DIALYSIS PATIENTS BILL OF RIGHTS AND RESPONSIBILITIES
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1 DIALYSIS PATIENTS BILL OF RIGHTS AND RESPONSIBILITIES
2 Your Rights 1. Quality Care Information Individual Treatment Privacy and Confidentiality Services Without Discrimination Treatment Options Emergency Care Dietary Counseling Social Work Services Facility Management Formal Complaint Process Refusal, Advance Directives, and End-of-Life Care Medical Consultation Research Programs Treatment Costs... 9 Your Responsibilities 1. Be Informed Plan and Follow a Treatment Program Be On Time Follow Facility Policies Be Considerate Fulfill Financial Obligations NATIONAL KIDNEY FOUNDATION
3 Your Rights 1. Quality Care.Receive high-quality healthcare that meets recognized professional goals. Be part of the healthcare team, along with a social worker, nurse, doctor, and dietitian. Expect that staff members in training will be directly supervised. 2. Information Receive information from your nephrologist (kidney doctor) in words that you can understand. This should include information about your medical conditions, treatment choices, test results, and possible problems. If this information cannot be given to you directly, the doctor should speak to your family or the person acting on your behalf. Be informed about current dialysis treatments for kidney disease. Receive a complete review of any test results and treatment from your doctor or a member of the healthcare team..be informed of any possible side effects of medications you are taking. 3
4 3. Individual Treatment Be treated with dignity, respect, and consideration. Suggest a change in the type of treatment. Expect your kidney doctor and other members of your healthcare team to listen to you when you suggest changes in your dialysis treatment..expect that treatment will be tailored to your individual health needs. Expect that the patient-to-staff ratio at your facility conforms to state regulations. 4. Privacy and Confidentiality Expect privacy when receiving medical care..expect examinations and discussions about your care to be held in private..expect that your personal medical information will be kept confidential. 5. Services Without Discrimination.Expect medical care without regard to your race, color, gender, sexual preference, religion, or national origin. 4 NATIONAL KIDNEY FOUNDATION
5 6. Treatment Options Receive a full explanation of all treatment options for kidney disease, including their advantages and disadvantages. Receive a full explanation of the kidney transplant process, including all transplant options. Select the transplant center at which you desire to have a transplant evaluation after consultation with the nephrologist. Be informed of new advances in home care and have the opportunity to make a change to that treatment option. Receive educational materials about new procedures in home care. Receive follow-up care by dietary, social work, and nursing services. Receive information about dialysis facilities that offer home dialysis. 5
6 7. Emergency Care Receive emergency medical care without unnecessary delay. Be informed by the dialysis facility about their emergency plan in case of a disaster (e.g., snow storm, fire, loss of power). Be informed of the facility s plan of action in case of medical/health emergencies. 8. Dietary Counseling.Receive counseling from a qualified dietitian according to federal and state law. Receive nutritional educational material and instruction. Receive care and counseling on a regular basis. 9. Social Work Services Receive counseling from a qualified social worker according to federal and state law. Receive an evaluation and follow-up care, including a vocational rehabilitation review..receive referrals to community services when needed. 6 NATIONAL KIDNEY FOUNDATION
7 10. Facility Management Expect the dialysis facility to employ skilled staff and provide safe, clean, comfortable, and professional surroundings. Expect the facility to make every effort to make you comfortable and give you your treatment on time, according to a schedule that meets your special needs whenever possible..expect the facility to monitor the quality of treatment and equipment according to regulations. 11. Formal Complaint Process Make a complaint to your facility management and request that they try to resolve a problem. Ask and be instructed on your dialysis facility's grievance process. File a complaint with the End-Stage Renal Disease Network in the region and/or your state health department in an attempt to resolve a problem. 12. Refusal, Advance Directives, and End-of-Life Care Make decisions about your healthcare based on information given to you by your kidney doctor. Complete an advance directive stating your wishes. Be informed by your kidney doctor of the possible results of refusing drugs, treatments, or procedures. 7
8 .Be informed of how the facility handles end-of-life needs. Refuse any drugs, treatments, or procedures offered to you. Indicate your refusal in writing..accept full responsibility for the medical outcomes of your refusal. 13. Medical Consultation.Request consultation with another doctor for any kidneyor non-kidney-related medical problem..know that payment for consultation may not be covered under Medicare or other healthcare coverage, and you may be responsible for payment. 14. Research Programs Receive a full explanation of any research program in which you may be able to participate. Know that the study will not be conducted without your informed consent or the consent of the person acting on your behalf. Refuse or withdraw from the research study at any time. 8 NATIONAL KIDNEY FOUNDATION
9 15. Treatment Costs.Receive a full explanation of all charges by the facility and doctor..be informed about your financial responsibilities after Medicare or Medicaid and/or other healthcare insurance coverage prior to receiving treatment. Obtain assistance with completing insurance forms..get information about how you can pay your bill and about programs available to help you. 9
10 Your Responsibilities 1. Be Informed It is your responsibility to:.learn as much as you can about your kidney disease and how it is treated. Talk to your healthcare team about your concerns regarding your treatment. 2. Plan and Follow a Treatment Program It is your responsibility to: Supply all information about your health that is needed to plan and carry out a treatment program that will give you the best results. Find out about the other services and referrals that are recommended by your healthcare team. 3. Be On Time It is your responsibility to: Make every effort to be on time for your scheduled dialysis. Tell the dialysis facility ahead of time if you are unable to attend your next treatment date. Understand that your treatment time may be shortened if you arrive late. 4. Follow Facility Policies It is your responsibility to: Follow the facility policies and procedures that have been developed to provide safety and quality of care for all patients. 10 NATIONAL KIDNEY FOUNDATION
11 5. Be Considerate It is your responsibility to:.treat other patients and staff members with respect, dignity and consideration..never threaten others, act in a violent manner, or cause any physical harm. 6. Fulfill Financial Obligations It is your responsibility to: Make every effort to pay your bills for care from the dialysis facility and doctor(s). Obtain Medicare Part B coverage or co-insurance through a private carrier..inform the facility business office of all health insurance programs and policies from which you receive direct payment for services in the treatment of kidney disease. Pay the dialysis facility and doctor when you receive payments from your health insurance company or medical policies. 11
12 The National Kidney Foundation is the leading organization in the U.S. dedicated to the awareness, prevention, and treatment of kidney disease for hundreds of thousands of healthcare professionals, millions of patients and their families, and tens of millions of Americans at risk. Help fight kidney disease. Learn more at Many thanks to the following organizations for their role in assisting with the development of the Dialysis Patients' Bill of Rights and Responsibilities American Society of Transplantation Centers for Medicare & Medicaid Services ESRD Network 4 ESRD Network 7 ESRD Network 8 ESRD Network 13 ESRD Network 18 NKF Council of Nephrology Social Workers NKF Council on Renal Nutrition NKF Council of Nephrology Nurses and Technicians NKF Patient & Family Council National Renal Administrators Association Renal Physicians Association TransPacific Renal Network 30 East 33rd Street New York, NY Awareness. Prevention. Treatment Awareness. Preventio National Kidney Foundation, Inc _FBE Awareness. Prevention. Treatment. Awareness. Preventio
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