Pediatric. Patient Education. Children s Hospital. at Upstate Golisano

Transcription

1 Pediatric Patient Education at Upstate Golisano Children s Hospital

2 Pediatric Patient Education at Upstate Golisano Children s Hospital 1 Welcome to Upstate Golisano Children s Hospital Patients First Philosophy Service is very important to us. We want you and your family to be comfortable, in a clean and safe environment. We will work with you to plan for discharge. Your healthcare team will see you and your child every day and discuss your child s progress. The nursing staff will be in frequently to see your child to make sure he or she is comfortable and has everything he or she needs. You and your child will be shown how to use the call light to call for nursing help. We will always try to answer promptly. Clean and quiet rooms are our goal. Your privacy is important to us. Please let the staff know if you feel your child s needs are not being met. Interpreters For non-english speaking patients and Deaf patients, medical interpreters will be provided free to the patients or their families. The hospital offers professional medical interpreters via the telephone and video, and at times in person. The staff will work with you to decide the best service for your child and family depending on the child s condition and your need. We discourage the use of family members, and children should not be used to interpret. Patient Education Program At Upstate, we want you to be involved in your child s care. There are many ways for you to be informed about your child s diagnosis, treatments, and home needs. There is information available related to developmental milestones, vaccines, and general health and safety. We have healthcare providers and team members who are experts in their roles and specialties who can give you information and meet with you if needed. TIGR Video and Printed Materials We have printable patient education handouts and PATIENT ED: RESOURCES brochures to take home that are available in many languages. In some locations on campus, the TVs in the patient rooms have health education and information videos. Some of the video PATIENT topics ED: are on specific conditions, infection control, RESOURCES nutrition, medications and patient safety. You can view the videos in your room for free. Your nurse can get you and your child a listing of pediatric videos and can get you set up to watch educational on demand tv. There are many PATIENT ED: patient education and informational materials and RESOURCES videos available on the Upstate Patient education website at Hospital Information If you need information about hospital campus maps, parking, hotels or restaurants, purchasing flowers, mail and fax needs, notary public services, wheelchair assistance or help with personal belongings there are Information Booklets available from Patient Access. There is also a booklet offered related to your Patient Rights. When you are getting checked into your room, your nurse will review visiting hours, phone and television services, and the unit policies. Please let them know if you did not get the Information booklets and would like them. Parking is available in the Upstate garages. Good Communications for Safety The healthcare team will do everything we can to get your child back to the best health, as quickly as possible. We want you and your child to be informed and to understand what is involved in their care. At times, we may ask you the same questions many times. Understand this is for your child s safety. Please speak up and ask questions. We want you to be part of the plan and your child s course of care. w w w

3 2 Pediatric Patient Education at Upstate Golisano Children s Hospital Bracelets During the hospital stay, there will be a bracelet on your child s wrist that will identify your child s name, medical record number, and date of birth. Make sure that the information is correct on the bracelet. The bracelet is used by the healthcare professionals to make sure that your child gets the right treatments, medications, tests, procedures, and information meant just for them. There may be other color bracelets put on your child s wrist or signs put on your door frame. Make sure the team explains what these mean if you get other bracelets or signs. Advanced Directives While in the hospital you can give directions about your child s treatment wishes to your healthcare team. A health care proxy, living will, or a Power of Attorney are examples of Advanced Directives. If a parent or legal guardian is not able to or is unavailable to make decisions then New York State law allows a person to be appointed and entrusted as the primary decision maker. This person makes the medical decisions for the child. A health care proxy form will be provided for you to fill out if you need one. Bring your child s advanced directives for your nurse to copy if you have one completed. Healthcare Team You and your child will meet many healthcare professionals during your time here. There are doctors, residents, nurses, therapists, dietitians, pharmacists, technicians, and housekeeping staff and many others. We also have Child Life, Art, and Music Specialists and a Librarian that work closely with team and your child. Everyone you and your child are in contact with should identify themselves, tell you their role, and wear a hospital badge. If your child is in a room with a white board on the wall the staff writes their names on the board so it is easy to remember. Your team will work with you to have a plan of care that reflects your child s diagnosis and needs. Your needs are our priority. Numbers Tell a Story About Your Health To provide safe care we need to get information about your child s health status. We will monitor your child s blood pressure, heart rate, respiratory rate, oximetry (blood oxygen). Staff will ask about pain level. We may draw blood, get blood sugars, weigh your child, measure what they take in (food, drink and IV) and what they put out (urine, stool). Your child may have tests or procedures. These numbers and results will give the team information about your child s health status and will help us know what to focus on to better help you. Rapid Response Team Upstate Hospital is committed to providing the safest care possible and that includes listening to patients and families concerns. The Rapid Response team is made up of trained critical care providers and staff that act quickly when there are signs the patient is getting sicker. The purpose of the team is to get to the patient as early as possible and get them treatment before it is an emergency situation. Call the Rapid Response when there is a situation when there is a noted change in the patient s condition or you are concerned that your child s condition is not being addressed. Research shows that patients and families that are involved in the patient s care get better results. STAFF, FAMILIES, PATIENTS AND VISITORS CAN CALL THE RAPID RESPONSE TEAM Community Campus: Dial 3311 or 0 from any hospital phone Downtown Campus Call: Dial 0 from any hospital phone Patients and visitors have direct access to a Rapid Response team while at the hospital when they notice small or subtle changes in a person s condition. Watch for a decline or worsening in the patient s status as seen by changes in: Mental status or behavior (not responding, confused or agitated) Body temperature

4 Pediatric Patient Education at Upstate Golisano Children s Hospital 3 Blood oxygen levels (Oximetry) Heart rate or blood pressure Breathing rate or breathing difficulty Stroke signs and symptoms like speech changes, right or left sided weakness New chest pain Urine output Sudden Infant Death Syndrome (SIDS) SIDS is the sudden and unexplained death of a baby under one year of age. Because many SIDS babies are found in their cribs, some people call SIDS crib death. But cribs do not cause SIDS and babies should sleep in cribs. To decrease the risk of SIDS have babies sleep on their backs, do not smoke around babies and keep cribs clear of blankets and stuffed animals. Keeping the baby s room temperature between 68 and 72 degrees Fahrenheit is best. If you need more information on SIDS please ask your nurse. Having a Procedure or Surgery During any procedure or surgery your healthcare team wants to make sure you and your child understand the procedure and give permission (consent). The surgeon or person doing the procedure and the anesthesiologist will have you sign a that states you understand what they are going to do, the reason your child is having a procedure and accept the risks. It is important to ask questions if you do not understand. Let the healthcare team know if you need more time or discussion before signing a consent form. There is a booklet available called Surgery: Before, During and After that you can ask for if you have surgery. Anesthesia Anesthesia is the use of medicine to prevent the feeling of pain or other sensations during a surgery or procedure. Anesthesia is to keep your child comfortable, safe, and relaxed. An anesthesiologist will speak to you and can give you information on the types of anesthesia they will use and it will work. Food and Diet The healthcare team will work with you to decide on the best diet for your child related to their condition, diagnosis, and what tests and procedures they may need. There may be times when your child can t eat (NPO), and other times their diet order may limit what they drink or eat. Your healthcare team will let you know what your diet is and if it changes. Make sure food that is brought to you from friends and family fits with your hospital diet. Dietitians are available to give you more information about healthy eating and healthy living or special diets. Many people take medications on a regular basis. It is important to know what foods and medication should or should not be taken together. The nurse can get you more information for you on this. Lactation Rooms Women who are breastfeeding may need a quiet and private location to either feed a baby or use a breast pump. Please ask the nurse if you need more information on the services available. Medication Education Your healthcare team will ask what medications you child takes regularly at home. Bring a list of your current medications including name, dose, frequency, and what your child takes it for. You will be asked if your child has medication, food or environmental allergies. When you are discharged, your medication list will be updated to reflect any changes in your medications to take at home ASK ME ABOUT YOUR MEDICATIONS USE AND SIDE EFFECTS ASK ME ABOUT YOUR MEDICATIONS USE AN ECTS

5 4 Pediatric Patient Education at Upstate Golisano Children s Hospital (prescriptions). This is called Medication Reconciliation. You will be told the name, use and side effects for each new medication your child receives while in the hospital and going home. There are educational handouts available for medications from the healthcare team members. Pharmacists are available to meet with you and give you more information if needed. Managing Pain Pain management and good pain control help your child rest and heal with greater comfort and quicker. Pain is common after surgery, with injury, and with many types of illnesses. Some people experience pain differently, with some needing more relief than basic coping skills. Our healthcare team will give you information about pain and how we can help your child relieve and manage it. The caring staff will listen to you and your child. There will be quick action by staff if your child reports pain, and there is help from a pain management specialist if needed. Let the nurse know if you want to see a pain specialist. We want you and your child to take an active role in controlling any pain your child may have. Ask your doctor, nurse, pharmacist, and health care team about what to expect from medications and interventions. Write down questions so you can receive all the necessary information about your child s pain management. LEAPP For pediatric patients we have a special process that helps to decrease pain and anxiety if your child needs a test or procedure. Your nurse and a Child Life Specialist will help to prepare you and your child for any procedures and testing your child may need. Skin Care Skin is the body s first defense against infections. If your child is sick or in bed for longer periods of time, has poor nutrition or excess skin moisture, then the skin is at risk for problems. Problems with the skin can make children more at risk for infections. We will work to keep your child clean and we will move them frequently to prevent skin problems. If there is a sore, wound, incision or any other skin problem, then staff will give you more information on the care your child will need. There are skin and wound specialists available if you need more about good skin care. Activity, Moving and Safety We want your child to stay as close as possible to their pre admission or pre illness abilities. At times activity may be limited or we may ask that the child gets up and moves more frequently than they have been moving. While in bed, the nurses will help your child to turn and position and do exercises (range of motion) to keep comfortable and to prevent complications. Ambulating is another word for walking and the staff will help you ambulate to get you well faster. Your provider may request that professionals like the Child Life Specialist, Physical Therapist, Occupational Therapist, and Speech Therapist work with your child to improve their abilities and movements. Please ask us to help you with your child if you are not sure. Fall Risk in the Hospital To keep your child safe, they may need help getting out of bed if they are weak, dizzy, have had surgery or for many other reasons. Hospital beds are taller than your child s bed at home. Medical equipment, such as IV pumps, may prevent your child from moving about easily. Please let staff know if your child gets up or is at risk to fall. Fall Precautions Your child will wear an orange bracelet to let us know that they are at risk to fall. There will be a sign with Humpty Dumpty at his or her bedside.

6 Pediatric Patient Education at Upstate Golisano Children s Hospital 5 Ways We Can Work Together to Prevent Falls in the Hospital Go with your child to the bathroom when they have medical equipment attached. Go with your child to the bathroom when they get up for the first time after surgery. Help your child get up when you think that they may be unsteady due to medicine they are taking. If you get sleepy when holding your child, please place your child back in bed. Please do not share a bed with your child. Please use the lap restraint belt when your child is in a wheelchair or stroller. Please keep side rails up when your child is in bed or crib so they can not fall. Please ask if you need help moving them. Please do not allow your child to ride on the IV pole Please keep your child from running or climbing in their room, waiting room, and hallways. Blood Clots or Deep Vein Thombosis (DVTs) People who are ill and are in bed or sit for long periods of time are at risk for getting blood clots or deep vein thrombosis (DVTs). These clots may start in the veins of the legs but could form in many areas of the body. These clots can travel in the body and cause many problems and make a person feel very sick or have pain. There are ways the healthcare providers work to decrease the risk of having these clots form. Some hospital patients are given medications, special stockings (TEDs), or sequential compression devices (SCDs) to wear on their legs to help to prevent the clots from forming. Please talk to your healthcare team if your child has had a clot in the past, has redness or swelling on the child s legs or arms, or if they are at risk of getting a clot. Respiratory Risks When your child does not feel well and they are not moving frequently then they are at risk for respiratory or breathing problems. Staff will ask them to turn, cough, take deep breaths, or to use a simple device called an Inspirex that encourages deep breathing. The team may have your child blow bubbles or do other games to help with deep breathing. This helps to decrease the risk of pneumonia and other breathing problems you could get being in the hospital. Respiratory Therapists are available for more information on keeping your breathing the best it can be. Quitting Tobacco If you or any of your family uses tobacco, please let the staff know. We will discuss options about quitting tobacco use. Upstate Hospital encourages the use of New York State (NYS) Quitline online at or call the Quit Line at (866) Respiratory Therapists are available to speak to you at Upstate Hospital about Smoking Cessation and options for you. Back to Basics: Good Hygiene Good personal hygiene can make you healthier and less likely to get sick. It also helps you to look good and feel good. Handwashing Handwashing is the best way to prevent infections and the spread of diseases. Anyone entering the hospital is at risk for spreading and getting an infection. Good hand washing if vital to keeping you and others around you safe. Wash your hands often, especially if you are around someone who is sick. Patients, visitors and staff are expected to wash their hands each and every time they enter and leave the patient room and when they eat or use the toilet or restrooms.

7 ation for You ucation 8 (800) Pediatric Patient Education at Upstate Golisano Children s Hospital Back to Basics: Good Hygiene Good personal hygiene can make you healthier and less likely to get sick. ten There is hand sanitizer available inside and outside all the rooms. Use soap and water to work up a lather. Basic hand washing is the best defense It also helps you to look good and feel good. against infections being spread. Staff wears gloves at times to decrease the risk of spreading infections. They will still wash their hands when th Information for You he best way to prevent infections and the spread of diseases. and Family Education r hands before you eat, before you handle food, and after you use the toilet. Connect: removing the (800) gloves. often if you are sick or around people who are sick. Keep Your Body Clean and Healthy ter to work up lather. n and Healthy Take a shower or tub bath at least tub bath at least two to three times a week. two to three times a er, rinse well, and dry completely. week. Your ir r every You Hands time you bathe. Often ls and armpits every Use day. soap and water, nd 8668 dry. Wear clean socks. rinse well, and dry completely. Back to Basics: Good Hygiene Good personal hygiene can make you healthier and less likely to get sick. It also helps you to look good and feel good. Hand washing is the best way to prevent infections and the spread of diseases. Always wash your hands before you eat, before you handle food, and after you use the toilet. ot outside. Wash your hands often if you are sick or around people who are sick. keep skin soft. Use soap and water Shampoo to work up your lather. hair to Basics: Good Hygiene ays wipe from front every to back time after using you bathe. toilet. l our hygiene Body can make Clean you healthier and Healthy and less likely to get sick. eth Take a shower or Clean tub bath your at least genitals two to three and times armpits a week. every day. It also helps you to look good and feel good. very morning and night. Use soap and water, Keep rinse feet well, clean and dry and completely. dry. Wear clean socks. every meal. Shampoo your hair every time you bathe. ch event tooth infections every day. and Don t the spread walk of diseases. barefoot outside. Clean your genitals and armpits every day. t u least eat, before every 6 you months. handle food, and after you use the toilet. Keep feet clean Use and dry. body Wear lotion clean socks. to keep skin soft. ick ils or around people who are sick. Don t walk barefoot outside. her. Women should always wipe from front to nails Use every body day. lotion back to keep after skin soft. using the toilet. thy ls short Women makes should it easier always to keep wipe them from clean. front to back after using the toilet. ht wo are across, to three Take of Your just times longer Care a week. Teeth than of your Your toe. Teeth If you are unable to care for your nails, ask for help. es dry or completely. decreased blood flow to legs, ask your health care provider about proper care of your nails. Brush your teeth Brush every morning your teeth and night. every bathe. Nose Try to brush after morning every meal. and night. ery read day. Floss through between sneezes each Try and tooth coughs. brush every Cover day. after your every mouth and nose when you sneeze or cough because the little move n socks. See through your dentist the air at and least infect every others. meal. 6 months. you sneeze or cough and if you do not have a tissue use the bend of your arm or hand. Then wash your hands are of Your Nails Floss between each ront Clean Close to back underneath Contact after using tooth nails with the toilet. every day. Others day. Keeping fingernails short makes it easier to keep them clean. k you should stay home. See Don t your touch dentist or shake at hands least with every others. 6 months. Cut toenails straight across, just longer than your toe. If you are unable to care for your nails, ask for help. t d medical night. treatment call ahead to ask what you can do to not spread it to others. Tell the people when you get need If you Take a mask have to diabetes Care of wear if you or decreased Your Nails are coughing blood or sneezing. flow to your legs, ask your health care provider Vaccines about proper care of your nails. Your isease Mouth and Fight or Nose y. Clean the underneath Spread of Infection nails every day. ations nths. Many are diseases up to date spread for you through and your sneezes family. and There coughs. are vaccinations Cover your available mouth and for nose Flu, when Shingles, you Measles sneeze or cough because the little, Diphtheria, disease Hepatitis, particles move Meningitis, through Whooping the air and cough infect (Pertussis), others. Keeping fingernails and Pneumonia. (rubella), meningitis, mumps, Use tissues when you sneeze or cough and if you do not have a tissue use the bend of your arm or hand. Then wash your hands viders right wash away. their hands short and makes wear gloves it easier when needed. It is okay for you to ask them if pertussis they have washed (whooping cough), re drawing blood, touching wounds or fluids, or touching your mouth or private parts. easier to keep them clean. keep them clean. are Sick Avoid Close Contact with Others ger than your toe. If Cut you toenails are unable to straight care for your nails, ask for help. across, just longer than your toe. If you are unable to care for your nails, ask for help. F81222 Rev. 1/2014 When you are sick you should stay home. Don t touch or shake hands with others. blood When flow going to your to legs, get medical ask your treatment health care call provider ahead to about ask what proper you care can of do your to not nails. spread vaccine it to others. while Tell the in people the when hospital. you get to the office if you need a mask to wear if you are coughing or sneezing. ots to Avoid Disease and Fight the Spread of Infection If you have diabetes or decreased blood flow to your legs, ask your health care provider about proper care of your nails. Cover your mouth or nose Many diseases spread through sneezes and coughs. Cover your mouth and nose when you sneeze or cough because the little disease particles move through the air and infect others. Use tissues when you sneeze or cough and if you do not have a tissue use the bend of your arm or hand. Then wash your hands right away. If you are sick avoid close contact with others When you are sick you should stay home. Don t touch or shake hands with others. When going to get medical treatment call ahead to ask what you can do to not spread it to others. Tell the people when you get to the office if you need a mask to wear if you are coughing or sneezing. Get shots to avoid disease and fight the spread of infection Make sure vaccinations are up to date for you and your family. There are vaccinations available here at the Hospital for patients and families. Make sure your Heath Care Providers wash their hands and wear gloves when needed. It is okay for you to ask them if they have washed their hands especially if they are drawing blood, touching wounds or fluids, or touching your mouth or private parts. Vaccines are available for diphtheria, hepatitis, flu, measles pneumonia, shingles and other illnesses. Staff will ask about what vaccines your child has had in the past and may recommend that your child get a ezes and coughs. Cover your mouth and nose when you sneeze or cough because the little air Make and infect sure others. vaccinations are up to date for you and your family. There are vaccinations available for Flu, Shingles, Measles ugh (Rubella), and if you Mumps, do not have Diphtheria, a tissue Hepatitis, use the bend Meningitis, of your Whooping arm or hand. cough Then (Pertussis), wash your hands Pneumonia.

8 Pediatric Patient Education at Upstate Golisano Children s Hospital 7 HIV Testing Adult and teen patients who wish to can be tested for HIV while at the hospital. Your nurse will discuss this with you and can provide you with more information if you ask. Infection Control and Reverse Isolation Special precautions signs on the door tell visitors and staff how to dress and how to clean their hands when they enter and leave the patient s room. The Flu, MRSA, VRE, and C diff are names of some infections that are hard to treat or are easily spread in hospitals. Sometimes patients are at risk for infection because of their health status or treatments. Ask your nurse what you and your visitors need to do to prevent infections from spreading. Please do not have visitors come in that have a rash, fever, cough or if they have trouble breathing. Masks are available but sick visitors should go home. How Did We Do? We will be calling you after discharge to see how your child is doing and ask if you have any questions. You may also receive a paper survey we hope you return even though you get a phone call. Your feedback is important to us to make sure we are doing the best job possible for our patients and families. Thank you for allowing us to participate in your care or caring for your loved one. Discharge Patients are assigned a nurse case manager or social worker who helps plan what your child needs to be discharged. Your healthcare provider will discuss with you the date your child may leave the hospital (discharge date) so you can arrangements for equipment and plan for a ride. Please have a car seat available if your child needs one, even if you are taking public transportation. You will need to sign discharge papers before you go. Take home your child s patient education folder, handouts, and booklets for review at home. Double check the room for your belongings before leaving. Make sure you have a followup appointment scheduled with your child s healthcare provider before you leave.

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11 F88940 Rev. 2/2014