2 Visual acuity Level of urinary incontinence Measuring results that matter Cataracts Localized Prostate Cancer OUR MISSION We believe that better health care always starts with clinicians improving the lives of their individual patients. ICHOM is transforming health care by empowering clinicians worldwide to measure and compare their patients outcomes and to learn from each other how to improve.
3 Level of depression Coronary Artery Disease Level of back pain Low Back Pain HEALTH OUTCOMES Outcomes are the results people care about most when seeking treatment, including functional improvement and the ability to live normal, productive lives. International Consortium for Health Outcomes Measurement 3
4 WE NEED A NEW DEFINITION OF SUCCESS In health care, we ve spent too much time measuring what we do instead of measuring the results we achieve. Right now, we rely on process measures to define high-quality health care. But patients want to know how they ll feel and what they will be able to do after care, not about the guidelines their physicians and care teams follow. To answer them, we need to change how we define success. If we focus on outcomes, we can help patients truly understand the impact of their treatments. We can answer questions such as, Will I have long-term pain? and Will I be able to participate in normal activities? This approach also improves our health care system in several key ways.
5 OUTCOMES ENCOURAGE INNOVATION Health care is very complex and medical knowledge is changing fast. That s why it s important that physicians constantly seek new ways to provide better care. A focus on out comes encourages physicians to learn from their peers and test new approaches based on reliable, patient-centered data. OUTCOMES HELP PEOPLE MAKE INFORMED DECISIONS Reliable outcomes data enable physicians and patients to make better decisions about what treatments are best for them and who should provide them. Structure Presence of multidisciplinairy team Patient initial conditions Cancer stage Processes Treatment approach Indicators PSA Level Patient experience/ engagement Trust in caregiver OUTCOMES REDUCE HEALTH CARE COSTS With a clear focus on outcomes, patients are more likely to receive the right treatments, at the right place, at the right time a recipe for preventing medical errors and unnecessary care, and reducing health care costs. (Health) Outcomes Survival, Continence, Potency The measurement landscape with examples for Localized Prostate Cancer International Consortium for Health Outcomes Measurement 5
6 A COLLABORATIVE APPROACH Patients and their care providers have the same goal: to achieve the best medical outcomes. Measuring outcomes in a standardized way will lead us there. That s why we re bringing together international physician leadership and patients to help us identify outcomes standards. Here s how our process is unique. COMPREHENSIVE SET OF POTENTIAL OUTCOMES PATIENT PERSPECTIVE PERSPECTIVE PROVIDER PRIORITIZE Relevance to patients REGISTRY PERSPECTIVE Over a period of six to eight months, the ICHOM Working Group uses a structured process to agree on a Standard Set of outcomes and risk factors, along with their accompanying definitions. WE CREATE A PHYSICIAN- PATIENT PARTNERSHIP We involve patients directly in the process. After all, they re the ones who experience outcomes firsthand. All of our patient representatives have been treated for the condition they are evaluating.
7 STANDARD SET Standard Set Outcomes Measures PROPOSED STANDARD SET OF OUTCOMES DEFINE MEASURES Feasible, valid, reliable WE TAKE A MULTI - DISCIPLINARY APPROACH We bring together leading clinicians that specialize in treating the condition. These individuals offer expertise from multiple viewpoints and are pioneers in measuring outcomes in their respective countries. WE PROVIDE A NEUTRAL PLATFORM Agreeing on which outcomes matter most and how to define them is a challenging task. We provide a structured process that welcomes the diverse opinions of the Working Group members while still achieving consensus over time. After outcomes and measures are defined, a similar process follows to identify an accompanying set of initial conditions and risk factors and their definitions. International Consortium for Health Outcomes Measurement 7
8 A GLOBAL STANDARD Health problems are similar worldwide, but the way we handle them can be different. That s why we believe in the value of a global Standard Set. Each dot represents a member of the Working Group for Localized Prostate Cancer.
9 Acute complications of treatment Survival & Disease Control - LIFE CONDITIONS IN 5 YEARS Over the next five years, we will define Standard Sets for more than 50 conditions, covering the majority of the global disease burden in advanced economies. Patient Reported Health Status For more: IT ENCOURAGES COLLABORATION Standardizing health outcomes data globally helps physicians evaluate patients using a universal language. Despite cultural differences, they can learn from one another and apply new, creative solutions to treating patients. IT REDUCES HEALTH CARE COSTS Health care leaders around the world are facing skyrocketing costs. More than ever, we need to know the cost of care and expected outcomes of treatments. A global Standard Set of outcomes helps us discover new approaches that cost less and are more effective. IT ACCOMMODATES A GLOBALIZED WORLD Our world becomes smaller and smaller every day, and health issues travel quickly. It s our hope that physicians and care teams internationally will connect through patient-centric data to tackle global health problems. International Consortium for Health Outcomes Measurement 9
10 A POWERHOUSE TRANSFORMING CARE ICHOM is built on innovation and theory from the world s foremost leaders in health care and strategy. THOUGHT LEADERS Our approach is built on the framework of Value-Based Health Care developed at Harvard Business School by Professor Michael E. Porter. In 2006, Porter and his colleague, Elizabeth Teisberg, wrote the groundbreaking book, Redefining Health Care, which outlines the argument for using health out comes data to shift the nature of competition in health care toward value for patients. ROOTED IN STRATEGY One of our founding organizations, The Boston Consulting Group, was the first to introduce competitive strategy to the business world. Their team brings more than 50 years of experience, a professional culture, and a rigorous approach. GROUNDED IN THEORY Our tie to the Karolinska Institutet in Stockholm, Sweden provides us with a strong foundation in medicine and research. This world-renowned medical university and research center is leading the way in health care discoveries. Every year, the Karolinska Institutet appoints the laureates for the Nobel Prize in Physiology or Medicine. MICHAEL E. PORTER STEFAN LARSSON MARTIN INGVAR Michael E. Porter is the Bishop William Lawrence University Professor at Harvard Business School. He is recognized as a global leader in strategy and competition, and brings more than two decades of experience developing the Value Framework for health care. Stefan Larsson is Senior Partner and Managing Director at The Boston Consulting Group, and is head of the firm s global health provider and payer sector. In addition, he is a group fellow at The Boston Consulting Group, and leads the firm s research on the impact and implementation of value-based health care. Martin Ingvar is a Professor of Integrative Medicine at the Department of Clinical Neuroscience and at the Osher Centre for Integrative Medicine at Karolinska Institute. He also heads Karolinska s groundbreaking initiatives in value-based health care in close cooperation with the regional government.
11 GREAT IMPACT COMES FROM GREAT SUPPORT We thank our sponsoring partners believing in our mission and helping us improve patients lives. PLATINUM GOLD SILVER BRONZE Cooper-Newell Foundation For the most up-to-date list of our sponsoring partners, please visit International Consortium for Health Outcomes Measurement 11
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