Managed Care and Developmental Disability Services in Louisiana

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1 Managed Care in LTSS and Developmental Disability Services: The Family Perspective Presented by: Karen Scallan, CPSP Special Needs & Parent Support Services of LA, LLC

2 SNAPSS of LA, LLC Special Needs & Parent Support Services of LA, LLC Certified in providing support and advocacy services to individuals and families of individuals with disabilities. One of only 2 CPSPs in Louisiana Assisting families in complex health or benefit issues. System Change Advocacy. Statewide. Karen Scallan, CPSP Special Needs & Parent Support Services of LA, LLC Certified Parent Support Provider Phone: kcscallan@gmail.com Facebook: Karen Scallan Blog: 2

3 Objectives Provide an understanding of what managed long-term supports and services (MLTSS) means. Provide an understanding of the opportunities for advocacy around MLTSS for individuals and their families. Provide a better understanding of the parent perspective around MLTSS. 3

4 What is LTSS/MLTSS? LTSS is Long-Term Supports and Services. It includes nursing home services, home and community based services, institutional care. MLTSS is Managed Long-Term Supports and Services applying managed care techniques to LTSS. MLTSS umbrella could include other services though! 4

5 Why Manage LTSS? Cost savings (?) Cost predictability for states. Improved outcomes (?) Meeting increased demand (?) In LA developmental disability waiver services are lean. Cost savings will come from institutional care (nursing facilities, ICF/DDs) and un-managed medical care. ICF/DD= Intermediate Care Facility for Individuals with Developmental Disabilities 5

6 Louisiana s Process Louisiana issues Request for Information La Department of Health & Hospitals (DHH) invited potential MCOs to present. DHH started the MLTSS Advisory Group. MLTSS Advisory Group met several times and continues to meet. Office for Citizens with Developmental Disabilities (OCDD) is making changes to correct current problems in the system before MLTSS is implemented. (System Transformation Workgroup including families). MCOs= Managed Care Organizations 6

7 Louisiana s Process Meetings of MLTSS Advisory Group tackled (via sub groups) Choosing our Partners Focusing on Providers Rebalancing Implementation Benefit Design Care Coordination Enrollment Populations Accountability Consumer Protections Measuring Quality and Outcomes RFP Development and Procurement Stakeholder Engagement and Communication 7

8 Concerns for Families: Managed Care for Developmental Disability Services MCOs are predominantly experienced in managing medical care; Most MCO experience in MLTSS is with individuals who are elderly; MCOs have little to no experience with individuals with intellectual or developmental disabilities (I/DD). 8

9 Concerns for Families: Managed Care for Developmental Disability Services Louisiana will address this by a using a 2-Phase approach to build capacity, knowledge, and abilities of the MCO to work with Individuals with intellectual and developmental disabilities. 9

10 Concerns for Families: Managed Care for Developmental Disability Services MCOs will have to address quality of life measures, not just quality of health care. MCOs must address Employment services for waiver recipients. MCOs must preserve of selfdetermination of individuals and self-direction programs. 10

11 Concerns for Families: Managed Care for Developmental Disability Services Louisiana will include performance improvement projects in the MLTSS contract one of which will be an employment initiative 11

12 Concerns for Families: Managed Care for Developmental Disability Services Reduction of providers available after any willing provider clause expires. National Association of State Directors of Developmental Disability Services & HSRI Guidebook on Managed care and Developmental Disabilities regarding a 1996 program of managed care for elderly individuals in Minnesota. the task for long-term care providers will be to position themselves to offer services which can substitute for acute care services and/or provide the expertise and resources needed to meet the needs of MCOs as they expand the services covered in their capitations in response to purchasers such as state and federal governments or retirement plans." 12

13 Concerns for Families: Managed Care for Developmental Disability Services Louisiana will Include an LTSS Any willing provider clause for Yr 1; Set rates year 1; Set rate floors. 13

14 Concerns for Families: Managed Care for Developmental Disability Services New managed care practice of Network Narrowing Not all because they did not met health outcomes Physicians on high end of the usual and customary scale were dropped, despite high outcomes for patients What does Network Narrowing mean to those with complex health care needs Just because there is a urologist in the network does not mean that urologist understands complex urologic problems associated with individuals with Spina Bifida. 14

15 Concerns for Families: Managed Care for Developmental Disability Services Care coordination of significantly medically involved individuals and individuals with dual-diagnoses. Will care coordination = reduction of services, denials of care? 15

16 Concerns for Families: Managed Care for Developmental Disability Services Louisiana will Include a flexible care coordination team with an experienced I/DD care coordinator for LTSS with a secondary care coordination for acute care and behavioral health. 16

17 Concerns for Families: Managed Care for Developmental Disability Services INCLUDING EARLY INTERVENTION in MLTSS: Educational model, not medical Services provided in natural settings, not clinical Funding from US Department of Education Congressional intent: to reduce costs to school districts Required education components of pre-literacy, school readiness, language, and numeracy. 17

18 Concerns for Families: Managed Care for Developmental Disability Services Louisiana will Include all early intervention services in MLTSS But not in a capitation rate system Included administratively (i.e., handling paperwork, but not managing care 18

19 Concerns for Families: Managed Care for Developmental Disability Services Elimination of Waiver Waiting lists Discussion MUST include BOTH increase in funding for HCBS AND RETENTION OF CURRENT ELIGIBILITY REQUIREMENTS Independent Consumer Education and Meaningful Information Medical limits and other details of plans TRUE Person-Centered planning 19

20 Concerns for Families: Managed Care for Developmental Disability Services Language Concerns Multiple Language Translation of ALL materials Multiple Translations on web sites Meaningful web sites Audio files reading info on websites 20

21 Concerns for Families: Managed Care for Developmental Disability Services What assessment will be used to determine level of need? Who will conduct the assessment? LA uses SIS/LA Plus--Probably won t be used for long. Costing more and more each year Push for state-required assessment No arbitrary or varying MCO assessments 21

22 Concerns for Families: Managed Care for Developmental Disability Services Louisiana will Develop a life-span assessment Which will be administered by a third party, non-risk by the MCO 22

23 Concerns for Families: Managed Care for Developmental Disability Services Expansion of provider network for current services with inadequate networks. Exemptions to requirements for in network providers when continuity of care is essential. Care in the least restrictive environment a top priority while preserving choice and selfdetermination. 23

24 LA s MLTSS Advisory Group Recommendations MCOs and State invest in quality monitoring staff. Ombudsman Program in addition to an External Quality Review contract (EQR)* Independent surveys of quality Individuals with disabilities and Family Members as components of MCO advisory panel and on care coordination teams All payments to MCOs tied to quality measures. 24

25 LA s MLTSS Advisory Group Recommendations Louisiana will Include an independent Ombudsman contract in the MLTSS program Provide for independent surveys of quality by OCDD or an independent contractor 25

26 Ombudsman v. EQRO Ombudsman Independent Contract vital to solving urgent issues In-the-moment Data collection Anecdotal stories supporting data Can drive system change and advocacy initiatives EQRO External Quality Review (EQR) Required by Medicaid Main purpose to conduct analysis and evaluation of aggregated info on quality timelines, and access to health care services that an MCO or PHP or their contractors furnish to Medicaid recipients. 26

27 Recommendations by Louisiana s MLTSS Advisory Group Readiness Assessment MCO network adequacy the state s ability to support the MCO and providers, provider adequacy to meet technology and other requirements. Flexible Care Coordination allowing for different care coordination leader, (family, physician, psychologist) and innovation should be sought out for a selfdirected care coordination model. 27

28 Recommendations by Louisiana s MLTSS Advisory Group Louisiana will include a comprehensive readiness assessment of all systems in MLTSS Care coordination.not sure yet what it will exactly look like. 28

29 A lot to take in 29

30 The Devil Will Be in the Details. 30

31 MLTSS and Louisiana Parent Perspective on MLTSS: 31

32 Questions?

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