Data platforms to support research, evaluation & practice. David V Ford Professor of Health Informatics School of Medicine, Swansea University
|
|
|
- Claud Cain
- 8 years ago
- Views:
Transcription
1 Data platforms to support research, evaluation & practice David V Ford Professor of Health Informatics School of Medicine, Swansea University
2 Outline 1. Swift overview of SAIL Databank as used in Wales 2. Everything we know in a box Research Data Appliances
3 The SAIL Databank A national e-research platform for Wales David Ford Professor of Health Informatics College of Medicine Swansea University
4 SAIL: 5 Minute Overview SAIL= Secure Anonymised Information Linkage Databank of >9 billion recordings on the people of Wales Data on >5 million people 500+ feeder systems from Wales, inc >350 GP (75%) Much data goes back years All pre-linked 5m+ investment in high performance IT Strong privacy protection & IG Remote access from anywhere, given approvals Industrial strength, reusable infrastructure.
5 SAIL: Data resources Core holdings: Annual District Birth Extract (ADBE) Annual District Death Extract (ADDE) Bowel Screening Wales (BSW) Breast Test Wales (BTW) Cervical Screening Wales (CSW) Congenital Anomaly Register and Information Service (CARIS) Emergency department Data Set (EDDS) National Community Child Health Database (NCCHD) Outpatient Dataset (OPD) Patient Episode Database for Wales (PEDW) Primary Care GP dataset (360 practices, 2m people, 75% of practices) Welsh Cancer Intelligence and Surveillance Unit (WCISU) Welsh Demographic Service (WDS) Project-specific holdings: Clinical trials participants Conventional cohort participants Cross sectional survey participants Many others Reference data: Data quality reports Extract histories Coding and mapping information Metadata Organisation codes
6 SAIL features 1. Built to consume (new data) swiftly 2. Secure sharing for projects, based on views and a UKSERP instance (more later). 3. Total population coverage 4. Used for observational research, trial feasibility, outcome data for trials, extending cohorts, natural experiments.. 5. Lots of trial and cohort study participants embedded in SAIL
7 SAIL: 5 Minute Overview 1. Currently supporting externally funded projects with value > 90m 2. >100 Peer-reviewed publications to date approved and active SAIL projects. 4. Over 300 registered users, with 150 active today from across the world staff in Swansea working on Health Informaticsrelated projects 6. Average 35 day turnaround from application to data 7. Applications open to all
8 SAIL: 5 Minute Overview 1. Now new UK Centre of Excellence in HI CIPHER Centre for Improvement in Population Health through E-records Research ( 4.4m). Partners: Cardiff Bristol, Sussex, Australia, Canada 2. CIPHER now one of 4 UK-wide Farr Institute Centres (+ 5m) 3. New award: CADRE Centre for Administrative Research & Evaluation ( 8.0m) ESRC, as part of the ESRC ADRN and its Big data initiative. Partners: Cardiff
9 SAIL: 5 Minute Overview New Data Science Swansea Security and privacy protection from the ground up Funded by MRC (Farr); ESRC (ADRN) and Welsh Government High security home to Farr@Swansea and CADRE Office space for NHS and other public sector staff and industry to work alongside university staff
10 Research Data Appliances & UKSERP Everything we know, in a box
11 5 Minute Overview Now in beta test: 1. UK Secure E-Research Platform (UKSeRP) based on the SAIL Gateway massively extended to provide a secure platform for data sharing across the UK not just SAIL data (for Farr and ADRN) certified and IG Toolkit compliant 2. National Research Data Appliances: New concentrator technology to gift to NHS and other organisations, including automated matching, anonymisation, data management, metadata capture, data quality assessment, etc. 3. New focus on the capture and analysis of electronic free text data (on-board NLP in the Appliances) 4. Funded by MRC Farr institute and ESRC ADRN grants
12 Research Data Appliance Brings SAIL's capabilities onto combined hardware and software Shrink wrapped, ready to go. Any size from data stick to massive! Easy to use, low expertise barrier Multiple Appliances work together as a larger whole Purposes: concentrate data, make it research ready Provide utility to data owners and partners Provided free (limited numbers) to our collaborators
13 RDA Usecase Bring data together within one IG defined organisation: Upload Link Anonymise (optional) Measure Catalogue Share Pool Manage & Report Analyse All under strong IG control
14 A Simple RDA deployment model Bring data together within one IG defined organisation: Upload Link Anonymise (optional) Catalogue Share Report Analyse RDA3 This could be a UKSe-RP instance Bring data together within one IG defined organisation: Upload Link Anonymise (optional) Catalogue Share Report Analyse RDA1 Bring data together within one IG defined organisation: Upload Link Anonymise (optional) Catalogue Share Report Analyse RDA2
15 Research Data Appliances Concepts (Presented at SHIP 2013) Benefits to health partners: Data concentrator with file store and database capabilities On board ETL Very easy to use (low technical barriers) Built on best privacy practice principles On-board high quality probabilistic identity matching system Integrated automated Metadata Catalogue and data quality reporting Full IG control locally - local data for local reuse. Robust standardised anonymisation (as required) NLP facilities option for unstructured (free text) data stores
16 Self management
17
18
19 Data schema automatically computed based on data contained in uploaded file
20 Publish Dataset Depend on Configuration/Capabilities. Data will now be available
21 Data Catalogue Key Component Additional points following previous sessions: All DA carry a DC, DS can inherit from other DS DC entries, DC related to Programme/Security domain. DC s replicate to Regional/Global DC. Road map: DC used to define and create DS
22 A Dataset Contact Specific version & Date Request VIMO All section attach files Theme / Type / Level Tags
23 A Dataset (cont.) DDI, SPSS, SAS, STATA
24 Data Catalogue a specific table
25 Key features of relevance Appliances federate with each other to create a sharing network Network can be hierarchical or peer-to-peer Full IG controls available at every point Metadata builds automatically and publishes to a global catalogue Data quality measurement automated NLP address rich, free text datasets, converting them to SNOMEDCT High quality identity reconciliation automatic, de-identification optional UKSERP provides scalable, performant analytics platform, with full IG controls
26 Questions?
Data Appliance Sailing to Data Islands
Data Appliance Sailing to Data Islands By Simon Ellwood-Thompson Chief Technical Officer: SAIL DataBank &Health Informatics Research Unit, Swansea University SAIL Databank Swansea, WALES WALES most beautiful
Health Information Research Unit. Secure Anonymised Information Linkage (SAIL) system
Health Information Research Unit Secure Anonymised Information Linkage (SAIL) system SHIP International Workshop February 2010 Professor Ronan Lyons SAIL A system which links anonymised data at individual
Big Data and the social sciences a perspective from the ESRC. Peter Elias
Big Data and the social sciences a perspective from the ESRC Peter Elias What do we mean by Big data Electronic data generated from research infrastructures (e.g. astronomy, particle physics, micro-biology,
Dundee e-health Centre of Excellence
Dundee e-health Centre of Excellence 1 Arthritis Research UK, British Heart Foundation Cancer Research UK Economic and Social Research Council Engineering and Physical Sciences Research Council National
Project Assured Data Access. Henry Hughes
Project Assured Data Access Henry Hughes Background Significant investment in medical research specifically in trying to unlock the value of the data collected by the government and NHS in order to further
Individual Referencing Systems. Anthea Springbett Programme Principal SHIS-R NHS Information Services Division
Individual Referencing Systems Anthea Springbett Programme Principal SHIS-R NHS Information Services Division Structure of workshop Introduction Referencing and linkage ISD linkage CHI Practical application
Informatics: Opportunities & Applications. Professor Colin McCowan Robertson Centre for Biostatistics and Glasgow Clinical Trials Unit
Informatics: Opportunities & Applications Professor Colin McCowan Robertson Centre for Biostatistics and Glasgow Clinical Trials Unit Routine Data "routine data" is data collected as byproducts of clinical
SAIL Person-level Export File Structure & Data Transfer
SAIL Person-level Export File Structure & Data Transfer Introduction The SAIL Databank is a central repository containing anonymised person-level and address-level data drawn from operational and national
SAIL Address-level Export File Structure & Data Transfer
SAIL Address-level Export File Structure & Data Transfer Introduction The SAIL Databank is a central repository containing anonymised person-level and address-level data drawn from operational and national
Farr Institute of Health Informatics Research Harnessing Data for Health Science and e-health Innovation
Farr Institute of Health Informatics Research Harnessing Data for Health Science and e-health Innovation Georgina Evans Industry Engagement Manager Farr Institute Who is Farr? Diseases are more easily
The Research Capability Programme. Peter Knight, Group Programme Director
The Research Capability Programme Peter Knight, Group Programme Director 11/03/2010 RESEARCH FOR PATIENT BENEFIT WORKING PARTY FINAL REPORT For us, science and research constitute a front-line service,
SAIL Person-level Export File Structure & Data Transfer
SAIL Person-level Export File Structure & Data Transfer Introduction The SAIL Databank is a central repository containing anonymised person-level and address-level data drawn from operational and national
Big Data for health. Farr Institute, Administrative Data Research Centres, Medical Bioinformatics. 9 July 2015. Jacky Pallas, UCL
Big Data for health Farr Institute, Administrative Data Research Centres, Medical Bioinformatics 9 July 2015 Jacky Pallas, UCL Overview UK Research Council funding for big data in health, medical and administrative
Health and Social Care Information Centre
Health and Social Care Information Centre Information Governance Assessment Customer: Clinical Audit Support Unit of the Health and Social Care Information Centre under contract to the Royal College of
SAIL Address-level Export File Structure & Data Transfer
SAIL Address-level Export File Structure & Data Transfer Introduction The SAIL Databank is a central repository containing anonymised person-level and address-level data drawn from operational and national
ESRC Big Data Network Phase 2: Business and Local Government Data Research Centres Welcome, Context, and Call Objectives
ESRC Big Data Network Phase 2: Business and Local Government Data Research Centres Welcome, Context, and Call Objectives Dr Fiona Armstrong, Professor Peter Elias, Dr Paul Meller Today s event This event
Driving ehealth Innovation: The Economic Development Model by David V Ford. Med-e-Tel Luxembourg, 6 8 April 2011
Driving ehealth Innovation: The Economic Development Model by David V Ford Med-e-Tel Luxembourg, 6 8 April 2011 Contents 1. The context 2. The opportunity 3. Feasibility assessment 4. Our solution ehealth
UK Biobank. Integrating electronic health records into the UK Biobank Resource. Version 1.0. http://www.ukbiobank.ac.
UK Biobank Integrating electronic health records into the UK Biobank Resource Version 1.0 http://www.ukbiobank.ac.uk/ January 2014 This document provides details on the procedures involved in processing
Developments to the NHAIS System
Developments to the NHAIS System FHS Day - 3 rd March 2010 Graham Ambrose NHAIS and FHS Services GP Payments Total payments for 07/08 of 7.2b Cervical Cancer Screening 3.4m women called for screening Labs
Digital Health: Catapulting Personalised Medicine Forward STRATIFIED MEDICINE
Digital Health: Catapulting Personalised Medicine Forward STRATIFIED MEDICINE CRUK Stratified Medicine Initiative Somatic mutation testing for prediction of treatment response in patients with solid tumours:
ehealth Research HEADLINES
ehealth Research HEADLINES Link data from across sources and life course effects of exposures, healthcare and experiences that influence health and disease enable policy evaluation through natural experiments
Assessing the medical costs of injury using linked anonymised datasets. The impossible is often the untried
Assessing the medical costs of injury using linked anonymised datasets The impossible is often the untried Content Aim of study Scope for study Material and methods Plan of action Research questions There
Secure networking and AAAI
Secure networking and AAAI Farr Institute, Administrative Data Research Centres, Medical Bioinformatics 22 th May 2014 Overview Research Council funding for big data in health, medical and administrative
Advanced research computing
Advanced research computing HPC in UK health research Alan Real, University of Leeds Outline A bit about me Regional & national activities Healthcare in UK Reality check Ambition Recent initiatives Farr
Information Governance. A Clinician s Guide to Record Standards Part 1: Why standardise the structure and content of medical records?
Information Governance A Clinician s Guide to Record Standards Part 1: Why standardise the structure and content of medical records? Contents Page 3 A guide for clinicians Pages 4 and 5 Why have standards
CONSUMER DATA RESEARCH CENTRE DATA SERVICE USER GUIDE. Version: August 2015
CONSUMER DATA RESEARCH CENTRE DATA SERVICE USER GUIDE Version: August 2015 Introduction The Consumer Data Research Centre (CDRC or Centre) is an academic led, multi-institution laboratory which discovers,
Documenting the research life cycle: one data model, many products
Documenting the research life cycle: one data model, many products Mary Vardigan, 1 Peter Granda, 2 Sue Ellen Hansen, 3 Sanda Ionescu 4 and Felicia LeClere 5 Introduction Technical documentation for social
CORPORATE OVERVIEW. Big Data. Shared. Simply. Securely.
CORPORATE OVERVIEW Big Data. Shared. Simply. Securely. INTRODUCING PHEMI SYSTEMS PHEMI unlocks the power of your data with out-of-the-box privacy, sharing, and governance PHEMI Systems brings advanced
Stakeholders meeting. Ethical protocols and standards for research in Social Sciences today
Stakeholders meeting organised by the Scientific Committee for the Social Sciences Ethical protocols and standards for research in Social Sciences today Date: Thursday 11 June 2015, from 10.00 to 17.00
Enhancing Discoverability of Public Health and Epidemiology Research Data: Summary
Public Health Research Data Forum Enhancing Discoverability of Public Health and Epidemiology Research Data: Summary July 2014 Public Health Research Data Forum Executive Summary Introduction The project
THE UNIVERSITY OF MANCHESTER PARTICULARS OF APPOINTMENT FACULTY OF MEDICAL & HUMAN SCIENCES INSTITUTE OF POPULATION HEALTH
THE UNIVERSITY OF MANCHESTER PARTICULARS OF APPOINTMENT FACULTY OF MEDICAL & HUMAN SCIENCES INSTITUTE OF POPULATION HEALTH CENTRE FOR HEALTH INFORMATICS HEALTH DATA SCIENTIST Vacancy ref: M&HS-07879 Salary:
BioGrid s use of Business Analytics for Collaborative Medical Research. Maureen Turner, CEO, BioGrid Australia
BioGrid s use of Business Analytics for Collaborative Medical Research Maureen Turner, CEO, BioGrid Australia Overview Data sharing considerations BioGrid a collaborative model Data ethics, privacy, security
Electronic Health Records Research in a Health Sector with Multiple Provider Types
Electronic Health Records Research in a Health Sector with Multiple Provider Types Samantha Crossfield Susan Clamp Presented by Samantha Crossfield AMBCS, MSc info@researchone.org Outline Section Setting
Keystones for supporting collaborative research using multiple data sets in the medical and bio-sciences
Keystones for supporting collaborative research using multiple data sets in the medical and bio-sciences David Fergusson Head of Scientific Computing The Francis Crick Institute The Francis Crick Institute
Effective Data Integration - where to begin. Bryte Systems
Effective Data Integration - where to begin Bryte Systems making data work Bryte Systems specialises is providing innovative and cutting-edge data integration and data access solutions and products to
Paper DM10 SAS & Clinical Data Repository Karthikeyan Chidambaram
Paper DM10 SAS & Clinical Data Repository Karthikeyan Chidambaram Cognizant Technology Solutions, Newbury Park, CA Clinical Data Repository (CDR) Drug development lifecycle consumes a lot of time, money
Data Management Planning
DIY Research Data Management Training Kit for Librarians Data Management Planning Kerry Miller Digital Curation Centre University of Edinburgh Kerry.miller@ed.ac.uk Running Order I. What is Research Data
The Internet of ANYthing
The of ANYthing Abstract It is projected that by 2020 there will be 50 billion things connected to the. This presents both unprecedented opportunity and challenge. In the global network of things, new
Internet of Services. What is the Future Internet for us? Pnina Vortman vortman@il.ibm.com IBM Haifa Research Laboratory
Internet of Services What is the Future Internet for us? Pnina Vortman vortman@il.ibm.com Motivation Communication Service Providers (CSPs) new spaces Traditional telco model is Inverse of Internet model
SURE: Helping to get the most out of routinely collected data
SURE: Helping to get the most out of routinely collected data Registry Special Interest Group Meeting 9 October 2015 Outline 1. The role of the Sax Institute 2. Why SURE was developed 3. How SURE is being
Civica Health & Social Care
Civica Health & Social Care Focus on > SLAM for Healthcare Providers Improved communications with commissioners, leading to clarity and better relationships Civica Focus on> The solution SLAM is the ideal
Metadata driven framework for the Canada Research Data Centre Network
Metadata driven framework for the Canada Research Data Centre Network IASSIST 2010 Session A4: DDI3 Tools Pascal Heus, Metadata Technology North America pascal.heus@metadatatechnology.com http://www.metadatatechnology.com
The UK Administrative Data Research Network: Improving Access for Research and Policy. Report from the Administrative Data Taskforce December 2012
The UK Administrative Data Research Network: Improving Access for Research and Policy Report from the Administrative Data Taskforce December 2012 The UK Administrative Data Research Network: Improving
Business Intelligence Solutions Architect Band 8a
Business Intelligence Solutions Architect Band 8a Job Title: Team: Directorate: Band: Responsible to: Accountable to: Base: Business Intelligence Solutions Architect Business Intelligence Operations 8a
A discussion of information integration solutions November 2005. Deploying a Center of Excellence for data integration.
A discussion of information integration solutions November 2005 Deploying a Center of Excellence for data integration. Page 1 Contents Summary This paper describes: 1 Summary 1 Introduction 2 Mastering
Big Data and Analytics: Challenges and Opportunities
Big Data and Analytics: Challenges and Opportunities Dr. Amin Beheshti Lecturer and Senior Research Associate University of New South Wales, Australia (Service Oriented Computing Group, CSE) Talk: Sharif
Achieving a Single Patient View. Eric Williams Software Practice Sun Microsystems UK Ltd.
Achieving a Single Patient View Eric Williams Software Practice Sun Microsystems UK Ltd. 1 Sun in Healthcare Committed to the Heathcare Sector > Provider of Servers, Storage, Services, Software & Solutions
A Commercial Approach to De-Identification Dan Wasserstrom, Founder and Chairman De-ID Data Corp, LLC
A Commercial Approach to De-Identification Dan Wasserstrom, Founder and Chairman De-ID Data Corp, LLC De-ID Data Corp, LLC Founded to: ENHANCE DATA ACCESS WHILE PROTECTING PATIENT PRIVACY Founders Problem
Embedding Customized Data Visualization and Analysis
Embedding Customized Data Visualization and Analysis Boney Pandya Marketing Manager Leo Zhao Systems Engineer Follow us @Jinfonet JReport Highlights Advanced, Embedded Data Visualization Platform: High
Autonomy Consolidated Archive
Autonomy Consolidated Archive Dennis Wild Director SME, Information Governance and Archiving POWER PROTECT PROMOTE Meaning-Based Governance Files IM Audio Email Social Video SharePoint Archiving = Gain
Should we be making better use of public data in health research? Paul Boyle. The value of routine administrative data
Should we be making better use of public data in health research? Paul Boyle The value of routine administrative data Routine administrative data are no panacea, but they do provide large (national?) samples
HP Adaptive Backup and Recovery
HP Adaptive Backup and Recovery Addressing Your BURA Strategy Today Reflects Your Business Purposes Tomorrow Scott Baker - Director, Enterprise Data Protection Andrew Dickerson Senior Manager, Backup,
Big Data Visualization and Dashboards
Big Data Visualization and Dashboards Boney Pandya Marketing Manager Greg Harris Systems Engineer Follow us @Jinfonet #BigDataWebinar JReport Highlights Advanced, Embedded Data Visualization Platform:
Migrating to TM1. The future of IBM Cognos Planning, Forecasting and Reporting
Migrating to TM1 The future of IBM Cognos Planning, Forecasting and Reporting QueBIT Consulting 2010 Table of Contents About QueBIT Consulting 3 QueBIT's Implementation Approach 3 IBM Cognos Planning and
WebFOCUS Cloud Express. The WebFOCUS Cloud Express service is delivered as a managed G-Cloud service by Amtex Solutions Ltd.
Service Definition The name of the Service is: WebFOCUS Cloud Express An overview of WebFOCUS Cloud Express The WebFOCUS Cloud Express service is delivered as a managed G-Cloud service by Amtex Solutions
Integrating Netezza into your existing IT landscape
Marco Lehmann Technical Sales Professional Integrating Netezza into your existing IT landscape 2011 IBM Corporation Agenda How to integrate your existing data into Netezza appliance? 4 Steps for creating
UK Data Service: Data-driven research - Access, analyse, evidence
UK Data Service: Data-driven research - Access, analyse, evidence Richard Wiseman Hersh Mann London School of Economics 10 December 2014 Overview of the day Welcome Introduction to UK Data Service Using
Report to UCLH Board Bryan Williams MD FRCP FESC FAHA
NIHR University College London Hospitals Report to UCLH Board Bryan Williams MD FRCP FESC FAHA Professor of Medicine and BRC Director 18/03/2013 The NIHR UCLH BRC Renewed funding circa 100M for 5 years
COMP9321 Web Application Engineering
COMP9321 Web Application Engineering Semester 2, 2015 Dr. Amin Beheshti Service Oriented Computing Group, CSE, UNSW Australia Week 11 (Part II) http://webapps.cse.unsw.edu.au/webcms2/course/index.php?cid=2411
G-Cloud Healthcare Analytics Service. October 2015. G-Cloud. service definitions
G-Cloud Healthcare Analytics Service October 2015 G-Cloud service definitions TABLE OF CONTENTS Service Overview... 3 Business Need... 5 Our Approach... 6 Service Management... 6 Sub-contractors... 7 Pricing...
Linking Administrative and Survey Data for Statistical Purposes
Linking Administrative and Survey Data for Statistical Purposes Current Use and Opportunities International Health Data Linkage Conference April 29 th, 2014 Current environment Declining budgets Falling
Microsoft Business Intelligence solution. What makes Microsoft BI difference
Business Intelligence today Microsoft Business Intelligence solution What makes Microsoft BI difference Case study and Demo Gartner BI Platform Software Revenue (in $Billions) CIO Priorities: Data Analysis
Distributed Networking
Distributed Networking Millions of people. Strong collaborations. Privacy first. Jeffrey Brown, Lesley Curtis, Richard Platt Harvard Pilgrim Health Care Institute and Harvard Medical School Duke Medical
Capitalize on Big Data for Competitive Advantage with Bedrock TM, an integrated Management Platform for Hadoop Data Lakes
Capitalize on Big Data for Competitive Advantage with Bedrock TM, an integrated Management Platform for Hadoop Data Lakes Highly competitive enterprises are increasingly finding ways to maximize and accelerate
Deputy Director, Mental Health and Protection of Rights Division, Scottish Government
Privacy Impact Assessment (PIA): Mental Health and Learning Disability Bed Census: One Day Audit and the Mental Health and Learning Disability Patients: Out of Scotland and Out of NHS Placements Census
Monitoring the health of our Nation s children
Health for all children 4 July 2001 Child Health Informatics Consortium www.chiconsortium.org.uk Monitoring the health of our Nation s children Key Indicators and the underlying Essential Core Data Set
ONS Big Data Project Progress report: Qtr 1 Jan to Mar 2014
Official ONS Big Data Project Qtr 1 Report May 2014 ONS Big Data Project Progress report: Qtr 1 Jan to Mar 2014 Jane Naylor, Nigel Swier, Susan Williams Office for National Statistics Background The amount
SharePoint Seminar. Explore and Learn. Integrated Business IT Services. www.computerworld.co.uk
SharePoint Seminar Explore and Learn Integrated Business IT Services Agenda 09:45 Introduction about Computerworld 10:00 Benefits of SharePoint 2013, Intranets/Extranets, Websites, Social Networking 11:15
Intelligent document management for the legal industry
Brochure Intelligent document management for the legal industry HP WorkSite The leading legal enterprise content management solution Sharing documents between legal teams, clients, and service providers
Ad Hoc Analysis of Big Data Visualization
Ad Hoc Analysis of Big Data Visualization Dean Yao Director of Marketing Greg Harris Systems Engineer Follow us @Jinfonet #BigDataWebinar JReport Highlights Advanced, Embedded Data Visualization Platform:
, Head of IT Strategy and Architecture. Application and Integration Strategy
IT Strategy and Architecture Application DOCUMENT CONTROL Document Owner Document Author, Head of IT Strategy and Architecture, Enterprise Architect Current Version 1.2 Issue Date 01/03/2013 VERSION CONTROL
Geo Analysis, Visualization and Performance with JReport 13
Geo Analysis, Visualization and Performance with JReport 13 Boney Pandya Marketing Manager Leo Zhao Systems Engineer Follow us @Jinfonet JReport Highlights Advanced, Embedded Data Visualization Platform:
Making Data Citable The German DOI Registration Agency for Social and Economic Data: da ra
Making Data Citable The German DOI Registration Agency for Social and Economic Data: da ra Stefanie Grunow (ZBW-Leibniz Information Centre for Economics, Kiel/Hamburg) Brigitte Hausstein (GESIS Leibniz
Exploring the roles and responsibilities of data centres and institutions in curating research data a preliminary briefing.
Exploring the roles and responsibilities of data centres and institutions in curating research data a preliminary briefing. Dr Liz Lyon, UKOLN, University of Bath Introduction and Objectives UKOLN is undertaking
www.hcltech.com Making communication in healthcare effective and compliant Integration via the HL7 Interface Engine by Somnath Mukherjee
www.hcltech.com Making communication in healthcare effective and compliant Integration via the HL7 Interface Engine by Somnath Mukherjee WHITEPAPER October 2014 TABLE OF CONTENTS ABSTRACT 3 BUSINESS PROBLEM:
Luncheon Webinar Series May 13, 2013
Luncheon Webinar Series May 13, 2013 InfoSphere DataStage is Big Data Integration Sponsored By: Presented by : Tony Curcio, InfoSphere Product Management 0 InfoSphere DataStage is Big Data Integration
From Fishing to Attracting Chicks
The Greater Plains Collaborative: a PCORNet Clinical Data Research Network s Strategies for Creating an Interoperable Architecture From Fishing to Attracting Chicks Russ Waitman, PhD Associate Professor,
Searching biomedical data sets. Hua Xu, PhD The University of Texas Health Science Center at Houston
Searching biomedical data sets Hua Xu, PhD The University of Texas Health Science Center at Houston Motivations for biomedical data re-use Improve reproducibility Minimize duplicated efforts on creating
INTERNET DATA SAFE SOLUTIONS TURNKEY AND CUSTOM MADE
TURNKEY AND CUSTOM MADE DSwiss AG Badenerstr. 281 CH 8003 Zürich Switzerland +41 (0)44 515 11 11 info@dswiss.com www.dswiss.com Management Summary Internet data safes are web based solutions that enable
1 Executive Summary... 3. 2 Document Structure... 4. 3 Business Context... 5
Contents 1 Executive Summary... 3 2 Document Structure... 4 3 Business Context... 5 4 Strategic Response... 6 4.1 Exploiting SharePoint... 6 4.2 Improving Business Effectiveness... 7 4.3 Improving Governance...
Establishing a Data and Information Governance Program at the Cancer Institute NSW. Data Governance 2012 Narelle Grayson
Establishing a Data and Information Governance Program at the Cancer Institute NSW Data Governance 2012 Narelle Grayson Contents 1. Key drivers 2. Developing the Program Case study NSW Cancer Registries
Data management plan
FACILITATE OPEN SCIENCE TRAINING FOR EUROPEAN RESEARCH 612425 Data management plan Course for Doctoral Students at ECPR Summer School 2015 Faculty of Social Sciences, University of Ljubljana, Slovenia
How To Create A Health Research Data Repository
James Doiron, Manager, Health Research Data Repository, University of Alberta, Canada Andrew DeCarlo, Metadata Technology North America Shane McChesney, Nooro Online Research NADDI 2015 Madison, WI USA
NHS public health functions agreement 2015-16. Service specification no.20 NHS Newborn Hearing Screening Programme
NHS public health functions agreement 2015-16 Service specification no.20 NHS Newborn Hearing Screening Programme February 2015 Title: Public health functions to be exercised by NHS England Service specification
Data Quality: Review of Arrangements at the Velindre Cancer Centre Velindre NHS Trust
Data Quality: Review of Arrangements at the Velindre Cancer Centre Velindre NHS Audit year: 2010-11 Issued: August 2012 Document reference: 358A2012 Status of report This document has been prepared for
Top 5 reasons to choose HP Information Archiving
Technical white paper Top 5 reasons to choose HP Information Archiving Proven, market-leading archiving solutions The value of intelligent archiving The requirements around managing information are becoming
Big Data Analytics Service Definition G-Cloud 7
Big Data Analytics Service Definition G-Cloud 7 Big Data Analytics Service Service Overview ThinkingSafe s Big Data Analytics Service allows information to be collected from multiple locations, consolidated
OpenAIRE Research Data Management Briefing paper
OpenAIRE Research Data Management Briefing paper Understanding Research Data Management February 2016 H2020-EINFRA-2014-1 Topic: e-infrastructure for Open Access Research & Innovation action Grant Agreement
North Highland Data and Analytics. Data Governance Considerations for Big Data Analytics
North Highland and Analytics Governance Considerations for Big Analytics Agenda Traditional BI/Analytics vs. Big Analytics Types of Requiring Governance Key Considerations Information Framework Organizational
Using Version Control and Configuration Management in a SAS Data Warehouse Environment
Using Version Control and Configuration Management in a SAS Data Warehouse Environment Steve Morton, Applied System Knowledge Ltd Abstract: Data warehouse management involves many components in addition
Data Quality Arrangements in the Screening Division Public Health Wales NHS Trust. Issued: August 2012 Document reference: 348A2012
Data Quality Arrangements in the Screening Division Public Health Wales NHS Trust Issued: August 2012 Document reference: 348A2012 Status of report This document has been prepared for the internal use
Perceptive Software: Corporate Profile
Perceptive Software: Corporate Profile It is estimated that 80% of enterprise information is unstructured. Scanned contracts and invoices, customer communication, employee files and the like are too complex
SHARING RESEARCH DATA POLICY, INFRASTRUCTURE, PEOPLE
SHARING RESEARCH DATA POLICY, INFRASTRUCTURE, PEOPLE... VEERLE VAN DEN EYNDEN... MANAGER RESEARCH DATA MANAGEMENT SUPPORT SERVICES UNIVERSITY OF ESSEX, UK... CHPC NATIONAL MEETING 2010 7 DECEMBER 2010
Civica Health & Social Care Paris EPR and Case Management. Transform the way you work
Civica Health & Social Care Paris EPR and Case Management Transform the way you work Introducing Civica Paris EPR and Case Management About Civica Care providers face unrelenting social, demographic and
Health Information and Quality Authority. To drive continuous improvements in the quality and safety of health and social care in Ireland
Introduction Health Information and Quality Authority To drive continuous improvements in the quality and safety of health and social care in Ireland Background Health Act 2007, establishment 15 May 2007
SAS CLOUD ANALYTICS MAY 2015
SAS CLOUD ANALYTICS MAY 2015 SAS SOLUTIONS ONDEMAND HISTORY Established in 2000 Formed as the Application Service Provider Group HP ES40 6/833: Tru64 Unix V5.1 TruCluster. 4 CPU s, 8 GB Memory 2 SAS CLOUD
Big Data 101: Harvest Real Value & Avoid Hollow Hype
Big Data 101: Harvest Real Value & Avoid Hollow Hype 2 Executive Summary Odds are you are hearing the growing hype around the potential for big data to revolutionize our ability to assimilate and act on
Big data coming soon... to an NSI near you. John Dunne. Central Statistics Office (CSO), Ireland John.Dunne@cso.ie
Big data coming soon... to an NSI near you John Dunne Central Statistics Office (CSO), Ireland John.Dunne@cso.ie Big data is beginning to be explored and exploited to inform policy making. However these
1 About This Proposal
1 About This Proposal 1. This proposal describes a six-month pilot data-management project, entitled Sustainable Management of Digital Music Research Data, to run at the Centre for Digital Music (C4DM)