MDS UK Patient Support Group Feedback: London Local AA/MDS Support Group Meeting 19/07/12
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1 UK Patient Support Group Feedback: London Local AA/ Support Group Meeting 9/07/ Attendees How did you hear about this regional meeting? Attended* Feedback AA 7 (33%) 3 (67%) 7 5 *Attendance figures depend on number of people who complete feedback/ sign in Relevance and future attendance King's Poster 7% King's Nurse 37% Other 7% 00% of respondents agreed they found the meetings useful and relevant. AAT % AAT Letter % Letter % 5% Website % Overall majority (96%) of respondents agreed they would like to attend future similar meetings. Strongly Strongly. This local meeting was useful and relevant to me AA 36% () 6% (7) 0% (0) 0% (0) 00% () (0) 53% () 7% (7) 0% (0) 0% (0) 00% (5) () 6% () 5% () 0% (0) 0% (0) 00% (6) (). I would like to attend future similar meetings AA 0% () 50% (5) 0% () 0% (0) 00% (0) () 56% (9) % (7) 0% (0) 0% (0) 00% (6) () 50% (3) 6% () % () 0% (0) 00% (6) () Feedback: London Local AA/ Support Group Meeting 9/07/ Page of 5
2 Meeting facility 00% of respondents agreed the meeting facility was adequate, with the total majority (56%) strongly agreeing with this statement. 7% of respondents agreed the meeting facility was easy to get to. 9% of AA attendees agreed with this statement compared to 79% of patients. More patients from outside the immediate London postcode area chose to attend. Strongly Strongly 3. The meeting facility was adequate AA 5% (5) 55% (6) 0% (0) 0% (0) 00% () (0) 63% (0) 3% (6) 0% (0) 0% (0) 00% (6) () 56% (5) % () 0% (0) 0% (0) 00% (7) (). The meeting facility was easy to get to AA 9% () % (9) 9% () 0% (0) 00% () (0) % (7) 5% () 9% (3) 3% () 00% (6) () 30% () % (3) 5% () 7% () 00% (7) () Joint AAT and meetings % of respondents disagreed the joint AAT and group set-up is of benefit. The remaining 9% agreed (59%) or strongly agreed (30%) the joint set-up is of benefit. 6% of respondents disagreed that they would prefer if the meetings were not mixed AA and. A larger percentage of attendees agreed with this statement (36%) compared to AA attendees (7%). High number of non responses to question 6 should be considered the negative wording (i.e. agreeing/ disagreeing meetings are not mixed) may be unclear. Feedback: London Local AA/ Support Group Meeting 9/07/ Page of 5
3 Strongly Strongly 5. The joint AAT and groups set-up is of benefit AA % () 73% () 9% () 0% (0) 00% () (0) 3% (6) 50% () 3% () 0% (0) 00% (6) () 30% () 59% (6) % (3) 0% (0) 00% (7) () 6. I would prefer if the meetings were not mixed AA and AA % () 9% () 5% (5) 7% (3) 00% () (0) % () % () % () 5% (5) 00% () (6) % () % (3) 3% (7) 36% () 00% () (6) Previous and other contact AA Yes Yes Have you attended a patient meeting before today? 73% () 7% (3) 56% (9) % (7) Have you ever contacted UK/AAT for advice and info? % (9) % () 7% (7) 53% () Do you have access to the internet? 0% (0) 00% () 9% (3) % (3) Have you visited the website (AAT/ )? 7% (3) 73% () 5% () 75% () Do you use the online patient chat forums? Never 79% () Occasionally % () Regularly 7% () Taking part in local activities Feedback: London Local AA/ Support Group Meeting 9/07/ Page 3 of 5
4 Number of people Unable to take part: Unfortunately I have a very demanding job so unable to commit. Time permitting to hectic work schedule. It's great to have meetings - I just am unable to be an active participant. Sorry not very active, will look out for opportunities. t sure, would like greater details of requirements. Fundraising: We can't, due to age, be very active locally but would like to be informed of any fundraising locally. Fair/ bring and buy sale. Maybe a sale in the hospital X-mas fair/ cake stall. I would like to take part in: 0 6 AA Fund raising Local awareness Joint social activity Topics for future meetings Benefits and financial support: Discussion on benefit payments and prescription charges - why some pay, why others don't. Hospital parking free for cancer patients not for AA It would be great to have a themed meeting around benefits, free prescriptions etc, so that patients and families are aware of financial support available. Worth exploring if patients can arrange or facilitate accommodation. Clinical: More information on trials and research, finance, benefits. Medical/ treatment issues. Updates/research/relevant topics (i.e. transplants, rights). Regular updates from expert speakers on latest research. I would prefer to attend meetings: Feedback: London Local AA/ Support Group Meeting 9/07/ Page of 5
5 Number of people Afternoon Morning Any 3 Any Weekend Weekday Additional comments and feedback More time for chat opportunity. Raise more awareness at local hospitals. Think it s good to have shared AA/ meetings at least every other meeting as questions asked and answered are helpful to all. Pleased to see the website and forum. Will be more active as a member and will do what I can to assist. I have found this meeting extremely useful and informative. Thank you for organising the day. Feedback: London Local AA/ Support Group Meeting 9/07/ Page 5 of 5
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