CONNECTING. the DOTS... A guide to finding services for people with disabilities in Rhode Island

Transcription

1 Rhode Island s Family-to-Family Health Information Center CONNECTING the DOTS... A guide to finding services for people with disabilities in Rhode Island 2011

2 The Family Voices/RI Family to Family Health Information Center at Rhode Island Parent Information Network Family Voices aims to achieve family-centered care for all children and youth with special health care needs and/or disabilities. Through our national network, we provide families tools to make informed decisions, advocate for improved public and private policies, build partnerships among professionals and families, and serve as a trusted resource on health care and family supports. The Rhode Island Family to Family Health Information Center is designed to enhance communitybased care for people with disabilities and ensure that families of children and youth with special health care needs will partner in decision-making at all levels. We provide information, education, technical assistance, and peer support. Founded in 1991, the Rhode Island Parent Information Network is a nonprofit that helps thousands of families and individuals each year in every part of Rhode Island. RIPIN s more than 18 statewide programs and services assist Rhode Islanders in becoming better advocates for themselves and their children in school, in health care and in their communities. RIPIN also offers a Resource Center staffed by trained Resource Specialists who answer questions about parent involvement, school issues, special education, health care, and community services. It is RIPIN s mission to help Rhode Islanders through support, advocacy, training, parent involvement, and workshops. For more information contact: Family to Family Health Information Center / Family Voices at Rhode Island Parent Information Network 1210 Pontiac Avenue Cranston, RI familyvoices@ripin.org This resource guide was created by the Rhode Island Parent Information Network in partnership with the Rhode Island Department of Health. The Health and Resources Administration (HRSA), Maternal Child Health Bureau (MCHB) provides funds for Family Voices Family to Family Health Information Centers. Copyright 2011

3 Table of Contents 1. EARLY CHILDHOOD SUPPORTS 4 Early Intervention Early Head Start & Head Start Parents as Teachers (PAT) Home Instruction Program for Preschool Youngsters (HIPPY) Even Start Childhood Outreach Screening 2. EDUCATION RESOURCES 10 RI Department of Education Special Education Departments by Town or District Private Special Education State Operated Schools Charter Schools 3. TRANSITION SUPPORTS IN RHODE ISLAND 15 RI Regional Transitional Centers Office of Special Healthcare Needs Adolescent Transition Adult Education and GED 4. HEALTH IN RI 18 Medical Assistance RIte Care, RIte Share and Katie Beckett Covered Benefits 5. EARLY & PERIODIC SCREENING, DIAGNOSIS AND TREATMENT 21 Assistive Devices & Nursing Care Benefits and Policies 6. SUPPORTS FOR FAMILIES OF CHILDREN WITH SPECIAL NEEDS 22 Medical Assistance for Children with Special Needs Dental Care CEDARR Family Centers Home Based Therapies Supplemental Security Income (SSI) 7. ASSISTIVE TECHNOLOGY 25 Tech ACCESS of RI Adaptive Telephone Equipment 8. MORE RESOURCES 26 Transportation General Health Prescriptions Specific Disability Information Hospitals, Therapy and Mental Health Family Resource Counselor Program 9. ASSISTANCE, INFORMATION AND ADVOCACY 38 Rhode Island Works Housing RI State Departments & Political Information 10. FEEDBACK FORM 42 3

4 Early Childhood Supports Birth to age 5 Family Service of Rhode Island 134 Thurbers Avenue Providence, RI Early Intervention Early Intervention is a program that promotes the growth and development of infants and toddlers. Children who are under three years of age who have a developmental disability or delay in one or more areas may be eligible. Developmental disabilities or delays can affect a child s speech, physical ability or social skills. Children referred to Early Intervention receive a comprehensive developmental evaluation to determine if they are eligible for the program. One of the goals of Early Intervention is to provide support to families to help their children develop to their fullest potential. Services are provided in natural environments - places where children usually play or take part in daily activities and routines. Early Intervention Programs When contacting any site, please ask for the Intake Coordinator of Early Intervention. Children s Friend & Service 621 Dexter Street Central Falls, RI Easter Seals, RI 213 Robinson Street Wakefield, RI Family Resources Community Action 245 Main Street Woonsocket, RI Hasbro Children s Hospital 765 Allens Avenue Providence, RI The Homestead Group One Cumberland Plaza, 3rd Floor Woonsocket, RI James L. Maher Center 120 Hillside Avenue Newport, RI J. Arthur Trudeau Memorial Center 250 Commonwealth Avenue Warwick, RI J. Arthur Trudeau Memorial Center 25 West Independence Way Kingston, RI Looking Upwards, Inc 2974 E. Main Road Portsmouth, RI Meeting Street 1000 Eddy Street Providence, RI Referral line: The Early Intervention Program is administered by the Rhode Island Department of Human Services. RI Department of Human Services Center for Child and Family Health 600 New London Avenue Cranston, Rhode Island Department of Human Services Early Intervention (EI) Rhode Island Parent Information Network (RIPIN) Parent Consultant Program Every Early Intervention program has at least one Parent Consultant available to help families. Each Parent Consultant has had a personal experience with the Early Intervention program and can provide families with the resources, support, information, and opportunities to connect with other families in the program. Parent Consultants, from the Rhode Island Parent Information Network, work closely with EI staff and provide the family perspective. Their role becomes especially important to many families as they prepare to transition out of EI. Parent Consultants also survey families about their experience in EI.

5 The information gathered assists the EI program and the Department of Human Services in identifying opportunities for improvement at the local and state level. For more information on the Parent Consultant Program, please contact: Early Intervention Program Director Rhode Island Parent Information Network (RIPIN) 1210 Pontiac Avenue Cranston Rhode Island (toll free in RI only) Fax: Other Early Intervention Resources - Interagency Coordinating Council (ICC) The Rhode Island Interagency Coordinating Council (ICC) is an advisory committee whose membership is appointed by the Governor of Rhode Island. The ICC provides a forum of public input from families, service providers and other stakeholders regarding federal and state policies on the Early Intervention program. For more information on the ICC, please contact the RI Parent Information Network: x123 tobin@ripin.org Early Intervention Central Directory The Early Intervention Central Directory is a guide that contains basic information about the Early Intervention Program. This guide also provides information on resources for families in Rhode Island. This guide is available online at: Early Childhood Programs Early Head Start Early Head Start is a national program that provides comprehensive child development services to families with children under 3 and to pregnant women. The purpose of Early Head Start is to enhance children s physical, social, emotional, and cognitive development; enable parents to be better caregivers and teachers to their children; and to help parents meet their own goals, including that of economic independence. Please note that Early Head Start is only available in selected sites. Please contact your local Head Start to see what services are available in your area. Head Start Head Start is a national program that provides comprehensive child developmental services to preschool children ages 3-5 and social services for their families. Specific services for children in Head Start focus on education, social and emotional development, physical and mental health, and nutrition. For more information and eligibility guidelines, visit Local Head Start Programs Comprehensive Community Action Program 848 Atwood Avenue Cranston, RI Cranston Tri-Town Community Action Agency 1126 Hartford Avenue Johnston, RI Johnston, North Providence, Smithfield, North Smithfield, Scituate, Foster, Glocester and Burrillville East Bay Community Action Program Head Start, Early Head Start & Childcare 654 Green End Avenue Middletown, RI Newport, Middletown, Portsmouth, Tiverton, Jamestown, Little Compton, East Providence and Warren CDI Head Start, Inc. 99 Berkshire Street Providence, RI nd Floor Administration Office Providence, Pawtucket, Central Falls, Lincoln and Cumberland CHILD Inc., 160 Draper Avenue Warwick, RI Warwick, West Warwick, West Greenwich and East Greenwich Woonsocket Head Start 204 Warwick Street Woonsocket, RI Woonsocket Children s Friend & Service 621 Dexter Street Central Falls, RI Central Falls and South Providence South County Community Action Inc Kingstown Road Wakefield, RI Charlestown, Exeter, Richmond, North Kingstown, South Kingstown, Narragansett, Westerly and Hopkinton The Family Outreach Program of Rhode Island - Rhode Island s Home Visiting Program The Family Outreach Program helps families with young children. Home visitors are caring professionals who are available to visit with families during the day, in the evening and on the weekend. The Family Outreach Program is a program of the Rhode Island Department of Health funded in partnership with the Rhode Island Department of Human Services. For more information about the Family Outreach Program, call the HEALTH Information Line at

6 6 Parents As Teachers (PAT) The Rhode Island Parent Information Network (RIPIN) manages this statewide home visiting program. RIPIN firmly believes that parents are their child s first and best teacher. Through home visits to parents with children from birth to five years of age, families are offered: Information on their child s growth and development. Access to state and community based resources. Opportunities to meet other parents with children of a similar age. Annual developmental screenings for their child. To learn more, contact the Rhode Island Parent Information Network at or go to Home Instruction Program for Preschool Youngsters (HIPPY) The Home Instruction Program for Preschool Youngsters (HIPPY) is a statewide visiting program for parents of children from three to five years of age. Offered by the Rhode Island Parent Information Network, HIPPY supports the development of school readiness through cognitive skill building, information about the local school district, parent networking opportunities, and by connecting families to community resources. HIPPY 286 Main Street Pawtucket, RI Even Start Family Literacy Program The purpose of this program is to help families become full partners in their children s education. The four components of this program are designed to provide families with the skills and resources to ensure family self-sufficiency with community involvement and support. The four components of the program are: High quality early childhood education for children birth to seven years old Adult literacy including Adult Basic Education, General Education Development (GED), English as a Second Language (ESL), and job training Parenting education Parent involvement Even Start Programs Dorcas Place Adult and Family Learning Center - Providence Pawtucket COZ - Pawtucket Central Falls Even Start - Central Falls Woonsocket Even Start - Woonsocket Tri Town Community Action - Johston South County Community Action - Wakefield Education Exchange Even Start - North Kingstown Westerly Even Start - Westerly Newport Even Start - Newport Child Outreach Screening Child Outreach Screening is a program overseen by the Rhode Island Department of Education and offered through every local school district. It is available to all children ages 3-5. This developmental screening looks at several areas including speech and language, vision, hearing, and general development. If areas of concern are identified, a referral will be made to the family s local school departments for an evaluation to determine eligibility for preschool special education services. Child Outreach Programs by Town Barrington P.O. Box Country Road Barrington, RI or x 351 gravella@bpsmail.org Bristol/Warren Oliver School 151 State Street Bristol, RI x5117 cordeirom@bw.k12.ri.us Burrillville Northwest Region 23A Theodore Foster Rd. North Scituate, RI mociotola@yahoo.com

7 Central Falls Outreach Registration Center Ella Risk School 949 Dexter St. Central Falls, RI x115 Chariho 455A Switch Road Wood River Junction, RI x2037 Exeter/West Greenwich Southern RI Collaborative 646 Camp Avenue North Kingstown, RI x141 Foster Northwest Region 23A Theodore Foster Dr. N. Scituate, RI Lincoln 1624 Lonsdale Avenue Lincoln, RI Little Compton Newport County Regional Elmhurst School 1 Frank Coelho Drive Portsmouth, RI amcandrews@mpsri.net Coventry 1675 Flat River Road Coventry, RI x249 bridgebarbara@coventryschools.net Cranston Early Childhood Center 45 Sprague Avenue Cranston, RI msimpson@cpsed.net Cumberland Cumberland Pre-School BF Norton School 364 Broad St. Cumberland, RI Kathy.gibney@cumberlandschools.org East Greenwich Southern RI Collaborative 646 Camp Avenue North Kingstown, RI x141 cogni@sorico.org Glocester Northwest Region 23A Theodore Foster Rd. North Scituate, RI mociotola@yahoo.com Jamestown 76 Melrose Avenue Jamestown, RI x121 gerricabral@cox.net Johnston Graniteville EC Center 6 Collins Avenue Johnston, RI x2502 rid21595@ride.ri.net Middletown Newport County Regional Elmhurst School 1 Frank Coelho Drive Portsmouth, RI amcandrews@mpsri.net Narragansett Southern RI Collaborative 646 Camp Avenue North Kingstown, RI x141 cogni@sorico.org New Shoreham Southern RI Collaborative 646 Camp Avenue North Kingstown, RI x141 cogni@sorico.org East Providence Special Services Department 80 Burnside Avenue East Providence, RI x6259 dpatch@epschools.ri.com 7

8 South Kingstown Southern RI Collaborative 646 Camp Avenue North Kingstown, RI x141 Tiverton Newport County Regional Elmhurst School 1 Frank Coelho Drive Portsmouth, RI amcandrews@mpsri.net 8 Newport 437 Broadway Newport, RI x221 nicholecardoza@cox.net North Kingstown Fishing Cove School 110 Wickford Point Road North Kingstown, RI mary_nelson@nksd.net North Providence North Providence Special Education 2240 Mineral Spring Avenue North Providence, RI (401) x4531 ldj215@aol.com North Smithfield Northwest Region 23A Theodore Foster Rd. North Scituate, RI mociotola@yahoo.com Pawtucket Administration Bldg. 286 Main Street Pawtucket, RI murraym@psdri.net Portsmouth Newport County Regional Elmhurst School 1 Frank Coelho Drive Portsmouth, RI amcandrews@mpsri.net Providence Administration Bldg. 797 Westminster Street Providence, RI mindy.mertz@ppsd.org Scituate Northwest Region 23A Theodore Foster Rd. North Scituate, RI mociotola@yahoo.com Smithfield 49 Farnum Pike Esmond, RI cpoyton@smithfield_ps.org Warwick Drum Rock Early Childhood Center 575 Centerville Rd. Warwick, RI vows@warwickschools.org West Warwick 10 Harris Avenue West Warwick, RI x1348 dheroux@westwarwickpublicschools.com Westerly Bradford School 15 Church St. Westerly, Rhode Island dnabb@westerly.k12.ri.us Woonsocket Second Avenue School 196 Second Avenue Woonsocket, RI cottagerental@hotmail.com

9 RI Department of Education Coordinator of Early Childhood Initiatives 255 Westminster Street, 4th Floor Providence, RI RI Department of Education Early Childhood Special Education 255 Westminster Street, 4th Floor Providence, RI Childcare Assistance For eligibility information or an application for assistance, please contact: DHS Info Line at & TTY/ Hearing Impaired The Department of Human Services can help eligible working families pay for child care. You do not have to participate in the RI Works Program to qualify for child care assistance. To be eligible to receive child care assistance, families must meet income requirements. The number of hours that a parent works or is participating in a work activity, approved training or education program are also factors. For parents that participate in the Rhode Island Works Program, there is no income limit for child care because if a family is eligible for RI Works, they would meet the income requirements for the Child Care Assistance Program. Depending on a family s income, they may have to pay a co-payment. 9

10 Education Resources Age 3 to 21 Special Education Call Center: RI Department of Education, Office of Student, Community and Academic Supports Rhode Island has a long and proud history of ensuring that students with special needs receive support and intervention to achieve high expectations and exit public education as productive citizens, lifelong learners, and contributing members of the workforce. The Office of Student, Community and Academic Supports is responsible for: Children and youth with disabilities who require special education. Children and youth who are English language learners or limited English proficient/non-english speaking. Children who participate in early childhood education and/or preschool special education programs. Children and youth who are learning beyond grade level. The goal of the Office of Student, Community and Academic Supports is to ensure that children with diverse learning needs are provided equal access to a public education, and that schools develop effective strategies for meeting the needs of these unique learners. Rhode Island Department of Education 255 Westminster Street Providence, RI The Office of Student, Community and Academic Supports operates a Call Center during regular business hours to assist families and school district personnel with special questions. Special Education Departments by Town or District Barrington 283 County Road Barrington, RI Bristol/Warren 151 State Street Bristol, RI Phone: www2.bw.k12.ri.us Burrillville 2300 Bronco Highway Harrisville, RI Central Falls 21 Hedley Avenue Central Falls, RI Chariho Charlestown, Hopkinton, Richmond 455 A Switch Road Wood River Junction, RI Coventry 1675 Flat River Rd. Coventry, RI Cranston 845 Park Avenue Cranston, RI Cumberland 2602 Mendon Road Cumberland, RI East Greenwich 111 Pierce Street East Greenwich, RI East Providence 80 Burnside Avenue East Providence, RI Exeter West Greenwich 940 Nooseneck Hill RD West Greenwich, RI

11 Jamestown 76 Melrose Avenue Jamestown, RI Johnston 10 Memorial Drive Johnston, RI Lincoln 1624 Lonsdale Avenue Lincoln, RI Narragansett 25 Fifth Avenue Narragansett, RI Newport 15 Wickham Road Newport, RI Newport County Regional Little Compton, Middletown, Portsmouth, & Tiverton Frank Coehlo Drive Portsmouth, RI New Shoreham P.O. Box 1890 Block Island, RI North Kingstown 100 Fairway Drive North Kingstown, RI North Providence 2240 Mineral Spring Avenue North Providence, RI North Smithfield 83 Greene Street Slatersville, RI Northwest Special Education Region Foster, Glocester, Scituate 23A Theodore Foster Drive North Scituate, RI Pawtucket 286 Main Street Pawtucket, RI Providence 797 Westminster Street Providence, RI Smithfield 49 Farnum Pike Smithfield, RI South Kingstown 307 Curtis Corner Road Wakefield, RI Warwick 1849 Warwick Avenue Warwick, RI Westerly 15 Highland Avenue Westerly, RI West Warwick 10 Harris Avenue West Warwick, RI Woonsocket 108 High Street Woonsocket, RI Phone:

12 12 Rhode Island Association of Private Special Education Schools (RIAPSES) RIAPSES is a group of specialized educational programs which work collaboratively with RI public schools. All of the programs are approved by the RI Department of Education. Action Based Enterprises 115 Ricard Street Woonsocket, RI Bradley School 1011 Veterans Memorial Parkway East Providence, RI Bradley Hospital/Center for Autism & Developmental Disabilities Day Program Day School 1011 Veterans Memorial Parkway East Providence, RI The Bradley School 2820 East Main Road Portsmouth, RI Bradley School South 4781 Tower Hill Road Wakefield, RI Camp E-Hun-Tee One Camp E-Hun-Tee Place Exeter, RI Center for Individualized Training 15 Bough Street Providence, RI Cornerstone School 665 Dyer Avenue Cranston, RI Eleanor Briggs School 116 Long Street Warwick, RI Elmwood Community School 801 Elmwood Avenue Providence, RI Groden Center South 2 St. Vincent Depaul Coventry, RI Harmony Hill School 63 Harmony Hill Road Chepachet, RI High Road School of Providence Goodwill Industries of RI 100 Houghton Street Providence, RI Hillside Alternative Program 115 Ricard Street Woonsocket, RI Mount Pleasant Academy 1246 Chalkstone Avenue Providence, RI ACE Program School 735 New London Avenue Cranston, RI Ocean Tides, Inc. 635 Ocean Road Narragansett, RI Meeting Street 1000 Eddy Street Providence, RI St. Mary s Home for Children George N. Hunt Campus School 440 Fruit Hill Avenue North Providence, RI Ocean Tides 634 Ocean Road Narragansett, RI Pathways Strategic Teaching Center 3445 Post Road Warwick, RI Perspectives Therapeutic Classroom 166 Mark Drive Quidnessett Elementary School North Kingstown, RI The Providence Center School 520 Hope Street Providence, RI Sargent Rehabilitation Center 800 Quaker Lane Warwick, RI School One 220 University Avenue Providence, RI The Spurwink School II 365 River Road Lincoln, RI St. Andrews School 63 Federal Road Barrington, RI

13 The Tides School 242 Dexter Street Pawtucket, RI NAFI-Alternatives Program 350 Duncan Drive Providence, RI Tides School 260 Highland Avenue Providence, RI The Tides School 790 Broad Street Providence, RI The Tides School 222 Washington Street West Warwick, RI Tavares Educational Center / Tavares Pediatric Center 101 Plain Street Providence, RI Valley Community School 249 Roosevelt Avenue Pawtucket, RI Valley Community School 83 Rolfe Square Cranston, RI Valley Community School 60 Hammarlund Way Middletown, RI Viola M. Berard School P.O. Box 1700 Woonsocket, RI The Wolfe School 215 Ferris Avenue East Providence, RI State Operated Schools & Charter Schools DCYF Alternative Education Program 57 Power Street Cranston, RI Metropolitan Regional Career & Technical Center 325 Public Street Providence, RI RI Department of Corrections, Education Unit 15 Fleming Road Bernadette Building Cranston, RI Rhode Island School for the Deaf One Corliss Park Providence, RI ww.rideaf.net Metropolitan Regional Career & Technical Center 362 Dexter Street Peace Street Campus Providence, RI Metropolitan Regional Career & Technical Center One York Street Newport, RI Wm. M. Davies Jr. Career-Technical High School 50 Jenckes Hill Road Lincoln, RI Beacon Charter School 320 Main Street Woonsocket, RI Blackstone Academy Charter School 334 Pleasant Street Pawtucket, RI NEL/CPS Construction Career Academy 4 Sharpe Drive Cranston, RI Highlander Charter School 42 Lexington Avenue Providence, RI International Charter School 334 Pleasant Street Pawtucket, RI The Learning Community Charter School 21 Lincoln Avenue Central Falls, RI

14 Textron Chamber of Commerce Academy 130 Broadway Providence, RI The Compass School 537 Old North Road Kingston, RI The Greene School 84 John Potter Road West Greenwich, RI Rhode Island Technical Assistance Program (RITAP) RITAP is a statewide resource center for technical assistance and support; professional development and training and policy analysis and interpretation. RITAP is a collaborative effort of the Rhode Island Department of Education Office of Student, Community and Academic Supports and Rhode Island College. It provides practitioners, parents and policymakers the knowledge and resources necessary to increase their capacity to provide comprehensive and coordinated services to all children including those with disabilities that result in improved educational performance and enhanced life-long outcomes. 600 Mt Pleasant Avenue Providence, RI RI Parent Information Network (RIPIN) The Rhode Island Parent Information Network provides information, support and training to help all Rhode Islanders become better advocates for themselves and their children in school, in health care and in their communities. RIPIN offers: Parent and professional workshops and trainings Mentoring Parent involvement programs Call-in Resource Center for information regarding education, health care and community services in RI RI Parent Information Network 1210 Pontiac Avenue Cranston, RI Parent Support Network of Rhode Island (PSN) PSN is an organization of families supporting families with children, youth and young adults who experience or are at risk for serious behavioral, emotional and/or mental health challenges. PSN seeks to strengthen and preserve families and reduce family isolation by building culturally and linguistically competent systems of care through advocacy, education, training, and increased public awareness Atwood Avenue, Suite 114 Johnston, Rhode Island The resources of RITAP are organized to assist state and local agencies, institutions of higher learning and families in the delivery of quality education and support services for all children including those with disabilities. RIPIN offers a Resource Center staffed by trained Resource Specialists who answer questions about parent involvement, school issues, special education, health care, and social services. It is RIPIN s mission to help Rhode Islanders through support, advocacy, training, parent involvement, and workshops.

15 Transition to Adult Life Transition planning is a way for students ages 14 to 21 and their families, school staff and service providers to prepare the student for life after high school. Transition means making a change or going from one place to another. For students with disabilities, transition means going from school to the adult world. It s important to plan early for this transition beginning in the teen years for a successful and rewarding future. The guide Here s to Your Students Future! A Parent s Guide to Transition Planning was produced by the RIPIN and the RI Department of Education Office for Student, Community & Academic Supports. This guide for parents was created to get you and your student started in the transition planning process. The Rhode Island Department of Education contracts with RIPIN to support school districts and parent organizations with navigating the transition planning process. RIPIN can assist with phone support, educational workshops, Annual College Forum for students and parents as well as other regional and statewide parent events. RI Parent Information Network RI Regional Transition Centers & Vocational Assessment Centers The Regional Transition Centers (RTC) & Regional Vocational Assessment Centers (RVAC) were developed to support schools, families and communities in preparing students for adult life through professional development; resource materials; programs and services; and informational events. The Regional Transition Centers work in partnership with the Rhode Island Department of Education (RIDE), the Office of Rehabilitation Services (ORS), RIPIN, and local school districts. In contacting any one of the Regional Transition Centers, you will find support for your transition-aged student (14 21). Whether you re a family member or educator, you can help your student prepare and plan for their future by attending informational workshops, taking part in school sponsored transition events, participating in career assessments, calling to receive one-on-one support, or simply by browsing the resource library at your regional transition center. For more information contact the center in your region: Northern RI Collaborative x103 JSlade@nric-ri.org Services: Pawtucket, Central Falls, Johnston, Cumberland, Woonsocket, Lincoln, Burrillville, Smithfield, North Smithfield, North Providence East Bay Educational Collaborative x303 aspinwac@ride.ri.net Services: East Providence, Portsmouth, Warren/Bristol, Little Compton, Barrington, Middletown, Tiverton, Newport Providence Public Schools Nancy.Stevenin@ppsd.org Services: Providence Transition Supports in Rhode Island West Bay Collaborative x124 curranwbc@aol.com Services: Coventry, Cranston, Foster, Glocester, Foster/Glocester Regional, Scituate, Warwick, West Warwick Southern RI Collaborative x109 jwalejko@sorico.org Services: North Kingstown, South Kingstown, Narragansett, Westerly, East Greenwich, Exeter/West Greenwich, Chariho, New Shoreham, Jamestown 15

16 Transition Resources Office of Special Healthcare Needs Adolescent Healthcare Transition Program Adolescent transition is an important topic in Rhode Island. The Rhode Island Department of Health s Office of Special Healthcare Needs is bringing the healthcare piece into focus with unique materials designed for youth, their families, educators, and healthcare providers. For transition resources, visit ri.gov/familyspecialneeds/transition/ index.php Other transition programs in the state include: RI Department of Education (RIDE), Regional Transition Academies, RI Parent Information Network (RIPIN), RI Department of Human Services (DHS) Office of Rehabilitation Services (ORS), RI Department of Behavioral Healthcare, Developmental Disabilities and Hospitals (BHDDH), and the Sherlock Center on Disabilities. Paul V. Sherlock Center on Disabilities at Rhode Island College Sentinel Project - The Sentinel Project strives to bring together individuals with disabilities and their family members to share their experiences with the Sherlock Center and one another. The Sentinel Project is the Consumer Advisory Committee for the Sherlock Center. New members are welcome to join. Family to Family of RI - The Sherlock Center collaborates on this project with Family Voices and the Rhode Island Parent Information Network. Family to Family of RI is a network created by families for families of children and adults with special needs. The network offers opportunities for families to connect with one another, share experiences, information, and support. planning for inclusion of individual children who have developmental disabilities. These one-day institutes address barriers to meaningful inclusion. Teams usually consist of the child s parents, a special educator, teaching assistants, therapists, and others. For more information, call Community Supports Navigator Project A Community Supports Navigator provides young people with intellectual and developmental disabilities and their families the guidance needed to plan for meaningful adult lives in their communities after graduation from high school. Community Supports Navigators are trained in the values of self-determination, person-centered planning facilitation and the processes for accessing natural, community and formal supports including the management of self-directed supports for people with disabilities in Rhode Island. 360 Local Supportive Parenting Project This initiative provides a variety of support services to parents self-identified as having learning difficulties and/or cognitive challenges. RI Services to Children and Youth with Dual Sensory Impairments (DSI) The DSI Project provides family and professional support, coordination of services, information, technical assistance, and training to children with dual sensory impairments, from birth through 22 years of age. Call Educational Advocate Program - This program is responsible for making educational decisions for children with disabilities who are in the care of the state, and whose parents are unable to act on their behalf. For more information, contact RI Vision Education and Services Program (RIVESP) - RIVESP, supported by the Rhode Island Department of Education, provides teaching and consultation services for children who are blind or visually impaired, their families and educational staff within the school environment. The array of services available includes early intervention, orientation and mobility, and the instruction of specific compensatory skills for children from birth through 21 years. The Sherlock Center offers a variety of workshops such as positive behavioral supports, employment of persons with disabilities, transition, assistive technology, and inclusion. The Sherlock Center also has a lending resource library with over 1500 books, periodicals, software, and dvds/videotapes. Paul V. Sherlock Center on Disabilities at Rhode Island College 600 Mount Pleasant Avenue Providence RI Inclusion Institutes - Inclusion Institutes provide the opportunity for school personnel and parents to work in teams in

17 Parents and Friends for Alternate Living (PAL) PAL is a family organization that believes in meeting people where they are and providing them with opportunities to make informed choices based on best practices regarding individuals with disabilities. They assist families and individuals in identifying their own personal communication styles and then helping them build bridges in their communities to the supports and services they need. Parents and Friends for Alternate Living (PAL) 96 Rolfe Street Cranston, RI Adult Education and GED For information regarding the High School Equivalency Test, please contact: Rhode Island Department of Education 255 Westminster Street Providence, RI Developmental Disabilities The Division of Developmental Disabilities The Division is responsible for planning, providing and administering a community system of services/supports for adults with developmental disabilities in Rhode Island by enhancing the quality of support/services so that people with disabilities can identify and move toward personal futures of inclusion and participation in community life; safeguarding the health and safety of people with disabilities through quality management activities that promote human rights and protect people from abuse; and ensuring equitable access to and allocation of available resources in order to be responsive to the individual needs of the person. Behavioral Healthcare, Developmental Disabilities and Hospitals 14 Harrington Road Cranston, RI Rhode Island ARCs Cranston Arc, Inc. 111 Comstock Parkway Cranston, RI Westerly-Chariho Chapter Frank A. Olean Center 93 Airport Road Westerly, RI The Arc of Blackstone Valley 115 Manton Street Pawtucket, RI Greater Providence Arc 220 Woonasquatucket Avenue North Providence, RI Rhode Island Developmental Disabilities Council Promoting the ideas that will enhance the lives of people with developmental disabilities is one of the Council s missions. Under federal enabling legislation the Council must stay abreast of and share information about new programs and services as well as important issues, trends and ideas that are of concern to people with developmental disabilities, families, service agencies, business, and community leaders, legislators and policy makers. The Council web site connects people with the information they need to make positive changes in their lives or to develop a frame of reference for decision making. The RI Developmental Disabilities Council 400 Bald Hill Road Suite 515 Warwick, RI Voice/TDD: National Association of Developmental Disabilities Councils (NADDC) The National Association of Councils on Developmental Disabilities (NACDD) is a national membership organization representing the 55 State and Territorial Councils on Developmental Disabilities. NACDD is a 501(c) 3 organization with the purpose of promoting and enhancing the outcomes of member councils in developing and sustaining inclusive communities and self directed services and supports for individuals with developmental disabilities. National Association of Developmental Disabilities Councils (NADDC) 1660 L Street, NW, Suite 700 Washington, DC Rhode Island Assistive Technology Access Partnership Office of Rehabilitation Services 40 Fountain Street Providence, RI or Spanish: Cambodian: TYY:

18 Health in RI The following is a listing of systems that encompass health related services and issues. Please remember that this is a guide, and that all services may not be available to all families. Call the specific agency or group for detailed information. Rhode Island Medical Assistance Program RI Medical Assistance The Rhode Island Medical Assistance Program, also known as Medicaid is a federal and state-funded program that pays for medical and health related services for eligible Rhode Islanders. Who is Eligible for Medical Assistance? Children, parents, and pregnant women (through RIte Care); RI working families (through RIshare Premium Assistance Program); Children with special needs (through Katie Beckett Medical Assistance). Members enroll in a participating health plan: United Healthcare of New England or Neighborhood Health Plan of RI RIte Care Program RIte Care is Rhode Island s Medicaid managed care program for families on the RI Works Program and eligible uninsured pregnant women, children, and parents. It provides comprehensive health care coverage through enrollment in participating health plans. Children with special health care needs may qualify for Medical Assistance due to their disability or condition. RIte Share Program RI s Premium Assistance Program that provides health coverage through an employer s health insurance. The State will pay all or part of an eligible employee s cost. Eligibility Eligibility is based on income and family size. Pregnant women (family s income less than 250 percent of the Federal Poverty Level- FPL) Children up to age 19 (family s income less than 250 percent of the FPL) Parents with children under age 18 (family s income less than 175 percent of the FPL) Cost Members whose family s income is less than 150 percent of the FPL do not pay a monthly premium. Members whose family s income is more than 150 percent of the FPL pay a monthly premium of either $61, $77 or $92 per month How to Apply Complete an application and send it by mail to the local DHS office that serves your town or city. Please include the necessary copies of documents that are requested. If you need help completing the application, please visit a Family Resource Counselor near you or call the DHS Info Line. For More Information DHS Info Line United Healthcare of New England Neighborhood Health Plan of RI Katie Beckett Katie Beckett is an eligibility category that allows certain children under age 19 who have long term disabilities or complex medical needs to become eligible for Medical Assistance coverage. Katie Beckett eligibility enables children to be cared for at home instead of in an institution. With Katie Beckett, only the child s income and resources, not the parents, are used to determine eligibility. Who is Eligible? To be eligible for Medical Assistance coverage through Katie Beckett, a child must: Be under age 19. Be a Rhode Island resident and U.S. citizen or eligible non-citizen. Meet the income and resource requirements. Meet the Social Security Administration s definition of disability. Live at home. Require a level of care at home that is typically provided in a hospital, nursing facility or an Intermediate Care Facility for Persons with Mental Retardation (ICF-MR). 18

19 How much does it cost? There is no cost to families. How to Apply A Katie Beckett social caseworker usually talks to families prior to submitting the application, so that families understand the eligibility criteria and application process. You can call or download an application from the DHS website. katiebeckett For help with the application process (Social Caseworker) For clinical questions (Public Health Nurse) RI Department of Human Services Center for Child and Family Health/ Katie Beckett 600 New London Avenue Cranston, Rhode Island Fax: Rhode Island Medicaid Covered Benefits Inpatient Hospital Care: up to 365 days per year based on medical necessity. Outpatient Hospital Services: covered as needed, based on medical necessity. Includes physical therapy, occupational therapy, respiratory therapy, and other Medicaid covered services delivered in an outpatient hospital setting (Health Plans have the option to deliver these types of services in other appropriate settings.). Physician Services: covered as needed, based on medical necessity; up to three GYN visits annually to a network provider is covered without a PCP referral. Family Planning Services: non-extended family planning group receives same family planning benefit as extended family planning group. Prescription Drugs: covered when prescribed by a Health Plan physician/ provider (or other physician for Seriously Emotionally Disturbed (SED) and Seriously and Persistently Mentally Ill (SPMI) populations. Generic substitution required unless specified otherwise by phycian. Non-Prescription Drugs: covered when prescribed by a Health Plan physician/ provider; limited to non-prescription drugs covered by the Rhode Island Medical Assistance Program. Laboratory Services: covered when ordered by a Health Plan physician/provider (or other physician for SED and SPMI), including urine screens. Radiology Services: covered when ordered by a Health Plan physician/provider. Diagnostic Services: covered when ordered by a Health Plan physician/ provider (or other physician for SED and SPMI). Mental Health and Substance Abuse Services Outpatient: Both short and long term treatment covered as needed based on medical necessity, subject to stop-loss limitations and groups/services out-ofplan. Includes methadone maintenance, outpatient methadone detoxification, collateral visits. Mental Health and Substance Abuse Services-Inpatient Both short and long term treatment: covered as needed, based on medical necessity. (Butler Hospital may be used for services). Includes day treatment, partial hospitalization, and residential treatment, except for residential treatment for children ordered by DCYF, and except for residential substance abuse treatment for children age 13 to 17. Covered residential treatment includes therapeutic services, but does not include room and board, except in a facility accredited by the Joint Commission on Accreditation of Healthcare Organizations (JCAHO). Covered services subject to limitations Early and Periodic Screening Diagnosis and Treatment (EPSDT) Services: provided to all children and young adults up to age 21, who are eligible for Medicaid. Includes tracking, follow-up and outreach to children for initial visits, preventive vis- 19

20 its, and follow-up visits. Includes interperiodic screens as medically indicated. Includes multi-disciplinary evaluation and treatment for children with significant developmental disabilities or developmental delays. (see page 22 for details) Home Health Services: covered if ordered by a Health Plan physician. Includes private duty nursing and homemaking/ personal care services when medically necessary. Personal care/ homemaking services include such tasks as assisting the client with personal hygiene, dressing, feeding, transfer, ambulatory needs, and household tasks incidental to the client s health needs. These homemaking tasks might include making the client s bed, cleaning the client s living areas such as bedroom and bathroom, and doing the client s laundry and shopping. These services may be provided for RIte Care members and their children if the member is unable, because of illness or disability, to provide caretaking functions for herself/himself and her/his child(ren). Does not include respite care, relief care, or day care. School-Based Clinic Services: covered as medically necessary at four designated sites. Emergency Room Services and Emergency Transportation Services: covered, for emergency services or when authorized by a Health Plan Provider, or in order to assess whether a condition warrants treatment as an emergency service. Nursing Facility Care: covered when ordered by a Health Plan physician, subject to stop-loss provisions. Optometry Services: for adults 21 and older, benefit is limited to examinations that include refractions and provision of eyeglasses if needed once every two years, and other medically necessary treatment visits for illness or injury to the eye. For children under 21, covered as medically necessary with no other limits. Hospice Services: up to 210 days lifetime maximum as ordered by a Health Plan physician. Services limited to those covered by Medicare. Durable Medical Equipment: covered as ordered by a Health Plan physician. Includes surgical appliances, prosthetic devices, orthotic devices, and medical supplies. Includes hearing aids and molded shoes. Early Intervention: covered as included within the IFSP, subject to stop-loss limitations up to the first $3000 for speech, language, hearing, physical, and occupational therapies. Transportation Services: covered nonemergency transportation services include bus passes, and also includes para-transit services, when authorized/arranged by the Health Plan through Rhode Island Public Transportation Authority (RIPTA) Coordinator. Interpreter Services: covered if a Health Plan has more than 100 members or 10 percent of its RIte Care membership, whichever is less, who speak a single language other than English as a primary language. Transplant Services: covered when ordered by a Health Plan physician subject to stop-loss limitations. 20 Services of Other Practitioners: covered if referred by a Health Plan physician. Podiatry Services: covered as ordered by Health Plan physician. Nutrition Services: covered as delivered by a licensed dietitian for certain medical conditions and as referred by a Health Plan physician. Group Education/Programs: including childbirth education classes, parenting classes and smoking cessation programs and services.