4 Good Tips Advocacy and Campaigns to Promote Cancer Care Li-Ying Chiu. Research and Development Specialist HOPE Foundation for Cancer Care

Transcription

1 4 Good Tips Advocacy and Campaigns to Promote Cancer Care Li-Ying Chiu Research and Development Specialist HOPE Foundation for Cancer Care 1

2 Taiwan Area 36,000 km² Population : 23 million Coverage of NHI : 99% Source: Ministry of Health and Welfare 2

3 Taiwan Total Health Expenditure as share % of GDP (2012) Health Expenditure Per Capita (USD) (2012) Taiwan US UK JP KR ,350 8,895 3,648 4,752 1, times 3.5times 2.7times 1.3times Ø Cancer Spending in NHI : 1.92 billion USD ; 11.6 % of Total NHI Expenditure (2013) Source: Ministry of Health and Welfare National Health Insurance Administration & WHO 3

4 Every year, more than 90,000 patients face the impact brought by cancer Cancer has ranked the top 10 causes of death in Taiwan for past 32 years 16,000 14,000 12,000 10,000 8,000 6,000 4,000 2,000 - The number of new cancer cases of the 10 top cancer ,682 Source:Taiwan Cancer Registry 4

5 Incidence rate & Mortality rate Ranking compared to 34 OECD countries Ranked 23 rd place Ranked 10 th place Source: Health Promotion Administration 5

6 No treatment within 3 months after diagnosis Much higher mortality rate! Mortality Rate Per Year rises to 55% 3 times No treatment within 3 months after diagnosis 18% Receive treatment timely is mortality rate of those who receive treatment timely. more than the Source:Taiwan Cancer Registry, Ministry of Health and Welfare 6

7 Why Are Cancer Patients Unwilling to Receive Treatment? A Survey of Health Promotion Administration (HPA) 7

8 The 7 Main Reasons Ø Too old to undergo the side effects Ø Fear of surgery Ø Fear of the side effects of therapies Ø Reduce the quality of life Ø Appearance change Ø Need to work Ø Fear to be the burden of the family Source: The survey of Health Promotion Administration

9 Why do Cancer Patients Receiving Treatment Also Want to Give Up? A Survey from HOPE 9

10 Over 90% patients are worried about mental and physical discomfort 23% The reasons why you want to give up Source:A Survey about the Discomfort of Cancer Patients and Their Responses, HOPE 2013, n=206

11 Around 60% patients do not talk about the mental and physical problems with health care professionals due to Fear Lack of Knowledge of Cancer! Will you take the initiative to talk about your discomfort with health care professionals? YES 83% NO 17% 1. I don t think it s helpful 27% 2. My body has no apparent discomfort 25% 3. Don t know how to ask 20% 4. They are too busy to answer 9% 5. Don t know whom to ask 9% 6. Feel embarrassed to ask 5% 7. Other 5% Source:A Survey about the Discomfort 11 of Cancer Patients and Their Responses, HOPE 2013, n=206

12 Lack of Understanding 1/ 10 Cancer Patients does not know Their Cancer Staging What is Your Stage of Cancer? Unclear Stage 0, 3% 13% Stage I, 16% Stage IV, 16% Stage III, 22% Stage II, 30% Source:A Survey about the Discomfort of Cancer Patients and Their Responses, HOPE 2013, n=206 12

13 Film 13

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15 4 GOOD TIPS Cancer Patients and Their Family Awareness Active Participation Patient Advocacy 15

16 Cancer is not a terminal illness Remember to follow 4 GOOD Tips Learn 4 GOOD Tips! Cancer treatment is not as uncomfortable as you think! GOOD TIP 1 Understand It GOOD TIP 2 Face It GOOD TIP 3 Explore It GOOD TIP 4 Fight It 16

17 GOOD TIP 1: Understand It Learn about your cancer staging and molecular profiling results. Cancer ID Card The Type of Cancer:Site of the primary tumor The Stage of Cancer:Tumor Size(T)/The lymph nodes involvement(n)/the presence of metastasis(m) The Cell Type:Based on pathology reports The Gene Type:The patterns of gene expression 17

18 Lung Cancer Understand It 1 st among the ten leading causes of cancer death Mr. Hu The Date of Pathology Report 2012/ 10 The Site of Tumor The Cell Type The Size of Tumor Lung Cancer Adenocarcinoma 1 cm Lymph Nodes Involvement (+) Metastasis Cancer Staging The Degree of Cell Differentiation Chronic Diseases The Gene Type Treatment Pleural 3B(T4N1M0) Hypertension Surgery/ Chemotherapy 18

19 GOOD TIP 2: Face It Explore orthodox treatment to confront cancer. Choose the Hospital Near the livelihood Hospitals accredited by health care authori6es Ask for Second Opinion Prepare imaging and pathology reports to discuss with doctors. Remember to receive the treatment in time before the disease gets worse. Search for Resources Doctors and case managers Cancer Resource Map: A platform includes all cancer information Free nationwide hotline:

20 GOOD TIP 3: Explore It Find individualized cancer treatment. Explore the main goal of treatment Set the goal of treatment which meets the individualized need, e.g. cure cancer, decrease the discomfort, alleviate the disease etc. Explore the most suitable treatment No treatment is absolutely good or bad! Importantly, choose the appropriate treatment based on patients 'current status to maximize the effectiveness of treatment. Chemical Therapy Targeted Surgery Therapy Clinical Trials Treatment Radiation Therapy Explores the side effects Each treatment has its side effects, it may cause some discomfort, but most can be mitigated. Prior knowledge of mitigation methods can reduce the impact brought about by the treatment. Transplant Therapy HRT 20

21 GOOD TIP 4: Fight It Trounce the tumor by completing your treatment! Endoscopy Blood Test Regular Followup Imaging Examinat ion Adjust the lifestyles Persistent in the dietary principle of high calorie, high protein, do exercise regularly and have plenty of sleep. Keep the best physical strength to fight against cancer Adjust the emotion: keep positive! Find the ways to keep yourself calm and happy, and learn to be view cancer positively Cooperate with doctors and nurses Keep the good communication with the medical staffs If there are any symptoms of discomfort, inform your medical team and do not arbitrarily interrupt or stop treatment. 21

22 Take Action Hope Passport Ø Keep tracks of test results and treatments they have done Ø Actively participate in their own health Ø Find out the best treatment plan with medical team 22

23 WHAT WE HAVE DONE THIS YEAR 23

24 1. Hope Passport Ø Available in 101 hospitals, including all those which provide cancer treatments and cancer care services. Ø The circulation jumps from 5,389 (2013) to over 9,000(2014 Nov.) in one year. Ø The amount of total circulation grows 40%. 24

25 2. Press Conference 25

26 3. Social Media: Website 26

27 3. Social Media: Facebook 8,044 likes on the Facebook posts Reached to 338,944 Facebook users (since Aug. 28, 2014) 27

28 4. Poster & Advertisement Lamp House 28

29 Feedback Ø It makes me feel more confident in treatment! - Mr. Wang, 63 years old (colon cancer patient) Ø According to the records, I can discuss with doctors if I have questions straight away. -Miss Lee, 40 years old (caregiver) Ø Communication improves! -Miss Lai, 34years old (nurse) 29

30 What s Next Strengthening Cancer Education ü More Lectures ü Hope Passport APP 30

31 Our Vision EMPOWERMENT ALL WIN Government Hospitals Cancer Patients NGOs 31

32 GOOD TIP 1: Understand It 4 Good Tips Learn about your cancer staging and molecular profiling results. GOOD TIP 2: Face It Explore orthodox treatment to confront cancer. GOOD TIP 3: Explore It Find individualized cancer treatment. GOOD TIP 4: Fight It Trounce the tumor by completing your treatment! LEFT For (4) Good, Cancer Shall be in the Dust. 32

33 Thanks for your attention! 33