CANCER. Kaitlin Atkinson Family Resource Library Resource List.

Transcription

1 CANCER Kaitlin Atkinson Family Resource Library Resource List

2 100 questions and answers about cancer and fertility / Oktay, Kutluk H. -- Boston, MA: Jones and Barlett Publishers, This book provides practical, authoritative answers to 100 of the most common questions asked by cancer patients and survivors about fertility. FAM RC 262.O questions and answers about your child's cancer / Carroll, William L. -- Boston, MA: Jones & Bartlett Publishers, Answers questions about topics such as treatment options, post-treatment quality of life, and coping strategies. FAM RC 281.C4 C Alice au pays du cancer / Hennuy, Martine -- Bruxelles, Alice Éditions, Ce récit nous plonge dans le regard de l enfant, ses souffrances, ses interrogations mais aussi ses ressources imaginaires et créatives pour surmonter les épreuves de l hospitalisation brutale du parent. FAM RC 262.H Because I am a fighter / Callan, Jodi -- Dryden, ON: Alex Wilson Coldstream Ltd A story about diagnosis, hospitalization, treatment and recovery of Tori, a dinosaur with leukemia. Appropriate for Ages: 4-10 years. FAM RC 280.H57 C34 C is for cancer / Barton, Denise -- Canada: ArtBookbindery.com, This book is a good read for all families who are beginning the experience of having a child with cancer. It is an effective tool to share with friends and relatives, especially for those with young children. FAM RC 281.C4 B Ces enfants qui vivent le cancer d'un parent / Delaigue-Cosset, Marie-France -- Paris: Librarie Vuibert, Ce livre d'expérience et de réflexion prend la dimension d'un témoignage résoluement philosophique. Il vous permet de puiser dans ces échanges avec les enfants, la capacité d'assumer autrement vos responsabilités humaines et sociales auprès et au service de la personne malade du cancer ainsi que de ses proches. FAM RC 262.D Chasing rainbows: young adults living with cancer -- Vancouver, BC: Chasing Rainbows Productions, This upbeat documentary film is a dynamic, intimate portrayal of six young people who are living life while fighting for it. With passion and infectious laughter, the six participants provide a unique and refreshing perspective about what it is like to live with cancer when you are young. FAM RC C DVD Chemo, craziness and comfort: my book about childhood cancer / Keene, Nancy -- Bethesda, MD: Candlelighters Childhood Cancer Foundation, A resource book with warm, funny illustrations and easy-to-read text to help the child (and parents) make sense of cancer. It addresses medical tests, hospitalization and treatment, including chemotherapy, radiation, stem cell transplantation and their side effects. It offers tools to help children deal with the physical and emotional impact of both the cancer and the treatment. Appropriate for Ages: 6-12 years CHEO - Kaitlin Atkinson Family Resource Library Cancer Resource List Page 2

3 FAM RC 264.K Children with cancer: the quality of life / Eiser, Christine -- Mahwah, NJ: Lawrence Erlbaum Associates, This book is an attempt to describe how quality of life is affected at different stages of the disease process. Comprehensive reviews are provided of the impact on the child's physical activity, social life, and school and educational achievements. Special consideration is given to children with leukemia (one of the more common cancers) and brain tumors. Also, there is coverage of the effects on parents and also healthy brothers and sisters. FAM RC 281.C4 E Educating the child with cancer: a guide for parents and teachers -- Bethesda, MD: Candlelighters Childhood Cancer Foundation, Developed to help families and teachers cope with all aspects of educating a child with cancer, this book covers learning issues from infancy through adulthood. Chapters written by experts are balanced by the wisdom of parents who have "been there." FAM RC 281.C4 E The essential cancer treatment nutrition guide & cookbook: includes 150 healthy & delicious recipes / LaMantia, Jean; Berinstein, Neil -- Toronto: Robert Rose, This book has been written for both patients and caregivers and addresses the unique requirements of a patient undergoing cancer treatment. A patient's waxing and waning appetite and ability to maintain optimal nutritional requirements are severely challenged during treatment, so the book provides integral information on how to deal with these challenges. From managing the side effects of treatment with particular foods and nutrients, to make-ahead meals that can be frozen and reheated at a moment's notice, to foods that are simply more palatable to a patient depending on what stage of treatment they're in. FAM RC 271.D52 L Et mes enfants dans tout ça?: un guide pour les parents vivant avec un cancer du sein / Corsini, Linda J. -- Ontario: Canadian Breast Cancer Foundation, C'est une ressource complète qui aborde le large éventail de questions et de défis parents de jeunes enfants peuvent rencontrer quand un parent est diagnostiqué avec le cancer du sein. En fournissant des informations pertinentes, accessibles et pratiques pour répondre aux besoins complexes des parents et des enfants, il vise à aider les familles à faire face au cancer du sein. FAM BF 575.G7 C Every day counts: lessons in love, faith, and resilience from children facing illness / Sirois, Maria -- New York: Walker & Company, This book chronicles the remarkable stories of the children the author worked with on a pediatric oncology ward. It speaks directly to anyone who is sick, but also to therapists, doctors, and nurses, presenting an inside look at how they cope with the emotional strain of caring for the seriously ill, of being touched by grief yet not consumed by it. FAM RC 281.C4 S Faire face au cancer: un guide à l'intention des personnes atteintes de cancer et de leurs aidants -- Toronto: Société canadienne du cancer, Cette brochure s adresse aux personnes qui ont reçu un diagnostic de cancer ainsi qu à ceux et celles qui en prennent soin. FAM RC 281.C4 L CHEO - Kaitlin Atkinson Family Resource Library Cancer Resource List Page 3

4 A friend in Hope: a story about Hope's journey with a brain tumour / Zammit, Marisa -- London, ON: Brain Tumour Foundation of Canada, This story is written from the perspective of a young boy whose school friend, Hope, has been diagnosed with a brain tumour. He visits her in the hospital and learns about her illness. Appropriate for Ages: 4-10 years. FAM RC 280.B7 Z The guinea kid: the true story of a childhood cancer survivor / Ruth, Sharon -- Kemptville, ON: North Grenville Press, This book is about one family's journey through the unknown and terrifying world of childhood cancer and their experience at the Children's Hospital of Eastern Ontario (CHEO). FAM RC 281.C4 R I put the CAN in cancer / Gough, Imogen -- USA: Booksurg, This book is about a girl who lists all of the things that she can still do even though she has cancer. FAM RC 264.G In Mommy's garden: a book to explain cancer to young children / Ammary, Neyal J. -- Rockville, MD: Canyon Beach Visual Communications, This is a story to help young children understand cancer. Appropriate for Ages: 3-8 years FAM RC 264.A47 Living with childhood cancer: a practical guide to help families cope / Woznick, Leigh A. -- Washington, DC: APA, This book provides a coping guide and resource for cancer families and their support teams. The authors' intent is to build on hope, to present hard-won personal and professional expertise about how to live better with and after childhood cancer. FAM RC 281.C4 W Oliver's story: for 'sibs' of kids with cancer / Dodd, Michael -- Kensington, MD: Candlelighters childhood cancer foundation, Written through the eyes of six-year-old Oliver, this book focuses on the many questions that siblings have when their brother or sister is diagnosed with cancer, and offers constructive ways that they can provide support. Appropriate for Ages: 3-8 years FAM RC 262.D Project Hope: stories and images of triumph form child cancer survivors -- Toronto: Hilda Pearce Project Hope Foundation, Hilda, a six-time cancer survivor and 35-year Canadian Cancer Society volunteer, has long realized that the biggest barriers to the hope of a cancer patient and their family are isolation, and uncertainty. Hilda began to encourage people to share their experiences at spiritual gatherings, and founded an event called "Celebration of Hope", where survivors gather to share their stories of optimism. In the process, Hilda discovered that one of the most powerful impacts was delivered from the display of photographs of cancer survivors. These pictures encouraged people to open up, to share their experiences of pain and joy. Hilda saw the benefits of this experience and instinctively knew how she could reach out to more people, especially the families she had met at the Children's Hospital of Eastern Ontario (CHEO) in Ottawa, Ontario. FAM RC P Quand je serai grand, je serai guéri / Bruneau, Pierre -- Laval, PQ: Publistar, CHEO - Kaitlin Atkinson Family Resource Library Cancer Resource List Page 4

5 Écrit dans un style accessible à tous, et notamment aux jeunes, Quand je serai grand, je serai guéri! est plus que la biographie de Charles Bruneau, c est un formidable recueil d expériences de vie, un véritable message d espoir. FAM RC B Sammy's mommy has cancer / Kohlenberg, Sherry -- New York: Magination Press, This is the story of Sammy s mother s struggle with cancer and her recovery. Appropriate for Ages: 2-6 years FAM RC 262.K82334 Taking cancer to school / Henry, Cynthia S.; Gosselin, Kim -- Plainview, NY: JayJo Books, This fun-to-read storybook simplifies and normalizes a complicated childhood condition. When read aloud, other children can identify why a peer may be treated differently and begin to empathize with them. FAM RC 281.C4.H Ton combat pour la vie: traverser le cancer à 17 ans / Péchery-Condat, Florence -- Paris: Parole et Silence, Écrit par une mère pour son fils deux ans après la découverte d'un cancer très avancé, ce livre relate les moments d'espoir et de doute, de patience et de colère partagés au long des deux années de traitement avant la guérison. FAM RC 281.C4 P Valley of the shadow: a mother's journal through her child's battle with cancer / Clark, Linda Hovestadt -- Enumclaw, WA: Pleasant World, This painfully honest account, written from a mother's heart, describes the harrowing roller coaster ride a family endures when a child is diagnosed with cancer. It is the true story of the indomitable spirit of a child, the love and faith of her family, the skill and caring of dedicated physicians, and the sustaining power and grace of our God. FAM RC C When someone you love has cancer: a resource for young people -- Canadian Cancer Society, This booklet addresses the issues of cancer in the family, what cancer is and cancer treatment for young people. It includes short stories by children who have had a family member experience cancer. Appropriate for all ages. FAM RC 262.W When your brother or sister has cancer: a guide for teens / National Cancer Institute, In this booklet you will hear from other teens who are going through a similar situation, get ideas about who to talk to when you are feeling upset or alone and will teach you a little about cancer. FAM RC 263.W Where's mom's hair?: a family's journey through cancer / Watters, Debbie -- Toronto: Second Story Press, When Haydn and Emmet find out that their mother is going to lose her hair because of chemotherapy treatments, they try to cheer her up. Appropriate for all ages FAM RC 263.W You and your cancer: a child's guide / Cranston, Lynda -- Hamilton: B.C. Decker, CHEO - Kaitlin Atkinson Family Resource Library Cancer Resource List Page 5

6 This book is designed to inform children with cancer of the nature of their illness. The text follows the diagnosis and treatment of various cancers of three fictional children. It centers on the physical and emotional effects cancer can cause them, as well as the range of medical issues that they will encounter. FAM RC 281.C4 Y Young people living with cancer: implications for policy and practice / Grinyer, Anne -- New York: McGraw Hill, This book is for the professionals engaged in the care of young adults with cancer, support workers in the health services, young adults with cancer, their families, academics and students. This book uses original data gathered from in-depth research to present an account of what it is like to be an adolescent or young adult living with cancer. FAM RC 281.C4 G Web Sites Canadian Cancer Society / Société Canadienne du Cancer Childhood Cancers National Cancer Institute at the National Institute of Health Leucan Childhood Cancer Canada Foundation / Fondation canadienne du cancer chez l enfant Cancer About Kids Health We Care MacMillian s Cancer Support We Make Things Clearer, Europe s leading cancer information service based in London x Cancer in Children MedlinePlus American Cancer Society CureSearch for Children s Cancers - National Childhood Cancer Foundation and the Children s Oncology Group Teens Living with Cancer - From the Children s Oncology Group Hair Loss in Children with Cancer CHEO - Kaitlin Atkinson Family Resource Library Cancer Resource List Page 6

7 Hair Loss with Cancer American Hair Loss Association Cancer Webicina Apps Our Journey with Cancer From The Emily Center at Phoenix Children s Hospital Free Last updated June 2014 English From Google Play: The Our Journey with Cancer app is designed to: Be used from the time of admission throughout hospitalization, to facilitate conversations between families and the health care team; Help parents identify what they need to know before going home; Give parents a safe way to admit what they don t know or understand, and ask questions; Cue families on what they need to teach back to or demonstrate for their nurse or doctor. This gives the health care provider an opportunity to confirm information and skills and correct misunderstandings; Help families feel confident that they can safely care for their child at home after discharge from the hospital, know the signs of possible problems, and know how to respond. Available from Google Play and itunes icancerhealth: Cancer Care Management Platform From icancer Health, INC. Free Last updated Sept 2014 English, Spanish, French From itunes: This app put a variety of innovative tools at your fingertips all together in one place to help support you in managing key aspects of your care at home. Tools include: Health Tracker Monitor your treatment progress and make not of any side effects. Medication Management a virtual pillbox and medicine cabinet to help you keep track of your medications and alert you when you need refills. Medical Diary Note details about your treatment and any questions to ask your doctors during the next appointment. Caretaker Module allow caretaker access to loved ones who can remotely access your information to provide application support, monitory and emotional help. Inbox Privately and securely share your health related matters with loved ones and caretakers via the integrated messaging module. Nutrition track your food and liquid intake and view your nutritional history. Community follow, share and read about what other patients are discussing. Available from Google Play and itunes Pain Squad From the Hospital for Sick Children Free English Last updated Feb 2015 From itunes: The Pain Squad electronic pain diary is a tool created for kids with cancer to fight back against their pain. Developed by researchers at The Hospital for Sick Children, this is an evidence-based pain diary that plays like a game and is recommended for children 8 to 48 years of age with cancer. You can use this app to help keep track of your pain reports and set reminders for when to fill them out. Pain reports will help you record the intensity of your pain, where is occurs, CHEO - Kaitlin Atkinson Family Resource Library Cancer Resource List Page 7

8 what you ve done to help reduce the pain, and much more. Available from itunes Local Contacts Canadian Cancer Society, Ottawa Unit 1745 Woodward Drive Ottawa, ON K2C 0P9 Phone: Fax: Candlelighters Childhood Cancer Support Program - Eastern Ontario and Western Quebec 311 Richmond Road, Suite 201 Ottawa, ON K1Z 6X3 Phone: candlelighters@rogers.com Leucan Outaouais 336, rue Main Gatineau, QC J8P 5K3 Téléphone: Télécopieur: outaouais@leucan.qc.ca Fondation québécois du cancer 555 Boulevard de l'hôpital Gatineau, QC J8V 3T infocancer@fqc.qc.ca This guide provides medical material for information purposes only and is not intended to replace the advice of your physician. The information may not always apply to your individual situation. The guide represents material available in the Family Resource Library collection at CHEO. It is not intended to be an exhaustive list. Your local public library may also be able to provide valuable information. If you require materials in alternative formats, please contact the library at ext or at library@cheo.on.ca. Last Updated: May 2014 Links Tested: May 2014 CHEO - Kaitlin Atkinson Family Resource Library Cancer Resource List Page 8