CONTINUING EDUCATION COURSE SYLLABUS

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1 CONTINUING EDUCATION COURSE SYLLABUS 2015 COCA-I Annual Conference, Crown Plaza Fallsview, Niagara Falls, Canada November 5 th 8 th, 2015 DEFINING THE FUTURE OF PEDIATRIC ONCOLOGY CAMPING

2 On behalf of the 2015 Medical Education Planning Committee, Welcome! This is the first Medical Education program offered by COCA-I. Our hope is that the next 3 days will allow you to both hear about key topics within the pediatric oncology community, be informed, enlightened, participate in lively discussions, and come away with a learning experience you can implement for the benefit of your clinics, hospitals, camps and kids. COCA-I wishes to extend special thanks to Mary Ellen McKnight, Kay s Kamp, and Richard Brown, Camp Smile- A-Mile, for their extraordinary efforts. Thank You for Attending. We hope you enjoy the sessions! MEDICAL EDUCATION PLANNING COMMITTEE Dr. Mike Amylon, MD Emeritus Professor of Pediatrics (Hematology/Oncology/Stem Cell Transplantation) President-Elect COCA-I Brandon G. Briery, Ph.D Ph.D., Licensed Clinical Psychologist, Chief Program Officer/Executive Camp Director Camp CAMP Secretary, COCA-I Richard Brown, MSN, CRNP, JD, FAANP Medical Director, Camp Smile-A-Mile Sally Hale, MN, RN Executive Director, Camp Sunshine Dr. Mary Lacaze Duke University Medical Center Fellowship Pediatric Hematology/Oncology Pediatric Oncologist, El Paso Children s Hospital Medical Director Camp Courageous/Camp Bravo Mary Ellen McKnight, RN, BSN, OCN Medical Coordination Director - Kay's Kamp Secretary/Event Director - The Kaylyn Elaine Warren Foundation Dave Smith CEO Camp Fantastic/Special Love Past-President, COCA-I Dr. Kayeln Wagner, MD Pediatric Hematology/Oncology, Sanford Children s Specialty Clinic Medical Director Camp Bring it On Page 2 of 11

3 DECLARATION OF POTENTIAL CONFLICT OF INTEREST Speakers have been asked to disclose to the audience any real or apparent conflict(s) of interest that may have direct bearing on the subject matter of this program. APPROVAL OF EDUCATION UNITS An application for nine contact hours has been submitted to Wisconsin Nurses Association an accredited approver by the American Nurses Credentialing Center s Commission on Accreditation. Page 3 of 11

4 PROGRAM DAY 1 THURSDAY, NOVEMBER 5 TH 5:00-6:00Pm "Ethical Issues in Healthcare and Camping" Brandon G. Briery, Ph.D., Licensed Clinical Psychologist, Chief Program Officer/Executive Camp Director Camp CAMP (Children's Association for Maximum) Participants will be able to identify ethical issues that may affect decision-making at their camps. Participants will be able to access expert resources to help them guide decision-making at their camps. Participants will be able to access a peer network to help guide decision-making at their camps. Page 4 of 11

5 PROGRAM DAY 2 FRIDAY, NOVEMBER 6TH 10:45-11:45am Strategies to Advance Comprehensive Cancer Care for Children and Families: Highlights of the Institute of Medicine 2015 Workshop Rebecca Kirch, JD Describe recent trends in comprehensive childhood cancer care and the value of integrating pediatric palliative and psychosocial care in oncology to support the quality of life needs of children and families across the full life spectrum. List the menu of options for action to improve research, quality of care, and outcomes for pediatric cancer patients and their families that support survival with high quality of life. Explain the value proposition for pediatric palliative and psychosocial care in the triple aim context of better health, better care, at lower cost. Identify at least 3 available resources for helping improve palliative and psychosocial care understanding and integration with oncology services to improve care quality. Describe at least 5 action steps that every healthcare institution and clinician can take to improve delivery of optimal care for children with cancer and their families. 1:15-2:15pm Yesterday s guide to the future what we have learned from historical cohorts and how we have modified that knowledge Mark L. Greenberg, OC, MB, ChB, FRCPC, Senior Adviser, Policy and Clinical Affairs Professor of Paediatrics & Surgery, University of Toronto Identify the risks of late effects of childhood cancer treatment in long term survivors. Predict the risks of late effects in contemporary survivors. Predict the risk of late effects in radiated patients based on advances in contemporary irradiation techniques. Incorporate current understanding of individual variation in susceptibility to late effects. 2:30-3:30pm "Developing a Camp Concussion Policy" Tracey C. Gaslin, PhD, CRNI, CPNP, FNP-BC Identify the camp s risk profile for concussions. Identify camp staff who should be involved in developing a policy. List variables that might be addressed in a concussion policy. Outline a concussion policy appropriate for the camp population. Questions Page 5 of 11

6 3:45-4:45pm The Ins and Outs of the Hospital and Camp Partnership Dr. Orly Klein, MD, Johns Hopkins Clinical Fellow Identify how a camp may benefit from creating a relationship with a hospital. Describe how the camp and the hospital can work together to provide for the medical needs of the campers. Discuss how to approach the hospital to develop this relationship. Questions and Answers Page 6 of 11

7 PROGRAM DAY 3 SATURDAY, NOVEMBER 7TH 10:00-11:am Core Counseling Skills at Camp Bob Ditter, M.Ed., LCSW licensed clinical social worker, author, trainer Identify the 4 most common communication mistakes adults make with children and avoid them. Define and discuss ways to avoid the point of struggle. Identify and use verbal and non-verbal techniques of communication with children and teens. List the 4 major components of effective communication and use them with campers. 10:00-11:00am Pediatric Oncology Camp Healthcare Provider Roundtable Discussion Richard Brown, MSN, CRNP, JD, FAANP KayeLyn J Wagner, MD, MME Identify common concerns and healthcare issues that face oncology camping programs. Discuss ideas for providing medical care for campers, staff, and volunteers in a wide variety of oncology camping situations. Describe a variety of staffing models used to provide medical care at oncology camping programs. Recognize the important role that medical staff have in the overall goal of providing safe and effective oncology camping programs. 11:15am-12:15pm Working with Transgendered Youth at Camp Bob Ditter, M.Ed., LCSW licensed clinical social worker, author, trainer Discuss basic terms related to sexuality and transgendered youth. Summarize the 3 P s : Making changes in Policy, Programming and Practice. Choose a more nuanced range of acceptance and tolerance. 2:15-3:15pm Behavior Management at Camp Brandon G. Briery, Ph.D., Licensed Clinical Psychologist Participants will be able to use proactive strategies to increase the likelihood for appropriate behavior. Participants will be able to use redirection strategies to minimize the impact of inappropriate behaviors. Participants will be able to use intervention strategies as last resorts if proaction and redirection strategies fail. Page 7 of 11

8 PROGRAM DAY 2 SATURDAY, NOVEMBER 7TH (CONT D) 2:15-3:15pm "COCA-I Research Project" Dr. Mike Amylon, Emeritus Professor of Pediatrics (Hematology/Oncology/Stem Cell Transplantation) After completing this activity, the learner will be able to describe the current state of the literature on camping for pediatric cancer patients. After completing this activity, the learner will be able to discuss the way COCA-I member camps can contribute to advance the research in the area of children s cancer camps. After completing this activity, the learner will be able to describe the multi camp research that has been done in COCA-I camps already, and to participate in development of future study design. 3:30-4:30pm Bereaved Siblings: Nowhere to Express Their Grief" Dr. Mike Amylon, Emeritus Professor of Pediatrics (Hematology/Oncology/Stem Cell Transplantation) After completing this activity, the learner will be able to recognize the nature of grief in children and some of the ways it differs from adult grief. After completing this activity, the learner will be able to identify the dynamic in bereaved families that can make it difficult for family members to communicate effectively about their grief. After completing this activity, the learner will be able to describe the value of peer support for bereaved siblings and how to set up a bereavement support program at their camp. Page 8 of 11

9 FACULTY Bob Ditter, M.Ed., LCSW licensed clinical social worker, author, trainer Practiced psychotherapy with children and adolescents since Consults with over 600 children s summer camps in the US and Canada since Has authored 3 books and 17 training DVDs for children s summer camps. Brandon G. Briery, Ph.D., Licensed Clinical Psychologist, Chief Program Officer/Executive Camp Director Camp CAMP (Children's Association for Maximum) A behavioral psychologist with 24 years of experience in pediatric camps, 8 years of experience in academic medical school/children s hospital settings, research experience examining benefits of camps for children with pediatric conditions, and more than 15 years of active membership in professional camping and psychology associations on national and international bases. Dr. Mike Amylon, Emeritus Professor of Pediatrics (Hematology/Oncology/Stem Cell Transplantation) Thirty-four years of experience with Camp Okizu, providing peer support, respite, mentoring and recreational programs to children with cancer and their family members. Medical Director of the programs, and Vice Chairman of the Board of Directors of the organization. Presidentelect of Children s Oncology Camping Association International, and a Board member for many years. 35 years of experience caring for children with cancer and their families at Stanford University and Lucile Packard Children s Hospital Stanford. Richard Brown, MSN, CRNP, JD, FAANP A pediatric nurse practitioner at Children's of Alabama and Program Coordinator for the Pediatric Bone Marrow Transplant Program. Richard s clinical practice is in Pediatric Hematology-Oncology, Neuro-Oncology, and Bone Marrow Transplant. Certified as both a Pediatric Acute Care Nurse Practitioner and a Pediatric Primary Care Nurse Practitioner, and also a licensed attorney. His research interests include quality improvement, survivorship issues following pediatric cancer treatment and BMT, palliative care, ethics, healthcare law, pediatric critical care, bone marrow transplantation, quality of life and self-esteem in chronic childhood illness. Serves as the Medical Director for Camp Smile-A-Mile, Alabama s program for children with cancer. Page 9 of 11

10 FACULTY (CONT D) KayeLyn J Wagner, MD, MME Pediatric Hematology/Oncology, Sanford Children s Specialty Clinic A pediatric Oncologist and have extensive experience with managing these types of patients as well as serving as both the camp physician and medical director for Camp Bring It On. Certified by American Board of Pediatrics, and American Board of Pediatric Hematology/Oncology Tracey C. Gaslin PhD, CRNI, CPNP, FNP-BC PhD in Education; Camp nurse for over 17+ years; Serves as the President of Association of Camp Nurses; educator about camp healthcare for a variety of audiences. Previous presentations and publications on the topic of mild traumatic brain injury (MTBI), also known as concussions. Worked with CDC to conduct webinar on this topic for camps across the country. Rebecca Kirch, JD Rebecca Kirch is a consultant, thought leader, and public speaker sharing her expertise on palliative care, quality of life improvement, and pediatric patient care and family support. Nationally known as a health policy expert and advocate, Rebecca is dedicated to improving quality of life and quality of care for all adults, children and families in the setting of serious illness. Page 10 of 11

11 FACULTY (CONT D) Mark L. Greenberg, OC, MB, ChB, FRCPC The author or co-author of over 200 papers and many book chapters and an active Professor and academic with teaching responsibilities at the undergraduate, graduate and post graduate levels. Current research interests include long-term outcomes and quality of care for children treated for Hodgkin's disease, global health outcomes for survivors of bone tumors, cardiac outcomes in children treated with cardiotoxic drugs and interventions for children with neurocognitive impairment from treatment. Dr. Orly Klein, MD, Johns Hopkins Clinical Fellow Pediatric Hematology & Oncology: General Pediatric Hematology & Oncology. A clinical fellow in pediatric oncology at Johns Hopkins for three years. The medical director of Camp Sunrise, Johns Hopkins pediatric oncology camp, for three summers. Page 11 of 11

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