Dementia & Sight Loss - A New Door in the UK
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- Egbert Rudolf Norris
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1 Dementia Priority Setting Partnership Communication Plan Document Author: Nicola Hart Date: 08/05/2012 Distribution List: Communication channels within AS & JLA Alzheimer s Society, Devon House, 58 St Katharine s Way, London E1W 1JX Tel: Fax: info@alzheimers.org.uk Website Registered Charity No Company Limited by Guarantee Registered in England No
2 AS Internal communications for survey launch Channel Launch Description/Tasks AS Research page (Jess Smith) Arena & My Society Living with dementia magazine (20,000 distribution list) - Web content updated on 02/04/2012 Add reminder half way through? April issue 9 th April (text sent) Need to be at mailing house by 27 th March (survey sent) - 01/04/12 change partner text to the text for individuals and link to the survey - Summary on how you can get involved page - Full detail on a separate page - Paragraph explaining study - Send ~19 th March - Include in April issue - Text to describe PSP ~80 words, ready at beginning of March - Web address and how to access the survey - Possibly have a reminder in the May/June edition - Insert 5 working days to print - Send survey to XCalibre to print by 12 th /13 th March Local services April (May) - Include copies of surveys in Research mail to locality offices in April - Print copies at same time as printing insert localities print extra 2,500 Talking point (300 active users a month) Day of launch (On forum 02/04/12) - Short text to describe partnership - Post the day the survey is launched - Send text and link before launch Research e- newsletter April newsletter (Text sent) - Text to describe partnership Research network (220) Mid February - Send survey to ~10/20 RN volunteers to pilot - Design questions to ask about the survey April mail - Include survey with April mail New and Social Media Channels Day of launch (03/04/12) - Follow up - Survey link on Facebook page - Survey link on Twitter - Launch on the day the survey goes live - Initial awareness meeting on twitter Helpline Sent 23/02/12 - Provide short text in case any calls come through regarding the PSP project. Alzheimer s Society, Devon House, 58 St Katharine s Way, London E1W 1JX Tel: Fax: info@alzheimers.org.uk Website Registered Charity No Company Limited by Guarantee Registered in England No
3 JLA website AS GP Reference Friends of Research ASAP (Complete) Sent 2 nd May - - Provide link to JLA website - JLA website to provide link to AS website April - Included in April mail out Steering external communication mailing lists SG member Date sent Dendron Clinical Study (CSG) Dendron Local Research Network (LRN) Norfolk and Suffolk NHS Foundation Trust Oxford University Hospitals NHS Trust Admiral nurses Uniting carers NIHR School for social care Making Research Count Caring together Social work history network Care Dem PPI Group Social Care Workforce Research Unit (SCWRU) user and carer advisory NIHR School for Social Care Research (SSCR) Twitter, and retweeted (Steven Jones commissioning editor at JK Publishers and others) to over 5,000 followers in each case CLAHCR CP - DeNDRoN event 'Dementia Research: Knowledge into Care' Cambridge IPH distribution list Dementia working at Addenbrooke's hospital Ask Sue Marcus to send to Cochrane Dementia CLARHC CP collaborators CLARHC CP website Neurodem Cymru Cardiff and Vale Older People Mental Health Network Amman Valley Dementia Carer Support 02/04/12 03/04/12 15/04/12 10/04/12
4 Crossroads in the Vale EMI sent to clinical psycho geriatric team at Warwick Med School and the Mental Health and Wellbeing Division 13/04/12 Partners external communication mailing lists Organisation Name Link uploaded on website sent to all contacts and paper version sent out to members who receive their newsletter Scottish Dementia Clinical Research Network Distribute the survey to all the carers/former carers/people with dementia/those interested who are current volunteers with ALOIS Distribute to researchers/ cinicians/academics/social workers etc. who have expressed interest in project Cochrane consumers mailing list Sent to administrator of a course run for dementia clinicians (The Advanced Dementia Course), mainly aimed at nursing level Disseminate the survey to: National Voices Age Related Diseases and Health Trust Royal Society for Public Health Guideposts Trust Cochrane Collaboration Older People s to our 200 Dementia studies Students and ask to pass on to colleagues Promote through our Facebook page and Twitter to the Bradford Dementia Group Include details in our next e-newsletter around to Institute of ageing and health in Newcastle Forward invitation to British Geriatrics Society The Cochrane Dementia Group/ALOIS Community Engagement Project Age Related Diseases and Health Trust Bradford Dementia Group, School of Health Studies, University of Bradford Institute of Ageing and Health, Newcastle University HC-One Care Homes
5 5.5 thousand care services in membership Chair of the care providers alliance Publicity through newsletter and other information portals Survey promoted through newsletter Survey link and hard copy available on website Also circulated through another PSA support Posted link and information on front page of website E-newsletter to members Posted on Twitter link to members Hand out hard copies to those without internet access Post on their website Send to e- Send letters to members Post on Dementia & Sight Loss interest website Inform and encourage members of the Dementia & Sight Loss to participate Post a call on the Pocklington s website to reach service users and staff. Sending notice to all those who attended the recent conference Dementia and end of life: Implications for people with sensory loss. Complete the survey on behalf of Pocklington s own commissioned research on the topic of dementia and sight loss. Disseminated the survey to clinicians and users. Post information and link in CIRC bulletin which goes out to members each month. ECCA Frontotemporal Dementia Support Group British Geriatric Society YoungDementia UK College of Mental Health Pharmacy Thomas Pocklington Trust & the Dementia and Sight Loss interest Surrey and Borders Partnership NHS Foundation Trust Royal College of GP s Royal College of Nursing
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