64th OFCP Annual Conference. Cerebral Palsy Today. Weaving Dreams Together. Oct 21-23, Toronto Airport Marriott Hotel

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1 64th OFCP Annual Conference Cerebral Palsy Today Weaving Dreams Together Oct 21-23, 2011 Toronto Airport Marriott Hotel

2 Cerebral Palsy Today Weaving Dreams Together Recognizing the accomplishments and advancement of people who have cerebral palsy Over the last several decades, people who have cerebral palsy have made significant progress and achieved high levels of success in all areas of modern society. The OFCP 2011 Annual Conference will recognize a diverse range of individuals and their accomplishments. Together we will celebrate how cerebral palsy is a positive aspect of our lives. This conference offers us a rare opportunity to commend our peers, friends and family who have cerebral palsy for achieving their goals and dreams. It is our privilege to announce that in addition to the excellent programming for this years conference, the OFCP has also arranged a special exhibit that will be open exclusively during the OFCP 2011 Annual Conference. This exhibit will showcase the art, literature, educational achievements, personal accomplishments and community involvement of leaders who have cerebral palsy. Come and join us for a weekend of fun, education, and celebration! PROGRAM FRIDAY OCTOBER 21 5:00-8:00 pm Registration - Welcome Buffet 8:00-8:45 pm Keynote Address 9:00-11:00 pm Complimentary Punch and Snacks SATURDAY OCTOBER 22 7:30-9:00 am CONTINENTAL BREAKFAST Morning Presentations 9:00-9:10 am Welcome and Opening Remarks 9:10-9:20 am Conference Host Sue Ellis 9:20-10:10 am ReVeAL Dance Creation 10:10-10:30 am OFCP Funding Programs Slide Show 10:30-10:45 am BREAK 10:45-11:45 am Weaving Dreams - Success Stories 11:45-1:00 LUNCH Saturday Afternoon Presentations 1:00-1:10 pm Conference Host Sue Ellis 1:10-1:40 pm Teaching Awareness Through Puppetry Presentation 1:40-2:10 pm North Yorkers for Disabled Persons 2:10-2:25 pm BREAK 2:25-2:40 pm CNIB Presentation 2:40-3:40 pm Panel Discussion, Cerebral Palsy Today 3:40-3:45 pm Conference Host Sue Ellis 3:45-4:00 pm Wrap Up and Exit Ballroom 4:00-6:00 pm FREE TIME; Tour of Dixon Room Exhibit 6:00-8:00 pm Awards Banquet, OFCP Housing Project Development Presentation by SHS Consultants 8:30-1:00 am Dance with DJ SUNDAY OCTOBER 23 8:00-9:30 am CONTINENTAL BREAKFAST 9:45-11:45 am Annual General Meeting 12:00-1:00 pm LUNCH 1:00 pm Departure

3 Keynote Address - Justin Clark Celebrating Life's Changes The OFCP is thrilled to have Justin Clark deliver our keynote address: Celebrating Life s Changes. Justin will speak about his experience of having people come and go in his life. Justin continues to celebrate and honour the special people who have been such a tremendous part of his life. Justin will share his personal story of what it was like to feel like the rug had been pulled out from under him. After struggling with feeling like he had very little control over what was happening around him, Justin learned that life goes on and you have to celebrate the little things. Justin will speak briefly about who he is, including his time living in an institution and the court case he brought forward to gain the right to make his own decisions. Justin will share his thoughts on how all of these themes specifically affect people who have cerebral palsy and those who use alternative methods to communicate. ReVeAL Dance Creation The OFCP is proud to present a special performance by ReVeAL Dance Creation. ReVeAL Dance Creation is an integrated dance and performance based collective, co-founded in 2009 by Heryka Miranda and Eunji Kim, together with advisor and mentor Rebecca Beayni. They perform to share meaningful stories of relationships and to demonstrate the power, strength, wisdom and beauty of ones own unique vulnerabilities and their endless possibilities. Chaid McFarlane and Brendon Myrie, ReVeAL Dance Creation alumni and students of Downsview Secondary School, will perform a joyous piece inspired by their daily routine, Jamaica, and ocean waves. Members of ReVeAL open the audience's eyes to the possibilities of artistic expression and collaboration, hoping to change the world into a more compassionate place where all gifts are recognized and welcomed. Teaching Awareness through Puppetry The OFCP is proud to present Teaching Awareness through Puppetry, an educational scripted puppet show! Teaching Awareness through Puppetry hopes to help people become more aware of the challenges, myths and misconceptions that people with disabilities and medical conditions face on a daily basis. The program reflects the diversity of our communities. With funding from the OFCP, Teaching Awareness Through Puppetry has developed a script and puppets centered around understanding cerebral palsy. A message of inclusion and acceptance is brought to kids all over Toronto and the GTA, helping to increase awareness and inclusion of people with cerebral palsy.

4 Weaving Dreams - Success stories Shira Weinstein Shira is a lifelong Individual Member of the OFCP and will share with us how she has benefited from this membership. She will talk about how six years ago she made a phone call.by accident.to the OFCP and what impact this call has made on her life. Three years ago Shira was extremely proud to be OFCP s ambassador for the Bloorview Transition Conference and 2 years ago she performed at OFCP s 62nd Annual Conference Opening. She will talk about her experience as a current student at the Royal Conservatory of Music one of the largest and most respected music education institutions in the world. Sarah Evans Sarah is a young woman with cerebral palsy who, after having lived independently for several years, found herself in hospital and then in a group home setting. Sarah will speak about how she came to the decision that it was time to live independently again - for good. With the help of her support network Sarah was able to advocate for herself and found supported housing with the help of the OFCP. Sarah is currently attending Humber College in the social service worker program. Sarah hopes that with her regained independence and college education she will be able to help others in the community. North Yorkers for Disabled Persons This presentation will focus on the Communication Enrichment Program, which is housed at North Yorkers for Disabled Persons. The group members of Communication Enrichment will share their story of coming together to create and maintain this opportunity to learn, support and share with one another. The curriculum of the program is determined by the group and the focus can be on everything from personal safety, enhancing literacy skills, self advocacy, financial management, health, dramatic arts or writing poetry. CNIB Partners Program The CNIB Library Partners Program allows Ontarians with print disabilities to access literature like never before. The Program is available to Ontario residents who have difficulty reading conventional print due to visual, physical or learning disabilities. Any Ontarian with a print disability can register for free! The program offers access READING. REIMAGINED! print alternatives at your library to over 80,000 titles, and 35,000 online resources through the CNIB digital library. The CNIB's Emily Tufts will provide more information and answer audience questions on this new and exciting program.

5 Panel Discussion: What does it mean to have cerebral palsy in today s world? The 2011 OFCP Annual Conference features a panel discussion with leaders who represent the diversity of perspectives that people with cerebral palsy have. They will discuss the progress we have made in areas such as inclusion, participation and human rights and the challenges all people with disabilities still face today. Our panelists will respond to a number of prepared questions from mediator Sue Ellis and will also answer audience questions and comments. Come and make your voice heard! Doug and Darlene Faulkner After four years of courtship Doug and Darlene Faulkner were wed in 2009 in the presence of close family and friends. Both Doug and Darlene are actively involved in community life and are leading members of their church. As a lay preacher, Doug brings his unique experiences and steadfast faith to a wide range of people, helping to raise the profile of people with cerebral palsy within his community. Doug has found this new role both challenging and empowering. Through his hard work networking with community leaders Doug has been asked to be a guest preacher by other churches in the Toronto area. Doug and Darlene support each other and show that interdependence and community building are keys to success. Rena Nikou Disability expert and speaker Rena Nikou is a vibrant woman who has cerebral palsy. Rena has accomplished each of the goals she set for herself as a young woman and encourages other to pursue their own dreams. Rena graduated with a College Diploma in Social Work and spent several years working as a Youth Program Coordinator at the Centre for Independent Living in Toronto. Today, Rena develops and presents seminars that explore what it means to have a disability. Rena uses her personal and professional experiences to help others better understand the many aspects of living with a disability in today's world. Crystal Chin Crystal Chin was diagnosed with Cerebral Palsy when she was eight months old. Crystal immigrated to Canada at the age of 10. Moving to Canada gave Crystal the opportunity to access numerous pediatric services and treatment within the Canadian health care system. Currently, she is a recipient of the Ontario Disability Support Program and a user of both WheelTrans and York Region Mobility Plus. Crystal is a Continuing Education student at Seneca College and a powerful advocate for inclusion and participation. She would like to thank the OFCP for inviting her to share her experiences and perspective on the realities, joys and challenges of living her life as an adult with Cerebral Palsy in today s society.

6 Registration Form Name: Male Female Address: City: Province: Postal Code: Phone: Emergency Contact Information: Name: Relationship: Address: City: Province: Postal Code: Home Phone: Cell Phone: Who can assist you with communicating about the information on this application if necessary? Name: Relationship: Phone: Annual Conference Fee Information: Regular Fee ODSP Reduced Rate Conference (includes ALL MEALS plus Banquet) $120 $60 Banquet only $30 $15 Hotel Room - Per Night Single $120 Shared $60 Note: Hotel Rooms are not included in the conference registration fee. Individuals must register at the hotel to reserve a room Exception: OFCP will make hotel reservations for individuals requesting attendant services from the OFCP. Please include the cost of hotel in your registration Hotel Booking Information (only for individuals requesting attendant services from the OFCP): Toronto Airport Marriott Hotel Dixon Road - Toronto - Ph I would like: Shared Room Single Room Friday Night Saturday Night Please indicate if there is someone you would prefer to share your room with, Roommates Name: Please indicate which meals you will be attending: Friday: Reception Saturday: Breakfast Lunch Banquet Sunday: Breakfast Lunch Special Dietary considerations (including any food allergy): Payment: Cheque Visa Cash Card number: Expiry date: Total Payment enclosed: $ REGISTRATION DEADLINE: OCTOBER 7th 2011 Send Registration and Payment to: Educational and Recreational Services, OFCP # Lawrence Ave. West Toronto, Ontario, M6L 1C5 Registrations will not be processed until payment is made in full. Once your registration has been processed, the OFCP must be informed of any changes PRIOR to October 20th, Please sign the attached General Liability Waiver and enclose it with your registration forms.

7 Self-Medication Assistance And Personal Care Please fill out this form IN FULL if you are require attendant services during the OFCP Annual Conference. First Name: Last Name: NOTE: CONFERENCE PARTICIPANTS ARE REQUIRED TO BRING ALL PERSONAL CARE SUPPLIES AND MEDICATIONS INCLUDING: sling/straps for hoyer lift, gloves, blue pads, incontinence products, toiletries, medications, written instructions, g-tube supplies and written instructions. Self Medication Assistance Plan Conference participants are required to self-direct their own medication and support needs to OFCP staff. Do you require assistance with taking your medication? If bringing medication with you, where have you packed it? If you require assistance with medication you MUST fill out the following form: List of Medications Medication Time Dosage Procedure to follow in case of medication error (Attach additional pages if necessary) Personal Care Attendant Services plan Please outline any relevant health history: Please list any allergies and describe their severity (i.e., food, medication, airborne vs. ingestion): Please list any dietary restrictions: What assistance will you be requiring from our staff? Task Total Some None Do you use an epi-pen? Yes No Eating Should your meals be: Brushing teeth Pureed Chopped Diabetic Washing hands/face Other (specify): Grooming Do you require assistance at each meal? Yes No Dressing Do you use a G-Tube? Yes No Do you use bed rails at home? Yes No Bathing Will you be bringing your own commode? Yes No Toileting What is your preferred transfer method? What type of mobility device do you use? Hoyer Lift 2 Person Transfer Pivot Will you require assistance booking wheeltrans Other (specify): For your transportation home? Yes No If yes, Wheeltrans number:# Destination address: Other Information/Special Requests: Please indicate whether you have any special requests that will assist us in planning your weekend or any other relevant information we may have missed. Please sign the attached Authorization for Assistance with Self Medication and Personal Care and General Liability Waiver and enclose it with your registration.

8 64th OFCP Annual Conference Weaving Dreams Together Ontario Federation for Cerebral Palsy 1630 Lawrence Avenue W. Suite 104 Toronto, Ontario M6L 1C

9 OFCP ANNUAL CONFERENCE GENERAL LIABILITY WAIVER I, a participant at the Annual Conference of the Ontario Federation for Cerebral Palsy ( OFCP ), and in consideration for my participation in the OFCP Annual Conference, hereby release and forever discharge the OFCP, its officers, directors, employees, agents and volunteers (hereinafter referred to as the Releasees ) of and from all manner of claims, demands, actions, causes of action of every kind, losses, damages or injuries, however caused or contributed to, arising out of my participation in the Annual Conference. I further agree not to make any claims against any person or legal entity which may claim contribution or indemnity from the Releasees or any of them, with respect to the claims released herein. I also do hereby agree to indemnify the Releasees for any liability, losses or damages, including all costs, expenses and lawyer fees expended to defend any such claim, sustained by them as a result of such actions or proceedings made by any person or entity to which the Releasee or any of them might be liable, directly or indirectly, arising from my participation in the Annual Conference. I agree to the above terms and conditions, and I do hereby acknowledge that I have read and fully understand the above terms and conditions, and I understand this Waiver contains both a full release of all claims I may have against the Releasees, and an agreement to indemnify the OFCP. Name (Please Print): Date: Signature: Note: This waiver is required if you wish to attend the OFCP Annual Conference.

10 OFCP ANNUAL CONFERENCE AUTHORIZATION FOR ASSISTANCE WITH SELF-MEDICATION and PERSONAL CARE and GENERAL LIABILITY WAIVER I, a participant at the Annual Conference of the Ontario Federation for Cerebral Palsy ( OFCP ), and in consideration for my participation in the OFCP Annual Conference, hereby give permission to any personal services attendants that may be from time to time provided by the OFCP during the Annual Conference (the Attendants ) to assist me with my medication(s), personal care and transfer as I may direct them. I understand that the Attendants are working outside of my normal medical, personal care and transfer assistance parameters, and that I am solely responsible for my personal care and safety while a participant at the Annual Conference, and for any direction(s) that I may give to the Attendants for my personal care and safety. I further understand that it is my sole responsibility to safely direct my medication procedure(s). I acknowledge that the attendants have no formal training in the use, administration or effect of medication, and that they are thereby limited in the assistance that they may be able to provide to me. I agree that I am solely responsible for any direction I give to the Attendants for self-medication, and the effect of the same. I do hereby release and forever discharge the OFCP, its officers, directors, employees, agents and volunteers (hereinafter referred to as the Releasees ) of and from all manner of claims, demands, actions, causes of action of every kind, losses, damages or injuries, however caused or contributed to, arising out of my participation in the Annual Conference, including without restricting the generality of the foregoing, all claims arising or in any way related to the Attendants administration of medication or the failure to administer medication, or the personal care and transfer assistance provided by the Attendants. I agree not to make any claims against any person or legal entity which may claim contribution or indemnity from the Releasees or any of them, with respect to the claims released herein. I also do hereby agree to indemnify the Releasees for any liability, losses or damages, including all costs, expenses and lawyer fees expended to defend any such claim, sustained by them as a result of such actions or proceedings made by any person or entity to which the Releasee or any of them might be liable, directly or indirectly, arising from my participation in the Annual Conference, including all claims arising or in any way related to the Attendants administration of medication or the failure to administer medication, or the personal care and transfer assistance provided by the Attendants. I agree to the above terms and conditions, and I do hereby acknowledge that I have read and fully understand the above terms and conditions, and I understand the Waiver contains a full release of all claims I may have against the Releasees and an agreement to indemnify the OFCP. Name (Please Print): Date: Signature: Note: This waiver is required if you wish to attend the OFCP Annual Conference and use attendant services provided by the OFCP.