1. Do you believe you have a voice in state and local programs that affect your life? Yes No

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1 Tell us what it s like to live in Pennsylvania with a disability The Statewide Independent Living Council is gathering information about the concerns and ideas that people with disabilities have about living independently in Pennsylvania. This information will be used to conduct planning and to use resources to improve the quality of life in the future. 1. Do you believe you have a voice in state and local programs that affect your life? Yes No Why do you think that is true? What are your suggestions? What should we do to increase your opportunity to be heard? 2. If you use Home and Community Based Services or know someone who does, do you believe that the programs have improved with the changes over the last 5 years? Yes No. What changes would you make? What should our role be here? Please explain your thoughts on the upcoming shift to Managed Long Term Care as Managed Care Organizations will be providing these services as they currently do for primary health care and behavioral health under Medicaid. What should we do in addressing the proposed managed long term care changes?

2 3. Are you able to get Assistive Technology and Durable Medical Equipment that you believe that you need? Yes No What are your suggestions on these issues? What should our role be in supporting improvements? 4. Financial Supports: These programs are important for individuals with disabilities of all ages in promoting independence and selfsufficiency. Please suggest order of importance from 1-4 in addressing these issues. Social Security Medicaid Trusts: Special Needs, Pooled The New ABLE Act Savings Accounts Please comment on your priority here. How should we address these issues? 5. Public accommodation is your right under the Americans with Disabilities Act. Please suggest order of importance from 1-5 in addressing these issues. Public Parks Libraries Swimming Pools Educational institutions (all levels) Other Explain Please comment on how we should address these concerns.

3 6. Transportation is vital to independent living, but can be complex. Please provide your order of preference from 1-7 for us to address these issues: Para-transit (Persons With Disabilities / Senior Shared Ride Programs, ADA Para-transit, Medical Assistance Transportation Program) Transportation Networking Companies (Uber, Lyft, etc.) Amtrak and other high speed rail stations (SEPTA / PAT) with ADA Accessibility issues Complete Streets / Curb Cuts Mass transit Increased accessible vehicles / vehicle adaptions Airports and air travel Explain why you picked these topics and what actions we should take: 7. If or when you have wanted to seek paid employment, have you found useful state or local programs that provided you with adequate support to achieve that goal? Yes No. Please explain. What is your experience with the Office of Vocational Rehabilitation? What is your experience with Employment Accommodations? What is your experience with support in seeking a job? Please comment on your employment background. Which actions should we take to address these issues? 8. Do you feel that enough is being done to support people with disabilities to access housing programs in order to obtain accessible, affordable, integrated, healthy and safe housing in the communities of their choice? Yes No

4 9. Please provide the order of housing priorities from 1-4 for us to work on. Accessible Housing- available units, home modifications Affordable Housing Healthy / Non-Toxic Housing Housing Discrimination Please offer additional comments on the topics chosen. What we should do to address these issues. 10. Are you registered to vote? Yes No 11. Can you vote at your local polling place on Election Day? Yes No 12. Please provide the order of preference on voting issues from 1-3 for us to work on. Inaccessible polling places Voting technology for various disabilities Compliance of organizations receiving government funds to register voters and support voting activities (National Voter Registration Act compliance) What are your ideas on Voting Advocacy? How should we address these voting issues? 13. Are your healthcare providers (hospitals, community health clinics, primary care physician, dentist, specialists, etc.) adequately supporting you in living the healthiest life possible? Yes No Please explain your answer and what we should do here.

5 14. Please provide the order of healthcare priorities from 1-6 for us to work on. Inaccessible medical facilities Lack of medical providers accepting Medicaid & Medicare Limited availability of dental care Lack of available medical specialists Prescription drug availability Disability awareness training for healthcare organizations and educational institutions What are your ideas for work on these healthcare topics? What should our role be here? 15. Do you have an Emergency Preparedness Plan so you know what steps to take to ensure your safety in an emergency? Yes No. 16. Please provide the order for our priorities between 1-5 regarding Emergency Preparedness issues for us to work on: Training of Emergency Responders and other community / government stakeholders Elevators /escalators Provider emergency/ disaster plans Disability awareness-community itself and families Accessibility of emergency shelters What are your ideas on these topics? How should we address the issues regarding emergency preparedness? 17. Is there another issue not mentioned here for us to address? If so, what do you think that our role should be in addressing it?

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