Research Data Extraction Service. Research and Woodruff Health Sciences IT

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1 Research Data Extraction Service Research and Woodruff Health Sciences IT 1

2 Topics Emory s Clinical Data Warehouse Types of data available Accessing the data

3 Key Points Clinical Data Warehouse initiated in 1993 Authoritative source for EHC Clinical and Quality Measurements ~ 8 M Patient Records, 35 M encounters 3

4 Clinical Data Warehouse Data Architecture Emory Healthcare Data Warehouse DW Reporting (CDW) Transactional Systems Millennium HQ Meta PeopleSoft MPV Healthquest IDX UHC Millennium PMM Clinical Data Warehouse IDX Other DataStage EPSi UHC Tactically Structured Data BEETLE Strategically Structured Data Operational Reporting Downstream Interfaces UHC: CDB, Core Measures, FPSC NACOR EPSI Grady Clinical Trials Press Ganey Cancer Registry GA Hospital Association CDC Syndrome Survey Chamberlin Edmonds National Prenatal Info Center Crimson Strategic Analysis

5 Information Description Source Status Patient and Provider Diagnoses, Procedures Patient, Provider and Location EeMR, Healthquest, IDX From Sep 1995 Hospital Visits, Readmissions, Providers, Locations Healthquest From Sep 1998 Clinic Visits, Providers, Locations IDX From Sep 1995 Billing Diagnoses and Procedures, (ICD, and CPT) Healthquest, IDX, Meta From Sep 1998 Problem List EeMR From Sep 2009 Patient Financial Data Hospital and Clinic Billings, Payments, Payers, RVUs Healthquest, IDX From Sep 1998 Laboratory Medications Scheduling Chemistry, Microbiology Pathnet From Jan 2001 Anatomic Pathology Pathnet, CoPath From Mar 2005 Prescriptions, Inpatient Orders, EMAR, Inpatient dispensing, Immunizations EeMR From Feb 2005 Outpatient Appointment and Resource Scheduling IDX From Sep 1995 Capacity Management IDX From Nov 2008 Emergency Data Emergency Department Visits, Procedures, Events, Timing EeMR From Aug 2002 Clinical Documentation Orders Management Clinical Data Warehouse Subject Areas Powerforms Structured Documents EeMR From Aug 2002 Direct Charting, IView, Medication Reconciliation EeMR From Sep 2010 Powernotes Physician Notes EeMR From Feb 2007 Allergies EeMR From May 2005 On-line Orders EeMR From Feb 2005 Detailed Turnaround Timing EeMR From Sep 2007 Radiology Radiology Reports, Room Utilization EeMR From Jan 2007 External Quality Metrics Risk metrics, core measures UHC In progress Cost Encounter-level costs EPSi In progress Surgery Surginet, Anesthesia modules EeMR In progress

6 ACCESSING THE DATA

7 Faculty Data Needs Aggregate population queries for pre-research De-identified clinical data extraction Defining cohort populations for retrospective studies or patient recruitment Extraction of clinical information for current study populations Assisting with the migration of clinical data to research data repositories

8 Perception vs. Reality vs

9 Complexity The current model is to leverage data analysts whose day-to-day job is to write queries and help faculty to pull the most accurate and precise data for their questions Familiar with the correct fields to pull Understand semantic nuances Steeped in Emory s policies and procedures

10 Data Disclosure Decision Tree

11 Departments Many departments have analysts for operational and quality data needs Only a few departments have a trained analyst to assist with research data As you can imagine more requests than resources: 1 department alone could have a full time analyst and over 40 requests in queue

12 Departmental Points of Contact Neurology Shirley Mullins ) Radiology Archana Kudrimoti Surgery William Knechtle Transplant Kendra Bryant Emergency Medicine Ian Yancy (ian.yancey@emoryhealthcare.org)

13 Other Options R-WIT Service Center Can submit a request via : University Service Center compliant with federal guidelines for accepting funds from grants Contacts: Kenyon Register (Kenyon.Register@emory.edu) Lisa Cogdill (Lisa.Cogdill@emory.edu) Check with your Department Administrator

14 Project Examples Small Project (Estimated Cost: $350) Service center extracts a list of patients (with basic demographic data) based on a list of ICD9, pathnet (lab) or CPT codes. Service center provides customer with encrypted data file Time: 3-5 hours Medium Project (Estimated Cost: $800) Customer provides list of MRNs Service center extracts demographic, vitals, medications and lab results for a list of provided MRNs. Service center provides customer with encrypted data file Time: 8-10 hours Large Project (Estimated Cost: $5325) Service center extracts patient population based on criteria of a retrospective chart study Service center extracts clinical data from multiple data sources for the population Service center merges, maps and uploads data into the database of an electronic data capture tool Time: 71 hours

15 Other Points Starting to establish similar data brokering processes with Children s, Grady, and the Atlanta VA Medical Center But still a lot of work to do Developing new web site to help individuals navigate this complex landscape

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