics than Fast Stats but requires more input from the user. State Cancer Profiles Dynamic maps and graphs enabling the investigation of cancer trends at the county, state, and national levels

56 NCI SEER Data Available Datasets and Software SEER*Stat version (09/26/2011) Statistical software that provides a convenient, intuitive mechanism for the analysis of SEER and other cancer-related databases. It is a powerful personal computer tool to produce statistics for studying the impact of cancer on a population. SEER*Prep software version (2/7/2011) Software that converts user-supplied ASCII text data files to the SEER*Stat database format, allowing analysis of populationbased registry data using SEER*Stat. Health Disparities Calculator (HD*Calc) version (01/13/2010) An extension of SEER*Stat designed to generate multiple summary measures to evaluate and monitor health disparities.

57 NCI SEER Data Available Publications Statistical Reports SEER Cancer Statistics Review (CSR) Annual Report to the Nation on the Status of Cancer Cancer Incidence and Mortality Patterns among Specific Asian and Pacific Islander Populations in the US United States Cancer Statistics: Cancer Incidence and Mortality Data Monographs (recent) An Update on Cancer in American Indians and Alaska Natives, Selected Comparisons of Measures of Health Disparities: A Review Using Databases Relevant to Healthy People 2010 Cancer-Related Objectives SEER Survival Monograph: Cancer Survival Among Adults: US SEER Program, , Patient and Tumor Characteristics

58 NCI SEER Linked Databases SEER-Medicare Linked Database Links SEER and Medicare data. SEER-Medicare Health Outcomes Survey Linked Database Links SEER and the Medicare Health Outcomes Survey (MHOS) that provides information about the health-related quality of life (HRQOL) of Medicare Advantage Organization (MAO) enrollees. National Longitudinal Mortality Study (NLMS) and Linked SEER-NLMS Databases SEER registry cancer patient records for are linked with the NLMS database, which was developed to examine the relationships between self-reported demographic and socioeconomic characteristics and mortality among a representative sample of the US non-institutionalized population.

59 NCI SEER Linked Databases SEER-Medicare SEER data Clinical, demographic and cause of death information for persons with cancer Medicare claims data Covered health care services from the time of a person's Medicare eligibility until death Unique population-based source of information Epidemiological and health services research

60 Why link the SEER-Medicare Data? The linked data can be used for a number of analyses that span the course of cancer control activities Diagnosis/ Tx Survivorship Second Occurrence Terminal Care Patterns of care Peri-operative complications Volume outcomes studies Extent of staging Comorbidities Late effects of treatment Post-diagnostic surveillance Treatment of prevalent cancers Rates of second primaries Relationship of second events to initial treatment and ongoing surveillance Use of hospice services Patterns of care during the last year of life Survival Source: Warren, NAACCR,NCI

61 SEER-Medicare Data SEER Data Incidence, site, stage, initial tx, demographics and vital status Medicare claims Short stay hospitals Physician and lab services Hospital outpatient claims Home health and hospice bills Source: Warren, NAACCR,NCI

62 SEER-Medicare Data Limitations Non-covered Medicare services are not included Reasons for ordering tests and test results are not included Primarily over 65 population

63 NCI SEER SEER RTR Program Residual Tissue Repository (RTR) Program Established in 2003, the RTR maintains bio specimens obtained from three of SEER s population-based cancer registries: Iowa, Hawaii, and Los Angeles. Investigators at government, academic, and nonprofit institutions may apply to the program to obtain specimens to study biomarkers, etiology, and other aspects with a population-based sample of cancer cases.

64 Questions Answered With NAACCR and SEER data How is Massachusetts similar or different than other parts of the country? How does Massachusetts compare in terms of age at diagnosis, stage and outcomes? Where else might there be special populations or rare cancers of interest? Where might there be the potential for collaboration regarding these populations?

65

66 International Agency for Research on Cancer - IARC WHO Data held and managed by the Section on Cancer Information (CIN) of IARC Cancer in Five Continents Published every year since 1966 CIN Website CANCERMondial

67 IARC CIN Databases GLOBCAN provides access to the most recent estimates (for 2008) of the incidence of, and mortality from 27 major cancers worldwide. CI5-Cancer Incidence in Five Continents provides access to detailed information on the incidence of cancer recorded by cancer registries (regional or national) worldwide. ACCIS (Automated Childhood Cancer Information System) provides access to data on cancer incidence and survival of children collected by European cancer registries.

68 IARC CIN Databases (cont.) ECO (European Cancer Observatory) provides access to the estimates (for 2008) of the incidence of, and mortality from 25 major cancers in the countries of the European Union (EU-27), together with a quick overview of on-going programmes of screening for breast, cervical and colorectal cancers implemented in the 27 European countries. NORDCAN presents up-to-date long time series of cancer incidence, mortality, prevalence and survival from 40 cancers recorded by the Nordic countries, together with advanced prediction facilities. SurvCan presents cancer survival data from cancer registries in low and middle income regions of the world. (Africa, Asia, the Caribbean and Central America)

69

70 Questions Answered With IARC data How is the US, MA, Boston similar or different than other parts of the country? Where else might there be special populations or rare cancers of interest? Where might there be the potential for collaboration regarding these populations?

71 Rapid Case Ascertainment Provides the ability to identify cancer cases shortly after diagnosis Central registry editing and consolidation can be time consuming Located within central cancer registries and/or at academic medical centers

72 Rapid Case Ascertainment Value to researchers: provides immediate access to patients Interview patients prior to surgery Obtain blood/dna etc. Initiate a series of questionnaires over time (i.e. 3, 6 and 9 months after diagnosis) Interview patients about lifestyle elements that might tend to change after diagnosis (alcohol consumption, smoking history)

73 SEER Rapid Response Surveillance Studies Began as Patterns of Care Studies Evolved into a mechanism that allows studies to move from the initial concept through completion in a relatively short interval, usually within two years Studies address new and emerging issues related to cancer prevention and control Conducted through he SEER Registries Largely pathology based active case-finding (e-path or circuit riding) vs. waiting for reports to be sent to the central registry

74 Limitations of Using Cancer Registry Data Limited data set extensive, but limited Strict rules for data collection good, but restrictive Time delays data can be 1 to 2 years old Data collected and defined by the priorities of others Dataset designed by committee

75 Limitations of Using Cancer Registry Data Reliance on primarily pathology based case-finding image and lab based dx s may not be as readily picked up (pancreas, brain, multiple myeloma) Majority of cases reported by hospitals some lab and outpatient reporting Data can be limited by information captured only through the hospital system Outpatient information is often missing XRT at freestanding centers, CTX in MD offices

76 Limitations of Using Cancer Registry Data Lack of information about events leading up to dx screenings, health behaviors Limited information about co-morbid conditions Follow-up information often limited to vital status no detailed information on side effects to tx, tx compliance Very little information about recurrence of disease

77 Medical Record Review Advantages Flexibility Timeliness Customized data set Investigator control

78 Medical Record Review Recent Examples Helping Ourselves Helping Others PI: Ann Partridge, MD Breast cancer in women 40 and under Captured within 16 weeks of dx Cases identified and reviewed at DFCI, MGH, BWH, NWH, Faulkner, BIDMC, North Shore Cancer Center, Lowell General

79 Medical Record Review Recent Examples The Environment, Genes and Testicular Cancer PI: Russ Hauser, MD Newly diagnosed cases of testicular cancer Identified shortly after dx at DFCI, MGH, BWH, Faulkner, North Shore, BIDMC, Boston Medical Center, Lowell General, Tufts-NEMC

80 Medical Record Review Process Plan data set with investigator/study team Define data elements and data definitions (coded 1, 2 responses vs. yes, no) Think about the future Will this data be linked or compared to other data sets should race and ethnicity be collected using cancer registry/census rules What is being measured can t evaluate data that hasn t been collected

81 Medical Record Review Process Design/program the data collection tool Access, Excel, other programs Consider output where is the data goingother databases, are the variables the same

82 Medical Record Review Process Define rules for: Missing data Incomplete data Illegible data Keep in mind Medical records are not designed for research, there are limits to what they contain

83 Medical Record Review Process Develop case identification procedures Review eligibility criteria Identify facilities Case sources Pathology Radiology New patient admission/visits Clinic logs Access to case sources Who has access How does one obtain access Is training required

84 Medical Record Review Process Consider the frequency of data collection Is time to dx important Are there other patient or patient flow events to consider How often do patients come in for treatment Do they stay in the hospital Is there a planned schedule of testing Many cases will need to be reviewed to find eligible cases this can be time consuming

85 Medical Record Review Process Work with investigator/study team on IRB issues Provide background information on personnel Provide information about methods for identifying cases Build in quality control measures Computerized edits Double abstraction (5-10%, inter rater reliability > 95%)

86 Abstraction Process Research Hypothesis Define Variables Exploration Guidelines Instrument Development Logic checks Default values Staff Pilot testing Plans for Case Identification Revisions Record review Quality Mgmt Adapted from Keyzer, UC Davis

87 What Would They Think?

88 Progress Amount of work in Outcomes Research Focus on End Results Reporting, particularly Comparative Effectiveness Research Accountability Evidence based practices Research based interventions

89 Questions?

National Cancer Institute

National Cancer Institute National Cancer Institute Information Systems, Technology, and Dissemination in the SEER Program U.S. DEPARTMENT OF HEALTH AND HUMAN SERVICES National Institutes of Health Information Systems, Technology,

More information

The Ontario Cancer Registry moves to the 21 st Century

The Ontario Cancer Registry moves to the 21 st Century The Ontario Cancer Registry moves to the 21 st Century Rebuilding the OCR Public Health Ontario Grand Rounds Oct. 14, 2014 Diane Nishri, MSc Mary Jane King, MPH, CTR Outline 1. What is the Ontario Cancer

More information

Big Data and Oncology Care Quality Improvement in the United States

Big Data and Oncology Care Quality Improvement in the United States Big Data and Oncology Care Quality Improvement in the United States Peter P. Yu, MD, FACP, FASCO President, American Society of Clinical Oncology Director of Cancer Research, Palo Alto Medical Foundation

More information

Seton Medical Center Hepatocellular Carcinoma Patterns of Care Study Rate of Treatment with Chemoembolization 2007 2012 N = 50

Seton Medical Center Hepatocellular Carcinoma Patterns of Care Study Rate of Treatment with Chemoembolization 2007 2012 N = 50 General Data Seton Medical Center Hepatocellular Carcinoma Patterns of Care Study Rate of Treatment with Chemoembolization 2007 2012 N = 50 The vast majority of the patients in this study were diagnosed

More information

Electronic health records to study population health: opportunities and challenges

Electronic health records to study population health: opportunities and challenges Electronic health records to study population health: opportunities and challenges Caroline A. Thompson, PhD, MPH Assistant Professor of Epidemiology San Diego State University Caroline.Thompson@mail.sdsu.edu

More information

Health Information. Technology and Cancer Information Management. Health Information Technology & Cancer Information Management 363

Health Information. Technology and Cancer Information Management. Health Information Technology & Cancer Information Management 363 Health Information Technology & 363 Health Information Technology and Cancer Information Management Opportunities in the health information field have expanded with changes in health care delivery, utilization

More information

Facts about Diabetes in Massachusetts

Facts about Diabetes in Massachusetts Facts about Diabetes in Massachusetts Diabetes is a disease in which the body does not produce or properly use insulin (a hormone used to convert sugar, starches, and other food into the energy needed

More information

The Ontario Cancer Registry and its Data Quality. Diane Nishri Senior Research Associate, Surveillance February, 2011

The Ontario Cancer Registry and its Data Quality. Diane Nishri Senior Research Associate, Surveillance February, 2011 The Ontario Cancer Registry and its Data Quality Diane Nishri Senior Research Associate, Surveillance February, 2011 Objectives Become familiar with cancer registration in Ontario, including issues related

More information

C a nc e r C e nter. Annual Registry Report

C a nc e r C e nter. Annual Registry Report C a nc e r C e nter Annual Registry Report 214 214 Cancer Registry Report Larraine A. Tooker, CTR Please note that the 214 Cancer Registry Annual Report is created in 214, but it reflects data on cases

More information

Despite the broad advances made in cancer research and interventions

Despite the broad advances made in cancer research and interventions 7th Biennial Symposium on Minorities, the Medically Underserved and Cancer Supplement to Cancer 199 The Unequal Cancer Burden Efforts of the Centers for Disease Control and Prevention to Bridge the Gap

More information

Chapter 13. The hospital-based cancer registry

Chapter 13. The hospital-based cancer registry Chapter 13. The hospital-based cancer registry J.L. Young California Tumor Registry, 1812 14th Street, Suite 200, Sacramento, CA 95814, USA Introduction The purposes of a hospital-based cancer registry

More information

Early mortality rate (EMR) in Acute Myeloid Leukemia (AML)

Early mortality rate (EMR) in Acute Myeloid Leukemia (AML) Early mortality rate (EMR) in Acute Myeloid Leukemia (AML) George Yaghmour, MD Hematology Oncology Fellow PGY5 UTHSC/West cancer Center, Memphis, TN May,1st,2015 Off-Label Use Disclosure(s) I do not intend

More information

CHILDHOOD CANCER SURVIVOR STUDY Analysis Concept Proposal

CHILDHOOD CANCER SURVIVOR STUDY Analysis Concept Proposal CHILDHOOD CANCER SURVIVOR STUDY Analysis Concept Proposal 1. STUDY TITLE: Longitudinal Assessment of Chronic Health Conditions: The Aging of Childhood Cancer Survivors 2. WORKING GROUP AND INVESTIGATORS:

More information

Investigating Community Cancer Concerns--Deer Park Community Advisory Council, 2008

Investigating Community Cancer Concerns--Deer Park Community Advisory Council, 2008 Investigating Community Cancer Concerns--Deer Park Community Advisory Council, 2008 David R. Risser, M.P.H., Ph.D. David.Risser@dshs.state.tx.us Epidemiologist Cancer Epidemiology and Surveillance Branch

More information

Number. Source: Vital Records, M CDPH

Number. Source: Vital Records, M CDPH Epidemiology of Cancer in Department of Public Health Revised April 212 Introduction The general public is very concerned about cancer in the community. Many residents believe that cancer rates are high

More information

Travel Distance to Healthcare Centers is Associated with Advanced Colon Cancer at Presentation

Travel Distance to Healthcare Centers is Associated with Advanced Colon Cancer at Presentation Travel Distance to Healthcare Centers is Associated with Advanced Colon Cancer at Presentation Yan Xing, MD, PhD, Ryaz B. Chagpar, MD, MS, Y Nancy You MD, MHSc, Yi Ju Chiang, MSPH, Barry W. Feig, MD, George

More information

Likelihood of Cancer

Likelihood of Cancer Suggested Grade Levels: 9 and up Likelihood of Cancer Possible Subject Area(s): Social Studies, Health, and Science Math Skills: reading and interpreting pie charts; calculating and understanding percentages

More information

Analysis of Population Cancer Risk Factors in National Information System SVOD

Analysis of Population Cancer Risk Factors in National Information System SVOD Analysis of Population Cancer Risk Factors in National Information System SVOD Mužík J. 1, Dušek L. 1,2, Pavliš P. 1, Koptíková J. 1, Žaloudík J. 3, Vyzula R. 3 Abstract Human risk assessment requires

More information

REFERENCE CODE GDHCER083-15 PUBLICAT ION DATE JULY 2015 MULTIPLE MYELOMA EPIDEMIOLOGY FORECAST TO 2023

REFERENCE CODE GDHCER083-15 PUBLICAT ION DATE JULY 2015 MULTIPLE MYELOMA EPIDEMIOLOGY FORECAST TO 2023 REFERENCE CODE GDHCER083-15 PUBLICAT ION DATE JULY 2015 MULTIPLE MYELOMA Executive Summary Multiple myeloma (MM) (International Statistical Classification of Diseases and Related Health Problems, 10th

More information

2012 CANCER PROGRAM ANNUAL REPORT

2012 CANCER PROGRAM ANNUAL REPORT MERCY REGIONAL CANCER CENTER 2012 CANCER PROGRAM ANNUAL REPORT Using 2011 Data Mercy Regional Cancer Center When you have cancer, you might think first of treatments chemotherapy and radiation. You want

More information

Chapter 4. Planning a cancer registry

Chapter 4. Planning a cancer registry Chapter 4. Planning a cancer registry 0. M. Jensenl and S. Whelan2 Danish Cancer Registry, Danish Cancer Society, Rosenvaengets Hoveduej 35, PO Box 839, Copenhagen 21nternational Agency for Research on

More information

Alaska Comprehensive Cancer Control Plan 2011-15

Alaska Comprehensive Cancer Control Plan 2011-15 Alaska Comprehensive Cancer Control Plan 2011-15 Alaska Comprehensive Cancer Plan 2011-2015 STATE of ALASKA Department of Health and Social Services ALASKA Comprehensive Cancer Partnership Prevention Promotion

More information

Medical Informatic Basics for the Cancer Registry

Medical Informatic Basics for the Cancer Registry Medical Informatic Basics for the Cancer Registry DEVELOPED BY: THE NCRA EDUCATION FOUNDATION AND THE NCRA CANCER INFORMATICS COMMITTEE Medical Informatics is the intersection of science, computer science

More information

Chapter 2 History of MD Anderson s Tumor Registry

Chapter 2 History of MD Anderson s Tumor Registry Chapter 2 History of MD Anderson s Tumor Registry Sarah H. Taylor The Tumor Registry Department at The University of Texas MD Anderson Cancer Center is responsible for a database that contains demographic

More information

STATISTICAL BRIEF #173

STATISTICAL BRIEF #173 Medical Expenditure Panel Survey STATISTICAL BRIEF #173 Agency for Healthcare Research and Quality June 27 Use of the Pap Test as a Cancer Screening Tool among Women Age 18 64, U.S. Noninstitutionalized

More information

Prostate Cancer. Racial Differences in Prostate Cancer Treatment Outcomes. Prostate Cancer Epidemiology. Prostate Cancer Epidemiology

Prostate Cancer. Racial Differences in Prostate Cancer Treatment Outcomes. Prostate Cancer Epidemiology. Prostate Cancer Epidemiology Prostate Cancer Anatomy Paul A. Godley, MD, PhD Cancer Incidence, Males Prostate Cancer Epidemiology 24 Estimated New Cancer Cases Melanoma 29,9 Oral 18,55 Stomach 13,4 Leukemias 19,2 Kidney 22,8 Lymphomas

More information

Secondary Uses of Data for Comparative Effectiveness Research

Secondary Uses of Data for Comparative Effectiveness Research Secondary Uses of Data for Comparative Effectiveness Research Paul Wallace MD Director, Center for Comparative Effectiveness Research The Lewin Group Paul.Wallace@lewin.com Disclosure/Perspectives Training:

More information

2010 SITE REPORT St. Joseph Hospital PROSTATE CANCER

2010 SITE REPORT St. Joseph Hospital PROSTATE CANCER 2010 SITE REPORT St. Joseph Hospital PROSTATE CANCER Humboldt County is located on the Redwood Coast of Northern California. U.S census data for 2010 reports county population at 134,623, an increase of

More information

Racial Disparities in US Healthcare

Racial Disparities in US Healthcare Racial Disparities in US Healthcare Paul H. Johnson, Jr. Ph.D. Candidate University of Wisconsin Madison School of Business Research partially funded by the National Institute of Mental Health: Ruth L.

More information

chapter 5. Quality control at the population-based cancer registry

chapter 5. Quality control at the population-based cancer registry chapter 5. Quality control at the population-based cancer registry All cancer registries should be able to give some objective indication of the quality of the data that they have collected. The methods

More information

CDC Secondary Database Sources

CDC Secondary Database Sources Outcomes and Population-Based Research Sources Database Using secondary datasets for population-level epidemiologic, outcomes and health services research can be an effective, resource-efficient way to

More information

Singapore Cancer Registry Annual Registry Report Trends in Cancer Incidence in Singapore 2009 2013. National Registry of Diseases Office (NRDO)

Singapore Cancer Registry Annual Registry Report Trends in Cancer Incidence in Singapore 2009 2013. National Registry of Diseases Office (NRDO) Singapore Cancer Registry Annual Registry Report Trends in Cancer Incidence in Singapore 2009 2013 National Registry of Diseases Office (NRDO) Released November 3, 2014 Acknowledgement This report was

More information

1992 2001 Aggregate data available; release of county or case-based data requires approval by the DHMH Institutional Review Board

1992 2001 Aggregate data available; release of county or case-based data requires approval by the DHMH Institutional Review Board 50 Table 2.4 Maryland Cancer-Related base Summary: bases That Can Be Used for Cancer Surveillance base/system and/or of MD Cancer Registry Administration, Center for Cancer Surveillance and Control 410-767-5521

More information

Lung Cancer. Public Outcomes Report. Submitted by Omar A. Majid, MD

Lung Cancer. Public Outcomes Report. Submitted by Omar A. Majid, MD Public Outcomes Report Lung Cancer Submitted by Omar A. Majid, MD Lung cancer is the most common cancer-related cause of death among men and women. It has been estimated that there will be 226,1 new cases

More information

Assessment of the Occurrence of Cancer East Harris County, Texas 1995 2012 June 19, 2015

Assessment of the Occurrence of Cancer East Harris County, Texas 1995 2012 June 19, 2015 Assessment of the Occurrence of Cancer East Harris County, Texas 1995 2012 June 19, 2015 Prepared by the Texas Department of State Health Services Investigation# 14004 Table of Contents Executive Summary...

More information

No. prev. doc.: 8770/08 SAN 64 Subject: EMPLOYMENT, SOCIAL POLICY, HEALTH AND CONSUMER AFFAIRS COUNCIL MEETING ON 9 AND 10 JUNE 2008

No. prev. doc.: 8770/08 SAN 64 Subject: EMPLOYMENT, SOCIAL POLICY, HEALTH AND CONSUMER AFFAIRS COUNCIL MEETING ON 9 AND 10 JUNE 2008 COUNCIL OF THE EUROPEAN UNION Brussels, 22 May 2008 9636/08 SAN 87 NOTE from: Committee of Permanent Representatives (Part 1) to: Council No. prev. doc.: 8770/08 SAN 64 Subject: EMPLOYMENT, SOCIAL POLICY,

More information

GQ Medical School Graduation Questionnaire. All Schools Summary Report FINAL

GQ Medical School Graduation Questionnaire. All Schools Summary Report FINAL 2010 GQ Medical School Graduation Questionnaire All Schools Summary Report FINAL Prepared by Academic Affairs 202-828-0960 email: gq@aamc.org 2010, Association of American Medical Colleges. All rights

More information

NPCR Education and Training Series (NETS) Module 3: Quality Control for Central Registries Part 1-Section C: Registry Data Quality Control Tools

NPCR Education and Training Series (NETS) Module 3: Quality Control for Central Registries Part 1-Section C: Registry Data Quality Control Tools NPCR Education and Training Series (NETS) Module 3: Quality Control for Central Registries Part 1-Section C: Registry Data Quality Control Tools Prepared by Scientific Applications International Corporation

More information

Wisconsin Cancer Data Bulletin Wisconsin Department of Health Services Division of Public Health Office of Health Informatics

Wisconsin Cancer Data Bulletin Wisconsin Department of Health Services Division of Public Health Office of Health Informatics Wisconsin Cancer Data Bulletin Wisconsin Department of Health Services Division of Public Health Office of Health Informatics In Situ Breast Cancer in Wisconsin INTRODUCTION This bulletin provides information

More information

Health Care Access to Vulnerable Populations

Health Care Access to Vulnerable Populations Health Care Access to Vulnerable Populations Closing the Gap: Reducing Racial and Ethnic Disparities in Florida Rosebud L. Foster, ED.D. Access to Health Care The timely use of personal health services

More information

STATISTICAL BRIEF #170

STATISTICAL BRIEF #170 Medical Expenditure Panel Survey STATISTICAL BRIEF #17 Agency for Healthcare Research and Quality June 7 Use of Breast Cancer Detection Exams among Women Age 4 and Over, U.S. Noninstitutionalized Population,

More information

Cancer in Ireland 2013: Annual report of the National Cancer Registry

Cancer in Ireland 2013: Annual report of the National Cancer Registry Cancer in 2013: Annual report of the National Cancer Registry ABBREVIATIONS Acronyms 95% CI 95% confidence interval APC Annual percentage change ASR Age standardised rate (European standard population)

More information

2013 Marin County Data Summary: Breast Cancer Trends and Risk Factors

2013 Marin County Data Summary: Breast Cancer Trends and Risk Factors Age-adjusted mortality rate Age-adjusted incidence rate 2013 County Data Summary: Breast Cancer Trends and Risk Factors Age-adjusted Invasive Breast Cancer Incidence Rates and California Non-Hispanic,

More information

An Introduction to the. cancer registry. instructor s guide

An Introduction to the. cancer registry. instructor s guide An Introduction to the cancer registry instructor s guide National Cancer Registrars Association Education Foundation 1340 Braddock Place, Suite 203 Alexandria, Virginia 22314 (703) 299-6640 www.ncraeducationfoundation.org

More information

Dictionary of SEER*Stat Variables November 2011 Submission (released April 2012) http://seer.cancer.gov/data/seerstat/nov2011/ 1 of 18

Dictionary of SEER*Stat Variables November 2011 Submission (released April 2012) http://seer.cancer.gov/data/seerstat/nov2011/ 1 of 18 November 2011 Data Submission Item # refers to the item - see http://www.naaccr.org/standardsandregistryoperations/volumeii.aspx CS= Collaborative Staging SSF = Site-specific Factor Field Item # Description

More information

Non-Small Cell Lung Cancer Treatment Comparison to NCCN Guidelines

Non-Small Cell Lung Cancer Treatment Comparison to NCCN Guidelines Non-Small Cell Lung Cancer Treatment Comparison to NCCN Guidelines April 2008 (presented at 6/12/08 cancer committee meeting) By Shelly Smits, RHIT, CCS, CTR Conclusions by Dr. Ian Thompson, MD Dr. James

More information

BREAST CANCER IN THE 21 st CENTURY. The Carolinas Medical Center NorthEast Experience. Garry Schwartz, MD

BREAST CANCER IN THE 21 st CENTURY. The Carolinas Medical Center NorthEast Experience. Garry Schwartz, MD BREAST CANCER IN THE 21 st CENTURY The Carolinas Medical Center NorthEast Experience Garry Schwartz, MD The American Cancer Society's most recent estimates for breast cancer in the United States for 2009

More information

Analysis of Prostate Cancer at Easter Connecticut Health Network Using Cancer Registry Data

Analysis of Prostate Cancer at Easter Connecticut Health Network Using Cancer Registry Data The 2014 Cancer Program Annual Public Reporting of Outcomes/Annual Site Analysis Statistical Data from 2013 More than 70 percent of all newly diagnosed cancer patients are treated in the more than 1,500

More information

Table 16a Multiple Myeloma Average Annual Number of Cancer Cases and Age-Adjusted Incidence Rates* for 2002-2006

Table 16a Multiple Myeloma Average Annual Number of Cancer Cases and Age-Adjusted Incidence Rates* for 2002-2006 Multiple Myeloma Figure 16 Definition: Multiple myeloma forms in plasma cells that are normally found in the bone marrow. 1 The plasma cells grow out of control and form tumors (plasmacytoma) or crowd

More information

Health Information Technology and Cancer Information

Health Information Technology and Cancer Information 316 Health Information Technology and Cancer Information Health Information Technology and Cancer Information Degrees, Certificates and Awards Associate in Science Health Information Technology Associate

More information

Physician reporting via medical claims data 7/29/2013

Physician reporting via medical claims data 7/29/2013 Pro-Active Reporting of Physician Medical s Data: Capturing Complete and Missed Treatment Data M O N I Q U E H E R N A N D E Z, P H D F L O R I D A C A N C E R D A T A S Y S T E M A N N U A L M E E T I

More information

Cancer Screening and Early Detection Guidelines

Cancer Screening and Early Detection Guidelines Cancer Screening and Early Detection Guidelines Guillermo Tortolero Luna, MD, PhD Director Cancer Control and Population Sciences Program University of Puerto Rico Comprehensive Cancer Center ASPPR Clinical

More information

2012 Oncology Service Line Goals and Accomplishments

2012 Oncology Service Line Goals and Accomplishments 2012 Oncology Service Line Goals and Accomplishments 2012 Program goals and outcomes Quality and Service Seek NAPBC accreditation by December 31, 2012 Application was accepted; visit date set for April

More information

Chapter 9. Quality and quality control

Chapter 9. Quality and quality control Chapter 9. Quality and quality control R.G. Skeet Herefordshire Health Authority, Victoria House, Hereford HR4 OAN, UK The cancer registry, above all else, is a source of information. Since it may be argued

More information

In The Abstract A quarterly newsletter from the

In The Abstract A quarterly newsletter from the In The Abstract A quarterly newsletter from the Kentucky Cancer Registry Large Hospital Edition July, 2000 KCR FALL WORKSHOP Sept. 14-16, 2000 Enclosed with this newsletter is a packet of information containing

More information

CASE COMPLETENESS AND DATA QUALITY ASSESSMENTS IN CENTRAL CANCER REGISTRIES AND THEIR RELEVANCE TO CANCER CONTROL

CASE COMPLETENESS AND DATA QUALITY ASSESSMENTS IN CENTRAL CANCER REGISTRIES AND THEIR RELEVANCE TO CANCER CONTROL CASE COMPLETENESS AND DATA QUALITY ASSESSMENTS IN CENTRAL CANCER REGISTRIES AND THEIR RELEVANCE TO CANCER CONTROL Steven D. Roffers, PA, CTR "The great society is a place where (people) are more concerned

More information

Clinical trial enrollment among older cancer patients

Clinical trial enrollment among older cancer patients Clinical trial enrollment among older cancer patients Sharon H. Giordano MD, MPH Professor, Health Services Research Mariana Chavez Mac Gregor MD, MSc Assistant Professor, Breast Medical Oncology Department

More information

http://www.cdc.gov/nchs.

http://www.cdc.gov/nchs. As the Nation s principal health statistics agency, the National Center for Health Statistics (NCHS) compiles statistical information to guide actions and policies to improve the health of the population.

More information

Chapter 6 Case Ascertainment Methods

Chapter 6 Case Ascertainment Methods Chapter 6 Case Ascertainment Methods Table of Contents 6.1 Introduction...6-1 6.2 Terminology...6-2 6.3 General Surveillance Development...6-4 6.3.1 Plan and Document... 6-4 6.3.2 Identify Data Sources...

More information

Ovarian Cancer. in Georgia, 1999-2003. Georgia Department of Human Resources Division of Public Health

Ovarian Cancer. in Georgia, 1999-2003. Georgia Department of Human Resources Division of Public Health Ovarian Cancer in Georgia, 1999-23 Georgia Department of Human Resources Division of Public Health Acknowledgments Georgia Department of Human Resources......B. J. Walker, Commissioner Division of Public

More information

The Blood Cancer Twice As Likely To Affect African Americans: Multiple Myeloma

The Blood Cancer Twice As Likely To Affect African Americans: Multiple Myeloma The Blood Cancer Twice As Likely To Affect African Americans: Multiple Myeloma 11 th Annual National Leadership Summit on Health Disparities Innovation Towards Reducing Disparities Congressional Black

More information

Screening for Cancer in Light of New Guidelines and Controversies. Christopher Celio, MD St. Jude Heritage Medical Group

Screening for Cancer in Light of New Guidelines and Controversies. Christopher Celio, MD St. Jude Heritage Medical Group Screening for Cancer in Light of New Guidelines and Controversies Christopher Celio, MD St. Jude Heritage Medical Group Screening Tests The 2 major objectives of a good screening program are: (1) detection

More information

Temporal Trends in Demographics and Overall Survival of Non Small-Cell Lung Cancer Patients at Moffitt Cancer Center From 1986 to 2008

Temporal Trends in Demographics and Overall Survival of Non Small-Cell Lung Cancer Patients at Moffitt Cancer Center From 1986 to 2008 Special Report Temporal Trends in Demographics and Overall Survival of Non Small-Cell Lung Cancer Patients at Moffitt Cancer Center From 1986 to 2008 Matthew B. Schabath, PhD, Zachary J. Thompson, PhD,

More information

Report with statistical data from 2007

Report with statistical data from 2007 2008 Cancer Program Annual Report with statistical data from 2007 Lake Cumberland Regional Hospital 305 Langdon Streett Somerset, KY 42503 Telephone: 606-679-7441 Fax: 606-678-9919 Cancer Committee Mullai,

More information

Appendix C: Online Health Care Poll

Appendix C: Online Health Care Poll Appendix C: Online Health Care Poll Internet Poll through May 14, 2006 (10,512 responses) 1. How much do you agree or disagree with the following statement about health insurance coverage and public policy

More information

JESSE HUANG ( 黄 建 始 ),MD,MHPE,MPH,MBA Professor of Epidemiology Assistant President

JESSE HUANG ( 黄 建 始 ),MD,MHPE,MPH,MBA Professor of Epidemiology Assistant President Breast Cancer Epidemiology i in China JESSE HUANG ( 黄 建 始 ),MD,MHPE,MPH,MBA Professor of Epidemiology Assistant President Chinese Academy of Medical Sciences Peking Union Medical College Medical Center

More information

Upstate New York adults with diagnosed type 1 and type 2 diabetes and estimated treatment costs

Upstate New York adults with diagnosed type 1 and type 2 diabetes and estimated treatment costs T H E F A C T S A B O U T Upstate New York adults with diagnosed type 1 and type 2 diabetes and estimated treatment costs Upstate New York Adults with diagnosed diabetes: 2003: 295,399 2008: 377,280 diagnosed

More information

Use and Integration of Freely Available U.S. Public Use Files to Answer Pharmacoeconomic Questions: Deciphering the Alphabet Soup

Use and Integration of Freely Available U.S. Public Use Files to Answer Pharmacoeconomic Questions: Deciphering the Alphabet Soup Use and Integration of Freely Available U.S. Public Use Files to Answer Pharmacoeconomic Questions: Deciphering the Alphabet Soup Prepared by Ovation Research Group for the National Library of Medicine

More information

Treatment of Low Risk MDS. Overview. Myelodysplastic Syndromes (MDS)

Treatment of Low Risk MDS. Overview. Myelodysplastic Syndromes (MDS) Overview Amy Davidoff, Ph.D., M.S. Associate Professor Pharmaceutical Health Services Research Department, Peter Lamy Center on Drug Therapy and Aging University of Maryland School of Pharmacy Clinical

More information

Six Degrees of Separation No More: Using Data Linkages to Improve the Quality of Cancer Registry and Study Data

Six Degrees of Separation No More: Using Data Linkages to Improve the Quality of Cancer Registry and Study Data Six Degrees of Separation No More: Using Data Linkages to Improve the Quality of Cancer Registry and Study Data Prepared for the 138th Annual Meeting of the American Public Health Association Denver, CO

More information

Death Data: CDC Wonder, Texas Health Data, and VitalWeb

Death Data: CDC Wonder, Texas Health Data, and VitalWeb Death Data: CDC Wonder, Texas Health Data, and VitalWeb Evidence-Based Public Health Practice Step 2: Quantify the Issue This handout demonstrates how to access CDC Wonder, Texas Health Data, and VitalWeb

More information

Chapter 1: Program Management Standards, Cont.

Chapter 1: Program Management Standards, Cont. Chapter 1: Program Management Standards, Cont. Thomas Eisenhauer, MD, FACS Surveyor Hendersonville, NC 1 Standard 1.7 Monitoring Conference Activity # case presentation Frequency Evaluate seven areas of

More information

Secondary Cancer and Relapse Rates Following Radical Prostatectomy for Prostate-Confined Cancer

Secondary Cancer and Relapse Rates Following Radical Prostatectomy for Prostate-Confined Cancer Copyright E 2007 Journal of Insurance Medicine J Insur Med 2007;39:242 250 MORTALITY Secondary Cancer and Relapse Rates Following Radical Prostatectomy for Prostate-Confined Cancer David Wesley, MD; Hugh

More information

A Career in Pediatric Hematology-Oncology? Think About It...

A Career in Pediatric Hematology-Oncology? Think About It... A Career in Pediatric Hematology-Oncology? Think About It... What does a pediatric hematologist-oncologist do? What kind of training is necessary? Is there a future need for specialists in this area? T

More information

Conversion to NAACCR 13

Conversion to NAACCR 13 OCCR Oklahoma State Department of Health Oklahoma Central Cancer Registry NewsFlash January 2013 Winter Issue I NSIDE T HIS I SSUE 1 New OK CTRs 1 New OCCR Staff 2 Conversion to NAACCR 13 3 New Requirement

More information

Endometrial Cancer Treatment

Endometrial Cancer Treatment Endometrial Cancer Treatment January 2006 By Shelly Smits, RHIT, CCS, CTR mary by Ian Thompson, MD Data Source: Cancer registry information on uterine cancer diagnosed 1/1/2000 to 12/31/2004. Reason for

More information

Ophthalmology Meaningful Use Attestation Guide Stage 1 2013 Edition

Ophthalmology Meaningful Use Attestation Guide Stage 1 2013 Edition Ophthalmology Meaningful Use Attestation Guide Stage 1 2013 Edition Ophthalmologists can register for the Medicare electronic health record (EHR) incentive program on the CMS website: https://ehrincentives.cms.gov

More information

Medical and Dental Plan Application for Individuals and Families

Medical and Dental Plan Application for Individuals and Families Medical and Dental Plan Application for Individuals and Families Please be sure to complete ALL information below to avoid delays in processing. Please print clearly using blue or black ink. Section 1

More information

Prostate Cancer Screening. A Decision Guide for African Americans

Prostate Cancer Screening. A Decision Guide for African Americans Prostate Cancer Screening A Decision Guide for African Americans This booklet was developed by the U.S. Department of Health and Human Services, Centers for Disease Control and Prevention (CDC). Published

More information

Treatment & Research. Treatment & Research

Treatment & Research. Treatment & Research Treatment & Research In March 1990, I became ill while on a trip to Thailand. I was examined and tested and given instructions to go to the emergency room when I arrived at home. In Great Falls, I learned

More information

Broward Health s Breast Cancer Navigation Program Meeting the needs of underserved patients

Broward Health s Breast Cancer Navigation Program Meeting the needs of underserved patients Broward Health s Breast Cancer Navigation Program Meeting the needs of underserved patients by Pia Delvaille, ARNP, MSN Broward Health, a nonprofit community health system, is one of the ten largest public

More information

Racial Differences in Cancer. A Comparison of Black and White Adults in the United States

Racial Differences in Cancer. A Comparison of Black and White Adults in the United States p P F I Z E R F A C T S Racial Differences in Cancer A Comparison of Black and White Adults in the United States p Approximately 177,000 blacks aged 20 and older will be diagnosed with cancer in 2005 an

More information

Section 8» Incidence, Mortality, Survival and Prevalence

Section 8» Incidence, Mortality, Survival and Prevalence Section 8» Incidence, Mortality, Survival and Prevalence 8.1. Description of Statistics Reported This section focuses on the regional distribution of cancer with data derived from the BC Cancer Registry

More information

European Parliament resolution on breast cancer in the European Union (2002/2279(INI))

European Parliament resolution on breast cancer in the European Union (2002/2279(INI)) P5_TA(2003)0270 Breast cancer European Parliament resolution on breast cancer in the European Union (2002/2279(INI)) The European Parliament, having regard to Article 152 of the EC Treaty as amended by

More information

Chapter I Overview Chapter Contents

Chapter I Overview Chapter Contents Chapter I Overview Chapter Contents Table Number Contents I-1 Estimated New Cancer Cases and Deaths for 2005 I-2 53-Year Trends in US Cancer Death Rates I-3 Summary of Changes in Cancer Incidence and Mortality

More information

Q: Why is there a need for people to join the Be The Match Registry?

Q: Why is there a need for people to join the Be The Match Registry? Q: Why is there a need for people to join the Be The Match Registry? A: Thousands of patients with blood cancers like leukemia and lymphoma, sickle cell and other life-threatening diseases depend on the

More information

National Cancer Institute Research on Childhood Cancers. In the United States in 2005, approximately 9,510 children under age 15 will be

National Cancer Institute Research on Childhood Cancers. In the United States in 2005, approximately 9,510 children under age 15 will be CANCER FACTS N a t i o n a l C a n c e r I n s t i t u t e N a t i o n a l I n s t i t u t e s o f H e a l t h D e p a r t m e n t o f H e a l t h a n d H u m a n S e r v i c e s National Cancer Institute

More information

Health Information Technology and Cancer Information

Health Information Technology and Cancer Information 330 Health Information Technology and Cancer Information Health Information Technology and Cancer Information Opportunities in the health information field have expanded with changes in health care delivery,

More information

CHAPTER 2. Neoplasms (C00-D49) March 2014. 2014 MVP Health Care, Inc.

CHAPTER 2. Neoplasms (C00-D49) March 2014. 2014 MVP Health Care, Inc. Neoplasms (C00-D49) March 2014 2014 MVP Health Care, Inc. CHAPTER SPECIFIC CATEGORY CODE BLOCKS C00-C14 Malignant neoplasms of lip, oral cavity and pharynx C15-C26 Malignant neoplasms of digestive organs

More information

Information provided in these web pages was last updated on November 2, 2009 BREAST CANCER

Information provided in these web pages was last updated on November 2, 2009 BREAST CANCER BREAST CANCER BACKGROUND Facts about breast cancer Breast cancer affects both men and women, though it occurs rarely in men. Breast cancer is the most common form of cancer in women with the exception

More information

Using Health Information Technology to Improve Quality of Care: Clinical Decision Support

Using Health Information Technology to Improve Quality of Care: Clinical Decision Support Using Health Information Technology to Improve Quality of Care: Clinical Decision Support Vince Fonseca, MD, MPH Director of Medical Informatics Intellica Corporation Objectives Describe the 5 health priorities

More information

Data Alliances. Evaluate patterns of care through benchmarking. See the pattern

Data Alliances. Evaluate patterns of care through benchmarking. See the pattern Data Alliances Evaluate patterns of care through benchmarking See the pattern Data Alliances See the pattern The ODA, RODA and NODA are three data aggregation and analysis programs currently offered by

More information

Secondary Cancer Rates Following Breast Cancer Diagnosis

Secondary Cancer Rates Following Breast Cancer Diagnosis Copyright E 2007 Journal of Insurance Medicine J Insur Med 2007;39:98 106 ORIGINAL RESEARCH Secondary Cancer Rates Following Breast Cancer Diagnosis David Wesley, MD Life table analysis and other mortality

More information

Disparities in Stage at Diagnosis, Survival, and Quality of Cancer Care in California by Source of Health Insurance

Disparities in Stage at Diagnosis, Survival, and Quality of Cancer Care in California by Source of Health Insurance Disparities in Stage at Diagnosis, Survival, and Quality of Cancer Care in California by Source of Health Insurance Acknowledgements and Disclaimer The collection of cancer incidence data used in this

More information

Clinic/Physician Office Reporting Project

Clinic/Physician Office Reporting Project Clinic/Physician Office Reporting Project National Center for Chronic Disease Prevention and Health Promotion Division of Cancer Prevention and Control BACKGROUND The Problem Traditional data collection

More information

Jay Weiss Institute for Health Equity Sylvester Comprehensive Cancer Center University of Miami. COMMUNITY PROFILE Liberty City, Florida

Jay Weiss Institute for Health Equity Sylvester Comprehensive Cancer Center University of Miami. COMMUNITY PROFILE Liberty City, Florida Jay Weiss Institute for Health Equity Sylvester Comprehensive Cancer Center University of Miami COMMUNITY PROFILE Liberty City, Florida April 2015 TABLE OF CONTENTS Page Introduction 2 Community Description:

More information

Diabetes. African Americans were disproportionately impacted by diabetes. Table 1 Diabetes deaths by race/ethnicity CHRONIC DISEASES

Diabetes. African Americans were disproportionately impacted by diabetes. Table 1 Diabetes deaths by race/ethnicity CHRONIC DISEASES Diabetes African Americans were disproportionately impacted by diabetes. African Americans were most likely to die of diabetes. People living in San Pablo, Pittsburg, Antioch and Richmond were more likely

More information

BC Cancer Agency Mandate

BC Cancer Agency Mandate BC Cancer Agency s approach to improving the quality of care in oncology Dr David idlevy President BC Cancer Agency Mandate To provide a province wide, population based cancer control program for BC &

More information

Connecticut Diabetes Statistics

Connecticut Diabetes Statistics Connecticut Diabetes Statistics What is Diabetes? State Public Health Actions (1305, SHAPE) Grant March 2015 Page 1 of 16 Diabetes is a disease in which blood glucose levels are above normal. Blood glucose

More information

Prepared by: Michael R. Cousineau, Dr.PH Gregory D. Stevens. Ph.D. With assistance from Jessica Van Gurt. USC Division of Community Health

Prepared by: Michael R. Cousineau, Dr.PH Gregory D. Stevens. Ph.D. With assistance from Jessica Van Gurt. USC Division of Community Health Disparities in Health in the United States A conceptual framework for a multi-disciplinary approach to understanding health disparities and proposing policy solutions towards their elimination First Draft

More information