Belgium. Canada. California

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1 Belgium Ghent University Ghent, Flanders, Belgium PI: Dr. Bart Loeys Coordinator: Sylvia De Nobele Phone Number: address: Canada Hospital For Sick Children Toronto, Ontario, Canada PI: Dr. Brian McCrindle Coordinator: Liz Radojewski, RN Phone Number: Toronto General Hospital - UHN Toronto, Ontario, Canada PI: Dr. Tim Bradley Coordinator: Liz Radojewski, RN Phone Number: California Cedars-Sinai Medical Center Los Angeles, CA PI: Dr. David Rimoin Coordinator: Mitchel Pariani Phone Number: address: Heart Institute, Rady Children's Hospital - UCSD School of Medicine San Diego, CA PI: Dr. Paul Grossfeld Coordinator: Terri McLees-Palinkas Phone Number: address: Stanford University Stanford, CA PI: Dr. David Liang

2 Coordinator: Elizabeth Merkel, RN Phone Number: address: Illinois Children's Memorial Hospital Chicago - Northwestern University Chicago, IL PI: Dr. Luciana Young Coordinator: Megan Domenico Phone Number: address: Maryland Johns Hopkins University Baltimore, MD PI: Dr. Hal Dietz Coordinator: Mary Rykiel, BSN Phone Number: address: Massachusetts Children's Hospital Boston Boston, MA PI: Dr. Jane Newburger Marfan Co-Chair: Ron Lacro Coordinator: Martha King Phone Number: (617) address: Minnesota Children's Hospital & Clinic St. Paul, MN PI: Dr. Mary Ella Pierpont Coordinator: Jessica Attwood Hirsch Phone Number: address: Mayo Clinic - St. Mary's Hospital Rochester, MN PI: Dr. Heidi Connolly

3 Coordinator: Susan Nelson Phone Number: address: Missouri Washington University in St. Louis St. Louis, MO PI: Dr. Angela Sharkey Coordinator: Cheryl Rainey Phone Number: address: New York Children's Hospital of New York New York, NY PI Name: Dr. Daphne Hsu Coordinator: Rosalind Korsin, RN Phone Number: address: Mt. Sinai Hospital New York, NY PI: Dr. Bruce Gelb Coordinator: Kerri Lee, MS Phone Number: address: New York Presbyterian Hospital/ Weill Cornell Medical Center New York, NY PI Name: Drs. Mary Roman and Dick Devereux Coordinator: Rosalind Korsin, RN Phone Number: address: North Carolina Duke University Durham, NC PI: Dr. Page Anderson Coordinator: Ming Xu, RN, MSN Phone Number: address:

4 Eastern Carolina Univeristy Greenville, NC PI: Dr. Charlie Sang Coordinator: Lori Jo Sutton, AAS, CCRC Phone Number: address: Wake Forest University Winston-Salem, NC PI: Dr. Wesley Covitz Coordinator: Kari Crawford, MS, APRN, BC, CPNP-AC Phone Number: address: Ohio Cincinnati Children's Hospital Cincinnati, OH PI: Dr. Woody Benson Coordinator: Mary Pat Benham Phone Number: (513) address: Pennsylvania Children's Hospital of Philadelphia Philadelphia, PA PI: Dr. Victoria Vetter Coordinator: Kathy Lee Phone Number: address: Children's Hospital of Pittsburgh Pittsburgh, PA PI: Dr. Steven Webber Coordinator: Kevin Stiegler Phone Number: address: Marfan University of Pennsylvania Philadelphia, PA PI: Dr. Reed Pyeritz Coordinator: Kathy Lee Phone Number: address:

5 Marfan South Carolina Medical University of South Carolina Charleston, SC PI: Dr. J. Philip Saul Coordinator: Teresa Atz, RN, BSN Phone: SVR, SVR Extension, and Marfan Tennessee Vanderbilt University Medical Center - Monroe Carell Jr Children's Hospital Nashville, TN PI: Dr. Larry Markham Coordinator: Cheryl Kinnard Phone Number: address: Marfan Texas Texas Children's Hospital Houston, TX PI: Dr. Jeff Towbin Coordinator: Andres Menesses-Diaz, MD Phone Number: address: Marfan Utah Primary Children's Medical Center Salt Lake City, Utah PI: Dr. L. LuAnn Minich Coordinator: Jun Awakawa Phone Number: (801) address: Washington Children's Hospital and Regional Medical Center Division of Cardiology, Children's Heart Center Seattle, WA PI: Dr. Mark Lewin Coordinator: Amy Payne Temporary Phone Number: address:

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