Macmillan All Wales Patient Information Project. UROLOGY INFORMATION RESOURCE Kidney

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1 This resource provides a listing of good quality information, as and when it is needed. Many of the titles listed are available both as publications and as internet downloads; and some also as audio. Please contact the provider directly for more information - see details at the end of this document. Information Source: Macmillan Cancer Support and CancerBackup MCS KYOWA KYOWA Locally Produced Local EIDO Healthcare EIDO Arthrtis Research Campaign ARC Cambridge Laboratories CamLab Wales Cancer Bank WBC Trial Originators TO National Osteoperosis Society NOS Wales Cancer Research Network WCRN James Whale Fund for Kidney Cancer JWF Key: Booklet Downloadable Welsh Version Available W Audio Version Available A CD Rom only Pathway Stage Macmillan All Wales Patient Information Project UROLOGY INFORMATION RESOURCE Kidney Information Resource(s) Referred for Tests and Investigations Clinic Appt Letter including hospital intructions, ie. directions, parking booking Hospital Transport Intravenous Urogram (IVU) Ultrasound Image-guided Biopsy Local Information - Gap Identified Local W Nephrostomy Nephrostomy R03 EIDO W Diagnosis and Staging Information Core Information Patient Information Folder / Information Pack Local W The Cancer Guide MCS W A Hospital contacts, MDT and/or Treatment Unit Cancer Nurse Specialist / Key Worker Contact Details Kidney Cancer Understanding Kidney Cancer JWF Unknown Primary Understanding Cancer of Unknown Primary MCS Advanced see Advanced Cancer and Recurrence Section Further Investigations Staging Understanding Kidney Cancer JWF CT Scan - what to expect and aftercare A MRI - what to expect and aftercare Source Booklet Downloadable Welsh Audio CD CD Rom

2 Bone Scan Treatment Options Personalised Treatment Plan Local Information - Gap Identified Local W Surgery Pre-Admission Assessment Letter / Ward Details Pre-Admission Assessment Letter / Ward Details Local Anaesthetic Information Refer to local Procedure Nephrectomy Laporascopic Nephrectomy Embolisation Post-Operative Information - to include: contact numbers for Local Information - Gap Identified Local W any concerns, pain relief, mobility, wound management, nutrition, making progress Cryotherapy Cryotherapy / Cryosurgery Chemotherapy Chemotherapy Understanding Chemotherapy MCS W A Treatment Information Diary Local W Chemotherapy Regimens - various - to include side effects Regimen appropriate to specific drug(s) Factfile (2011) MCS Cold Cap Scalp Cooling - Factfile (2011) MCS PICC Lines PICC Lines - Factfile (2011) MCS Central Lines Central Lines - Factfile (2011) MCS Inserting a Tunnelled Central Line for Chemotherapy R10 EIDO W Temperature Radiotherapy Radiotherapy Understanding Radiotherapy MCS W A Radiotherapy Skin Care Radiofrequency Ablation Radiofrequency Ablation - Factfile (2011) MCS

3 Immunotherapy / Biological Therapy Immunotherapy Regimen appropriate to specific drug(s) Factfile (2011) MCS Targeted Therapies Targeted Therapy Regimen appropriate to specific drug(s) Factfile (2011) MCS Clinical Trials Clinical Trials Understanding Cancer Research Trials (Clinical Trials) MCS A Specific Trial Information Pharmaceutical Company / Trial Originators TO Wales Cancer Research Network WCRN Wales Cancer Bank Wales Cancer Bank Information / Consent Sheet WCB W Supplementary Information Bone Health / Osteoperosis All About Osteoperosis NOS Osteoperosis - An Information Booklet ARC Bone Density Measurement Male Fertility Refer to specialist services if appropriate Female Fertility plus Refer to specialist services if appropriate plus Lymphoedema Understanding Lymphoedema MCS A Follow Up - General Local Information - Gap Identified Local W Advanced Cancer and Recurrence Secondary Bone Cancer Understanding Secondary Cancer in the Bone MCS A Malignant Spinal Cord Compression Malignant Spinal Cord Compression - Factfile (2011) MCS Spinal Cord Compression CRUK Secondary Liver Cancer Understanding Secondary Cancer in the Liver MCS A Secondary Liver Cancer (Treatment Options) UG17 EIDO W Palliative Care Refer to Palliative Care Pathway End of Treatment All Stages - Support Social Services Refer to local Referral Procedure Feelings, Emotions and Communication Fatigue Hair Travel Lifestyle and Diet Finance and Employment Local Welfare Rights Refer to local procedure

4 Complementary Therapies Local Support Groups NHS Direct Cymru - signposting to local support services NHS Direct W Locally produced Local W National Support Groups NHS Direct Cymru - signposting to national support services NHS Direct W Locally produced Local W

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